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Advice for Women That Have Come off the Pill - Share your Experience :)

971 replies

MintGreenLife · 16/06/2020 09:51

Hi all,

I came off the pill two months ago, and after having a completely haywire 2nd post-pill cycle, I've been doing a lot of research to try and understand what's going on.

I thought it would be nice to share my research and what I believe is happening to me, in hope it might help others. I also thought you might like to share your experience and how you found/are finding coming off the pill, as being able to read that other people experience similar can be really comforting. So here's me...

I'm 31 and TTC DC1.
I came off the pill early April, had my withdrawal bleed a few days later, then first natural AF came 30 days later, so a 30 day cycle. First AF was very light and started and finished with brown spotting. Only lasted 4 days.

I'm now in cycle2 currently on CD37. I didn't ovulate until CD33! The day after ovulation, my boobs and nipples were agony. I'm now 3DPO and the pain is worse.

I recalled this pain the last cycle too, which I wasn't tracking. I assumed it was a sign AF was coming, as it arrived 5 days later. But from this cycle I now know it's actually a sign I've ovulated, so this would mean an extremely short luteal phase on that first cycle.

My research has included reading 'Taking Charge of your Fertility'.
I also found this article extremely helpful in understanding what goes on in your body when you stop the pill, as well as learning things you can do to take charge of your cycle again: avivaromm.com/post-pill-reset/

My sore boobs and possible short luteal phase points to an oestrogen dominance, which causes low progesterone.

This sums up why this happens:

'While not a symptom in itself, nutritional deficiencies can cause a host of symptoms – including hormonal imbalances. They are also a problem for women who come off the pill hoping to get pregnant right away because low nutrient status has been associated with fertility problems, and low nutrients in mom can also mean low nutrients in baby. The pill has been associated with robbing a number of nutrients including B vitamins and magnesium.

Hormonal birth control pills can deplete the body’s stores of certain nutrients, including vitamins B2, B6, and B12; vitamins C and E; magnesium, selenium, zinc, and folate. Vitamin D levels may also drop after coming off the pill.'

Understanding what is going on with my body right now has made me feel so much better. If I were to have a normal luteal phase this cycle, I'd be on track to have a 48 day cycle! The sore boobs tell me I'm probably going to have a short luteal phase though.

I've also learnt how hormones control the whole cycle. With oestrogen being the important hormone during the first half. It builds up and when it reaches a certain threshold it triggers the LH surge. Once you've ovulated, then progesterone kicks in. This cycle I had three LH surges in total spaced 12 days apart until I finally ovulated. Oestrogen and Progesterone have to be perfectly balanced, and so I think the three LH surges could indicate that my oestrogen kept building up over and over until my body finally managed to ovulate, causing an oestrogen dominance. I finally confirmed ovulation after three high temps.

As of a few days ago, I'm following some of the steps in the article I linked, by taking a prenatal multivitamin to replace depleted nutrients. I already take probiotics, vitamin D and folic acid, so will continue with those and will add in vitamin C too. I've cut out low fat dairy instead choosing full fat, and am trying to focus on eating at least 2 pieces of fruit a day and extra veg with my lunch and dinner. I may also look into including a b6 supplement for my luteal phase next cycle if it does turn out to be short again this cycle, as this helps with progesterone and during the luteal phase progesterone spikes to dry up cervical fluid, change the cervix position, stop anymore eggs from being released and build up the lining, so is really crucial.

Hopefully this will help someone :) would love to hear how others are finding coming off the pill x

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Flowerkm · 14/07/2020 12:51

@MintGreenLife Aw, its a tough one isn’t it knowing which is the best. You’re doing the best you can by researching. They both sound pretty good and a detox could reboot everything.

Yep at the age of 18 i wasn’t interested in the hormones, i just took it and then before you know it you’re talking about having children and then you need to come off something which has controlled my cycles for years, its mad really. No one ever told me about this.

