Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

[sunnyday01]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

sorry to hear your results Drttc - I can't offer advice as never had my hcg levels tested and so don't know much about it. Sounds like you are doing the sensible thing and seeking mr s advice though.

Take care of yourself x

Happy birthday tomorrow Sunny!
Time went sooooooo slowly for me but I've not felt well enough to be active and distract myself so that didn't help. It does feel great to get to this point.. Just need to keep the faith now x

Sorry Drttc I didn't see your post until I posted my last. Really sorry this isn't looking as positive as it could. Please do keep calling for advice before you stop the medication. There are do many good stories that start with some 'bumps'. If it isn't good news I hope things and you can move on quickly. But of course look after yourself. It's a gruelling, exhausting process at the best of times x

thanks for the birthday wishes!

I have been feeling ok, I am trying to take it easy though and rest up as much as possible - not sure if it helps but makes me feel like I am doing something to help it along. Time is going so slowly though!

Yes keep the faith - do you have another scan with mr s before your next nhs one?

If wanted to see Mr S at 14 but he's full so had agreed 16 but just been told I have an nhs one then too so not sure what to do as feel would like to see Mr S and expect he will want to see me .. But don't know if need to do nhs too and worried about too many scans x

Rosa!!!! Great congrats! so pleased for u and ur DH! Are u feeling a little
More relaxed? I hope so! So so pleased.

Sunny - happy bday! Glad things seem to be staying as they should! I know ur over ur big hurdle with spotting etc and I'm sure the meds r doing the trick this time. Hope this week goes fast and ur in the scan room soon for some good newS.u sound like ur holding it together great!

Drtcc-im sorry ur hcg levels are not raising as u wish. Please try not to give up hope some
Pregnancies progress slower and there r always stories like that online! Let us know wot Mr s says. Hugs to u (and some flowers)

My first san is in friday I hope
My eggs are behaving and doing as they should! I have a lot of trapped wind (sorry guys, sexy me!) but other than that feel fine! Then I should have a rough idea re imp dates!

PS drtcc- I thought a 50 percent rise in 24 was expected so 66 in 44 hours isn't that far off. I'm hoping all is ok xx

Oh Rosa i can t tell you how pleased i am for you ! This is such a big milestone and with harmony all fine you ve an excellant chance this really will be your take home baby. Wow what a christmas present.

Yeah rosa you did it! Please stay here and keep us updated and cheer us on! You're gonna have a baby for Christmas!

drttc don't give up hope. There are so many success stories that start off with doubts and uncertainties. See what Dr s says.

Happy birthday sunny

Happy Birthday Sunny - hope you have fun in Windsor. I live just round the corner!

Fantastic news Rosa!! Enjoy this moment before you let the worry creep back in!! The odds are definitely in your favour!! Congrats!! I think if I were you I'd want to see DrS one more time.

Drttc - I'm sorry things are so worrying for you. But don't give up yet. DrS told me last tmie I went about patients who'd bled heavily, stopped meds because they though it was over and low and behold a healthy baby showed on the scan. I know it's a different situation but along the same line. Wait to see what DrS says. Sending you a big hug.

I'm officially at 9 weeks today. Time is dragging SOOOOOO much .

Drttc - sorry you re having a worrying time but try to hang in there. Its not over yet and as there others say see what Dr S says about meds before you stop. Sending cyber hugs and keeping everything crossed for you.

Thanks Seeking, Hula, Snoopy & Trying :) will def stick around with my online pals to cheer you on and let you know how I do in case it helps when you get here.
Thinking of you Drttc - everything crossed x

Drttc-how r u? Any news.

Hi all- and hope you had a lovely birthday Sunny!

Thanks so much for your kind words everyone. Honestly, I'm having a really tough time. Louise has said to continue on with the medication, tell them if there's bleeding, & to book in a 6 week appointment. I asked her to be frank with me about my numbers & her previous experience, and she pretty much said its unlikely this will end well. Which I knew! What bothers me the most is having to carrying on with medication that aims at essentially prolonging my anguish. It's really messing with my head knowing that I'm pregnant, but it's 'doomed'. I want to go back to being positive & hopeful, but how can I when I have something dying inside me...

Also, as I creep closer to mc #4, I'm wondering if there's actually something wrong with my eggs? 3 pregnancies in 5 months, & none make it to 6 weeks. WTH.

