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Advice for Women That Have Come off the Pill - Share your Experience :)

971 replies

MintGreenLife · 16/06/2020 09:51

Hi all,

I came off the pill two months ago, and after having a completely haywire 2nd post-pill cycle, I've been doing a lot of research to try and understand what's going on.

I thought it would be nice to share my research and what I believe is happening to me, in hope it might help others. I also thought you might like to share your experience and how you found/are finding coming off the pill, as being able to read that other people experience similar can be really comforting. So here's me...

I'm 31 and TTC DC1.
I came off the pill early April, had my withdrawal bleed a few days later, then first natural AF came 30 days later, so a 30 day cycle. First AF was very light and started and finished with brown spotting. Only lasted 4 days.

I'm now in cycle2 currently on CD37. I didn't ovulate until CD33! The day after ovulation, my boobs and nipples were agony. I'm now 3DPO and the pain is worse.

I recalled this pain the last cycle too, which I wasn't tracking. I assumed it was a sign AF was coming, as it arrived 5 days later. But from this cycle I now know it's actually a sign I've ovulated, so this would mean an extremely short luteal phase on that first cycle.

My research has included reading 'Taking Charge of your Fertility'.
I also found this article extremely helpful in understanding what goes on in your body when you stop the pill, as well as learning things you can do to take charge of your cycle again: avivaromm.com/post-pill-reset/

My sore boobs and possible short luteal phase points to an oestrogen dominance, which causes low progesterone.

This sums up why this happens:

'While not a symptom in itself, nutritional deficiencies can cause a host of symptoms – including hormonal imbalances. They are also a problem for women who come off the pill hoping to get pregnant right away because low nutrient status has been associated with fertility problems, and low nutrients in mom can also mean low nutrients in baby. The pill has been associated with robbing a number of nutrients including B vitamins and magnesium.

Hormonal birth control pills can deplete the body’s stores of certain nutrients, including vitamins B2, B6, and B12; vitamins C and E; magnesium, selenium, zinc, and folate. Vitamin D levels may also drop after coming off the pill.'

Understanding what is going on with my body right now has made me feel so much better. If I were to have a normal luteal phase this cycle, I'd be on track to have a 48 day cycle! The sore boobs tell me I'm probably going to have a short luteal phase though.

I've also learnt how hormones control the whole cycle. With oestrogen being the important hormone during the first half. It builds up and when it reaches a certain threshold it triggers the LH surge. Once you've ovulated, then progesterone kicks in. This cycle I had three LH surges in total spaced 12 days apart until I finally ovulated. Oestrogen and Progesterone have to be perfectly balanced, and so I think the three LH surges could indicate that my oestrogen kept building up over and over until my body finally managed to ovulate, causing an oestrogen dominance. I finally confirmed ovulation after three high temps.

As of a few days ago, I'm following some of the steps in the article I linked, by taking a prenatal multivitamin to replace depleted nutrients. I already take probiotics, vitamin D and folic acid, so will continue with those and will add in vitamin C too. I've cut out low fat dairy instead choosing full fat, and am trying to focus on eating at least 2 pieces of fruit a day and extra veg with my lunch and dinner. I may also look into including a b6 supplement for my luteal phase next cycle if it does turn out to be short again this cycle, as this helps with progesterone and during the luteal phase progesterone spikes to dry up cervical fluid, change the cervix position, stop anymore eggs from being released and build up the lining, so is really crucial.

Hopefully this will help someone :) would love to hear how others are finding coming off the pill x

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Kay00 · 16/06/2020 11:16

Hi @mintgreenlife this is very interesting and very useful, thank you.

I have recently come off the pill too, I am on cycle1 on CD10. My withdrawral bleed lasted 5 days and now I'm temping and tracking my curvical position and fluid. My curvix is currently in a high position and my fluid is wet which suggests an LH surge is coming.

I have no idea whether I will ovulate (and perhaps this will be one of a few surges, as you experienced, before I ovulate), and I have no idea how long my cycle will be. I have some OPK strips, so will start testing in next few days to see if I can pin point an ovulation.

I am taking prenacare, drinking decaff, have reduced alcohol and I eat a pretty good balanced diet which is mostly vegitarian, so my partner and I are trying to eat more meat (I have previously had low iron levels). I am hoping this means that I have good nutrients.

I will be trying to record the legnth of my luteal phase this month and in the next two months before we stop using condoms and start trying for real.

Good luck @mintgreenlife !

