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RESPONSE Trial for Recurrent Miscarriage - Thread 4

624 replies

Vicki272 · 05/08/2015 00:24

Thread for all ladies on the RESPONSE trial - all stages welcome, for a bit of well needed silliness and good old fashioned all round advice and support!

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12
Alwaysmaking21 · 06/08/2015 17:11

Stumbled on this active chat... I have had 7 consecutive mc. I already had children without any pregnancy complications. I have been healthy and we thought we should get tested as were actively trying for a baby. Anyway, long and short was no medical difficulties ' just keep trying' advice. So I methodically temperature charted every morning to determine ovulation for optimum chance of conception, I was conceiving but not retaining the pregnancy at varying weeks from only 5 right through to 8/9. Was referred to a hospital doctor who said she had been on a seminar and one of the speakers spoke of recurrent mc linked to autoimmune disorders. I was very lucky to get a referral to the specialist hospital where they assessed and treated this stuff. Lots of blood tests and hospital visits revealed I had one of the autoimmune disorders- anti phospholipid auto-immune to be precise and this was causing my body to reject my pregnancy. I was managed throughout my pregnancy and had to self inject daily with many hospital visits. Pregnancy was not a happy process and numerous scans were always met with anxiety. A successful pregnancy however and now have DS 11 yrs old. Who knew- I had no symptoms, I was unaware I had that thing, it can come and go. I have been tested recently and no longer have it. Truly bizarre... But also worrying that not all Obs doctors were not familiar with the condition/ impact on pregnancy MC.

Choccywoccydodah · 06/08/2015 17:38

Fabulous news Gen!!

Always are you in the trial? I'm confused sorry!
So sorry about your mcs :(

Brummiemum87 · 06/08/2015 17:48

Hi ladies, sorry not been active for a few days. Just been reading through & catching up with what everyone is upto.
Great news that your scans were ok March & Gen x

LouiseM1987 · 06/08/2015 17:53

Yay on the good scans March and Gen such a relief ! Xx

Alwaysmaking21 · 06/08/2015 18:15

Choccy- sorry, not in trial, probably posted on wrong thread- just wanted to share my own weird situation.

littleb84 · 06/08/2015 18:50

So happy for you both March & Gen!!

And stop it with the holiday talk....you're making me me very jealous. We decided not to book one this year in case we got pregnant & didn't want to be away. Really feeling the need for one now though Wink

clairemorgan81 · 06/08/2015 19:04

great news gen Smile. xx

Kazz2112 · 06/08/2015 19:05

We started like that Little bur then decided FI... if we book something and lose the holiday but get a successful pregnancy out of it at the end of it then we'd happily lose the money. Although we ate coveted by insurance with bank accounts anyway

clairemorgan81 · 06/08/2015 19:14

we were going to book also but decided not to in case I was pregnant Sad. nevermind were off to centre parcs in Oct instead!x

Original poster
Vicki272 · 06/08/2015 19:25

Jealous on the holidays ladies!! We went away in Feb for nearly a month to Australia... WHen we came back discover we were pregnant then MC within a week. The only thing with early hols is not a lot to look forward to now! (Sounding v ungrateful lol... Don't mean to be! Was amazing) just could so do with something else to focus on!

Xx

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Marchgirl · 06/08/2015 21:08

Enjoy your trip to Edinburgh tomorrow claire! I ended up not going to the zoo on Tuesday but my sister said the dinosaurs were great Smile

clairemorgan81 · 07/08/2015 05:12

Morning all
it's an early one, I've been awake since 4:30 I'm really struggling with a decent nights sleep at the moment Sad
have to be up early anyway as need to be www2.warwick.ac.uk/fac/med/research/tsm/bru/clinic/train station for 7:30am.
thanks March I hope the sun is shining for us. hoping ds loves zoo.
hope your okay?
waves everyone else xx

clairemorgan81 · 07/08/2015 05:13

I have no bloody idea how I have just posted a link to Coventry info....I sent it to hubby last night so must have pasted it somehow, sorry! I'm useless and hate my phone!!x

Original poster
Vicki272 · 07/08/2015 06:50

Morning Claire! Hope you are okay?

