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Vaccine injury ( not anti- vax)

204 replies

ArseInTheCoOpWindow · 27/10/2022 10:55

My first 2 were AZ. No problems.

Had Moderna booster last year. 1 week after became really weak and exhausted (really weak and exhausted too weak to do anything) 5-6 months to return to health

Had Pfeizer booster 2 weeks ago. After a week, became so weak l couldn’t walk, and ended up in A and E. Since then I’ve lost my sense of smell, blinding headaches, weak as a kitten.

So, it seems that both vaccines have triggered some response. DH says he’s heard about people getting Long Covid from vaccines. DS who’s a journalist on national press says he’s heard of it too but ‘no one cares as they won’t be open about it’

Theres a subreddit with 5000 members, and l have found various things on it. It’s nickname is Spike Disease as it’s to do with the protein spike.

Does anyone else know anything? (please no anti vaxxers, I’m struggling enough as it is)

OP posts:
hangryyhippo · 29/10/2022 21:20

JosephFrancis · 29/10/2022 21:19

@hangryyhippo it's the outpatients clinic I attend which now have this "no, definitely not the vaccine" line, but the cardiologist who attended me in A&E and saw me in follow up definitely said it was a vaccine side effect and definitely put that in my notes. I wonder if it's because it's still a problem a year later that they're saying it can't be the jab? Perhaps they see the carditis caused as an acute problem only

I'm really sorry to hear this and cross for you - I would definitely argue if you feel up to it because it's just ridiculous any HCP would say this. Carditis itself can been acute or long term x

hangryyhippo · 29/10/2022 21:23

Beyond anything else surely it's really important to have this established! Patients with previous episodes of viral carditis are encouraged to be vaccinated because they are higher risk, but presumably if you had carditis due to this particular vaccine, you would be contraindicated against having it or similar again.

You do need to know regarding boosters etc going forward.

JosephFrancis · 29/10/2022 21:25

@hangryyhippo I've been invited for a booster repeatedly but I am too afraid to go, pathetically, because I would always encourage anyone to go for their vaccinations, but I really am worried. I don't want to be one of those "If only we had listened" cases!

ArseInTheCoOpWindow · 29/10/2022 21:36

@JosephFrancis im afraid to go for my flu jab. And I’m absolutely pro vaccine. I want them all!

OP posts:
hamstersarse · 29/10/2022 21:41

what this thread shows is that informed consent has not been part of this rollout.

the fact there is so much argument about what the possible side effects may be tells us all that clearly.

although, saying that, my mum had her booster last week and was given a sheet of possible side effects so that is progress, but one of them was “if you have had breast cancer, talk with your GP”. That’s a new one on me!

EcoTourist · 29/10/2022 21:41

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines.

hangryyhippo · 29/10/2022 21:51

It must be so frustrating for people like the OP, continually being told that there is no problem

Except no one has said that to the OP? @EcoTourist

Posters have pointed out that yes side effects do happen and her symptoms should be investigated, whether they are due to the vaccine or not.

I and others have previously said quite a few times there's a real risk of things being dismissed as being due to the vaccine (or LC), when it reality there is another health issue that needs addressing. And whether the vaccine is the underlying cause or not, her symptoms themselves must be taken seriously.

Have seen literally no posts saying "there's no problem".

saltedcaramel1 · 29/10/2022 21:59

behaviour of "What's that? Vaccine? No, definitely can't be, it doesn't do that." must be familiar to you? We've even seen it on this page from @saltedcaramel1 !

Pointing out that a vaccine cannnot cause a monogenic inherited disorder, which has a very high penetrance (i.e, environemental exposures do not trigger it to emerge like polygenic disorders), is hardly controversial @EcoTourist

I have previously said many times if someone has vaccine side effects they need to be taken seriously and have proper investigations done - and that real harm is being done by anti-vaccine grouos who muddy the waters when it comes to genuine vaccine side effects.

