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TTC after recurrent miscarriage thread 2 - we're not giving up

999 replies

UnicornsandRainbows1 · 21/01/2018 09:17

Shiny new thread! :)

OP posts:
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20
beanhunter · 09/08/2018 14:17

I’ve been lurking as I felt so far away from ever having success again.
Today is a year after our most recent mmc at 12/40. I’ve tried to stay away from the boards but have found myself following you all. Lonely to see so many positive outcomes.
Since I wrote last we’ve had all manner of complications after my mmc and then a failed ivf in May. Today however I am finally pregnant again after a 4th cycle of ivf. Hope it’s ok to hang here for a bit? Too scared to go to pregnancy boards.

Hopefulforourrainbow · 09/08/2018 14:34

Congratulations @beanhunter. I'll keep everything crossed for you

CurlyTwirlyTwos · 09/08/2018 15:19

Ahhh - @TaylsN congratulations! Super pleased FW went well Wink like Miami says, we are here to handhold for it if you need! Take it day by day!

Thanks @Paranormalbouquet for age difference reassurance. And all your clear medical speak too, I managed to follow the thread this afternoon! Thank you for sharing your knowledge! There is so much stuff going on in our collective uterus's, it's great to have an insight (and also scary at how much stuff might go wrong).

Everyone is full of news and updates, I have not much to report Grin. It is lovely to read happy news and it makes me a bit more hopeful for the future. I also feel like I'm getting clued up on jargon and early pregnancy processes too. It's really helpful - thank you so much for sharing everyone.

Good luck @beanhunter - let us know how you are doing.

Anne and Hopeful I go through bouts of torrid crying sometimes, followed by feeling totally okay. I'm so up and down. I sometimes feel unrecognisable to myself compared to last year.

Righto, September is the month I am back on ttcing with vengeance. Vitex, Floridex and B6 here I come! Are you joining me @hopefulforarainbow?

I don't have a 2 week all inclusive to look forward to, but there's week in Spain next week - with ALL of my in laws Confused

I'm not expecting it to be relaxing.....!!!

beanhunter · 09/08/2018 15:31

Thanks for the kind welcome xx

Hopefulforourrainbow · 09/08/2018 15:37

Yes I'll be joining you @CurlyTwirlyTwos! Hopefully we'll have a successful month! I have tried vitex twice before and both months got a bfp. What is Floridex? I have bought some more of the seven seas trying for a baby. Need to get some B6 though I'm a bit wary of taking it too. I have a reflexology and acupuncture session tomorrow morning. Hoping this lady will be better than the last one!

Labmum · 09/08/2018 15:56

@Miami81 and @hopefulforourrainbow hugs to you both. The baby bombs can come from anywhere even TV.

I met up with a friend the other night, she'd been suggesting a catch up for a while but I'd been putting it off knowing full well what she was going to tell me and hoping she'd just tell me by text instead of wanting to do the whole face to face announcement! I mean why??!! Come on you know my history, just drop me a text, I'll send a nice reply whilst having a little cry and feeling sorry for myself. So I put it off until after my 12 week scan, she's 17 weeks now but only told me last week by text because I told her first so she was obviously fairly determined to do the whole face to face thing. Am I a terrible friend? I know I am but I just didn't want to have to worry about what my mouth was saying whilst also hoping my "happy mask" didn't slip and give me away whilst I was still in danger territory and panicking about scans.

Congratulations @TaylsN are you under the miscarriage clinic? Will they be doing any extra monitoring?

I saw the RMC obstetric team this morning to see what their plan was in terms of future monitoring, I was very concerned I'd just be discharged to normal antenatal care (and took hubby for moral support in case I needed to try and argue against it) but thankfully they are going to see me again at 16 weeks and then give me additional growth scans at 28 and 34 weeks. I thought I'd let you all know so you know what to expect/push for after the 12 week mark.

