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Elderly parents

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Need some help. Visiting my elderly father is excrutiating.

475 replies

needsomehelpwiththisone · 14/10/2018 17:17

I've done a new account for this post but I've been here for a long time.

I am desperate for some advice about visiting my elderly father, because I feel like the world's biggest bitch and I don't know what to do.

Background: We have nothing in common. We did not get on well when I was growing up. I am an only child (relevant). My mother is dead (also relevant).

A few years ago, dad, by then in his mid 80s (now late 80s) moved into sheltered accommodation about a half hour drive from me having previously lived seven hours away at the other end of the country. There was really no other option as due to my own poor health I could not make the visit to see him any more and he was all alone and beginnig to struggle on his own. Until the point where he moved, we saw each other once a year, perhaps twice at the very most - I would go "home" to visit for a couple of days at a time and we'd both be climbing the walls after a day. Visits were only ever two days at the most. My father is very insular. Conversations consisted of "Do you watch this television programme?" and nothing more. He was never interested in anything I had to say, so I didn't bother to tell him what was going on in my life. It was painful.

Now he lives near me and is older and still on his own, I am expected to visit once a week. In principle I agree with this, he's on his own after all and I'm his only living relative. But I find the visits absolutely excrutiating and I'm beginning to put off going. We are not close, and we have nothing to talk about. He doesn't listen to anything I have to say, so there's no point telling him anything. I arrive, I take him to the shop, but this only takes half an hour at the most, and then I don't know what to do. We sit there in silence. He doesn't do anything except watch television, so I can't ask him about his day. He's also very deaf, so conversation is almost impossible, even if he was interested in anything I had to say.

He also insists on phoning me twice a day just to "hear my voice" (he can make out my voice on the phone, apparently, but nobody else's). I understand why, he's very lonely, but I don't know what to say to him then either and vice versa. I have no clue how to relate to him at all and never have done. Our relationship growing up was fractious and argumentative and unpleasant - he's mellowed with age - but there are no nice memories to sit and talk about. I sometimes take him out for lunch, but again, conversation is so difficult that we sit and eat lunch in the pub in silence and then I take him home again.

Please, what can I do to make these visits more bearable for both of us? Not going is not an option, since he will call me and beg me to go if I don't. I dread going. I put it off for as long as humanly possible. And I feel terrible.

OP posts:
LethalWhite · 17/10/2018 21:54

I really feel for you OP, your suffering is shining through.

I don't mean the following comment to be a dig at you, but rather a thoughtful reflection.

You mention that your dad catastrophises, that's sort of what you are doing on this thread. The phone-calls are horrific, he's stalking you, it's a living hell. You could see the missed calls, shrug and ignore it, but you are choosing to let it be a massive psychological burden. In the same way your dad could realise it's the 25th of the month and choose to try and think rationally, and not get himself into a state, but he chooses to.

You've mentioned that when your dad's carers ask him if he's had a wash he replies 'do you think I'm some sort of moron'. And that's exactly how you are behaving to some people on this thread who's suggestions you don't like: 'Go away, fuck off, do you think I'm some sort of moron.'

You are unconsciously mirroring your dads behaviour.

You can't control many things in this situation, but you can control your own behaviour Go to the GP and talk about your feelings. Get some counselling, and consider whether you a re depressed and would like to try an antidepressant.

I hope things get easier for you soon Cake

needsomehelpwiththisone · 17/10/2018 21:55

How the hell is that meant to be helpful?

OP posts:
Ollivander84 · 17/10/2018 21:57

I don't think the OP is depressed. I think she is tired, pissed off and at the edge which quite frankly anyone would be
It's in the back of your mind that if you ignore the calls it could be urgent or it could make it worse
Plus the guilt of "it's your father" type thing

needsomehelpwiththisone · 17/10/2018 21:59

Great. He's the one constantly harassing me, yet I need the drugs? Right. Sure.
If you haven't got anything constructive to offer, please do not post.

OP posts:
needsomehelpwiththisone · 17/10/2018 22:02

If I ignore the calls they simply will not stop. He will call over and over again every two minutes until I pick up.

OP posts:
Ihaventgottimeforthis · 17/10/2018 22:04

I'm somewhere between buckingfrolics and lethalwhite.