Nice try to smear me though Hmm

EcoTourist · 29/10/2022 22:13

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines.

nojudgementhere · 29/10/2022 22:22

@saltedcaramel1 - Are you talking about the poster who has Ehlers-Danlos Syndrome again as I thought it had already been established that she thought the vaccine might have exarcebated her already existing condition rather than causing it? Your post just looks like you're chucking around lots of very long, important sounding words to try and prove how clever you are. I think it's clear that several posters feel that their symptoms have not been taken seriously by medical professionals and that vaccine damage could therefore be going under the radar as it's not being recorded accurately - a bit like the debate over how many people died with or of Covid. A lack of transparency throughout the pandemic and the heavy handed pushing of vaccine passports and mandates has unfortunately created a real sense of distrust which will take time and far more ethical behaviour on the side of the pharma companies/govermental nudge departments to rebuild.

dishie · 29/10/2022 23:57

Sometimes coincidences do happen, so personally in your position I would try to get a private PCR test (you can order them from Bupa I think) just to rule out a current covid infection (symptoms could be different from April). It sounds unlikely, but I'd want to be sure. And then I hope you manage to get some good treatment for your symptoms soon, whether they're a rare vaccine side effect or something completely different.

EmEllGee · 30/10/2022 01:32

@nojudgementhere

Sure! “I’m not right wing” - but then sources a right wing publication for their blinkered view on mask efficacy…

nojudgementhere · 30/10/2022 07:22

@EmEllGee - I'm genuinely not right wing. Sorry to disappoint you and challenge your prejudices. I'm actually a big supporter of Mick Lynch and the Enough is Enough campgaign and am appalled by the current inequality in this country.

Regarding the source I chose, I just picked the first mainsteam one I found as I couldn't be bothered to spend ages scrabbling around to prove something that the majority of people already know, which is that mask mandates in a real world situation do not have a significant impact on infection rates. However, I do think supporting people with being able to isolate when contagious would, and better ventilation in schools/hospitals/trains etc. would, and so wish more would be done in these areas.

The point I tried to make to you earlier was that it seems to have become acceptable to shut people down these days by not addressing the points they are making but instead attacking the person themselves by attaching all kinds of unsubstantiated claims to them - i.e. that they are a racist/misogynist/right wing etc. etc. I think this is an unhelpful and aggressive way to try and win an argument as all it does is shut down conversation and any chance of learning about another perspective. It is also often plain innacurate as your judgement about me proved earlier. During Covid we were actively encouraged to be divided, to snitch on our neighbours, to judge anyone who wouldn't/couldn't follow the rules in the same as we were. Surely we're all bright enough to see through this now and start to move on?

EmEllGee · 30/10/2022 09:01

amp.theguardian.com/commentisfree/2022/aug/18/the-far-right-disinformation-pipeline-that-now-spans-the-globe-goes-straight-from-trumpland-to-australia

You’ll only find Covid scepticism in the more very right wing publications. There is a reason for that. It was only the likes of Farage and the bloody awful Telegraph who was supporting the anti restrictions type agenda during Covid.
And if you do a quick scan of all the.FB type social media groups with their ‘pure blood’ logos - it’s all Farage, anti immigration, pro Putin, islamophobic nonsense. Not saying that’s you - but it’s very interesting how the far right extremist groups are also ardently anti vaxx and I’d want to ask myself very serious questions as to why I’ve got a similar mindset to these people regarding Covid - or doing some VERY careful source level checking of the kind of publications I’m supporting - which you clearly didn’t went linking that article

EmEllGee · 30/10/2022 09:17

Throughout history, the far right have reared their very, very ugly head during times of need and difficulty. Look at how popular they are becoming now across Europe - Italy, France etc. They prey on the vulnerable. If you want an anti vaxx, freedom of choice type government - what’s your choice? It’s a fucking horrible choice and I don’t want that government in power OR to gain support. Don’t bloody encourage it - or believe it’s not happening.

nojudgementhere · 30/10/2022 09:32

@EmEllGee - I think it was clear early on that many of the Covid restrictions were illogical, poorly thought out, and were going to actively harm people's physical and mental health, as well as destroying the economy. I'd strongly encourage you to read the other current Mumsnet thread 'Did Covid screw anyone else's lives up?' as it gives an eye-opening perspective into how much damage some of the measures like lockdown caused.

