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Advice for Women That Have Come off the Pill - Share your Experience :)

971 replies

MintGreenLife · 16/06/2020 09:51

Hi all,

I came off the pill two months ago, and after having a completely haywire 2nd post-pill cycle, I've been doing a lot of research to try and understand what's going on.

I thought it would be nice to share my research and what I believe is happening to me, in hope it might help others. I also thought you might like to share your experience and how you found/are finding coming off the pill, as being able to read that other people experience similar can be really comforting. So here's me...

I'm 31 and TTC DC1.
I came off the pill early April, had my withdrawal bleed a few days later, then first natural AF came 30 days later, so a 30 day cycle. First AF was very light and started and finished with brown spotting. Only lasted 4 days.

I'm now in cycle2 currently on CD37. I didn't ovulate until CD33! The day after ovulation, my boobs and nipples were agony. I'm now 3DPO and the pain is worse.

I recalled this pain the last cycle too, which I wasn't tracking. I assumed it was a sign AF was coming, as it arrived 5 days later. But from this cycle I now know it's actually a sign I've ovulated, so this would mean an extremely short luteal phase on that first cycle.

My research has included reading 'Taking Charge of your Fertility'.
I also found this article extremely helpful in understanding what goes on in your body when you stop the pill, as well as learning things you can do to take charge of your cycle again: avivaromm.com/post-pill-reset/

My sore boobs and possible short luteal phase points to an oestrogen dominance, which causes low progesterone.

This sums up why this happens:

'While not a symptom in itself, nutritional deficiencies can cause a host of symptoms – including hormonal imbalances. They are also a problem for women who come off the pill hoping to get pregnant right away because low nutrient status has been associated with fertility problems, and low nutrients in mom can also mean low nutrients in baby. The pill has been associated with robbing a number of nutrients including B vitamins and magnesium.

Hormonal birth control pills can deplete the body’s stores of certain nutrients, including vitamins B2, B6, and B12; vitamins C and E; magnesium, selenium, zinc, and folate. Vitamin D levels may also drop after coming off the pill.'

Understanding what is going on with my body right now has made me feel so much better. If I were to have a normal luteal phase this cycle, I'd be on track to have a 48 day cycle! The sore boobs tell me I'm probably going to have a short luteal phase though.

I've also learnt how hormones control the whole cycle. With oestrogen being the important hormone during the first half. It builds up and when it reaches a certain threshold it triggers the LH surge. Once you've ovulated, then progesterone kicks in. This cycle I had three LH surges in total spaced 12 days apart until I finally ovulated. Oestrogen and Progesterone have to be perfectly balanced, and so I think the three LH surges could indicate that my oestrogen kept building up over and over until my body finally managed to ovulate, causing an oestrogen dominance. I finally confirmed ovulation after three high temps.

As of a few days ago, I'm following some of the steps in the article I linked, by taking a prenatal multivitamin to replace depleted nutrients. I already take probiotics, vitamin D and folic acid, so will continue with those and will add in vitamin C too. I've cut out low fat dairy instead choosing full fat, and am trying to focus on eating at least 2 pieces of fruit a day and extra veg with my lunch and dinner. I may also look into including a b6 supplement for my luteal phase next cycle if it does turn out to be short again this cycle, as this helps with progesterone and during the luteal phase progesterone spikes to dry up cervical fluid, change the cervix position, stop anymore eggs from being released and build up the lining, so is really crucial.

Hopefully this will help someone :) would love to hear how others are finding coming off the pill x

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Thread gallery
48
Kay00 · 10/07/2020 14:43

Hi @TheDaydreamBelievers I think your temperature is meant to be the most reliable indicator of ovulation, but then I have also read that some women just dont get the temerpature rise, so its good you are checking occasionally with OPKs too.

Poppy10121 · 10/07/2020 14:52

@TheDaydreamBelievers have you done a pregnancy test to make sure you are not pregnant? Sorry if this sounds like a silly question but I got pregnant without ever getting a positive OPK and I was freaking out about where my period had got to, and it turned out that's why it wasn't there... Apart from that, i think things can take a while to settle down, every time I came off the pill for a bit I always had very irregular cycles at first. Fingers crossed things start to level out for you!

