Immune /natural killer cell treatment when ttc or pregnant (aka the 17th pred thread!)

[Hula2]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

It's really emotional isn't it?! I'm sure they'll only put one in if that's what you decide, surely?? I'd LOVE twins! 2 birds - one stone and all that!
Mao sad about your friend. I hope she has lots of support around her right now. Sending her love xx

Snoopy - how far along are you now?? Drs is sooo busy at the moment!!

Still haven't received my prescription from Louise. Did email her today and she said she get another one out.

I would love twins but I'm terrified of worse complications later on in pregnancy. Not had much luck with it so far-God knows wot else lies in store! Anyways will have a chat with them at some point

Hope ur prescription arrives soon!
I've got a stinky cold from the humira no doubts

sorry about the cold trying. It's taken me about four weeks to shake my one and that was only on pred. I'm sure ARGC would respect your wishes, why do they like to put back two?

Hope you get your prescription soon seeking. I'm 9+4according to my dates, 9+5 according to the scan, don't think one day makes much difference haha

The scan has actually made me much more anxious. I've never seen a heartbeat (or gotten this far before) and I suddenly feel like there's so much more to lose this time. itwasnt real before. Dr S gave us info about the harmony test if we wanted to consider it and now I'm paranoid the meds are keeping an unhealthy baby going and they're suffering

Ahh I'm sure your little one is absolutely fine Snoopy. You e come so far, just keep positive. What are you thinking regarding the Harmony test?? I know I was in two minds last time.... Will your next scan be your NT scan?

Erm confession time, I haven't called my GP yet I managed to book a scan with Dr s next week Thursday and if I make it I'll be 11 weeks. I know I need to speak to my GP.

I was thinking if I get there i woul have the NT scan first and see what they say. I've been googling the chances of trisomy for my age group which hasn't helped.

You ladies are so amazing id be lost without you. It's so hard to get into a positive mindset. Nothing has gone wrong so far and I should be grateful.

We decided that we'd have the NT done first and then have Harmony if that showed anything worrying. I'm sure all will be fine though. Call the GP after your scan with drS. They can the it rush your NT scan through. Don't feel under pressure. X

Hi ladies,
So much to catch up with
I had my hycosy scan yesterday, all fine so will go ahead with IUI next cycle.
With Reprofit in Czech republic. Their plan is for me to start with pred (5mgs) on CD1 +aspirin. Intralipids on the day of IUI + start with clexane from then.... We shall see
I wanted to do a medicated one but as there was 1 follicle of 18mm on CD10 +tripple stripe lining (9mms) without any medication this cycle they don't wat to push it...Was ordered to sh*g DH a lot next couple of days should just follow Dr's orders, shouldn't I?
Have to say that I was impressed with the whole clinic/scan/dr... made me feel more relaxed and trusting if we ever have to do IVF there

Swnanny - great to hear all went well at Reprofit and you had a good feeling from it all, lets hope you gets some results quickly.

Snoopy - you re doing great, just take it day at a time, i ve got a good feeling your LO is just fine in there. You can always get the nuchal scan privately if need be, we had ours with ds at the fetal medicine centre in harley st and they take the triple blood test before the scan so they have the results of it all by the end of the scan (with the nhs you usually have to wait a further 2wks for the blood results).

Trying - sorry about the stinky cold but hopefully its a sign the humira is doing something. Have you done both injections now ? When will u be retesting ?

Waves to everyone else.

hi swnanny - sounds like u have a sound plan. when are u having the iui? fingers crossed for you.

snoopy - keep being brave! i have everything crossed that ur bean is doing well. you have got over ur major milestones, ur on TX and the prognosis with RM is excellent even with no tx. so this could really be ur bean!!

hula - are u testing next week? did u and dh manage to DTD at right time?

I've taken the 2 injections, and they make u wait 3 weeks for retest which will be nov 9. if its still high i have to do the same again and i won't get to cycle till next year!!!!! which is going to drive me insane!

i know this sounds really silly!

but tmrw I'm meeting my mum in town and we are parking in the car park where i rang my dad to tell him my HCG result and burst out crying when i knew it was all over for a 4th time. I'm DREADING going into the car park coz i couldn't find my car and got really panciky and was crying as i ran up and down all the levels :(. it took me like 10mins to find the car and i was all over the place and couldn't concentrate and i rem feeling UTTER despair it was happening to me again. it was the first time i have found out without DH being there, maybe thats why i was a bit all over the place.

i really don't want to go there! i feel like i might gt PTSD (not literally, but I'm not looking fwd to going in there as i rem it so vividly) my mum will think I'm insane if i say anything so ill just grin and bear it like all the other places which remind me of my MC.

Glad you're feeling confident with Reprofit SW. Sounds like a good plan. Really hope this one works out for you

Trying I think it's completely normal to feel like that. You're human. We're full of weird emotions and those emotions you felt there were pretty horrific. You'll be fine though, keep strong. Hope your cold buggers off!

Oh Trying - i wish i could take away those awful memories. Its horrible to think of you going through that and its not silly at all.

I completely understand as my miscarriage happened very suddenly in a coffee shop after meeting my father for lunch and he d just left. I had to manage things on my own in the toilet with ds and then somehow drive home till dh got back from work. My father didn t know about the preg or mc and really likes this coffee shop so whenever we met for lunch he usually wants to go there and its still not easy even now.

Maybe you re mum would understand if you said something or maybe you could make an excuse to park somewhere else ?

Sending a big hug.