I personally did not need the media (right or left wing) to tell me this was going to happen. It was pretty bloody obvious. The fact that people are constantly trying to politicise the situation is not helpful. It's not about politics to me, it's about ethics. Does another human being in a position of trust and power have the right to dictate that somebody should take a vaccine or lose their livelihood? Is it ethical that the scared and dying should be left separated from their loved ones by law during their last moments? Is it right that it was illegal for me to spend time with my own parents or for my children to play in a park? By trying to make this about right or left wing and looking at it in such black and white terms you are somewhat missing the point.

nojudgementhere · 30/10/2022 09:42

P.S. The government I would like in power is one led by Mick Lynch! He seems genuinely for the people and not corrupt which is an incredible rarity these days when it comes to politics. If not him, then Keir Starmer, who at least seems morally grounded and motivated by helping people, even if I don't agree with everything he says. I find far right politics repulsive and don't think that it has any bearing on what I think about the Covid response.

orbitalcrisis · 30/10/2022 09:55

I had an allergic reaction at the end summer and started swelling up, this had also happened last October where my hand swelled so much I couldn't form a fist! The first thing I was asked by 111 and my GP was had I had a Covid jab recently. It turned out to be a severe reaction to insect bites.

EmEllGee · 30/10/2022 10:21

@nojudgementhere

ok I’m warming to you now!!

but it is political, it’s very political. Sadly it infiltrates everything - even if you don’t vote or want to ignore the politics surrounding it - the rest of the country will be voting in the future. It’s so blimming important to address the politics surrounding it.

of course everything you say comes from a deep sense of care and concern for humanity - and I agree completely with your ethical concerns.

but there is also the huge, huge cost to humanity had we not administered billions of vaccine doses globally and had we not had restrictions or lax restrictions (if you then look to Brazil/India for the huge death toll there.

on balance - the cost to humanity - had we let Covid run riot - would have been far far greater. Is my opinion, it’s the consensus scientific opinion, it’s the left wing opinion, it’s the right wing opinion (but less so) - however it’s NOT the far right opinion.

i also think it’s not your opinion? I think you are generally disagreeing with consensus science in favour of personal freedom?? Correct me if I’m wrong. Consensus scientific opinion is that although no vaccine is 100% safe - your risk from the vaccine is far, far less than your risk from Covid - and even if you are in a low risk group for Covid, the vaccine will help protect your community so schools/hospitals can function.

so even if you are not political, if you are encouraging a thought process in others that the consensus science was wrong, even if you don’t vote - who are others with a similar thought process to you going to vote for? When they march on the streets wanting change - who is the spokesperson for that change???? In Italy the answer is the far right, in France it’s the far right, in Sweden it’s the Far Right.

please, please think carefully because I don’t want my children growing up in an increasingly far right extremist country - because vulnerable people are feeling desperate.

Buzzinwithbez · 30/10/2022 10:33

Why is people being free to do what they want with their own body being turned into a political issue?
Why is the fact that the vaccines have caused damage and death and that the victims have then been ignored been turned into a political issue when people want to talk about it?
Surely more opennes around the issues will lead to less suspicion?

nojudgementhere · 30/10/2022 11:12

@EmEllGee - Yay - I knew we could find some common ground somewhere!

I agree with consensus science to a point and have always strongly supported vaccines but I also very strongly agree with bodily autonomy. I feel nobody should be forced to take part in any medical procedure/take any vaccine or medication unless they give informed consent. The fact that so many people seemed prepared to ride roughshod over this made me feel panicky and out of control and was a real line in the sand for me.