Hi drttc. I'm so so sorry. But I think it's imp u stick with the meds-miracles really do happen and at least u know then u did everything u could. But it's a total head *uck. So sorry.....there's the hyperfertility theory out there...u prob fall into it?? I don't know if u have read into it? But it's bascially that we accept non viable pregnancies while
Other women reject them. So u get preg quickly but sadly some aren't chromosomally normal. The hope is that every egg and sperm and a new lining every time so one will work out. Obv NK cells etc are issues ontop of that!
It's such a shitty long road, but keep hope. So many happy stories out there....
Have u moved home? Are u stil at work?

drttc I think trying is right, miracles do sometimes happen. I know how you feel though, as soon as I start to think its not working I want it over with.
If anyone asks Dr s about hyper fertility please let me know what he says. Although my mc's haven't followed your pattern exactly drttc (mmc smat nearly 12 weeks stopped growing around 8 weeks, all over by six weeks and one smartass gp asked me if I was sure I'd actually been pregnant and this one just shy of seven weeks) I do worry about hyper fertility as I do seem to get pregnant first time every time.
i know the advice for hyper fertility is keep trying and eventually a good one will stick but the damage that miscarriage causes is so devastating and a lot of doctors seem to think we should be grateful we conceive easily.
I know from the recurrent miscarriage thread that the people at Coventry advocate the use of progesterone from ovulation with the idea it makes your womb lining more selective.

Yeah it might be worth asking mr s about progesteronr before BFP as its meant to make lining more selective?
I used to think I had hyperfertility! How I got that wrong . got my first scan and intralipids tmrw. hopefully the drugs r working although I'm terrified they havent given me a big enough dose and will have to cancel the cycle or something!
Thinking of ur drttc xx
Rosa hope funeral was ok
Sunny happy bday
Xxx

Trying & Snoopy, very interesting points on hyperfertility. Surely this must fall under that category. I'm scared to ask him about it as I think a very long time ago I heard someone say he doesn't believe in it... I, however, am started to be convinced! Thanks so much for talking this through with me :) I'm feeling better tonight. I think a bit of sunshine & a vent goes a long way!

Trying, can't believe the time has come! Good luck with your scan & hopefully the intralipids will help you relax :) When would the transfer be?

Thanks drttc! I'll know dates tmrw as will see How I'm responding, but I think it will be 15/16 june roughy by my estimations.
Keep us posted xxx
Summer Is finally here isn't it-lets hope sun brings some Happier days for us all

good luck for your scan today trying x

Thanks guys!
Scan went well. I was worrying they were not working as I have no side effects and feel like My normal self! Was expecting to feel at least tired ir sick There's a good number Of eggs and they r growing. I have another scan on Monday and then will be given a date for collection-either wed thurs Of fri.
Hope u had a good bday sunny, how r u feeling?
Drtcc hope ur holding up ok, hope the sun keeps u postive
Waves to others xxx

Excellent news trying. It's good that you feel well, doctor always seem to advise staying calm and relaxed and that's easier if you feel good.

drttc how are you feeling today? Maybe it's worth asking louise about it if you are nervous?

As for me I've got a text message off of my line manager asking me when I'm coming back to work. Nothing like a bit off pressure to send you back to square one DH made it clear to them I wasnt coming back to that team and they seemed to agree but Now that's apparently gone out the window

great news trying - I remember before my SO scans I would always be worried that nothing was going on in there!

I'm good thanks, I am feeling quite chilled - not sure if that is a good or bad thing. I just want to get to my scan to get some idea of what is going on in there is good or not! I know there is a long way to go, but it will be nice to know something!

Trying, great news about your scan! I'm not that familiar with the ivf process so it's cool getting an education as well :) Does the NHS cover 1-2 attempts? I know they cover something. That crazy article about having kids by the time your 30 said something about it costing the NHS £20k ok average per couple & that didn't sound correct to me... Doubt they would be that accommodating- have to fight them for a freaking scan let alone more lol! How are feeling about next week? Ready to roll? ;)

I feel okay today actually. But on my face, got my hair done, and enjoying the sun. Had a picnic last night & may do the same tonight. Then a wedding tomorrow! Thanks for asking ladies :)

I must admit I'm getting a bit of that anger I've heard people talk about though :-/ I'm looking at life as though it's a bitch that I ain't gonna let get me down. Not sure if that's a good approach but least Im not crying haha!

As for hyperfertility I've decided to take prog next time I try (from ovulation) & see what happens. I also ordered one of those FSH tests off eBay to see if it indicates anything about my eggs!