I'm struggling to get to sleep at the moment too... It's rubbish isn't it?

Are you testing to be sure today? Let us know how you get on.

Hi everyone!! Happy Friday!! X

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clairemorgan81 · 07/08/2015 08:51

I tested this morning Vicki bfn as expected.
I dreamt last night I had a positive test, its just shit.
how do you ladies carry on?x

Marchgirl · 07/08/2015 09:01

Sorry about the bfn claire Sad. How many dpo are you?
Weather up here looks lovely to you should have a nice day xx

clairemorgan81 · 07/08/2015 09:05

I'm 9dpo today i know it's still early but I don't think it 'll change x

clairemorgan81 · 07/08/2015 09:06

weather seems lovely march fingers crossed it stays this way x

Choccywoccydodah · 07/08/2015 09:21

I don't know how I kept going tbh Claire, but do!! Look at the outcome in the end. It's so shit how easily you fell before yet not now, I don't understand it!!!

What did you test with this morning? Xx

clairemorgan81 · 07/08/2015 09:46

the rubbish response ones (not cb) choccy

I think that's why it's even.more frustrating when I signed up for trial in feb I thought I would fall straight away like the 3 mcs x

philippa88 · 07/08/2015 10:28

Claire I don't think there is a way to keep going - it just happens. The amount of tears I shed, the amount of tantrums I had, the amount of times I wanted nothing to do with my pregnant friends, the times I blamed myself and my oh, they all passed time rightly or wrongly and here I am now.
For me time is dragging, our 16 week scan is tmrw but I remember crying 3 weeks ago saying 'it's ages until the scan, 3 whole weeks' and really, it's come round pretty quick! Time is more the issue I think, the waiting and constant cycles. You WILL get there and we're here for you until you do.
I once read a coping thing about ttc - it basically said...
'Ttc is like going on a train journey with the best destination at the end. The train may get diverted and go all over the country, but you wouldn't get off it, you'd stay on until you reach that destination, it's the same with ttc.' - thought it was quite nice xx

Kazz2112 · 07/08/2015 10:36

Is your 16 week scan part of the trial Phillippa? I've folded my appointment sheet I
over so that I can only see the next appointment and I can't bring myself to check on there cos it's sp far away!

Just another question... the 1st scans... are they internal? I expected they would be but my trial nurse said to go with a full bladder!

Marchgirl · 07/08/2015 11:11

I was expecting internal when i was scanned at 6+2 (so had literally just emptied my bladder when i walked in), but it was external. And was actually fine without full bladder. I think they try external and if they can't see enough switch to internal

philippa88 · 07/08/2015 11:18

No Kazz, it's a private one cos I couldn't wait until the standard 20 week one! I need to see baby is still ok in there and being honest, this morning I cried worrying there'll not be a heartbeat or something :( For me, time does not make this easier!!
The trial stop scanning you at the 12 week stage, unless like some they want growth scans much further on.
Both of my early scans,(7 and 8) were both internal ones so they could get a better view of baby, but even my standard 12 week one ended up being internal cos baby was sitting upright when they used the external one and they couldn't see it properly! Can't beat the dildo cam Wink xx

Original poster
Vicki272 · 07/08/2015 13:16

Haha! Philippa - dildo cam??? Shock can anyone remember a time they actually felt a bit frightened of those?? Now, i am so blase about them it is ridiculous!!

Oh, sorry for the bfn Claire - i don't know how we keep going, i guess we just do. Really, the alternative - to give up - just seems so much worse! i suppose that's where i find my strength sometimes -others i just have a cry and a tantrum!!!

I like your train analogy Philippa! Smile

x

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