Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

[sunnyday01]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

Sorry, one more quick q been meaning to ask for months.. Is it ok to take all vits and drugs in the morning after breakfast? Apart from levothyroxine before?

I take all mine in the morning except asprin which I take with my tea

Thanks Sunny.. May start that as easier.

Morning guys. Did a test and its negative as expected :(
I'm going to be a good patient and take the pred next month, I seem to be doing one month on one month off at the moment.
Hope everyone else is good x

Ps can I ask with SO how many scans do u need? I'm starting to think a little more about it...

Hi, I don't know if anyone will remember me? I was hopefulfor3rd but lost all my details to keep logging in - finally got around to sorting it!
Just in case-
1 x mc,
Had my 1st child,
Then 5 mc and I found Mr S and started treatment and fell pregnant first attempt and had our 2nd child. Was on high NK treatment plan.
I've been following the threads all along, keeping up to date. Think last time I posted I was off to see Mr S. I found out my levels had gone up to complex NK. Saw him in May last year, ttc most of the year but had a much needed break in November/dec, restarted acupuncture in December and got a positive test a couple of weeks ago.
Had to go straight up to Wimbledon for first lot of intripalids, and now on the waiting game to see what happens.
This thread has been a constant support to me xxx

Hi lillies - welcome. Congrats on ur bfp and fingers crossed his plan works for u again! I'm sure it will :) hope ur finding the pred ok! Xxx

Welcome lillies. Congrats on bfp and encouraging to hear its already worked once, keeping everything crossed for this LO.

Bfn for me too. Better get the Humira ordered...

Hi hula. When u gonna have the humira? I've booked in to see mr s but next appt in Harley st is end of April! Epsom is a right pain to get to....to be fair it will give me another cycle of trying naturally before I decide wot to do...I wonder if he would suggest retesting my nk/tnf?! Unlikely?

Sorry hula! What an insensitive post from me !

I'm sorry it was bfn..hope ur ok..it never gets easier does it? Pants! Lets hope once u take this plunge it will happen quickly for u. Mr s does know wot he's talking about, so I'm going to be a good patient like u from now on!

.I'm doing the washing and writing and didn't think what I was saying!

Oh don t worry trying, i did nt think anything was insensitive.

Epsom is impossible for me too so also have to go to HS.
Don t think i ve had to wait that long b4 altho as u say at least it give u another cycle.

We might go skiing with DS in a couple of wks in which case i ll have to start the humira after otherwise it ll be due out it out there.

Re SO think u usually have one scan unless it too early and then u might have to go again.

Thanks ladies,
Yes one pred baby who's now 2.5. It was only the pred and pesseries then so it does feel a whole new ball game having intripalids. Find having the pred ok, just wake every morning with such a dry mouth.
We've an appt for Epsom for a few weeks, we are way down south so it's easier for us. But then off into Wimbledon for the infusion if all is well. Such a pain having it all separate but never mind, needs must. I heard there's going to be a new clinic opening in a few months in Epsom?
Hope your feeling ok Hula, a holiday sounds great. I really needed a break from this, I find it so hard living in weeks, constantly thinking about it.

Out of interest, do you talk to people in real life about this journey? Couple of close friends and parents knew what we were going through, finding Mr S and I spoke freely for a while after having dc2 but I'm going quiet again now I'm going back through it. Just 1 friend and parents know, which helps with my "pretend it's not happening" protection thing I've got going on.
My reaction to getting this BFp was to put my head in my sand because of all that's happened in the past. But of course, I can't, I'm forced to make plans to give it the best shot but doing so makes me feel I'm tempting fate.

The amount of times I've wished I could be one of those girls who don't realise they're pregnant til half way through!

Lillies i so know what u mean about living in weeks. You do it in 2wk blocks ttc and then i found it creaps in days when preg. I really want a bfp but have to say i m terrified of living those days till 12wks (actually make that 40wks!) if i manage to get one. Hang in there, you ve got first hand proof it can work so just stay strong but yes sad we can t just breeze our pregs in blissful ignorance !

Re telling others only my sister and best friend know. Did discuss with my mum a while back but she reactly badly to the idea of me taking steriods and just made me more anxious about taking stuff which i really didn t need so gone as quiet as poss on that front.