TheDaydreamBelievers · 10/07/2020 15:19

Yeah @Poppy10121- I'm checking that about every week or so. Unfortunately I'm months and months into being off pill with absolutely nothing in terms of a cycle and getting bloods done and all sorts, so not pregnant sadly!

Poppy10121 · 10/07/2020 20:22

@TheDaydreamBelievers ah I’m sorry; that sounds really stressful. I hope it sorts out soon or that your tests find a reason that they can treat!

xemmagx · 11/07/2020 20:54

My first cycle off the pill was 118 days. But I have an added complication of PCOS. I’m now using OPKs for cycle number 2 and have had no surge yet (today is CD26). It’s so frustrating, I wish I had come off the pill much sooner as post-pill I’m approaching 6 months and have had no real chance to even TTC.

MintGreenLife · 11/07/2020 20:59

@xemmagx I totally share your frustration- I'm CD24 and not ovulated yet. Third cycle off the pill and not sure if I've ovulated at all since coming off. I had EWCM for the last two days and my cervix is high, but no positive OPK and no temp rise so not sure what's going on. Did you know you had PCOS before you came off the pill? This is my third cycle off the pill now - first was 30 days and second was 37 days. Really hope I do ovulate this cycle! Makes you feel like you're not even TTC doesn't it x

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xemmagx · 11/07/2020 21:14

@MintGreenLife yeah I was diagnosed with it 14 years ago so I knew but I guess I just didn’t know how much the pill messed with your body/hormones etc so I just assumed after 9 years on it I could just come off and things would be ok. I knew almost nothing about the pill before I went on it!
I haven't started temping yet, I want to see if OPKs work for me first. I am getting fed up peeing on sticks though with no progression! Hubby asks me a couple of times a week ‘how are your pee sticks’ but i just say ‘yeah no change, I’ll let you know when we’re good to go’.
Who knows, I may not have ever ovulated in my life lol.
The only difference I noticed in my 118 day cycle was cramps, sore boobs and diarrhoea (too much info lol) the day before AF arrived, which I have never ever had before. I’ve always been quite lucky in that I never experienced period ‘pains’ in any previous cycles before the pill but I did that time so I wonder if that was a cycle that I did actually ovulate?

MintGreenLife · 11/07/2020 21:25

@xemmagx I'm the same - knew next to nothing about the pill the whole 13 years I was on it. I only realised the monthly 'AF' wasn't a real bleed about 6 months ago when I started reading into it. I had heavy periods and always had cramps before the pill, but since coming off they have been light. I'm trying to be as careful as I can with my diet and taking various supplements to try and help my body along to get back on track. Issue we have is our wedding has been postponed because of Covid, so we've got a fairly short window in which TTC would workout timing wise, but I think if we don't catch in that timeframe we will probably just carry on and see how everything pans out 🤷🏻‍♀️

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TheDaydreamBelievers · 11/07/2020 22:06

Hey @xemmagx - I am so sorry this is happening to you too but to be honest also glad I'm not alone. I've read a lot of "my period took 40 days to come after the pill Shock!" And I'm on day 115 so it was making me feel like a massive anomaly. I hope your second cycle is shorter. I feel the same, I've been off the pill for months but clearly am not ovulating so no actual chance, no matter how much we DTD.

xemmagx · 11/07/2020 22:18

@TheDaydreamBelievers it sounds a bit like we are in the minority with a massively long first cycle, I was getting myself super worked up that I had all sorts of things wrong with me so I had my doctor do blood tests and I had a pelvic scan which just re-confirmed my PCOS. I really hope you get your cycle soon, I was at my wits end so I know how you feel. Do you have PCOS?
Honestly we have given up regularly DTD as I would really like to time it around ovulation and I think we would be wiped out doing it every other day throughout the cycle without knowing if it’s 30 day cycle or 100+ days again.

TheDaydreamBelievers · 11/07/2020 22:24

Not to my knowledge @xemmagx but I've been on the pill 12 years so I wouldn't necessarily know. I dont believe I have many other symptoms (not bad acne, no unusual hair growth).