Miami81 · 09/08/2018 16:21

Hi @beanhunter I remember you from various threads. Hope you are feeling ok. Please hang out with us, we are all at slightly different stages but I definitely can't go over to a pregnancy board yet as it makes me feel seasick just thinking about it.
Officially 8 weeks today (although from scans so far looks like 7+6 really). This day last year we had DD's 20 week scan. I had never been so happy or relieved. It's weird to think that at that point I only had seven more weeks with her.
@Labmum the 8 wks between 12 wk scan and 20 wk scan is the longest of long times.
My symptoms all disappeared after around week 10 and I didn't feel her move until 19 wks. It was torture. We had extra scans at 15 wks and 18 wks so that helped.
This time round assuming we make it past 12 wks we will be every 2 weeks. Which feels much more manageable.

Munchies89 · 09/08/2018 19:58

Thank you @Paranormalbouquet

Congratulations @TaylsN and @Beanhunter Smile are either of you on medication? Under recurrent miscarriage clinic?

I've just realised that I'm not taking b6 as I did before my last miscarriage. Do you think it's worth starting it again? If so how much and up to how many weeks are you supposed to take it? My mind has gone to mush since my last miscarriage so can't think of what I had planned to do last time x

Munchies89 · 09/08/2018 20:01

Also I've never heard of vitex and fluridex x

beanhunter · 09/08/2018 20:06

I’m on aspirin and clexane munchies. I’m also under rmc clinic so assume I’ll get more frequent scans but it’s not clear why I’ve miscarried previously as all tests normal.

Munchies89 · 09/08/2018 20:08

Hopefully they'll take very good care of you @Beanhunter. Which rmc ate you under?x

Munchies89 · 09/08/2018 20:08

Are....not ate 🤣 x

Hopefulforourrainbow · 09/08/2018 20:26

Vitex is also known as agnus castus or chasteberry frui. It helps to regulate cycle

Munchies89 · 09/08/2018 20:33

Thank you @Hopefulforourrainbow hope your reflexology appointment goes well tomorrow x

Hopefulforourrainbow · 09/08/2018 20:43

Thank you. I'm strangely nervous about it! Suppose it's just having to give a history etc. It's horrible having to go over it all again and again

TaylsN · 10/08/2018 03:53

Floridex was recommended by my acupuncturist, it's an iron supplement and also has b vitamins in it (including b 6). I'm not on any meds except those herbal/vitamin supplements. I had bloodwork done at the midwife on Tues and they said hcg and progesterone look good. I'm having a repeat on Tues to make sure the hcg is rising appropriately.
I didn't mention earlier but I'm actually in the States (New Jersey). I found reading all of your stories so hopeful even though our healthcare system is different. We pay privately to see our midwives. It's expensive, but their care is irreplaceable. Plus here even with insurance you end up paying a lot out of pocket Hmm

Hopefulforourrainbow · 10/08/2018 07:06

Thank you @TaylsN. Do you take it when pregnant too or stop once you get bfp? I did wonder if you weren't from uk when it came up that you posted at 4am! We're very lucky to have our NHS though some areas seem better than others. I would normally say it's better in Scotland than in England but the girls in England seem to be able to have more treatment options. They seem against progesterone here and have only really mentioned aspirin to me which I've been told to purchase. Prescriptions are free here too though. That's fab your hcg is looking good. Will keep everything crossed for you

Hopefulforourrainbow · 10/08/2018 12:19

Well reflexology is the strangest thing I've ever experienced. I thought it would be relaxing! My pelvis was out of align so she put it back in to place. Ouch but I feel so different. She pressed on my tummy quite hard, said I have a blockage in my bowel and whatever she was doing might clear me out! Said my heart is hurting and I do a good job of putting on a brave face, my fallopian tubes have slight blockage, she could tell I spend a lot of time on my feet. She is also a wee bit psychic and said I have a good relationship with my husband, all I want is to be a mum but I'm not going to like this, it's not my time yet. She asked if I wanted to know the sex of the babies we lost but I said no. It was all very strange.

Miami81 · 10/08/2018 12:37

Oh jeepers. I wouldn't be able for that at all @Hopefulforourrainbow
Are you in Scotland? I see a lovely lady in Edinburgh if you are nearby.
Mine normally fixes my shoulder, she has never made a comment about sex of babies or anything. She then boosts my thyroid (bit sluggish) and generally gets me back into balance.
I have gone to others when she wasn't there and they told me 'too much' info which just stressed me the fuck out.
Apparently my kidneys are great which is good sign of fertility, to which my sarcastic response is - yes I can get pregnant I figured that fertility was ok. I just can't stay pregnant......