You don't HAVE to cope with this man. He's making your life a misery, and pushing you to breaking point. Talk to social and his GP, show them this thread, say if you don't get more help you will have a breakdown.
Or, go no contact, change your phone number, tell the housing you're not coming any more, and walk away. Social service system will kick in and your dad will be looked after. And he will no longer be your problem. He is not worth putting yourself into an early grave for.

LillianGish · 17/10/2018 22:09

You cannot change your father - he is a 90 year old man, all you can do is change the way you respond to him. There have been some very helpful suggestions on here about how you can do that - I think this is actually a very useful thread for others in a similar situation even if you don’t always find the suggestions helpful. You are certainly not alone in feeling at the end of your tether caring for an elderly relative.

ArabellaUmbrella · 17/10/2018 22:18

Actually I've been thinking very similar thoughts to LethalWhite. There's been so much helpful and well intentioned advice and support for you on this thread OP. I'm not actually sure that anything anyone can say will be helpful to you. You seem very stuck in your mindset. I have every sympathy but you can only change this situation if you are willing to take some control. I don't really know what you are gaining from this thread.

Doidontimmm · 17/10/2018 22:19

Could you block his number, tell him you will call him once a day and that he cannot call you? The home can contact you in an emergency? If you block his number it won’t show missed calls Flowers

ParoxetineQueen · 17/10/2018 22:19

Ok, OP, you are going to dismiss me like all the other helpful posters but here goes anyway.
Your father has anxiety, you cannot cure it or help it, even if you sat in front of him 24/7 he would still worry. You HAVE to manage your reactions it is making you anxious too. There have been lots of suggestions for useful practical steps you could take.
You can talk to his GP, I had to do it for my Mum, he or she won’t discuss his health with you but they will listen and take it on board.
Your father is in a safe place, he has carers coming in and a warden to monitor the situation.
If in the very unlikely event he kills himself then you would NOT be responsible. You insist he has capacity.
You WILL feel guilty whatever path you take, it goes with the territory, I too have had to take tough decisions and have had to settle for the least worst scenario.
We didn’t ask to be born, our parents chose to have us. We have a right to a life too. I have escaped for a couple of weekends and feel so much better for it.
Whoever it is who tells you that you could/should do more is not a friend, though I very much think it may be the voice in your head. No one who has had to help a difficult parent through their last days would judge you.
Lastly, take a walk in a graveyard, it will be full of indispensable people yet life goes on, don’t let it be you.

Findingdotty · 17/10/2018 22:26

Not sure about the phone calls apart from change your number, block his but unblock, ring him once a day, then block it again. But if something ever happens and he can’t ring you I think you would struggle with this. This is harsh but if he is that old and unwell you won’t be doing it forever.
I think when you are visiting him perhaps try bringing a map of the uk or the world along and show him and ask where he has been during his life.
Also there are some books called Pictures to Share which are designed to promote conversation with older people. They are books featuring large old photos on a number of themes such as childhood days, sporting, holidays. You may find them at your local library too. www.picturestoshare.co.uk

OTincognito · 17/10/2018 22:29

As my username suggests - I'm an OT. I'm in this line of work and I completely understand. It's absolute shit.

To the people who are suggesting going into a care home - no. He wouldn't meet the need for state funded residential/nursing care. Even if he did have a need he'd have to agree.

OP can't do anything without his consent as he still has capacity in this area.

The mental capacity act is much more robust now. It's decision specific. It's about retaining the information etc. We have to assume people have capacity until proved otherwise. Anecdotal stuff doesn't help. At present he has the right to make bad decisions.

It does seem like this is a relationship problem. By that I mean that his health and anxiety are what people are focusing on but he's a belligerent old git making his daughters life a misery. It's the worst of all worlds as he won't accept help, and nobody can impose help upon him.

The carers are right, they can't make him wash or change his bedding. If he doesn't consent then they can't do it. There are ways of encouraging etc but I can well imagine how many options have been explored but he 'declines'.

OTincognito · 17/10/2018 22:31

I have read all your posts OP, and I don't know what to suggest. You've clearly done an amazing job so far. There's just no winners here are there?

can I just ask what he did for a living?

needsomehelpwiththisone · 17/10/2018 22:34

OT, this is exactly what I'm saying, but people are choosing not to listen.

Even if he would agree to go into a care home - which he wouldn't - it would not solve ANY of the practical problems. It would just make him even more bloody miserable, which would likely ramp up the anxiety and obsessive behaviour problems tenfold. If he couldn't get to a phone to phone me, he would be beside himself with anxiety. He would still refuse care, because he doesn't believe he needs it.

