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Eating disorders

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My DD has bulimia.

314 replies

StolenStollen · 02/02/2014 10:01

As the title really. My dd has bulimia. I found out on the 5th November 2013 and she's been in a eating disorder unit since.
Currently, she weighs 3st 4 Sad and last Wednesday she had a nasal-gastric drip inserted as she wasn't eating.
I am looking for advice and hands to hold please. I don't know if I'm posting this in the right place.
How can I not blame myself?

OP posts:
StolenStollen · 06/04/2014 12:56

She can be fed more when her body can process food better. At the moment, what she gets is all she can process. If she has reached 4st this week, she may be able to have 4 tube feeds a day instead of 3. If she can have that then she will gain more weight.
The doctors are very careful. They don't want to do any more damage to her body. They update me regularly and they tell me that what they are doing is good because it is doing xyz for her.
I am putting all my faith in the doctors ye. I have to because if I don't, I don't think I could carry on.
I'm doing ok. I am tired. I am running on empty and have been for a while now.

OP posts:
yegodsandlittlefishes · 06/04/2014 16:16

I'm glad that they are keeping you well informed and that they should be able to give her another feed per day soon. It's good to trust them, and am glad they are careful.

If there is anything we can do, let us know. ((((Stollen))))

StolenStollen · 07/04/2014 22:00

The older, more experienced doctors have a much better manner than recently qualified doctors. I don't know why that is but it's something I've found out.
There is a meeting, every other month to discuss treatment etc. The last one should have been in March but no one could do the same date as eachother. I always make room, the doctors can't reschedule things.

OP posts:
ZingSweetCoconut · 07/04/2014 22:08

sounds like it's all under control and a good plan put in place.
I can not imagine how nerve wrecking it must be though.
Do look after yourself sweetheart and remember just because it's tough it doesn't mean you can't find or do things that make you happy!
if something makes you laugh, good! do not feel bad about it!

I think you are both doing really well,so proud of you! Smile
Keep going!

yego
you as well, big hugs to you all my lovely friends!

StolenStollen · 09/04/2014 21:19

She's hit 4st! At weigh in today, she weighed in at 4st 1.
I am over the moon.

OP posts:
ZingSweetCoconut · 09/04/2014 23:22

such wonderful news, so happy for you!
yay!Smile

yegodsandlittlefishes · 10/04/2014 07:44

4 pounds/2kg in a week! So happy she has gained weight again, and is over that first milestone. Flowers
Hope you are able to sleep better now, and your DD will soon have the strength to do some crafts.

StolenStollen · 10/04/2014 22:05

It feels like a weight has been lifted. I can begin to relax and stop looking for signs that she may be loosing because i know the tubes working.
Her meals are being increased to 4 feeds a day. This is good as it means gain will hopefully increase.

OP posts:
yegodsandlittlefishes · 10/04/2014 22:23

Yes and it's a good sign that the doctors consider her body can take/process the extra food intake without it harming her. I hope she will gain weight at a faster weight too, and the 5 stone milestone will be passed in a few weeks.

StolenStollen · 12/04/2014 17:27

It's a great sign that the doctors think she can cope with more feeds. It means she's gettimg better.

OP posts:
SecretStationaryAddict · 13/04/2014 16:07

It's stollen under a new name Smile.
DD is doing well today, she's been in the garden today.

yegodsandlittlefishes · 13/04/2014 16:25

:D That's good. Hope the weather is fine where you are.

ZingSweetCoconut · 14/04/2014 15:50

I see you got rid of your Christmas name - just in time for Easter!Grin

how are things today? glad she is getting stronger.
hope you are ok! x

SecretStationaryAddict · 14/04/2014 19:55

DD is really well today. She's not as lethargic and her concentration level is improving. She's watching films, reading etc and following the plot for longer.
Transfusion tomorrow Smile.
Any easter name ideas? I can't get into this one and you have really good ideas Zing.
How are you Zing? Hope everythings well with you , mr zing and the mini zings.
Hope your doing well Ye, thank you for being here Flowers xx

SecretStationaryAddict · 14/04/2014 19:57

The weather here is lovely. Really nice spring weather Smile.

yegodsandlittlefishes · 14/04/2014 20:02

All sounds good, happy to hear all this.
We are at coast for a few days. I am finding some of it a bit distressing (DD has upped her activity level and keeps running off. Also seeing her cuts in the warm weather. Other things too. But, on the whole it is OK and we are having a kind of a holiday.

Names:
SimilarSimnel
HotCrossBunting

ZingSweetCoconut · 14/04/2014 20:16

all reasonable well here.
had a meltdown on Saturday as still no moving date, and really worried about DS5's school place (will find out on 16th) etc.

but we'll have a 4D scan tomorrow which is exciting, added benefit of a few childfree hours!Grin

so glad she is having more good days now!Thanks

I'll think of Easter names tomorrow, while waiting.- but I do like HotCrossBuntingSmile

ye hope you and your DD are doing ok as well!

SecretStationaryAddict · 14/04/2014 20:16

I'm sorry your dd has upped her activity level and you can see her self harm marks. ((((((Hug)))))). I'm here if you need anything Ye, always around.
The coast sounds lovely. I wish I could have a holiday but I would feel bad leaving F.

yegodsandlittlefishes · 14/04/2014 21:39

Thank you. Flowers

I don't mind her running and rock hopping if she eats proper meals, but she hasn't been. I had a meltdown myself this morning as DD2 and DH have been enabling the ED behaviour, and I am supposed to be having a holiday from managing it and watching out, but felt I had to step in. Got lots of jibing and argument from DH. (DDs had run off the into the distance by this point). We did all sit and discuss it a bit and the afternoon was much better on that front.

This isn't a holiday we've booked, DH had a job nearby for a few months and so rented a little flat, and we're just using the end of the lease/rental. Have some plans for later in year but not booked yet and am now thinking I can't take the distress of being away from home with ED goings on, so not sure what to do about it.

SecretStationaryAddict · 14/04/2014 22:11

Your DH needs to help you Ye, you can't do it all alone. He shouldn't enable the ed behaviour and he should ask your other dd to stop. It is not just his break - it is yours too.
I am glad you managed to talk with him and that the afternoon was better.
I don't know about booking a holiday somewhere a long way from home. Would you like a change of scenery? It's tricky really because your in the routine that your dd prefers at home and if you go away, that could be forgotten by others (not you) and distress may be caused.

xx

SecretStationaryAddict · 14/04/2014 22:12

4D scan sounds great Zing. There was nothing like that when I was expecting.
I hope you find out about your house soon and ds5 gets into the school you want xxx

yegodsandlittlefishes · 14/04/2014 22:24

Yes, a 4D scan sounds great, how exciting! Grin

Everything crossed for DS5's school place, zing. Hope there is some movement on the home moving front for you soonest. Will you be able to rent for a bit when you sell, or move in on the same day you move out?

HotCrossBunting · 14/04/2014 22:28

.
I like this name Smile.
Its secret Grin

yegodsandlittlefishes · 14/04/2014 22:49

Heehee! And very mumsnetty too! I'm amazed it wasn't already taken. Grin

ZingSweetCoconut · 15/04/2014 22:15

perfect NC! I love it!

now I can cal you Hot! coz I bet you are!Wink

some news:

  • scan went well, so happy to see baby's little face. just gorgeous!
  • we should exchange next week and moving date of 23rd May is agreed for now.
  • we'll find out about school tomorrow evening.
I try not to think about it.

now back to HotTeen - all the best for the weigh-in tomorrow!

fx for all things.
(we are like three musketeers!Grin )