Paranormalbouquet · 10/08/2018 13:03

Hopeful I couldn't cope with that either. I found it upsetting enough hearing the sex of my MMC at the follow up appointment after ERPC.

Obviously I'm not one for the woo given my profession mind you. I love yoga for it's general relaxation properties but really struggle with the nonsense (this stretch is good for your thyroid- as a thyroid specialist I respectfully disagree!).

I've actually had a lot of patients with fertility and miscarriage issues lately (unsurprising given my field) and I do think my experiences now are helping me to deal with them. I've just managed to set up an extra clinic once a fortnight where I can telephone people with results and discuss them or meet them and talk through results. I'm hoping that this is in someway helpful to people (and that I can convince my replacement to continue with it!).

Miami have you been told anything about fetal fibronectan testing in second/third trimester? My pre-term consultant plans to start checking mine from 22 weeks, along with cervical length scans. Apparently it's a good predictor of you not having pre-term labour if negative but less helpful if positive. I was thinking with your septum you might be offered it also?

Miami81 · 10/08/2018 14:03

@Paranormalbouquet I haven't been told anything about that but I will ask when we are further down the line, thank you.
Yes with the septum still intact pre term labour is a definite risk. Good to know that there may be a way to predict it.
I must admit that I love the reflexology, but I don't actually think it fixes anything, I think it helps me feel like I am doing something and it also helps me relax a small bit. Whatever she does to my toes does help with my very very tight shoulder. But other than that it gives me a general feeling of wellbeing (similar to yoga) so I am happy out with that.

Hopefulforourrainbow · 10/08/2018 14:39

I have a medical background too so not sure how I feel about all really. Honestly just thought it would help to relax me. Now I'm freaking out about blockages in my bowel and fallopian tubes and her saying it's not my time yet! I was in such a good place yesterday and felt great. Especially since its 1 year anniversary of first mc. I'm further north @Miami so Edinburgh is a bit far. Think I'll give reflexology a miss now anyway.

TaylsN · 11/08/2018 02:52

@beanhunter congratulations! I'm glad for the continued hand holding for now as well.
@hopeful I've kept taking the floradix since it's just iron and B vitamins and I figure that's good to take prenatally. I'm nervous to stop doing anything I was doing. My regular prenatal is a 3x per day to get 100% of your iron so I take less of those so I don't get too much.

zarala · 11/08/2018 07:52

Hi ladies
Can I join?
I am 36. TTC #2
Have had 3 MCs since August last year (coming up to the anniversary of the first one in a couple of weeks)
Have seen Dr Shehata privately. Diagnosed with very aggressive nk cells. Put on a predisinone regime from ovulation until
10dpo. I'm on my first real cycle doing this as I took a few months off after my last MMC in March.
Also seeing local RMC who told me it looks like 3x bad luck 🙄 which wasn't very helpful but they might do a uterine scratch to test for nk cells- (they don't believe in dr s's methods) - I find out on Monday.

Anyway thought I could join you ladies in case anyone is going through something similar?

AnneLovesGilbert · 11/08/2018 11:55

I think it was labmum who described it as “vibrating” with pre scan anxiety. I was awake at 3 pretty much unable to breathe with sheer panic about the whole fucking thing. Up at 8 to jab, eat and take my handful of pills and I feel like I’m going a bit nuts tbh. No one can say anything, it’s just a waiting game till Wednesday to see if it’s still okay in there. It’s obvioudly still in there as I never get a normal mc bleed or any idea whether or not things are going to plan. But is its heart still beating, are the drugs keeping the placenta working, are we going to have a repeat of a bad scan and an “I’m so sorry” or by some miracle will it be different the time.

Sorry, I’m just offloading. I didn’t think it would get to me like this, I’m normally not stressy about much, but the idea that I have absolutely no idea about what’s going on in there is sending me batty. Mmc has just fucked my faith in having any insight into my body and I spent a chunk of the early hours thinking if by chance it is okay all this anxiety is just wasted energy but it’s not helping because there isn’t any other way to be.

Gah.