Attendance of a child with diagnosed health conditions not good enough.

[EducationalWelfareMakeMeCry]

I am not handling this well.

This is not the first time this bunch have done this.

I took my child out of school for a spell to homeschool, as we couldn't cope with school and being hounded over attendance.

My child went back for year ten, and is ending that year now.

The lowest attendance level in the past was about 48%.

The more the pressurisation the worse attendance gets as it depresses my child. Their bullying and pressure is why it got so low in the past.

Left alone the attendance has been the best ever this year high 80's. I got a letter a few weeks ago and another today. They are on attack mode again.

They are abusing laws put in for truants to bully ill children so they can box tick. I am fuming. I told them to take me to court. The school seem to want nothing to do with it and it's all the LA now. School have been nice to my child since I told them we would be inviting the press to court if they take me.

My child has the same condition as a girl who appears in the Daily Mail health section today. She also has the same condition as the girl who has produced the Deliciously Ella cookbooks.

My child struggles to attend is in bed as soon as she gets home. Has her feet raised as they are so a hey this evening. She is exhausted and has no life outside trying to pass her GCSE exams and these shit heads are saying it's not good enough.

I am not paying g their fines and if she wants a day off she will. They are going to set targets for attendance without me. That's best if I go to the meeting I will go volcanic at them. What happens if I go to court?

These people and medical people have given me PTSD from all the years of hell they put us through. I can't go near them. I am fine intreacting with other people in society, I avoid these people who hurt us so I don't get upset/cry or get angry.

I guess nobody is going to offer any advice on court, just advice on how to be a good girl run around to please others, don't rock the boat. Well I tried that, it made me miserable, now I will try this.

No-one here has suggested that. In fact, quite the reverse. We have all suggested that you take control rather than be constantly on the back foot. It's good that you have sent them some information. Get a consultant's letter too, or a GP's who knows the history. And talk to the school before the problems arise again next term and keep the ball in your court. BEtter than the magistrate's court.

If your dd is seeing Dr N, my child saw her once as that is all I can afford. The NHS referred her years ago and she never got to see her on the NHS as the list closed before dd got to see her.

No drugs were suggested for pots for any of us by the specialists. Yes I was seen at UCLH's autonomic unit myself.

Dd will continue as she is going to school, doing her physio, drinking as advised and so on.

If they want to cause trouble that is their choice. We will live our lives.

I agree with stressed. A letter from a POTS linked consultant to the school and LEA would help hugely.

Have you been diagnosed with PTSD by a Psychiatrist?. PTSD caused by distressing involvement with a school?.

I understand this is a difficult and distressing experience for you but your comment they have 'mutilated your bodies and minds' seems quite extreme. Can you elaborate?.

Have you got a day to drive us about, a free hand a wheelchair and five hundred pounds to help me get that? As they are not around locally or on the NHS.

My child hasn't just got Pots she has more going on than that.

I saw a psychiatrist years ago when they took us to court accused us of making it up when we were ill, I had no ptsd then just depression no other mental health issue. They have tortured us for years. My gp diagnosed ptsd a few months ago. I think I got ptsd after the court case and it gets worse from each attack or mistake they make.

Body mutilations one example is from an operation not carried out properly according to a specialist which causes me horrific pain. To fix it due to where it is, is impossible.

They starved me of oxygen post operatively another time, wouldn't listen to me when I said the oxygen mask has nothing running into it. I had to wait to be given my mobile, phone someone and they phoned the hospital to plug the oxygen mask into the gas cannister.

Loads upon loads of things like that happen.

They can't write reports properly and it terrified me incase it brought us back to court.

Some small examples.

A GP can't diagnose (and should not suggest they can) PTSD which is a complex psychiatric condition. They can have a suspicion but they should then refer you to secondary MH services for an assessment with a qualified Psychiatrist.

I understand you are in extreme distress OP but you say education, medical and social services have all been involved and don't understand your family.

That might be the case but it sounds like you've had a lot of professional interventions which you feel were incorrect. And you feel that your family is being persecuted in some way. You use abusive terms talking about these interventions.

You may be right or you may have a viewpoint of the situation which in itself is causing concern. I think you should try to engage in this process but it's up to you.

I will give you a link via pm, it's not just me, there are legal teams and specialist medical teams who feel our community are being victimised.

Sertraline.

I have to pick up a new prescription. I took it for a while it made me very shake and physically ill it helped me not think about horrible memories all the time.

I was doing on on my own then I had to attend A&E and had a dreadful experience from a HCP, EW and something else all triggered me into a mess again.

I had been getting happy again and they brought it all back again.

I am not normal anyway in all likely hood as a couple of weeks ago research showed people like us have different brain structure.

So why do people keep expecting us to be normal we are not and never will be normal.

The whole thing is one and the same. She is ill you say get a letter it's not that easy. I spent thousands already and bent over bacowards with no attitude for years for these people it will never be enough. This attitude is a result of years daling with fucking horrible people who tried to fit square pegs into round holes and still are. If they were so great why this result they are not great and why victim blame me for their mistakes?

I have asked the thread be removed.

Do you class your daughter in that "we are not normal"?
My Dd has other serious health problems along with her POTS, she is the strongest, bravest, cleverest person I know.
We seriously thought we would lose her at one point. You need to get a grip and separate your issues from your Dd's.
You are her mother, the only person that can really fight her battles.
Yes we are seen by Dr N, Dd was only referred to her last year, so her list wasn't't closed then

We'll in 2012/2013 the NHS were not taking new referrals that's why I paid private for all I could. The last time I emailed tge secretary there was still nothing on the NHS.

I think you need to get a grip too.

My dd can deal with things herself as she will have to for life.

If you want a code pendant relationship with your child and make her a guinea pig that's your choice.
I choose differently.

In what way are you 'not normal'? I don't understand.

It really sounds like you have had a horrendous time of it and that is a shame.

The language you are using is really rather extreme and not everything you are saying makes sense which makes me worry about your thought processes.
A GP would not diagnose PTSD; a psychiatrist might.
And Sertraline on its own is unlikely to resolved the complex issues that contribute to PTSD.

My impression is that you need more help, not less, but that will only ever have a chance to work if you don't feel that everybody is an adversary, but that whoever gets involved in your problems (or indeed your daughter's problems) is part of a team and together you try to find a way forward.

I am sorry you have not found this thread helpful and wish you all the best for the future.
I think some of the advice here has been very good - do take control and access help that is there; it's not perfect and not every problem has a solution, but most things can be improved.

Bye not engaging.

I got your PM OP. Honestly, I can't see how your 'community is being victimised' and now you've sent that to me, I remember your previous threads about how you felt the 'authorities' as in schools, medics, social services and the psychiatric system have let you down, abused you and told lies about you.

I don't want to upset you or for you to feel I'm judging you harshly but I'm a HCP and I'm concerned about your mental health.

It may be a result of you being 'persecuted' by professionals as you say but that doesn't really matter when it comes to the welfare of your child. Please engage with all agencies - they have the best interests of your child at heart.

You can say what you like about me and my relationship with my daughter. I've tried to give you advice, you chose to ignore it, not really sure what you came on here for.
If this is how you react to people trying to help you, I can see why you're in such a situation with school.
I wish your daughter luck with her future.

Have you talked to your MP? If not book an appointment with him/ her, as they should hold regular surgeries. Take any medical info with you and tell your MP you are feeling hounded and it has and is making you ill. After all it was parliment you put in place all the regulations and targets about attendance, so hopefully they take on board these issues.
But sorry you are going through this