Vaccine injury ( not anti- vax)

[ArseInTheCoOpWindow]

My first 2 were AZ. No problems.

Had Moderna booster last year. 1 week after became really weak and exhausted (really weak and exhausted too weak to do anything) 5-6 months to return to health

Had Pfeizer booster 2 weeks ago. After a week, became so weak l couldn’t walk, and ended up in A and E. Since then I’ve lost my sense of smell, blinding headaches, weak as a kitten.

So, it seems that both vaccines have triggered some response. DH says he’s heard about people getting Long Covid from vaccines. DS who’s a journalist on national press says he’s heard of it too but ‘no one cares as they won’t be open about it’

Theres a subreddit with 5000 members, and l have found various things on it. It’s nickname is Spike Disease as it’s to do with the protein spike.

Does anyone else know anything? (please no anti vaxxers, I’m struggling enough as it is)

So an antibody test would just tell you you'd previously had COVID - this could be any time in the last year (give or take- it seems to be very variable how long someone tests + for ABs after infection) and wouldn't give any indication as to whether the infection had caused long term symptoms.

I don't think a GP would order this, and you'd be forking out around 50 quid to have it done privately and it wouldn't be too useful I don't think.

I had 2 AZ and had no side effects and in Dec 2021 I had my Pzfier booster and had side effects.

I keep getting a text about booking another booster but I'm really unsure.

I've had my flu jab which I have every year but I'm really not sure about the boosters now.

My friend is a nurse, she took blinding headaches and was kitten weak after her booster which was Moderna. Saw neurologist who was more concerned that one of her pupils was enlarged. Apparently its was cranial nerve neuropathy. Not sure what the treatment was but she is back at work, still having serious headaches. I'm not vaccinated for Covid was advised to wait by my GP asI have auto immune disease but to be honest, even if I'd been advised to have it, I would have refused. I was left very ill many years ago after an operation and basically gaslit by the consultants that the health problems were all in my head. They weren't. I feared the same thing happening with any potential covid vaccine harms. I hope you get some respite OP, it must be so exhausting.

Totally agree with you. I've seen more illness associated with the vaccine and not Covid itself.

@bronzepig

You'd like to think they would treat it, but they're saying as it's vaccine related and they know so little about it they are reluctant to treat anything because of any further effects.

They're currently entering into a legal case, as he went from healthy, thriving, successful 38 year old man to now virtually incapable of working.

It's shocking.

Yes and a further legal case as he is virtually incapable of working.

It's so sad for the family. He is 38. He had 1x vaccine and this happened.

You're lucky not to know anyone who died with Covid. None of my immediate family were affected but several of the kids I teach lost grandparents and in one case, a parent.

I've reacted after three of the four vaccines: coughing, runny nose, choking for several weeks. The choking is scary - I sometimes need a thump on back to get breathing again. I've told my GP about it and she won't give an opinion although she concedes it is quite likely: but it's a new vaccine programme and they just don't know. I am aware of other people in the same state.
I am now minded to see how things play out before I have next year's vaccine. If the pandemic isn't getting worse, and other European countries don't reimpose restrictions, I probably won't bother.

No, they won’t give opinions. So you just feel so lost and get told it’s in your head.

I tell you what though.
This illness and vaccine are both bloody interesting.
Isn't it fascinating how the posters who denied Covid existed and refused to wear masks and be vaccinated also know people irrevocably damaged by the vaccine.
You couldn't make it up.
Oh. Hold on a minute.

@PAFMO this is why it’s so hard to find info on it. I just end up in some anti vax wormhole

@PAFMO yes, I am lucky I lost nobody to Covid. But I did lose my sister in law to suicide, my cousin to a fatal accident and 2 grandparents to old age.

It's not only Covid that takes people lives.

