My lungs Part 5

[Spacecadetagain]

New thread for us

@Howmanysleepsnow normal sats are 94-98% however someone on here said the paramedics had said call back when/ if they dip below 90%.

Stupid as it may seem, I’m a nurse! But I know things are very different right now in terms of criteria. Plus DH is adamant he wouldn’t go to hospital.
He’s “ok” ie breathing isn’t laboured, he can complete a sentence etc, but has worsening upper back pain and sats of 88-93

Yeah I've got a sats monitor at home and have asthma and was told to call back if stayed in 80s for any prolonged period but obviously might vary from person to person x

@Paleninteresting is that the one by zoe Global headed by Tim Spector. I am on that one but I really hoped that with thousands of users they may have been able to gauge a timeline for when people who have managed through it felt better? Their data will be so new I appreciate that. But what about people in Italy or China, the “80% who have it mild, well what was their mild? How long did their mild version take?!” The best anecdotal evidence Ive found is this youtuber...

He talks about day 12...I wont even allow myself to watch recovery videos anymore (the one ive linked is really positive nothing scary, i found it really hopeful). If ever i get better from this im tempted to make my own bloody youtube video for people because i keep seeing ones from doctors who say “yeah i had it it was like five rounds with mike tyson but im well now” well no! What WAS IT YOU EXPERIENCED?!

I feel shitty and sorry for myself. And im sick of being told its “anxiety” and feel apologetic for the fact I cant tolerate the sensations in my body.

@howmanysleepsnow it may be worth you calling 111 and just talking to someone. You don't want a prolonged lack of oxygen as you know op. Or other option ambulance but they may not take him in. They didn't with my BIL last night.

@Howmanysleepsnow- get help those stats aren’t great. Don’t leave it.

Yeah, should’ve said! I’m on hold to 111 as we speak. DH is hoping they’ll prescribe oxygen, but I’m not convinced that’s likely...

@Casino218what happened with your BIL?

@Howmanysleepsnow I’d be calling and even explaining that you’re a nurse and that his sats are a concern. This is thread 5 and numerous people over my 13 days have had an ambulance out to check them. You may find it reassuring to have someone else triage him and take that decision from you? Xx

TheDrsWife46 I get you, I really do. I just want to cry and cry but I don’t have the energy. My legs are like jelly and I keep coming over hot and cold and thinking I’m going to pass out. I keep shaking. I went downstairs for 5 minutes earlier and nearly collapsed and my heart rate was 130. It hasn’t been below 90 all afternoon or evening and I’m normally fit. My oxygen was 95 which is way better than many on here but is 97-98 now. Looking at other people’s sats just terrifies me if I feel this shit at 95%.

I can’t shake the feeling that something is really going wrong here. Day 25 and after a week of improving a huge downturn. It’s hard to keep positive. I keep calling DH in and telling him how scared I am. He does his best but no one really gets it. They just think I’ve got a bit weak being in bed, although 2 days ago I was walking around fine, or I’m not eating enough (I’m trying, and today has been no different to any other day - I’ve no appetite, I force it down).

Normally I’d never be this unwell for so long without some medical help. But they just don’t want to know if you’re breathing. The sense of abandonment is very real.

I get you theDrsWife46, I too feel like I’m going to be a different person after this with a lot of trauma to get past.

Does anyone else have pain in their armpits? Like a really deep ache?

@howmanysleepsnow he has asthma, very breathless couldn't speak in full sentences. He was seen yesterday but still at home sort of coping ok.

tangledyarn to you as well as TheDrsWife46

@Crayfishforyou that's your lymph nodes. They hurt because they are doing their work as part of your immune system.

Casino218
Thank you
That's one pain I actually want then!

*musicposy" should you call 999 and get your oxygen levels checked 25 days is a long time

I have found the deep breathing and clearing lungs to be good.

I am so grateful for this thread and another one - I downloaded an oxymeter on my phone / it probably isn't the best and a separate machine is better but it gives me some control. The kings college app is assuring.

@musicposy thankyou so much. I acknowledge that everyone in this thread has answered me ove the previous days but yours resonated with me at “calling dh in and he tried his best” or that people perceive you as weak in bed.

I actual have felt that I am slowly dying. Now I dont think im dying, i have too many well moments for that to occur now. But i feel so ill, Im fretting that I’ll be left with some kind of impaired life because this incessant level of illness/tingling/shaking.

Can I just name check on
@DandyPenguin and @Isadora2007 as you both were such help to me before saying how you had handled life limiting illnesses. I wondered how you were both doing?

@TheDrsWife46 yes it is the Zoe global one. It makes me feel useful at the moment to log and contribute. I don’t know how you feel only being on day 2. What I do know is telling someone it’s just anxiety is no help. Of course there is anxiety mixed in with physical symptoms. In fact they will be interacting like mad and there is no point in separating them because we are human beings with an integrated series of systems. . These threads demonstrate a diversity of experiences with underlying shared components, as we are individuals. More list of recovery details from posters on here may be as helpful as anything.

Crayfishforyou, I've had pains all week under my left armpit so I'm glad to hear that's actually a good thing. My shakiness goes for a bit once I've eaten and had a lemsip (although I'm forcing the food down). 111 said it was important to keep eating, drink fluids to keep blood sugar levels steady.
I got down to the garden today - my knees were knocking, I was so weak but it felt so good to have hot sun on my face for 10 minutes. Back to stabbing pains around my ear and throat now so back in bed.

I feel so anxious waiting for the next set of symptoms to start and really miss giving my teen a cuddle - I'm too scared to. I too feel abandoned by medical services but understand there are lots of people in a worse position. Hope everyone has a decent nights sleep.

Can anyone post me the lung clearing video again im scouring trying to find it...

@Paleninteresting i’m on day 13 xx
Really thought i’d turned a corner yesterday

PokemonTrainer it looks alright on the oximeter so I’m going to sleep and see what the morning brings. If I pick up a bit, all well and good, if not I will phone 111. But they seemed uninterested yesterday because I’ve had it over 2 weeks and don’t have a high temperature (I did at the start). I’m going hot and cold and can’t regulate that but it’s only showing as slightly up on the thermometer. Trouble is I’m never more than 36.5 usually so even 37.2 is definitely not right for me. I’ve done the deep breathing twice now and I do think that helped.

This is a very good one. I've been doing this when I suffer from breathlessness and has helped me no end so far:

What is really confusing me and I'd appreciate your thoughts is I've had this 23 days and not isolated from DD who has low immunity or DH and they both seem fine.

However DH and DD both had the most horrific bug in mid January, DD has relapsed into cfs since and DH who is never ill was unwell for at least 8 weeks. To the extent I considered depression/life limiting illness or pain killer addiction, never thought any of those things of him in 30 years.

His symptoms seemed like normal flu but got very breathless doing anything and considered he may have broken a rib based on the pain despite not remembering how...

At the time they were ill I also developed a very odd closed over throat which I had for 8 weeks until this started. So odd I actually asked my dentist at the beginning of March if he thought it could be throat cancer as I planned to get some life insurance before consulting the GP.

So I'm guessing it's all the same bug, positives of that are DD did get over all the physical stuff after two relapses over 4/5 weeks, she's now left with fatigue but realistically that happens for her after most bugs and DH is completely fine despite many worrying symptoms that match this thread.

Less happy if I've been potentially incubating this for 9-10 weeks but is that even possible?