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Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

991 replies

sunnyday01 · 06/02/2015 20:10

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

OP posts:
Hopender · 06/03/2015 19:57

Oops meant to actually say something... I had my first intralipids at 7 weeks if that is helpful. Dr S says I have a gluten intolerance that triggers an immune response to pregnancy rather than highNK cells though...

sunnyday01 · 06/03/2015 20:01

Hi drttcm welcome to the group. I have high nk cells and I have to have intralipids at 4,8,12 and 16 weeks - I think you would need to ask him about going away when you find out your results as it may depend on what he finds as to whether you need to be here or not.

OP posts:
sunnyday01 · 06/03/2015 20:01

Oh and I think the list like they used to do is a great idea!

OP posts:
Drttc · 06/03/2015 20:31

Thanks hope and sunny :)

Ah so I guess it can go either way depending on my results... Really hope I can start this month :(

Well if we'd like to get a list going I'm happy to start? I'd be in the waiting TTC group!

WTTC
Drttc- awaiting Dr S results, 3 MCS

Above WTTC could be a TTC, followed by the other categories (increasing the further the people are into pregnancy). Will be very cool to see people progress!

sunnyday01 · 06/03/2015 21:12

TTC
Sunnyday - high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

WTTC
Drttc- awaiting Dr S results, 3 MCS

OP posts:
Determined123 · 06/03/2015 21:20

Welcome Drttc, sorry to hear about your loses but you have found the right man to help you ;)

I should be getting my second round of tests next week too! Fingers crossed for the 16th for you!

X

Drttc · 06/03/2015 21:31

Cheers sunny!

Thanks determined! Want to join the list? Oh good luck to you! Will keep an eye out for your results.

Determined123 · 06/03/2015 21:36

Oh yes please...thanks for sorting!! Put my original results/diagnosis if you need it?!

WTTC-awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.
;)

Drttc · 06/03/2015 21:50

Great! We can wait for the retest as that'll be more up to date :)

List:

TTC
Sunnyday - high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

WTTC
Drttc- awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.

Hula2 · 06/03/2015 23:09

Hi DrTtc,

You can add me !

TTC - one DS (took 18mns with low amh but no other probs), one MC, ttc no 2 19mns (12mns sinc mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids), about to do Humira for cytokines.

Hi everyone else and Hope hows it going ? You must be well into 2nd tri.

I m on day 1 and praying for a more sensible cycle this month.

Tryingno1 · 07/03/2015 00:44

Hey guys!
Add me!

Trying - 3 mc. 5.5 weeks, 9 weeks, 5 weeks. High nk cells.. Ttc

Tryingno1 · 07/03/2015 00:45

Sorry last one 6.5 weeks!

Hopender · 07/03/2015 07:09

Add me too! I joined at the same time as most of these ladies!

Second trimester - 7 miscarriages, one DS, expecting second! Dr S said I had high gliadin antibodies. Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin!

Thanks hula! I'm 20 weeks now. The fear doesn't completely go away but I'm feeling much more hopeful! I'm still following everyone's progress and know there will be more bfps soon! Lots of love to you all!

Drttc · 07/03/2015 09:03

Amazing!! Hi ladies :)

New list!

2nd trimester

Hopender- 7 miscarriages, one DS, Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin! (20 wks)

1st trimester
Coming soon!

TTC
Sunnyday - high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

Tryingno1 - 3 mc. 5.5 weeks, 9 weeks, 6.5 weeks. High nk cells.

Hula2- one DS (took 18mns with low amh but no other probs), one MC, ttc no 2 19mns (12mns sinc mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids), about to do Humira for cytokines.

WTTC
Drttc- awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.

Hopender · 07/03/2015 10:24

Thanks Drttc! We should maybe add ages too. I'm 38. My experience has been that if you keep at it, then it does usually work out in the end. Beyond bloody hard though!

Drttc · 07/03/2015 10:47

Okay let's add ages :) anyone who would like to include their age (or be added to the list), just copy and paste this list with your info!

List

2nd trimester

Hopender- (38 yrs old) 7 miscarriages, one DS, Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin! (20 wks)

1st trimester
Coming soon!

TTC
Sunnyday - high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

Tryingno1 - 3 mc. 5.5 weeks, 9 weeks, 6.5 weeks. High nk cells.

Hula2- one DS (took 18mns with low amh but no other probs), one MC, ttc no 2 19mns (12mns sinc mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids), about to do Humira for cytokines.

WTTC
Drttc- (28 yrs old) awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.

Tryingno1 · 07/03/2015 15:17

2nd trimester

Hopender- (38 yrs old) 7 miscarriages, one DS, Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin! (20 wks)

1st trimester
Coming soon!

