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Elderly parents

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Need some help. Visiting my elderly father is excrutiating.

475 replies

needsomehelpwiththisone · 14/10/2018 17:17

I've done a new account for this post but I've been here for a long time.

I am desperate for some advice about visiting my elderly father, because I feel like the world's biggest bitch and I don't know what to do.

Background: We have nothing in common. We did not get on well when I was growing up. I am an only child (relevant). My mother is dead (also relevant).

A few years ago, dad, by then in his mid 80s (now late 80s) moved into sheltered accommodation about a half hour drive from me having previously lived seven hours away at the other end of the country. There was really no other option as due to my own poor health I could not make the visit to see him any more and he was all alone and beginnig to struggle on his own. Until the point where he moved, we saw each other once a year, perhaps twice at the very most - I would go "home" to visit for a couple of days at a time and we'd both be climbing the walls after a day. Visits were only ever two days at the most. My father is very insular. Conversations consisted of "Do you watch this television programme?" and nothing more. He was never interested in anything I had to say, so I didn't bother to tell him what was going on in my life. It was painful.

Now he lives near me and is older and still on his own, I am expected to visit once a week. In principle I agree with this, he's on his own after all and I'm his only living relative. But I find the visits absolutely excrutiating and I'm beginning to put off going. We are not close, and we have nothing to talk about. He doesn't listen to anything I have to say, so there's no point telling him anything. I arrive, I take him to the shop, but this only takes half an hour at the most, and then I don't know what to do. We sit there in silence. He doesn't do anything except watch television, so I can't ask him about his day. He's also very deaf, so conversation is almost impossible, even if he was interested in anything I had to say.

He also insists on phoning me twice a day just to "hear my voice" (he can make out my voice on the phone, apparently, but nobody else's). I understand why, he's very lonely, but I don't know what to say to him then either and vice versa. I have no clue how to relate to him at all and never have done. Our relationship growing up was fractious and argumentative and unpleasant - he's mellowed with age - but there are no nice memories to sit and talk about. I sometimes take him out for lunch, but again, conversation is so difficult that we sit and eat lunch in the pub in silence and then I take him home again.

Please, what can I do to make these visits more bearable for both of us? Not going is not an option, since he will call me and beg me to go if I don't. I dread going. I put it off for as long as humanly possible. And I feel terrible.

OP posts:
needsomehelpwiththisone · 17/10/2018 20:37

I can't. There is no way to make peace with it, there's no way out of it. He still needs soomeone to take him shopping, to deal with all his financial stuff and his post, to get on to the fucking carers backs when they don't do what they're supposed to, to make his doctors appointments and get doctors out to see him and take him to the memory clinic and hospital appointments. There is no way out of it, because there's nobody else to do that.

OP posts:
Isittimeforbed · 17/10/2018 20:37

Oooh that's a bit personal. I've already told you I'm in a very similar situation, many of us are. As has been said to you many times: get a new phone, give him that number and then put it somewhere else and only look at it at set times that you have told him you will. He is in sheltered accommodation; care staff can contact you in an emergency. That is a perfectly reasonable course of action.

NoSquirrels · 17/10/2018 20:41

He still needs soomeone to take him shopping, to deal with all his financial stuff and his post, to get on to the fucking carers backs when they don't do what they're supposed to, to make his doctors appointments and get doctors out to see him and take him to the memory clinic and hospital appointments. There is no way out of it, because there's nobody else to do that.

Indeed. I agree.

So how can you feel better about that? How can you treat it more like a job and less like a prison sentence?

You need to emotionally detach, whilst still being physically present.

needsomehelpwiththisone · 17/10/2018 20:45

I can't emotionally detach while he's hounding me and begging me to go and see him. It's impossible.

OP posts:
needsomehelpwiththisone · 17/10/2018 20:49

I already have a job and I'm struggling with that because of my illness and disability. I have nothing left to give. I don't want another job. I don't want to do any of this.

OP posts:
Isittimeforbed · 17/10/2018 20:50

He doesn't need to be taken shopping, you have chosen to do that which enables him not to make alternative arrangements. My Dad doesn't go shopping and copes just fine with that, I take him what he needs. I do his financial stuff and deal with his post: this is minimal. If he has no friends and doesn't do anything he can't have much post to manage? He gets patient transport to hospital appointments and I meet him there so it gives me minimal stress. Its not ideal, but I feel I do as much as I need to, he is not abandoned and I don't feel so stressed that I make personal insults to people who try and help me.

cptartapp · 17/10/2018 20:52

My DM didn't want to do it anymore either. She cracked and said enough. Her social worker had my GM in residential care within a week.

NoSquirrels · 17/10/2018 20:59

I can't emotionally detach while he's hounding me and begging me to go and see him. It's impossible.

No - it’s nit impossible but it currently feels impossible.

