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Elderly parents

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Need some help. Visiting my elderly father is excrutiating.

475 replies

needsomehelpwiththisone · 14/10/2018 17:17

I've done a new account for this post but I've been here for a long time.

I am desperate for some advice about visiting my elderly father, because I feel like the world's biggest bitch and I don't know what to do.

Background: We have nothing in common. We did not get on well when I was growing up. I am an only child (relevant). My mother is dead (also relevant).

A few years ago, dad, by then in his mid 80s (now late 80s) moved into sheltered accommodation about a half hour drive from me having previously lived seven hours away at the other end of the country. There was really no other option as due to my own poor health I could not make the visit to see him any more and he was all alone and beginnig to struggle on his own. Until the point where he moved, we saw each other once a year, perhaps twice at the very most - I would go "home" to visit for a couple of days at a time and we'd both be climbing the walls after a day. Visits were only ever two days at the most. My father is very insular. Conversations consisted of "Do you watch this television programme?" and nothing more. He was never interested in anything I had to say, so I didn't bother to tell him what was going on in my life. It was painful.

Now he lives near me and is older and still on his own, I am expected to visit once a week. In principle I agree with this, he's on his own after all and I'm his only living relative. But I find the visits absolutely excrutiating and I'm beginning to put off going. We are not close, and we have nothing to talk about. He doesn't listen to anything I have to say, so there's no point telling him anything. I arrive, I take him to the shop, but this only takes half an hour at the most, and then I don't know what to do. We sit there in silence. He doesn't do anything except watch television, so I can't ask him about his day. He's also very deaf, so conversation is almost impossible, even if he was interested in anything I had to say.

He also insists on phoning me twice a day just to "hear my voice" (he can make out my voice on the phone, apparently, but nobody else's). I understand why, he's very lonely, but I don't know what to say to him then either and vice versa. I have no clue how to relate to him at all and never have done. Our relationship growing up was fractious and argumentative and unpleasant - he's mellowed with age - but there are no nice memories to sit and talk about. I sometimes take him out for lunch, but again, conversation is so difficult that we sit and eat lunch in the pub in silence and then I take him home again.

Please, what can I do to make these visits more bearable for both of us? Not going is not an option, since he will call me and beg me to go if I don't. I dread going. I put it off for as long as humanly possible. And I feel terrible.

OP posts:
needsomehelpwiththisone · 15/10/2018 07:53
  • hounding. Sorry, typo.
OP posts:
Flowerypig · 15/10/2018 07:59

Hi! Sorry to hear things are so difficult with your dad. My dad had a period of complete withdrawing from the world too.
You said there are social things in his accommodation that he won’t engage with? Might he if you went along with him? I know a tea dance or a trip to the garden centre cafe or what ever prob isn’t that appealing for you- but if you made a big deal about how much you’d love to go, would he agree to accompany you? Would the sheltered living place let you tag along for a few trips if you explained? My dad woulndn’t have gone for himself- but might have done me a favour by attending for me. At least then the pair of you would be out of his room and just maybe he might feel more comfortable going along another time or meet someone there he could have tea with or something? Might take some begging and Insistance that you are both going- but once you’ve gone out with them once it might open doors.

needsomehelpwiththisone · 15/10/2018 08:05

Yes, perhaps. I'd have to see when they were and whether I could fit it in around work (my work is odd, time-wise), but that's worth looking into.

OP posts:
Annandale · 15/10/2018 08:14

Loved AliasGrape's post.

Take your own paperwork to do? Creative writing? Embroidery/knitting as a pp said? Sketching? There's a reason why women used to have a piece of 'company work' on the go, it means there is something you are doing, lossibly even something to talk about (unlikely). I do cross stitch as am too unskilled for most things.

mrsjackrussell · 15/10/2018 08:19

I'm wondering if having some psychotherapy might help you detach a bit. I hope I haven't offended you by saying that but I had problems with my mother and it helped me take a step back and feel better about not letting her manipulate and bully me.
I'm saying this because you mentioned your childhood and the ringing round to see where you were and he's still doing it now.

simplepimple · 15/10/2018 08:51

It's understandable that you feel you can't voice your feelings for fear of being an awful person because again you've been conditioned to believe this from your childhood.

Everyone has the right to express what they feel and feel what they feel - even if this feels awful. Someone might view some of your fathers behaviour as awful too but he's behaving in the only way he knows to get what he wants.

Perhaps in time it might be helpful to find a local carers support group where there would be lots of other people feeling the same.