TheDaydreamBelievers · 14/07/2020 14:34

I feel the same @MintGreenLife @Flowerkm - I swear no one told me it was an artificial cycle and not a real period or build up. I did know it prevents ovulation but not the rest. Was on them 18-30yrs

MintGreenLife · 14/07/2020 14:37

@TheDaydreamBelievers I'm about the same - from 17 to 31, so slightly longer 😕 At 17 the idea of having something that'll make your periods easy sounds amazing, and then once you're on the pill you almost feel stuck, or at least I did. I had a break at 22, but my skin broke out and at that age I wasn't concerned with TTC or anything so the bad skin was enough for me to go back on just a few months later, and then ever since I've felt like I had to stay on until I was ready TTC in case I experienced horrible symptoms coming off 😕

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TheDaydreamBelievers · 14/07/2020 15:10

If I had known what I know now I would have come off them a year ago (when we started considering TTC) @MintGreenLife. My ultimate fear (as I'm sure you can all anticipate) is that there is something wrong underlying and I just never knew because the artificial cycle is always spot on. I'm really worried about what my completely missing cycles means and as I said I feel the majority of stories about post pill issues refer to irregular cycles not none at all.

MintGreenLife · 14/07/2020 15:23

@TheDaydreamBelievers I have read a few cases where it's taken some time for AF to return. I think everyone just responds differently, although I can completely appreciate that doesn't help much and it must be upsetting and worrying. I suppose for now you have to remind yourself that this can happen Post Pill and that AF will show at some point, but that's easier said than done I know. So far I'm managing to stay positive and am sure it's just the pill that's causing my issues, but I do know what you mean as I never paid a lot of attention to my cycle etc, and have only actually experienced 4 years of natural AF from 13-17, which sounds absolutely crazy when you think about it! I'm the same as you - I wish I came off well in advance to allow things to settle down, I even asked at my last pill check if that was necessary and was told no and that I may be able to get prenant right away 🙄

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Flowerkm · 14/07/2020 17:50

@MintGreenLife @TheDaydreamBelievers

Totally with you on that one! Its crazy, but remember its normal for it to take a while and it will calm down. Ive just realised that Ive also spent longer on the pill than i have with natural cycles which is scary to say the least! I have never thought of it like that and now Im freaking out lol!

I just hope everything goes back to normal for us all soon.

They say you can get pregnant straight away to cover their backs as it can happen but what they should say is yes you can get pregnant but it can also take a while so keep that in mind.

MintGreenLife · 15/07/2020 10:33

Morning everyone :) how are you all getting on? I'm now CD29, still no change - no positive OPK and no BBT shift, honestly thought something would have happened by now. I had EWCM CD23-24, then nothing again until yesterday. From what I understand when oestrogen gets high that's when you see EWCM, but it has to reach a certain threshold to trigger LH, so guess my body is trying to get there and just not quite making it...

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TheDaydreamBelievers · 15/07/2020 13:27

Hey @MintGreenLife sorry to hear you are still in limbo!

So CD119 and my bloods are finally back from GP. Everything apparently normal- blood sugars, thyroid, hormone levels, androgens (although testosterone on the highest edge of normal).

Luckily, this GP agreed to refer to gynaecology, although warned they may reject until month 6.

She gave me the actual numbers on the hormone tests too, so I can go Google myself silly!

MintGreenLife · 15/07/2020 13:34

@TheDaydreamBelievers well overall that sounds positive! Really hope the gynaecologist will see you soon rather than later. How are you feeling about it all? I have read that testosterone can be high Post Pill, so you never know that could be causing the delay and there may be a way to bring it down and get your cycles started again.

My cervix is still high and feels even higher today. It's the highest I've felt it since I started checking it about 2 months ago - much higher than when I was getting positive OPKs last cycle, so I'm hoping that's a good sign and that I'll get a positive OPK in the next week or so 🤞🏼

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TheDaydreamBelievers · 15/07/2020 13:45

@MintGreenLife - how do you measure cervix position etc?

My googling has already thrown up something to worry about - prolactin level looks high to me compared to recommended...