It would solve nothing. Nothing at all. And would likely make everything worse.

OP posts:
needsomehelpwiththisone · 17/10/2018 22:39

OT, it's an anxiety problem as much as a belligerent old git problem, although that is an issue as he was always a belligerent git even before he was old.

His problem is severe anxiety. He knows he has anxiety - he even says to me "it's my blood pressure medication, one of the side effects is anxiety", but he refuses to go to the doctor to get it changed. When it's time to take his blood pressure pill, he calls it his "anxiety pill".

He KNOWS he has severe anxiety, but can not rationalise doing anything about it because he gets into such a panic. If he can't get hold of me, he honestly thinks I'm dead in a ditch somewhere and calls over and over again in a blind panic until he gets reassurance that I'm not.

I think he probably has OCD of some kind.

I don't want to be too specific about his job (can PM you if you like), but he worked in a very high-octane world, travelling all over the world, where people he worked with were regularly killed.

OP posts:
OTincognito · 17/10/2018 22:43

where people he worked with were regularly killed. ohhh perhaps that sort of explains some of the catastrophic thoughts he has.

Do you know of anyone from that works that is still around? Not that he keeps in touch with - I know you've said he doesn't.

needsomehelpwiththisone · 17/10/2018 22:44

No, they're pretty much all dead now. A couple still around, but I don't know them personally and have no way of contacting them. He doesn't contact anyone any more anyway.

I've PMd you.

OP posts:
OTincognito · 17/10/2018 22:46

Ok 👍 I'm on the app so will hop onto desktop site.

sometimes we've had success linking peoples working life/role into rehabilitation in older age. That was why I asked.

I'll look at pm 

needsomehelpwiththisone · 17/10/2018 22:48

Often on the notes from the care agency, there's something that says he talked to them about his work. It's about all he does talk about.
He can remember everything from back then, it's just his short term memory that he has issues with.

OP posts:
needsomehelpwiththisone · 17/10/2018 22:52

OT, here's a good example. When Mum went into care, the staff at the home she went into asked Dad about her life and things that had happened in it, so they'd have something to relate to her with.

He wrote them a 2 page A4 thing about all the "important" things that had happened in her life, and do you know what, it was all full of "tragedy". Not one positive thing. All he'd concentrated on was that she'd had a tragic life, and this bad thing happened, and that bad thing, etc etc. Her brother had died in an accident, and her mum had died of TB, and her stepmother was wicked and threw her out, and she was ill then, then, and then, and... etc, etc. He thought what he'd written was great. It was all disaster and tragedy, every single bit of it.

This was 10 years ago.

He's always catastrophised. This is not a "dementia thing".

OP posts:
OTincognito · 17/10/2018 23:00

I agree op - the talk of dementia isn't helpful.

It's just too easy to assume.

It's similar to people trying to give naughty kids an ADHD label.

By this I mean outsiders not people who know what's really going on.

NoSquirrels · 17/10/2018 23:04

Even if he would agree to go into a care home - which he wouldn't - it would not solve ANY of the practical problems. It would just make him even more bloody miserable, which would likely ramp up the anxiety and obsessive behaviour problems tenfold. If he couldn't get to a phone to phone me, he would be beside himself with anxiety. He would still refuse care, because he doesn't believe he needs it.

If he is assessed as lacking capacity, then in a nursing home environment he simply would not be able to refuse medication changes that were beneficial to him. He wouldn’t have access to a phone to harass you with - the staff would manage his interactions.

Things could change in this situation for the better.

needsomehelpwiththisone · 17/10/2018 23:07

Yes, exactly. And I can see exactly how that would go - they'd have him drugged up on tranquilisers so he wouldn't compos mentus enough to refuse personal care.

Would you want that for your father?

Moot point, since he has capacity.

OP posts:
NoSquirrels · 17/10/2018 23:09

they'd have him drugged up on tranquilisers so he wouldn't compos mentus enough to refuse personal care.

Would you want that for your father?

No I wouldn’t “want” that but I would choose that over him being in extreme distress. Life is full of shit choices.

OTincognito · 17/10/2018 23:13

@NoSquirrels from what op has said, he really wouldn't meet the criteria to be moved.

The other part of the mental capacity act is around the least restrictive options... so care at his current accommodation would usually be increased first.

So even if he lacked capacity with regard to his health and welfare there are pathways to explore first.

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