Ihaventgottimeforthis · 15/10/2018 10:03

I read an autobiography of Marilyn Monroe when I was young and something always stuck with me - she used to struggle with making conversation, and would note down topics of things to talk about on cards.
Could you do something similar? Have a mantra to respond to your Dad's calls and questions with, it doesn't matter if it is repetititive, sounds like he doesn't listen anyway. Just a phrase like AliasGrape suggested that shows you are listening and understanding but also putting boundaries down. Then repeat repeat repeat.
Then note down also things to talk about, tv show titles, a telly thread from MN, anything to mention to fill half an hour.
Good luck OP. I don't think you're a bitch at all, just someone who is struggling to fulfil responsibilities to someone who is making your life difficult - family or not!

needsomehelpwiththisone · 15/10/2018 10:15

Thank you everyone.

Talking to him about even the mundane stuff, even small talk, is so difficult. He doesn't listen, either because he's not interested or he can't hear - some days are worse than others for that - and he just shuts down everything I say anyway by either not responding or sometimes he actually talks over me mid sentence. It's absolutely impossible to have a conversation.

OP posts:
needsomehelpwiththisone · 15/10/2018 10:28

Every time I try to say something to him, it's like he's trying to hurry me up to stop speaking so he can say something. He does the "yes, no, uh-huh" thing, but in a manner that makes it obvious he's trying to stop me talking so that he can say something. "Waiting for his turn to speak", but not saying that would lead to a conversation. It's usually something like "So what are we doing now?" or "The district nurse hasn't been today" or "There are different caterers here at the weekend".

I don't even know how to attempt a conversation with that going on. He talks over me just so he can "say things" - it's like they pop into his head and he has to say it right then. That's partly what makes the visits so difficult. When he's not doing that we're sitting in silence and I'm not even attempting conversation with him because I know he'll do that.

I know he can't hear well and that does not help, but he refuses a hearing test.

OP posts:
MintyT · 15/10/2018 10:59

Aliasgrape was brilliant, you need to adopt her attitude, and take back control. Do what she advises and let us know. If he interrupts you do the 5 second wait. Wait until he has finished speaking then carry on with what you was saying. Do you think you could say to him does he enjoy your visits tell him you don't and the reasons why.

needsomehelpwiththisone · 15/10/2018 12:04

I think it would break his heart if I told him how I felt. I don't think I could do that to him.

OP posts:
MachineBee · 15/10/2018 17:38

You need to find a way to pass back the baton back to him. He has abdicated all responsibility for his love to you. You need to hand it back to him.

Worrying about his clean sheets, answering his calls every time or protecting him from hurt feelings by letting him hurt yours is continuing to allow him to dump everything on you.

You need to be the adult here. He is behaving like a child, so treat him accordingly.

LillianGish · 15/10/2018 18:52

Aliasgrape your advice is brilliant. Print it out OP and tick it on your fridge.

redastherose · 15/10/2018 22:59

OP Aliasgrape's reply was really good. However, I also think that you have to accept that your Dad is not a nice man, is definitely is doing this to be controlling and doesn't actually deserve the level of sympathy and care that you are showing him.

Someone upthread said about you getting some counselling and I think that is the crucial bit of advice you really need to take. He is doing this deliberately and if you can have counselling that helps you disengage emotionally then you will be able to put in place coping strategies that will help you give whatever level of support you feel comfortable with and not what he demands of you.

To all intents and purposes you are being emotionally abused by your Dad and no one should be able to abuse another person no matter if they are a child/parent/partner with impunity.

He know what he is doing, he has done it all your life to a certain extent and now he is using your kindness as a stick to beat you with. Just because someone is elderly and infirm doesn't give them the right to be abusive.

Likewise with the guilt you are carrying around with you like a weight weighing you down, you need to let go of this and counselling will help you to detach yourself emotionally from him.

Please try and remember his loneliness is of his making. He could socialise with other residents, he could have seen the befrienders, he could even get a taxi to the pub and have a pint he is choosing not to do these things therefore his loneliness is his issue NOT yours.

It is often said on threads about unhealthy relationships that you are not responsible for another persons happiness and that is as true in these circumstances as it is when it is one partner blaming the other.

Notverygrownup · 15/10/2018 23:17

Two thoughts OP.

  1. I started calling my dad with dementia by his first name, rather than call him Dad. It helps me to detach whilst I am looking after him, and takes me out of daughter mode. It was strangely liberating.
  1. It is OK to feel this about your parent, honest. It is completely normal to feel trapped by their illness/ manipulated/guilty etc. You are his daughter but you are also human, and caring for someone in the final years of their life is exhausting and draining. (I've just bought a book called The Selfish Pig's Guide to Caring. The title made me smile, as I was feeling awful about not being patient enough/ a constant source of love and joy etc. It reminds me that I don't have to be perfect. I'm allowed to feel grumpy/frustrated/trapped. I can only do my best, and don't have to live up to other expectations.)