MintGreenLife · 15/07/2020 14:12

@TheDaydreamBelievers that's interesting as I have also watched a video by a homeopath that specialises in fertility abour why ovulation might be delayed or absent, and one of the reasons is high prolactin. I think this can be a side effect of the pill as it tricks your body into thinking it's pregnant, and prolactin is the hormone released when breastfeeding. You've probably already read all of this 🙈

I think cervix position depends on the person. Because I've been checking mine for a while I can feel the difference. During non fertile stages of your cycle it's low, hard and closed and sometimes tilted. During your fertile stage it's high, soft, wet and open and usually straight. At the mo mine is all the fertile signs apart from soft. Sorry if TMI but basically when mine is low i can reach it by inserting just half my middle finger, but when it's high I have to insert the full finger and can just about reach it x

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TheDaydreamBelievers · 15/07/2020 14:33

That does make sense then, maybe they'd be hoping the prolactin drops over the months. Perhaps if it doesnt return in a month or so more I will ask the GP about it specifically!

TheDaydreamBelievers · 15/07/2020 20:52

Thanks also for the cervix descriptions, v helpful @MintGreenLife. In case you are curious about bloods they were:

FSH 5.7
LH 4.5
Prolactin 77 (I think meant to be below 30?)
Hb 138

MintGreenLife · 15/07/2020 20:56

@TheDaydreamBelievers no worries ☺️ I think with having an irregular cycle/no clear idea when/if ovulation might happen it's helpful to look for your body's natural signs x

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MintGreenLife · 19/07/2020 11:13

How's everyone getting on? I'm CD33 now - had a second lot of EWCM from CD29-31 and cervix was high but not soft, EWCM has disappeared now, never got a positive OPK this cycle or even a high reading. As of yesterday I've felt exhausted and generally a bit low, all I can think is that my estogen had dropped but as I haven't ovulated progesterone hasn't taken over like it usually would. Assume I'll get AF soon as this has happened every cycle - EWCM for a few days followed by exhaustion and then AF a few days later. Don't think I've been ovulating at all in hindsight, feeling pretty low about it today 😕

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Flowerkm · 19/07/2020 13:30

@MintGreenLife Im so sorry to hear you're feeling low and you haven't had much change this month. It sounds like your body is really trying though with the EWCM and a high cervix. Im so new to this so Im still learning the ropes but over time things will settle and your body will adjust to being without the pill.
Have you decided whether you’re going to try the homeopathic detox or agnus castus?
Im on CD14 today and Im pretty sure I ovulated yesterday as got a peak on my strips and a static smiley on CB digital in the morning and a lot of EWCM. I did say i wouldn’t use the CB but i wanted to back up my strips as i was quite shocked i even peaked. I was in quite a bit of pain last night on my right side so I can only assume that was my body ovulating or at least trying to.
Sending you lots of positive vibes, I hope AF arrives soon and you start your next cycle. Have a you day today, plenty of tv and choccyss Smile

MintGreenLife · 19/07/2020 13:46

@Flowerkm thanks for your kind message :) I feel awful today - am completely exhausted and feel weepy, was the same yesterday too. I've just finished reading a brilliant book 'Period Repair Manual' - it basically explains how to come off the pill, what can cause the issues some people experience post pill, and how to have a healthy cycle/healthy periods etc.

From the book I'm starting to think I might have post-pill PCOS, which is different to long term PCOS but stops you ovulating. Agnus Castus isn't recommended for this, but another herbal option of liquorice and peony is the recommended treatment so I might try that, however I can't find much in the way of supplements for this. I'm still contemplating the homeopathic detox as at least that's a plan that's been drawn up for you, so no risk of wrong dose etc. I'm driving myself a bit crazy trying to decide what I should do though!

That's great news you got all those signs, and so soon in your cycle! I'm kind of hoping next cycle might be better, as general advice online is that it can take three cycles for your body to get back to normal, however I'm not holding my breath!

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Glitterb · 19/07/2020 13:56

This is an interesting post, thanks OP!

I came off Cerazette a month ago, had no withdrawal bleed but started a light ‘period’ yesterday. I have no idea if this is even a proper period! Other symptom were my boobs and nipples were agony, it felt like someone had been nipple clamped!

Is it normal to not get a withdrawal bleed? I did think maybe I had got pregnant already!