You can only change yourself, and your own reactions. That is where you must start.

needsomehelpwiththisone · 17/10/2018 21:03

Isittimeforbed, why are you doing this? Is it giving you a kick? Are you having fun being deliberately obtuse? READ what I'm saying.

I haven't "chosen to take him shopping", he HAS to go shopping. He only gets two meals a day where he lives and still needs to buy toiletries, food for breakfast, etc. He can not get to the shop on his own and refused the volunteer service. There is nobody else to do it. If I didn't take him shopping he wouldnt have any breakfast, toiletries, or anything to wipe his arse with. Even if I get his shopping and take it to him, it's still a job I have to do.

He can not get hospital transport. He wouldn't have a clue where he was going, or who he needed to see, or even why he was at the hospital. I took him for his brain scan last week and got up to make a phone call and he followed me. He can't be left on his own in a hospital waiting room because he wouldn't know who he was seeing or why he was there. He would not have a clue what to do in a hospital or where to go, or even when his appointments were if I didn't keep track of the letters and take him, because he can't see the letters because of macular degeneration and doesn't understand them anyway.

Just today he's phoned me saying he's had a "nasty letter" about his rent. Everything, all his post, is, to him, a "nasty letter", and he phones me in a panic about it. Every single time. I still don't know what this letter is, I'm going to have to go over and read it, because all he will say on the phone is "but there's six pages of it and it's a nasty letter" in a panicked voice. I couldn't even get him to tell me who it was from.

Which bit of this are people not understanding?

Who will deal with all this shit if I don't?

OP posts:
needsomehelpwiththisone · 17/10/2018 21:10

There "can't be that much post"?

He gets post from

The pensions people, every time they increase or decrease it by a penny here and there and he phones me up saying he's had a "nasty letter" about his pension thinking he's not entitled to it

The housing benefit people - he doesn't understand any of this and phones me up thinking he's in trouble and they're going to stop paying his rent and he'll be out on the streets

The housing association - they send him letters about his rent and his service charge and he doesn't understand them

The care agency - when they send an invoice for the care fees every month

Hospital appointments - he thinks he's ill; he had a letter about his brain scan and assumed it meant he had a brain tumour

Flu jabs - they've sent him three letters about flu jabs and every time I have to phone up and check that he's on the list for one because he thinks they've forgotten him

His bank statements - if he hasn't had his bank statement by the 25th of the month, he phones me up panicking thinking that that means someone's taken all his money. This happens every single month.

The post office account - he gets a statement and phones me saying he's had a "nasty letter" from the post office

I have to deal with all this shit, which means going over, phoning these people up while he sits next to me (and can't hear on the phone when they ask him for his security details, which he doesn't know anyway), because I don't have bloody POA and I can't deal with anything on his behalf.

But no, he doesn't get "any post", what possible post could he have. Jesus fucking christ, of course this stuff needs dealing with. And there is nobody.else.to.deal.with.it

OP posts:
needsomehelpwiththisone · 17/10/2018 21:14

Everything is a fucking "nasty letter". He can't get a letter. It has to be a nasty one. Jesus I'm so sick of hearing "I've had a nasty letter".

OP posts:
LethalWhite · 17/10/2018 21:15

Could you ask him to save the post to open when he’s with you? It’s still you dealing with it, but at least it stops the stress of all the panic.

Flowers OP. Is there anything nice you could do for yourself this weekend?

needsomehelpwiththisone · 17/10/2018 21:19

He saves all his post for me to read and deal with when I get there, but still has to phone me up in a panic about every single normal letter.

Not really, no. This Saturday I'm working all day and then on Sunday, when I really really want to just have a day of doing nothing, I'm going to have to go over there and deal with all this stuff because I couldn't do it yesterday because I wasn't well, and I've had to reschedule all my students from yesterday over the rest of the week as a result, so I've got no other time to get over there.

OP posts:
needsomehelpwiththisone · 17/10/2018 21:21

He panics about everything. Everything normal. Haven't had a bank statment, panic, must have lost all my money. Had a letter from the pensions people, panic, it's a nasty letter. And then he phones me and puts it on to me like it's the worst thing in the world that's ever happened to anyone ever. And he's been doing this for years. This isn't brought on by "dementia", this is anxiety and catastrophising, and it's long term. Mum dealt with all the finances and he didn't know how to do it. I'm so sick of everything having to be a fucking disaster all the time.

OP posts:
NoSquirrels · 17/10/2018 21:22

You need that Power of Attorney.

And then you need to wait for the assessment from the memory clinic etc as he does sound demented - even if he’s always been somewhat like this, he clearly cannot really cope with every day stuff now and his behaviour is being amplified.
Once you have that assessment things will hopefully improve as you’ll be able to refute the ‘capacity’ argument and make better plans for the future. Which might mean a residential home etc.