Look after yourself. When Dad got his dementia diagnosis I got a phone call from the council for a carer's assessment for me. It was brilliant. Someone came and had coffee and listened to me moan for an hour. The Alzheimer's Society phone line is also very helpful. Ring them with questions if you have any. They may not have all of the answers but they will hear you and sometimes that helps a lot.

LuluJakey1 · 16/10/2018 01:58

Could the anxiety be panic attacks OP? I ask because my mum (at an earler stage when she was able to go to the shops still) suddenly started ringing me a lot and would say things like 'I don't feel right', 'I was worried', 'I don't want to go out', 'I just wanted to ring you', 'Can you come across?' It went on for a few weeks and it drove me mad. She could not explain it to me and just wanted me to drop what I was doing and drive straight there. When I got there she would be fine after 10 minutes and I would take her out and she would enjoy it. But I would dread the phone rinng and sometimes was so exhausted by it all I would cry all the way home. One night I remember driving the 20 miles home going 'Fuck off, fuck off, fuck off' inbetween sobbing and feeling guilty.
Anyway, I decide I was calling her GP. He came out and dud a house call and diagnosed the anxiety as panic attacks. He explained it and gave her a mild tranquiliser to take twice a day. After a week she was back to herself because she was able to see my aunt and go out and her life felt normal and she never took the tranquilisers again.
Would he see a GP if you went with him?

Aintnothingbutaheartache · 16/10/2018 02:11

I have a friend who was in a very similar situation. I used to go and visit with her as it made the whole thing easier for her and her elderly relative really enjoyed seeing someone new.
It does sound heavy going op and I think you’re amazing for sticking with it having read your back story.
So, I really suggest getting a good mate to come along too, you can go for a drink afterwards and it’s someone who will support you

Snitzelvoncrumb · 16/10/2018 02:15

Could you visit twice a week? Once to take him to the shop, then just stay for a cup of tea then leave. One evening during the week pop in to drop something to him like a cake, only stay five minutes. It might help him to have more contact, and you won't be there long. Maybe get a crossword book and read the clues out to him, say you need help. Could you google the tv shows he likes and try to talk about the show that way? With the phone start a routine, call him at six o'clock at night, just quickly. He will get used to it and may hope stop calling all day.

AlmaGeddon · 16/10/2018 02:51

He sounds very very selfish and abusive and as if he has always been like this. He seems a sad old man who is determined to stay a sad old man. He refuses to change his situation. I don't see that yourvisuts bring him joy, happiness but maybe a bit of comfort in that he keeps control over your life, detracting from your happiness in the process. I'm surprised everyone on this thread is so tolerant of him. Is abuse acceptable if you are old?
Maybe his behaviour is a type of mental illness.

But even so Why should the OP be made ill by the stress he causes her. Imv you do the minimum for him to save your own sanity but probably your guilt won't allow that, but he will be an anxious unhappy man regardless.

SusieQ5604 · 16/10/2018 03:31

Why can't they strip the bed and wash linens/blanket while you are visiting?

SusieQ5604 · 16/10/2018 03:32

The laptop:reminiscing you tube sounds like a great idea!

SusieQ5604 · 16/10/2018 03:36

Why can't he have more than one set of bedding so they can put on clean bedding when they strip the bed to wash dirty sheets??????

needsomehelpwiththisone · 16/10/2018 07:31

God, why aren't people listening about the bedding thing? I've already explained this several times. He's got tons of spare bedding, the problem is that he won't allow them to to do it, and because he still has mental capacity medically, they are NOT allowed to force him to have it done. He refuses to let them change the bed because he would have to get the washing out of the machine himself, and he keeps saying "it won't work, it won't work" and then he cries in distress.

The carers are only there for half an hour a day. They are there to make sure he's changed his clothes and taken his medication and to clean his bathroom (which has wasnt doing himself, so it was filthy). They can't "do the washing" because they're not there for long enough, even if he would allow them to do it, which he won't. All they can do is strip the bed, put the washing in the machine and leave, and he refuses to allow that.

And was a whole row of question marks really necessary? Do you think I'm stupid, that I haven't thought of this?

OP posts:
needsomehelpwiththisone · 16/10/2018 07:34

And why do you think the carers can come "while I'm visiting", or that I can magically be there every time the carers are there? He doesn't live in a care home - these are care agency staff that come in for half an hour, if that, once a day.

I do wish people would listen.

OP posts:
needsomehelpwiththisone · 16/10/2018 07:37

@LuluJakey1 He says the anxiety is a side effect of his blood pressure medication, but he refuses to get it changed. Again with the old mantra "it won't work out".

OP posts: