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RESPONSE Trial for Recurrent Miscarriage - Thread 4

624 replies

Vicki272 · 05/08/2015 00:24

Thread for all ladies on the RESPONSE trial - all stages welcome, for a bit of well needed silliness and good old fashioned all round advice and support!

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littleb84 · 05/08/2015 16:16

Thanks ladies. It will be good to have people to talk to, previously i've just lurked on forums & never said anything but I know i need to be more positive for when i do get that positive test and the support from others who are in/have been in the same position as me will help a million times over. All i have done in the 3 previous is stress constantly and analyse every single pain, symptom or lack of!

Yep...October deadline is deffo completely shit!! But i know that if we don't get there then at least we'll have tons of further support from the docs, nurses and all of you on here Smile x

philippa88 · 05/08/2015 16:56

Welcome little, so we have to meet under these circumstances! Hopefully you beat that deadline and join the trial :)
For me personally, I think the only reason I'm 15+4 now is that I had the trial drug. I honestly don't think I'd ever have got past 5+4 without it.
Kazz - stay strong and think positive! Xx

Kazz2112 · 05/08/2015 18:04

A good couple of hours sleep helped this afternoon! it's a bloody good job Im off at the moment cos I don't think I could manage to keep going all day!

Today's injection really hurt! like really really hurt! Angry Little bugger

Vicki272 · 05/08/2015 18:30

Claire I can't comment on what you should do, I can only say what i would do...

I would do everything at the first available opportunity. Have the tests then make the most informed decision possible... It probably isn't the best advice but I am coming at it from the angle that I would want to eliminate as many of the doubts that I could whilst ensuring I don't waste valuable time.

As I said, not sure that it is the best advice...

The road to what we want is never easy... or so they keep telling me! xx

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clairemorgan81 · 05/08/2015 18:55

Vicki thanks for your advice. I think I 'll wait I til I've been to gynae app and then see about Coventry after that. once October comes I 'll want something else ongoing x

Vicki272 · 05/08/2015 19:12

Good thinking my lovely... Smile xx

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Vicki272 · 05/08/2015 19:53

Is it bad that I am already thinking about the stupid pregnancy testing that I have to start on Monday? I really don't even want to get my hopes up!

Does anyone have any coping strategies in this limbo part?

It drives me crazy! I start convincing myself of all sorts of symptoms!! Anyone else like that? xx

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clairemorgan81 · 05/08/2015 20:04

it's a nightmare Vicki and I hate testing so early. sorry I'm useless during test time so I'm absolutely no use to you!!
do you have any symptoms? xx

Vicki272 · 05/08/2015 20:10

Nope - I am exhausted but I think that it's just work and that I am not sleeping very well.

Think it is waaaaay too early now right?

I am useless and I just do't understand why I do it to myself every damn month!!!

I might try and hold off the testing so I give it an extra few days? Be a rebel and all that! I don't think I have the emotional strength to cope with the BFNs... x

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clairemorgan81 · 05/08/2015 20:17

I was meant to start testing today but don't see point with the browny cm but will fri just to be sure.

some ladies know they are pregnant straight away so you never know Vicki. fingers crossed for you, it seems like such a long process doesnt it - waiting to ovulate/preg test/hoping af doesnt arrive -repeat.

get colouring in Smile. xx

Vicki272 · 05/08/2015 20:21

You know Claire... I was just thinking a bit of colouring wouldn't go amiss? Have done a bit of baking tonight too!

I feel like i spend my whole life peeing on blummin sticks... when i am not doing it I am thinking about it! It is enough to drive a girl crazy!!

I agree, test to be sure... bless you - so frustrating isn't it? xx

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clairemorgan81 · 05/08/2015 20:25

totally what a journey is this for all of us xx

littleb84 · 05/08/2015 20:40

I have to start my preg tests on Monday too vicki...funny how everyone ends up been in sync! I'll be crossing everything for you as well as me & hopefully we will both have good news next week Smile
I've got my little goodie bag down the side of the toilet & looking at it each morning is torture!! I just want to know now!! I suppose it doesn't help because I don't know if I've actually ovulated or not this month

Kazz2112 · 05/08/2015 20:47

I personally found it better for purposes of self preservation to hold off. the first month I tested on 7dpo and the wait for AF was horrible. Turned me into a horrible person. Even last week starting testing on Tuesday at 9dpo I had total meltdowns. I think 10 dpo is early enough to start.

MAS7 · 05/08/2015 20:55

Hi everyone

Claire, I don't know what should be your next step but wanted to add that I too had the pre af brown /pink spotting for about 6 months prior to conceiving this pregnancy. My LP was 12 days and the spotting would usually start around 9 dpo... It was actually at its worst the cycle I conceived this pregnancy so couldn't have done too much harm! I saw gynae about it and they weren't bothered though, said if my latest smear was up to date then it wasn't a concern. I was really pissed off with that answer but at least I didn't have to wait long for my next BFP. I hope you get yours soon.

MAS7 · 05/08/2015 21:03

Louise I saw the consultant today, be warned my appointment was at 11.15 and I was seen at 12.45! Apparently that's the norm!!

Saw midwife first for bp, weight and checked baby hb. Then saw consultant who mostly talked about my previous c sec and the options I have for birth this time. Can't go in birth centre, can't have water birth and can't go overdue. Not too pleased. Does anyone have any experience of vbac? I was really hoping for a water birth but she was adamant it was a no as they need constant fetal monitoring which is fair enough, just feel like I'm being set up to fail with all the rules and restrictions already.

About the recurrent miscarriages she didn't seem fussed at all. I asked about growth scans (said Prof Q recomended it!!) and she booked them in for 28 and 34 weeks. If I hadn't asked she wouldn't have offered though so interesting choccy got a completely different response. Be interesting to hear what they tell you tomorrow.

Are you still feeling kicks Louise? So amazing with your first. x

Vicki272 · 05/08/2015 21:05

That's positive news Claire from MAS!

All matched up then little! I guess it doesn't help that I don't know what length cycle I am looking at! Could be anywhere between 28 and 34 days!!

I am going to try and hold off. Got a first response and some Internet 6 day before ones so figure it's not even worth trying until then!

What is everyone up to this evening then? X

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Kazz2112 · 05/08/2015 22:35

Painting our en suite

Kazz2112 · 05/08/2015 22:35

posted too early...

Painting our en suite very badly....and colouring very neatly! oooopppseee

Vicki272 · 05/08/2015 23:01

Haha Kazz! Loving the priorities there! X

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clairemorgan81 · 06/08/2015 06:12

morning ladies

super good luck this morning at scan March.

ahh it's quiite reassuring and nice being in sync with someone, good luck you two. I can't do it from 7dpo far too stressful for me although waiting is torture too!

thank you for that mas it's nice to know I'm not the only one with spotting and even nicer that it was bad before conceiving. did you get it the month you were pregnant?
why are they being so strict birth wise because of the mcs?
xx

LouiseM1987 · 06/08/2015 07:09

MAS yeah getting lots of kicks now especially after eating an orange so it either loves it or hates it haha !

My spot got cancelled today :( and rearranged for Saturday at 9 I mean seriously I wanted time
Off work ! But I phoned L and said can i come in to listen to the heartbeat so going there instead.
I hope I get offered them too or they agree to them after I say.
Regards testing I tested when they said but I had a bleed a week before AF so stopped for 4 days then carried on I would say if you can hold off testing so early its to stressful and upsetting xx

LouiseM1987 · 06/08/2015 07:16

Appt not spot haha

MAS7 · 06/08/2015 08:15

It's nice you're going in to hear the hb, I love hearing it still. There's no bonus in Saturday appointments is there! My boss must think I go shopping after a hospital appointment, I was gone nearly four hours yesterday!

Claire, it's not the miscarriages making the birth so restricted it's the emergency cesarean I had for my son 3 years ago. On the cycle I got pregnant (and didn't miscarry!!) I had a bleed about day 10, didn't get smiley until day 16 which was late for me when usually I am clockwork then started the spotting about day 24 I think. I was a wreck that cycle as it was my most messed up ever, thought my body was well and truly failing me but then turned out I was pregnant and so far have managed to hold onto it! 22 weeks today. Just goes to show even though it's so out of the norm doesn't necessarily mean it's ruining your chances.

Vicki272 · 06/08/2015 08:35

Morning ladies...

It is good to be in sync with someone - let's hope it brings us luck!

Woken up this morning to some pain in the right hand side of my pelvis... Still not sleeping properly either so am shattered in the day, but struggle to sleep in the evening.

I have decided that I going to try and wait until 9dpo...

x

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