MintGreenLife · 16/06/2020 11:21

No probs at all :) thought it might be helpful for anyone suffering with irregular cycles post-pill. Apparently it takes 40% of women 3-6 months to get back on track. I was feeling worried and frustrated earlier in this cycle with the multiple LH surges and no temp shift, but now I've finally ovulated and have gained an understanding of what goes on in your body post-pill I feel much better.

That's brilliant that you can take some time to allow your body to regulate before you start TTC. We weren't meant to be trying until after our September wedding, but the pandemic has meant we've had to postpone, so I came off the pill in April in case that was the outcome, and we decided to start TTC in June, so this is our first cycle. I guess at least I had one month off the pill before hand, but ideally would have preferred longer.

Sounds like you are doing all the right things :) good luck with the OPKs and let me know how you get on x

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MintGreenLife · 16/06/2020 11:21

@Kay00 x

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Kay00 · 16/06/2020 11:31

@mintgreenlife so sorry to hear about your wedding. It is exciting that you have decided to TTC now instead Smile

We have decided to start trying in September as we are halfway through a house renovation and if a baby where to arrive any time sooner than May we would not have a bathroom or any dust free areas in the house!

In the mean time I am finding it empowering to be learning about my body, and hope to get a really good understanding of my 'normal' in the next few months.

MintGreenLife · 16/06/2020 11:35

To be honest I think the decision to TTC has saved this whole situation - before we decided to postpone I was feeling pretty low about it all for a few months, but now this gives me a new focus, and is a positive outcome from a pretty rubbish situation :)

Ohh I totally get where you are coming from on that! We extended our house last year and moved the previously downstairs bathroom (victorian terrace) upstairs. The work was meant to take 2 months and it took 7 urgh. That sounds very sensible, and you wouldn't want the added stress if you were to fall quickly and sooner than you planned.

I'm completely the same - it's brilliant to understand what actually happens in your body every month. Even though my cycle was weird this month, I actually feel kind of proud of my body for giving it a good go ha. Hope things will go back to normal quickly for you :)

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MintGreenLife · 16/06/2020 11:35

@Kay00

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MintGreenLife · 01/07/2020 20:06

Anyone else got any advice/experiences to add? I'm on cycle 3 after coming off the pill currently CD15. Was really hoping this cycle would be better than the last, but so far OPKs aren't getting darker and no EWCM yet x

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Buns05 · 01/07/2020 21:02

Hi, just thought I'd share my experience, I haven't done any research though and found what you've researched really interesting!

I came off the pill in Dec 2019. My cycles settled straight away but can be between 24 and 28 days long. AF also doesn't seem to hang around long either.. anywhere between 2 and 4 days. I'm not tracking anything.

This last month was the 1st one TTC but AF arrived so wasn't very successful! Will see what happens this month! AF only stayed a day and a bit this time round though. Not used to having her hang around for such little time. When l was on the pill it was always a 5 day withdrawal bleed and much heavier than I get now!

Flowerkm · 01/07/2020 21:17

Hey everyone Smile

Im hoping i can join please x
Thank you posting your research, its so interesting. Ive been on the pill almost 9 years so i have totally forgotten what my 'normal' cycle is, i was 18 when i started the pill so I never paid any attention to what was happening with my cycle and now Im going to be tracking so much (feel like Ive learnt so much already)

I have taken my last pill tonight and looking to TTC in August/September. Ive been looking for advice and somewhere to share experiences as I know coming off the pill will be a rollercoaster for sure.

Im taking folic acid and vitamin D and just being more aware of my diet. Would love to see how everyone gets on and when the time comes for my body to adjust to no pills it will be nice to chat with people going through the same.

I have some OPKs but Im a bit nervous to use straight away as I know its unlikely to happen.

Nice to have somewhere to come for advice Smile xx

MintGreenLife · 01/07/2020 21:50

@Buns05 that's great that you're having regular cycles already ☺️ Are you tracking ovulation using OPKs or temping at all?

Seems like everyone has such a different experience without AF after the pill! I read through a whole thread of over 900 messages about having light periods after the pill, which is what I'm having, but when I've been researching post-pill syndrome one of the symptoms appears to be heavy periods. So confusing! I've had AF twice since stopping the pill and first time was light and 3/4 days, second time a little heavier and 4 days, but still pretty light x

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MintGreenLife · 01/07/2020 21:53

Hi @Flowerkm of course ☺️ Lovely to have others here going through the same things.

Congrats on taking your last pill, hope things get back to normal quickly for you. When are you going to start using OPKs? It might be worth using them the month before you plan to TTC just to get used to them.