MintGreenLife · 19/07/2020 14:27

@Glitterb welcome ☺️

If you didn't have a withdrawal bleed and this is your first bleed off the pill then this is your withdrawal bleed. The book I've just read which I mentioned in my last post explains that light periods Post Pill aren't usually an issue, but that they could be down to not ovulating and essentially a 'breakthrough bleed' rather than real period. I don't think I'm ovulating and have been getting light periods, so think that's what's going on with me. I also have had the hope issue!! With my two 'periods' off the pill I've had extremely sensitive nipples around 2-3 days before AF showed up - like shower water is painful kind of sensitive 😩

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Flowerkm · 19/07/2020 16:24

@MintGreenLife Aw, i can totally imagine. That book sounds really interesting, its good to know about this stuff and how to have a healthy cycle. Sounds like some options and at least you know what to avoid as other remedies are more suited to this.
I know its easier said than done but try and not worry and remember its all totally normal and they do advise 3-6 months.

Hey @Glitterb Smile Yes, i agree that would be your withdrawal bleed.
Also what is with the sensitive nipples..omg, even the shower made them sore as well!They’ve calmed down a bit today so think it was over ovulation they were super sore and sensitive but crikey..ouch!
This is my first cycle off the pill (Microgynon 30) and had a withdrawal bleed as normal for my pill but not had a normal AF flow yet, sort of expecting it around 2nd August but totally prepared for it to come early while my body adjusts.

Glitterb · 19/07/2020 16:31

@Flowerkm the nipple thing OMG completely agree with the shower thing! They were so pointy as well, thought they would take someones eyes out!

@MintGreenLife tbh I can’t even remember what ‘normal’ periods as as I’ve been on the pill since since I was 17, I’m 32 now! When I have come off Microgynon 30 before I got one straight away, but I have been on Cerazette for about 4 years so a total different pill!

MintGreenLife · 19/07/2020 16:37

@Glitterb we are very much in the same boat then - I'm 31, going on 32 and have been on the pill since I was 17 also. Seemsso crazy to think I've only ever had 4 years of proper periods and 14/15 years of 'fake' bleeds and unnatural hormones 😱

@Flowerkm you're totally right, I'm clearly just impatient 😂 I think I'm going to take the plunge and try this homeopathic detox. The remedies in this book sound good, but I'm not too sure on dosage etc and don't want to get it wrong! Feel like it'll be better to pay for a plan and try that instead 🤞🏼

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Flowerkm · 19/07/2020 16:45

@Glitterb Haha! Yes, soo pointy as well. I havent seem them like that for years! So weird adjusting to this all again after 9 years. I was 18 when i went on the pill and now 27.
I can’t remember a ‘normal’ period either so will be interesting to see what happens.

@MintGreenLife Ah, honestly, we're all impatient i think so don’t worry about that! You just want the best for your body and helping it go back to normal.
Go for it, it will be worth it and it does really promising 😀 when is the soonest you can start? Is there a certain point in your cycle you need to wait for?

Glitterb · 19/07/2020 16:47

@MintGreenLife i suffered badly with periods from the age of 11 so in a way I’m dreading having them back but I know it needs to happen!
Are you testing to see if you are ovulating?
We are very early in the game so just be patient :)

MintGreenLife · 19/07/2020 17:19

@Flowerkm I'm worrying as well as our wedding ceremony is early September, after having to postpone the 'wedding' because of covid, and I don't want my skin to be breaking out then. Skin issues are only minor right now, but I've read that they peak around 6 months after stopping. Right I have ordered it! It seems pretty intense and involves cycling through different potencies of a herbal combination supplement by dissolving in water and drinking. It's meant to take 4-10 weeks depending on how long it takes you to cycle through each potency. I've contacted the recommended pharmacy to place the order, really hoping I can start ASAP!

@Glitterb I used to have horribly heavy periods and awful cramps, so far my periods have been super light, but don't think they are a proper period. Yep so I'm using OPKs and temping, but I'm pretty sure I'm not ovulating. That's true - my cancelled wedding made me hope that we might be lucky with TTC and that I would be one of those women that fell pregnant soon after stopping the pill, but it's not worked out that way ha. Kind of silly of me, but we can all dream x

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