TTC
Sunnyday - high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

Tryingno1 (30 yrs old)- 3 mc. Ttc since April 2012. 5.5 weeks, 9 weeks, 6.5 weeks. High nk cells. Pred and intralipds.

Hula2- one DS (took 18mns with low amh but no other probs), one MC, ttc no 2 19mns (12mns sinc mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids), about to do Humira for cytokines.

WTTC
Drttc- (28 yrs old) awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.

Tryingno1 · 07/03/2015 15:18

Hi hope! Lovely to hear from u? How r u? So Glad it's all going well ;)

Hope ur all enjoying sunny afternoon! It's sunny here for once anyway...

I decided to go for counselling yest. See if I can unload from stress and stop me being obsessed with ttc! Was really helpful-anyone inclined I would go for it!

sunnyday01 · 07/03/2015 17:26

It's been lovely and sunny here too - been for a two hour walk around some lakes near to where we live - was lovely! Feels like spring is on it's way finally!!

Lovely to hear from you hope, glad all is going well x

I've been thrown out this weekend as I was advised to do my ov trigger shot this morning at 10am which means I will ovulate about 10pm tomorrow eve (normally have to take it in the evening) it's really thrown me for when to do the BD!

OP posts:
sunnyday01 · 07/03/2015 17:27

2nd trimester

Hopender- (38 yrs old) 7 miscarriages, one DS, Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin! (20 wks)

1st trimester
Coming soon!

TTC
Sunnyday (32 yrs)- high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

Tryingno1 (30 yrs old)- 3 mc. Ttc since April 2012. 5.5 weeks, 9 weeks, 6.5 weeks. High nk cells. Pred and intralipds.

Hula2- one DS (took 18mns with low amh but no other probs), one MC, ttc no 2 19mns (12mns sinc mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids), about to do Humira for cytokines.

WTTC
Drttc- (28 yrs old) awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.

OP posts:
Hula2 · 07/03/2015 18:53

Hey trying glad to hear the counselling helped.

Go sunny go !!

I ll add my age (might have to update it in a couple of months, ahh!) so here s the list:

2nd trimester

Hopender- (38 yrs old) 7 miscarriages, one DS, Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin! (20 wks)

1st trimester
Coming soon!

TTC
Sunnyday (32 yrs)- high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

Tryingno1 (30 yrs old)- 3 mc. Ttc since April 2012. 5.5 weeks, 9 weeks, 6.5 weeks. High nk cells. Pred and intralipds.

Hula2 (39 years) - one DS (took 18mns with low amh but no other probs), one MC at 9wks, ttc no 2 19mns (12mns sinc mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids), about to do Humira for cytokines.

WTTC
Drttc- (28 yrs old) awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.

Drttc · 07/03/2015 19:01

Tryingno1, how long have you been with Dr S?

Tryingno1 · 08/03/2015 08:16

Hi drttcc. I've been with him for 8 months. I went to see him in July after mc no 3 after nhs tests showed nothing was causing them. I then started ttc again in August/sept. After getting preg quickly 3 times I haven't managed to get preg so still waiting. Mr s wants me to do SO i think, but im not so keen...so waiting it out...But don't worry it's not his plan thats not be getting preg, as I haven't followed it for the last few months! And nearly all the ladies on here have gotten preg following it !

Rosa27 · 08/03/2015 10:23

Welcome drttc - hope this new chapter brings you luck. Hope- brilliant all still going well :) Hi everyone else. I had my first bfn on SO and been waking really hot during night. Starting accu again so here's to a new month.

Here's the list with me too.,

2nd trimester

Hopender- (38 yrs old) 7 miscarriages, one DS, Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin! (20 wks)

1st trimester
Coming soon!

TTC
Sunnyday (32 yrs)- high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

Tryingno1 (30 yrs old)- 3 mc. Ttc since April 2012. 5.5 weeks, 9 weeks, 6.5 weeks. High nk cells. Pred and intralipds.

Hula2 (39 years) - one DS (took 18mns with low amh but no other probs), one MC at 9wks, ttc no 2 19 mns (12mns since last mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids) about to do Humira for cytokines.

Rosa (38 nearly 39yrs) - 3 MMC (11.5, 6.5, 7.5). 6 months ttc on treatment. On complex programme for high NK, cytokines and thyroid antibodies (hydroxy, pred, intralipids)- had allergy to Humira. Also on SO programme.

WTTC
Drttc- (28 yrs old) awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.

Drttc · 08/03/2015 11:47

Hi Rosa! Thanks :) Good luck to you as well! I'd love to try acupuncture but assume it can get quite expensive...

Trying, why are you not keen on SO? I know absolutely nothing about it... Is it clomid?

The other day I thought to myself 'how cool would it be to try clomid and become pregnant with twins!' Of course that's silly and I'm sure it's not as simple as that... But having multiples would be great after all the heartbreak!