I'm the same as you, I have no idea what my cycles were like prepill as I never paid much attention before. I'd like to think it's coming off the pill that's causing my irregular cycles, but for all I know they weren't irregular before x

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Flowerkm · 01/07/2020 22:07

@MintGreenLife thank you ☺️

Im tempted to use them in July maybe a week after I finish my withdrawal bleed so around the 18th July to see and so I know whats happening before we TTC, thats also a good point, i think it will be good to get used to them as well.

I think the pill will be playing a huge part of the irregular cycles and its only been a short while so fingers crossed it settles. It sounds like you're doing everything you can and talking to others and researching is a great help ☺️

MintGreenLife · 01/07/2020 22:16

@Flowerkm I did find them a bit confusing first cycle I used them, but that's mostly because I got two LH surges from CD19 but not quite positves, until I finally got a positive on CD33, so I felt frustrated as initially I thought I had ovulated soon after CD19 and then again about 5 days later, so ended up thinking I was in the TWW several times when I wasn't 🙈 This cycle I know now to only look for the actual positive OPKs and not concern myself too much with lines that are dark but not as dark as the control.

Thanks, I'm sure you're right. I'm a bit impatient as we've had to postpone our wedding due to the pandemic, and we've rebooked for September next year, so we were hoping we would catch quite quickly to avoid me either being heavily pregnant for our wedding next year or the birth being less than a few months before hand. My haywire cycles had made me realise we don't have a lot of control over timing, so we will just have to figure it out as we go ☺️

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Flowerkm · 02/07/2020 10:27

@MintGreenLife Thank you for the advice, i will be sure to use them this month to understand them, they do sound a little confusing.
At least you know what to look for now :)

I'm sorry to hear you have had to cancel your wedding, TTC is a lovely idea and the thought of having a little baby at your wedding is lovely. I also hope it happens quickly for you, I totally understand you being impatient, it does sound like you have a lovely outlook on it though and unfortunately this is one of the things we have no control over which can be hard. Fingers crossed it all settles for you xx

Flowerkm · 02/07/2020 10:28

@MintGreenLife I meant postpone your wedding, not cancel :)

SarahTTC2020 · 02/07/2020 11:18

Hi, thought I'd share my experience so far. Came off the pill June 2019, had cycles of 40-45 days since.
First cycle ttc I ovulated cd26, and had AF 2 weeks later.
This cycle I ov cd16 so I would be expecting a 30 day cycle for the first time! I'm 5dpo right now
Last period was much heavier, and longer than the others, so I feel like it has taken me a year post pill to go back to 'normal'

MintGreenLife · 02/07/2020 11:47

@Flowerkm Thanks :) hopefully it all workout timing wise, but if not I'll hardly be able to complain if I'm heavily pregnant or have a new born :)

Not sure if this would be of interest, but I'm also seed cycling which is supposed to support the different phases of your cycle. Before ovulation I'm having a tablespoon of pumpkin seeds and flaxseed everyday, and will switch to sunflower seeds after ovulation x

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MintGreenLife · 02/07/2020 11:53

Thanks for sharing @SarahTTC2020, that's great news your cycles finally seem like they have gone back to normal :) I'm either not ovulating yet (now cycle 3 off the pill) or I have extremely low progesterone after ovulation, causing a very slight temp rise and a luteal phase of only 3/4 days. Not sure which way round I would rather to be honest.

I've made loads of changes now so hoping this cycle is better. Did you start TTC straight off the pill, and did it look like you were ovulating straight away?

I find it hard not to be a bit miffed about the pill tbh - early this year I had my pill check and I told the nurse we were planning to TTC this year and asked if I should come off the pill in advance to prepare, and was told no it wasn't necessary and that you can get pregnant right away! Hours of research and trawling through mumsnet tells me quite the opposite - seems to be a bit of a 50/50 toss up between being super fertile straight after, or having issues for up to a year after, not sure why they never mention this to you at the GPs x

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Poppy10121 · 02/07/2020 13:26

I found your research very interesting @MintGreenLife, I didn't know a lot of this. I came off the pill in June last year to give my body time to adjust before TTC. I had been on the pill for about 17 years. It took 4-5 months to get back to a normal cycle for me, which was frustrating (during this time it could be anything from 17 to 35 days so I was never without a tampon in my handbag!!) I felt very low for a while as I had no idea if it was a sign of an underlying problem, but it did eventually settle down. I got pregnant in my 2nd month TTC but unfortunately it ended in missed miscarriage. I still wonder sometimes if it was to do with my body being messed up from the pill.