You must stop telling yourself this cannot change, is totally impossible etc. Every time you do that you are reinforcing the same pattern of behaviour in yourself that your dad is displaying.

You need a short term coping strategy.

Reposting CornishClio’s iPhone advice:

OP - I have an iPhone.

Go to settings, then phone then notifications and switch them off. Then you wont see missed calls. That might be a start to relieve some of your stress. Put it on Do not disturb and check it at your will not his.

Isittimeforbed · 17/10/2018 21:25

You get his shopping at the same time as you get yours so it's not an extra job. Then drop it round when you make a brief visit to him once or twice a week as you chose. Then he is not without anything and not going out won't kill him, but if he decides it's unacceptable for him not to go out he can make use of the volunteer service. You are enabling his choice not to do that, that's basic psychology. That is perfectly reasonable way to help yourself.

You don't seem to know how hospital transport works. They collect and drop to the exact clinic where they're supposed to be, they don't leave people to wander around the hospital themselves. They are familiar with this type of situation. As I've said (if you'd like to take some of your own advice and read the posts) I meet my Dad there so he is handed from hospital transport into my care in the waiting room as due to complex needs he also needs me to be at every single appointment. That is perfectly reasonable way to help yourself.

As per previous post many of us have given you a perfectly reasonable course of action regarding the phone call situation to take back some control but you don't seem to want to try that.

So no, I'm not being deliberately obtuse, but I don't understand what you're trying to achieve with this thread and the various rants. I hope swearing and throwing around insults has helped you deal with some of your anger and frustration though.

thesandwich · 17/10/2018 21:26

Your situation sounds really tough. With mil we got her mail redirected to us via post office. Still meant it needed dealing with but made it on dh’s terms. Please try carers association. You can’t go on like this.

buttybuttybutthole · 17/10/2018 21:26

Op I understand. The psychological feeling of duty is the worst. And having to do it for someone you don't like and appears to not like you, well that's just hell. With no support it is just impossible.

I think you need some space because as others have said you're on the edge and that making it all feel a thousand times worse.
You feel completely trapped and alone 

You need to go to your GP. Tell them how you're feeling, tell someone in real life. ASK for help from anyone in RL. Tell someone you're on the edge. You have to ask for some help. 

needsomehelpwiththisone · 17/10/2018 21:27

You know what though, with the POA? It's just one.more.bloody.thing I have to do and deal with. We have to go to the doctors to get it done and it's one more appointment to make, one more visit to do, one more taking him somewhere and explaining everything when I'm already physically broken from just trying to manage my own health and my business... I just can't deal with any more. I'm so tired. I can't deal with any more of this.

OP posts:
needsomehelpwiththisone · 17/10/2018 21:29

That is no different from me taking him. I still have to be there at the hospital. It's still one more bloody thing I have to do and deal with. I know exactly how hospital transport works, I've used it myself. But thanks for assuming I'm an idiot. Look, please just stop commenting. You're not helping, you're just being obtuse.

OP posts:
needsomehelpwiththisone · 17/10/2018 21:31

Can I make an appointment with his GP?

There's no point making one with mine, we're in completely different areas. They wouldn't be able to do a thing about this. I don't even know if you can see someone else's GP.

OP posts:
Fortysix · 17/10/2018 21:32

Don't post any more tonight. Go have a bath and switch your phone off.

needsomehelpwiththisone · 17/10/2018 21:33

I tell you who needs to not post any more tonight: people who are being obtuse and making stupid suggestions and assuming I'm some kind of bloody moron.

OP posts:
buckingfrolicks · 17/10/2018 21:38

Ok how about reframing this.

Your DF if was younger would be, from how you have described him, considered by me (and I'm guessing many others) to be a grade A shit of a man. He has made your life a misery, abused your good nature, exploited your time without a moments consideration of you as another living being. He has ruthlessly exploited your position as his daughter, abandoned any jot of self responsibility, and is a big old toddler bawling without mercy for your attention. He's lazy, shiftless, lacking in self respect, expects the world to take care of him, is selfish and boring and frankly may as well shuffle off this mortal coil tomorrow.

The only reason no one is saying that - other than the fact I may just be meaner than others - is because he's an old man.

Do we have children to squeeze and bully and terrorise them into Their own living hell on earth? No we fucking don't, not in 21st century Britain.

Your dad is using you. Let him suffer. Let him go without, let him not speak to a soul. FFS you don't have to do any of the stuff you're doing. What exactly do you owe him?

Ollivander84 · 17/10/2018 21:39

Yes you can see his GP. You're at breaking point and sadly that's the point you often need to be at to get some help
See his GP - explain (forget being calm etc, don't bother about crying, they need to see HOW bad it is)
POA - when you can
Social services
Your own GP if you need to, they can give you advice etc

I know my dad reached breaking point caring for my Nan and when that happened suddenly there was help available

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