My GP ran standard hormonal, thyroid, diabetes etc bloods recently which all looked fine (though I want to ask specifically what these were and what levels). Shes now running androgens and said if these are all clear too she will send me to gynaecology at day 180 (6 months). My husband and I also agreed that at 6 months we will get his sperm checked privately, just so we are checking both sides of the equation.

xemmagx · 12/07/2020 09:39

@TheDaydreamBelievers it might be worth asking your doctor to send you for a scan just to check, my doctor referred me for one after 3 months of no AF. I don’t have all of the typical symptoms of pcos (not overweight, no thinning hair, no bad acne) but I do have slightly oily skin, irregular periods and the cysts show on my ovaries.

xemmagx · 12/07/2020 09:42

@MintGreenLife yeah I was the same, I had no idea that it was a withdrawal bleed and not a real period! I don’t think they give you enough info when you start taking the pill, especially around what may happen when you come off it
what supplements are you taking? I started taking inofolic around 3 weeks ago but not necessarily seeing any change yet.

TheDaydreamBelievers · 12/07/2020 10:05

Thanks @xemmagx - I might push a bit more for scans when the GP calls on Wednesday (if they even get me as they will only give an all day window and I have patients myself all day!).

Out of interest, since you have a PCOS diagnosis, is there any additional help or intervention they are offering you for TTC? Sorry if you've said this before!

xemmagx · 12/07/2020 10:22

@TheDaydreamBelievers yes it’s worth asking, even if it’s just to rule out pcos, when I had mine she also said the uterus was looking good etc so it seems like they check other things too.
My doctor basically said ‘keep trying’ and use OPKs several times a week (I’m using them daily). I’m going to see how the next 2-3 months goes in terms of if I have another AF or not then I will go back. As it’s already been 5 months now and only one AF in that whole time which suggests to me I might need some intervention. I also started taking Inofolic 3 weeks ago and I’m aware that they say you need to use it for a minimum of 3 months before you can say it’s not working.

MintGreenLife · 12/07/2020 11:37

@xemmagx feel like there should at least be a leaflet with all this info in that you should be made to read before you get perscribed it 🙄

I'm CD26 now and still no positive OPK or temp rise, feeling quite frustrated now. I'm taking Pregnacare, but I'm waiting for a different prenatal to arrive now that is reccomended in 'It Starts with the Egg'. Am also taking extra folic acid, Vit D, Vit E, Omega-3 and probiotics, but going to change what I take slightly soon in regards to the advice in the book x

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Flowerkm · 12/07/2020 13:32

Hey everyone,

I posted a few weeks back when I was finishing my last pack of pills and Ive been lurking daily on posts and Im sorry to hear some of you are struggling with your long cycles. I so agree with the lack of info when on the pill, i was 18 when i first when on and just turned 27 so who knows what my body will do!!

Ive just finished my withdrawal bleed so i guess Im on CD7. We're not looking to TTC until next month as I want to see what my body does this month and see how long my cycles are etc and have a normal AF. I think ill use some cheap tests to see if i get any lines or a sign of anything happening and then take it from there next month.

Still on the Folic Acid and Vitamin D and just trying to be more wary of what i eat 

Sending lots of luck to everyone xx

MintGreenLife · 13/07/2020 18:34

How's everyone getting on? I'm not CD27 and no positive OPK or temp rise, EWCM has disappeared again 😔 Contemplating trying Agnes Castus to help get my hormones back on track

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MintGreenLife · 13/07/2020 18:36

Hi @Flowerkm ☺️ I did that too - waited for first natural AF before starting to TTC. My first cycle was 30 days so was all excited thinking I was back on track, but I think perhaps I might not be ovulating yet. Fingers crossed you get back to your normal cycle quickly ☺️

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Flowerkm · 13/07/2020 19:54

@MintGreenLife thank you, i have my fingers crossed too but who knows. Trying not to think too much about it but its soo hard not to! I have mild cramps today and had a bit of spotting, seems quite quick for my body to be doing these things but just going with it lol did you get any mild cramps or spotting straight after? I guess i feel glad to be feeling this as its a sign my body is trying to adjust and its coming out of my system now.