I am now trying again and am starting to feel more familiar with my cycle and symptoms of ovulation, AF, etc.

I think doctors should tell you to come off the pill a while before TTC if you've been on it a long time, it does take a while for normality to resume and it can mask underlying problems.

MintGreenLife · 02/07/2020 19:16

@Poppy10121 glad you found it helpful :) I'm reading every TTC book I can get my hands on! Have just ordered 'it starts with the egg' - for now I'm enjoying learning so thought I may as well.

Good to hear your cycles eventually settled down, were you doing anything to track ovulation during that time? Just wondering if you were ovulating and if you had a normal luteal phase?

So sorry to hear about your MM, in a sense it's good to know you can get pregnant and should do again soon, but of course you'd rather it didn't happen I'm sure.

I totally agree with you - it's really unfair that this isn't made clearer, especially as I actually asked and was told 'no, it shouldn't cause any problems'.

I have some pretty shocking symptoms from coming off the pill including low sex drive (this was an issue for the least year or so on the pill) and hair loss, dizziness and now some mild acne on my chin. Really hope these things right themselves soon as even though we've had to postpone our 'wedding' until next year we are still officially getting married in September. Did you have much in the way of symptoms other than feeling low?

Wishing you lots of luck this cycle xx

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Poppy10121 · 02/07/2020 20:37

@MintGreenLife No I wasn’t tracking anything except cycle length when I came off the pill, to be honest I didn’t know much about ovulation and the various cycle stages at that point. I tracked period symptoms a bit and tried to start ovulation tracking in January, got pregnant in Feb so didn’t get far with it!

I had the opposite symptoms from you, my sex drive returned with my natural cycle! But I did get some hair loss and mood swings. I wish I had come off it sooner to be honest, I felt very out of touch with my body when my cycle restarted - I’d not had a period at all in years and it felt like being a teenager again having to get used to it all!

SarahTTC2020 · 03/07/2020 09:19

@MintGreenLife no, didn't start TTC straight away as we didn't go on our honeymoon for another 4 months so didn't want to be pregnant for that!
So not really sure about ovulation, I don't think my ewcm started properly for a few months though so I don't think I would have been. I get loads of it now

MintGreenLife · 03/07/2020 11:11

@Poppy10121 ah fair enough, to be honest I wish I came off in advance of TTC and wasn't tracking my cycle from the offset, as I'd be none the wiser that I might not even be ovulating or possibly have a super short luteal phase and then wouldn't be worried about it. Hopefully it'll right itself over the next few months.

Oh that's so interesting. Wish my sex drive would come back, doesn't help with TTC ha. No mood swings for me, but have noticed so much hair comes out when I brush it/wash it urgh.

@SarahTTC2020 ah fair enough. I've got the difficulty of having to postpone our wedding to try and work around, but I've kind of decided to just go with it and if I'm pregnant when we get married then that's that. Hmm that's interesting about your EWCM, as I have been getting it - had 2 days first cycle off the pill, and 3/4 days second cycle, but both times was about 4/5 days before AF arrived, so either I have a crazy short luteal phase atm or I'm not ovulating and am just one of those people that gets it before AF...who knows!

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Flowerkm · 03/07/2020 20:27

@MintGreenLife Im sure the timing will be perfect Smile

Ooh Ive not heard of that, i will take a look at that sure, its good to try it all as it can only benefit you and your cycles.

Ive never been so exited to start my withdrawal bleed so i can get my cycles going!!

TheDaydreamBelievers · 04/07/2020 09:23

Hi @MintGreenLife - this is all super interesting!

I am a weird case now on CD108 without a period after the post-pill withdrawal bleed.

So far:

  • Age 31yrs, TTC DC1.
  • Mother had no issue conceiving or carrying, grandmother v high number of miscarriages and resulting hysterectomy.
  • Came off Rigevidon (on for 12 years solid)
  • Had a withdrawal bleed lasting 2 days.
  • taking folic acid, vit d, iron with vit c (for pre-existing low levels)
  • Positive LH test at CD 71
  • Sore boobs CD74/75
  • Spotting CD76-78
  • Since then, nothing.
  • Temping shows no pattern
  • Bloods taken on CD93 showed no odd hormone levels. Or anything else (thyroid, sugars etc all fine)
  • More bloods taken CD 107 to check androgen levels, so will see what they say.
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