It is completely normal Trying - such small things can trigger those horrible feelings all over again.
I'm sure your Mum would understand if you told her and maybe asked to go somewhere else. Recently I've made the decision to just say how I feel to people and not to feel ashamed or like I can't talk about things! After all it's not us that's done something wrong - it's just our bodies playing silly buggers!!
On that topic.. I was due to go to London on Saturday for my ovulation scan with doctor George. I had my first reflexology session last night and she said she felt like I was ready for ovulation. I have home tested this morning and low and behold - smiley face three days early!! So I had a mass panic to find someone who would do me a pelvic scan at such short notice!! Found someone and my lining measured 10mm and my dominant follicle measured 3cm! Which I think is good?!? So it looks like the Clomid is working its magic and DH is in for a fun couple of days!! then we are hoping for our first BFP in 18 months this month!!
How is everyone else?x

Thanks guys! I have loads of mc memories sadly as I'm sure we al do. And loads of times when I look at pics and think I was preg no 2 that time....etc
This memory just really really haunts me I just rem being not able to pull myself together and I couldn't concentrate on where is the car and that I was mc...I'm usually not like that!

But I'll be ok! I'm having a nice day with her tmrw so I'll just try walk through the car park with my eyes closed and not look at the walls??!

Hula that sounds awful :( it must be complicated when u have a ds to look after with all this going on too...I struggle to fit it all in and balance it and it's just me and dh!

Thanks seeking, my cold is a total nightmare I'm sneezing and snotting everywhere! I'm hoping I'm better tmrw!

That's not silly at all Trying! Do whatever feels right for you and don't feel pressured about seeming 'normal'. You're an amazingly resilient woman.

Great news Lucie!! Have fun ;) and baby dust!

Good luck with the IUI swlondonnanny. Sounds like things are on track for you!

Snoopy- it really is your time. Looking forward to following along with every milestone :)

Lucie great news!! I hope this is ur month!! 18 months is a long time waiting! What an amazing reflexologist!!! I don't know much about follicle size but I am jealous of ur lining - mine only ever gets to 6 which has been mentioned as something which needs sorting this I'vf cycle! I don't know why it's so bloody thin! I'm having a hysteroscopy as part of my next I'vf cycle so let's see wot they say! I got worried I had scarring post my 2 d and c but I've been told by a super specialist I don't...hope he was right! Sorry totally off point! Yay to lots of DTD :)

My mum is wonderful but just doesn't get how distressing this whole journey is. She's sad for me but when I cry or am stressed she covers it up to try make me "strong again". I don't think she likes to see me upset so tries to "make it ok"

How r u drttc? Did af show up?
Thanks for not making me feel like a silly little girl!

You should get your mum to try and watch Freelances documentary. A friend of mine watched it last week and sent me the most lovely message - basically along the lines of 'I knew you were strong, but you amaze me'. I think it made her see just how painful the whole thing is, including subsequent pregnancies.
I don't talk about it all with my mum, I can't deal with her sadness on top of my own. I've told her now not to ask questions. I hope tomorrow goes well, get out the car park quick and get a fat slab of cake!

Lucie - glad the chlomid has worked for you! Amazing! Have a fun few days

Yeah I spoke to my counselling lady once about it and she said in this situation most women find their parents to not be that helpful and it tends to be people who have exp some sort of grief or infertility....
I still speak to her about it but it's more business like. Like u I can't deal with her sadness too! She's being as good as she can but I think it's just one of those suituations no one understands until your in it! To be fair I didn't understand the grief of miscarriage until I lived through it

Which brings us to this lovely thread full of understanding strong women!

Have a good day girls, seeking I'm crossing my fingers for the 28th for u x

Great news lucie, when do you think you'll be testing?

sw that sounds like a really good plan and the fact you have confidence in the staff really helps to ease some of the anxiety.

trying as hula and the others have said I think your feelings are perfectly natural. I don't tend to think of the places where I miscarried but I do think 'the last time you were here you were pregnant' at certain locations.

Thanks for the tip regarding private nt scans hula, dh and I have not been talking about hospitals having both developed an aversion to them but should we get that far I will definitely consider your advice. Are you near testing yet? Your SO makes a mockery of my 33 day cycle haha

drttc how are you?

Hey Trying! Spotting atm so AF is on the way! Ive booked pre-ovulation intralipids for Halloween... Taking advantage & having lunch at a GF Chinese place in the area that's supposed be yummy!

Whoops I missed loads of posts!

Hey snoopy :) I'm in a good place at the moment. Have booked most weekends left this year with romantic getaways or fun activities to keep me busy!

Mmmm chinese. I had Vietnamese for dinner today. So pleased to hear you're doing well with lots of good things planned.

I'm really looking forward to Halloween and bonfire night.

second intralipids done. It took ages for some reason, I was probably already full of calories haha

I also told Louise I was nine weeks tomorrow, which is a complete lie don't know what's wrong with my brain recently!

trying how did it go today?

It was fine don't know why I worried myself for no reason!

My mum asked me I was preg coz my skin was glowing?!!!! She's desp for me to get a natural bfp...she doesn't know about dh sperm so she just thinks I've got some unexplained infertility on top of mc. She's so blatantly thinking I'll fal preg naturally little does she know i will never ever ever have a natural bfp again in my life!

Glad u got ur intralipids done. And drttc good plan! Amongst all the fun u will get ur bfp!

Trying i know what you mean about mums, i can t talk to mine about treatment as she just gets panicky about the drugs and the. just finds things like the hfea stance on immune tx which does not help. I think mums just want to fix things (or not want them to be broken in the first place).

Drttc sorry af is on the way but sounds like you ve got some good things to look forward to.

Welldone with the intralipids Snoopy, its all one step closer.

I m due to test saturday, we re away with dhs family so its a bit of pain as its always diff to stop a bfn being a downer so will have to put on a brave face but hey ho got intralipids and acu all set up for my last cycle next month.