I think there are many, many people on all sides of the political spectrum who felt uneasy with the way that governments exerted power and control during the pandemic and that we should not be too forgiving of this as it is not in our interests to let them overreach their remit in this way. Unfortunately, I don't think there are too many kind and empathetic people reaching the top in the corporate or political world as they tend to be motivated by power or wealth. Therefore handing them the power to lock people down or introduce sudden, unprecendented and unvoted on laws seems very unwise regardless of their political persuasion. I want a kinder, fairer and more equal world for my children. If this is provided by our politicians then I think the far right will crawl back into whatever hole they came out of! It is inequality, desperation and a feeling of not being heard that creates political extremism, not a bunch of numpties spouting off about conspiracy theories!

MrsPelligrinoPetrichor · 30/10/2022 11:16

Dh knows someone at work who had a dreadful reaction from the vaccine,not sure which one and is now on kidney dialysis. Very rare but can happen. Sorry you're going through this OP.

ArseInTheCoOpWindow · 30/10/2022 11:16

I think there are many, many people on all sides of the political spectrum who felt uneasy with the way that governments exerted power and control during the pandemic

l don’t know anyone who felt like this though. We all just got on with it.

OP posts:
EmEllGee · 31/10/2022 10:51

@nojudgementhere

I would ordinarily very much agree with body autonomy and freedom of choice. But in an emergency situation, an unprecedented pandemic, without knowing what might happen next - a situation where schools and hospitals cannot function? If it’s a shit choice between - one person’s health being compromised due to a vaccine side effect, or one person losing their job due to a vaccine mandate v’s or in a ratio to 10000 lives being saved/a functioning school/hospital - then I’d go for the 10000 lives saved.

Yes politics is full of lies, hand outs to corporate mates and dodgy deals. It always has been, it always will be. But science and medicine? While not perfect, I do believe in the wonder of science - the vast majority of medics I come across are amazing - I have my children because of medical science, my Mum’s life has been saved several times because of medical science. So in science I more trust.

I agree that vaccine scepticism would come from all political persuasions, or from those that don’t vote - or who just hate the government and want to react against them. BUT I’m not sure how much of that is from a deep and very sound understanding of the science involved - or simply from a hatred of politics feeding - incorrectly- into a hatred of the science.

However much we hate politics, we will have a future government. Like I said - if you don’t vote- others will.

So who is a good spokesperson for a body autonomy/freedom of choice/don’t take the vaccine if you don’t want it/only high risk groups need to get vaccinated type agenda?

The only politicians I’ve seen who might be electable - or who advocate that scenario is Farage. And then I see names like Laura Dodsworth banded around on here - and who is she hobnobbing with? Farage.

Please please find me a good, left leaning electable person who advocates what you want. There ain’t one - as far as I can see.

The very horrible concern I have is that the far right have used the pandemic to push their agenda. I’d like to be told I’m wrong and proved wrong - but from Hungary:

“Then, just like many Western European radicals, Mi Hazánk recognized the opportunity of the new situation created by the Covid-19 pandemic.

Therefore, the party changed its communication: instead of their “classic” far-right themes and messages, they first slammed the Covid restrictions and lockdown measures introduced in Hungary in the past couple of years. After this, in an attempt to win over anti-vaccination groups, Mi Hazánk started heavily criticizing coronavirus vaccination.

The far-right party quickly achieved impressive success with their campaign. In January, they took thousands of people to the streets against “Hungary’s Covid dictatorship,” and according to surveys, Mi Hazánk has also significantly increased its support base.

Analysts say that the party even has the chance to get enough votes from anti-vaxxer groups to pass the five percent threshold necessary to make it to Parliament.”

hamstersarse · 31/10/2022 11:27

Jeremy Corbyn was against mandated vaccination and sacking NHS workers.

Is he right wing?

twitter.com/jeremycorbyn/status/1470822969010184192?lang=en

He also refused to say whether he is vaccinated because it is his choice

www.lbc.co.uk/radio/presenters/iain-dale/jeremy-corbyn-explains-why-he-wont-reveal-if-hes-had-covid-vaccine/