@PAFMO - Personally I find it fascinating that the same posters who denied lockdowns would destroy lives and the economy and who denied that some people might have genuine reasons for feeling unable to wear a mask/have a vaccine are the same people who now assume that anyone bringing up the possibility of vaccine damage is a liar. I don't know anybody personally who was harmed by the vaccine and I hope and pray that I never do. However, I would also never be so arrogant as to dismiss other people's concerns about their health as lies. Excess deaths among young people are still raised worldwide to concerning levels and it appears nobody has a definitive reason why. Surely it would be bloody negligent not to investigate every possible contributing factor, including vaccine damage, even if only to rule it out?

I get where you're coming from op as I'm currently suffering a number of things that only randomly arrived after my first vaccine back in 2021. It may be a coincidence granted but really????

I did have my second and my booster but am seriously considering not to have any more. I'm a shadow of the person I used to be just struggling on trying to live a life feeling like poo.

I saw a lovely nurse and she's agreed that it is strange that everything arrived then and hinted I may have LC after vaccine and an infection back in march this year.

Hope you feel better soon x

Yeah, it seems long Covid after the vaccine is a thing that exists but isn’t talked about.

Excess deaths among young people are still raised worldwide to concerning levels and it appears nobody has a definitive reason why. Surely it would be bloody negligent not to investigate every possible contributing factor, including vaccine damage, even if only to rule it out?

Of course @nojudgementhere - which is where there is such intensive post-marketing surveillance going on.

The fact that we've given billions of doses now means there's power to detect even very rare safety signals - if vaccination genuinely was causing sudden death, it would be very obvious by now.

The coronavirus vaccines don't cause long COVID.

By definition, long COVID is an umbrella term referring to anyone who has long term complications from a coronavirus infection. This is really heterogenous term - and could refer to someone with fatigue, or someone with lung damage. Researchers are working on classifying patients into subgroups to try and make this easier to manage.

This doesn't mean that people aren't experiencing long term symptoms from vaccination, but it's not the same thing.

I think it's important to distinguish between the two, because the idea the coronavirus vaccines could cause COVID was a conspiracy theory started by anti-vaccine groups in the UK, so tends to be brushed off by HCPs. It's also been jumped on by these groups offering snake oil "cures" like ivermectin.

But it has caused symptoms identical to Covid in my situation.

Ivr had all my jabs, am not an anti vaxxer at all. But that vaccine has made me really quite ill twice. And it needs saying. It may not have caused along Covid, but it’s caused symptoms identical to Covid. That’s why it’s called ‘mimiciry’ syndrome

I'm getting the impression you're quite happy to fall down such holes.

I'm not calling you an "anti-vaxxer", or anything like that, and I'm sorry if the thread has made you feel that way.

I've already said side effects from vaccination need to be taken seriously, and you deserve proper investigation and treatment.

But I think you should focus on the fact you have XYZ symptoms, which need investigation, rather than claiming you have long COVID from the vaccine.

What a load of shit.

Im sick of trying to find out what’s wrong with me and ending up deep in some crap about Ivermectin or some such,

You know nothing about me at all. What a stupid facile comment.

Have you reported what you believe to be your vaccine side effects OP?

coronavirus-yellowcard.mhra.gov.uk

I hope you feel better soon. Vaccine side effects that last more than a couple of days are very rare, but they do happen occasionally unfortunately. That doesn't mean the idiot Malhotra is worth listening to. The benefits still outweigh the risks at a population level.

Op, I would list all your symptoms and treat them one by one in isolation rather than as a whole. As someone above said it's probably a range of things you are experiencing. As with me, a gp would bundle them together and say xyz is long covid.

This "intensive post-marketing surveillance" must be pretty secretive!

Well it's not though is it? Many people have linked you to various documents & research articles looking into this @EcoTourist

Mumsnet is full of people complaining that their concerns have been minimised or ignored by GPs etc

I would say this isn't specific to vaccine related concerns to be honest - our healthcare system is atrocious right now. I have been waiting for a POTS referal for 11 months (and it's irrelvant whether my POTS was worsened by COVID, vaccines or neither).

This is a seperate issue though - someone not being able their GP to take their concersn seriously is unrelated to being able to report it, or the amount of research currently happening surrounding this