I've just seen your update, sorry you still haven't had a positive OPKs. Im sure it's a matter of time until your hormones settle and things will go back to normal for you. I can imagine it's frustrating and i wish there was something magical i could say to help. Coming off the pill is a massive change on your body and cycle.

MintGreenLife · 14/07/2020 09:42

@Flowerkm I wouldn't worry too much, just see how things go :) to be honest I'm not even worried now, although maybe I should be! But I know stressing about it won't help.

No no symptoms after coming off, apart from really sensitive nipples 3-4 days before I had AF, otherwise it completely crept up on me! The same thing happened last cycle (sore nipples) the day after I think I ovulated, and then I got AF 3/4 days later again, so either it's a sign AF is coming or that I ovulated. Research says it could be caused by low progesterone. I did get some cramping though for my second AF on the first day, but otherwise nothing.

I've now started to get some spots, three months after stopping. Really hope that settles down as we've had to postpone our September wedding due to Covid, but we are still having a small ceremony this year so we can officially get married.

Ah bless you. Yeah it really is, I guess I just feel a bit frustrated that I'm not one of the women that goes straight back to normal, and can't really understand why I haven't when I look at my health and lifestyle etc, but I think it's just pot luck. I've read that 60% of women go straight back to normal, and 40% experience cycle irregularities post-pill, so here's hoping you're in that 60%! You never know, your cramping and spotting could be from ovulation :)

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Flowerkm · 14/07/2020 10:31

@MintGreenLife No, you don’t need to worry at all. Its so common plus stressing won’t help :)

Ooh i havent had those symptons yet but maybe when AF arrives ill get some more symptoms other than mild spotting/cramping.
Its really calmed down today so i did think that but i done a OPK test yesterday and was super negative not a hint of a line and just done one today and theres the faintest line ever but that could just be my eyes but according to my app ovulation is in 5 days so maybe Im starting to release some hormones, ill keep an eye on it and see if it darkens (but again, first cycle off the pill so no idea lol)

Aww, thats lovely you’re still having a ceremony this year, hope the planning goes ok!! Thats a nice distraction.

Thank you, I didn’t know those figures actually. So many woman do have these struggles after coming off the pill, i think its nice to share experiences as you’re not alone :)

MintGreenLife · 14/07/2020 10:38

@Flowerkm

You're totally right, it's probably a good thing that I'm not freaking out about it! I've spoken to a fair few women on here that have been struggling, and everyone seems to have slightly different experiences, it's strange how our bodies all react differently.

What brand of OPKs are you using? With mine I always have a faint line, but think the ones I use are particularly sensitive. It's normal to have low levels of LH in your urine throughout your cycle though.

I've just ordered a book that goes into detail about hormonal birth control, what happens when you come off it and how to help things along - will let you know if it's any good.

Yes totally, is a very welcome distraction! After months of putting wedding planning on hold it's nice to have that to look forward to again :)

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Flowerkm · 14/07/2020 11:16

@MintGreenLife Ah, thats a good point actually, it is still low so I guess maybe thats just pretty normal, its the highs i need to look for.
Im using the Femometer test strips for July just to see if anything happens and when they get darker Ill use my clear blue ones with the smiley faces (trying to save these for peaks as they’re pricey)

Oh yes please. If its any good Ill order that, its nice to know whats happening after so long being on a forced bleed and hormones going around me. Our poor bodies, my OH is great but i don’t think they totally understand it all haha!

MintGreenLife · 14/07/2020 11:22

@Flowerkm I haven't tried the clear blue ones yet - I get through around 20-30 OPKs a month as obviously my cycle is all over the place and don't want to miss anything, may try the clear blue ones when things settle down.

No worries, I'm hoping to power through it this weekend and make a decision about what I want to do. At the mo it's a toss up between trying agnus castus or doing this homeopathic detox which costs £90 - don't want to do anything wrong so trying to get all the info I can to make a decision.

Oh yeah totally. The more I read into it the more I find things I've been suffering with for a few years now are linked to the pill. I mentioned this to my OH and he said I shouldn't contribute everything to the pill, but when you understand what it actually does to your body everything suddenly seems to make sense! I'll never go on it again that's for sure!

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