Hi lillies. With regards to telling people - my parents and 2 best friends know. I find I only like to talk about when it's on my terms and I want to. One friend brings it up now and then and I get very annoyed and have shut down with her. The other one just lets me rant/cry and blabber on..she doesn't have much to say though as she's not near ttc yet and has no kids..but at least she listens...my parents r supportive but sometimes they say stupid things like "ur not drinking alcohol at the hen next week are u". Really mum??? Really???! Firstly if standing on my head for an hr a day would get me preg I would be doing that! Do u not think im doing everytbing i can! And also if I want a drink I'll bloody have one! There's no evidence it causes delays in ttc () So sometimes I get very annoyed!

That's interesting u took a while to fall Preg this time, I'm struggling to concieve this time too. I'm going to tell myself everyday that this month it will happen! But I'm worried I've now become infertile! I've been worked up and nothing wrong yet....DH sperm Test is v soon..

Hula u love a good ski! U should
Go!

Keep going lillies u have done it 2ce before and will do it again! His plan obv works for u x

Hula and Trying ... Sorry for your bfns hopefully you can quickly refocus to next month but I know how hard it is of course. I doing expect BFP either but know will still be devastated esp as travelled to London for SO and all the additional drugs and full adherence to pred (with awful insomnia this time)
So lovely to hear your good news though Lilles... Please keep us up to date as we don't have enough good news in our wee group yet.
I'm also on complex prog and this is longest ever time to get pregnant. Wonder if it's not just my age but fact that your immune system get increasingly over active with every miscarriage. At least I think that's true.. Very encouraged you've got there though and everything crossed it continues to go well for you..

Ps I'm also terrible at telling people. Even my family don't talk to me about it as keen this doesn't totally define everything in my life. DH and one or two friends, that's it. And you lot .. Agree, a total god send!

Morning! Our parents know and are helpful and supportive but don't think they actually "get" it, they didn't realise how unusual it was to have 5 mc. And I'm the same that I only want to talk about it when I do! When I told my friend of latest bfp I said that know you know, lets forget it but at least you'll know why I'm upset if worse happens.
Yes, it took about 6 cycles to fall pregnant this time, I was getting worried as I've never gone past a 2nd cycle before. Used to fall preg very easily, it was staying so that was the problem. I reintroduced the acupuncture in December, I believe that had something to do with it. I really recommend it, if only for a relaxing time each week to clear your mind.

Right off to sort kids into their book day outfits!

Morning lillies! I've just had cycle 8 :( and entering 9. usually gotten preg after 2 then 2 then 5. I'm having acu and still nothing! Hopefully my bfp is around the corner!

Have a good day ladies, I'm still tired from the hen party last week! X

Hi Everyone - finally getting the chance to catch up after a super hectic few days at work!

Welcome Lillies - congrats on your bfp. Sorry Hula that this wasn't your month.

Trying - hula ia right its only one scan on SO usually day 10-12 of your cyckle. I think they can work out when you will ovulate based on the size of your follicles or something like that. I think in the early days of SO people used to go for two but im not sure if that still happens.

As for telling people, our parents know and close friends too - as a lot of our friends were having babies, the obvious 'when/will you have kids' kept cropping up so we decided to tell certain close friends - i don't talk about it lots to them, but it really helps me that they know as it avoids the 'why haven't you got kids yet' discussions. Its quite a personal thing though so i can understand why everyone is different on this!

I've got my scan tonight for SO round 1 again after mc in jan - i'm so out of the routine with it all even with just one month off! I'm sure i'll soon get back in the swing of it all. I'm not expecting much to happen in round 1 or 2 but will be interesting to see my response considering i took the drugs for 5 rounds just a few months ago! Wonder if it will still be in my system?

Hi all,

Wanted to say hello! I've gone and read through (mostly skimmed) all the threads as it's been so comforting... Wow!

I'm 28 and TTC with my husband after 3 miscarriages. 1st one at 6 weeks, 2nd and 3rd at about 4.5 weeks. I seem to conceive very easily.

I've had tests done with Dr S and will be receiving results on March 16th.

I'm concerned he won't let me try this month because I would be out of the country during the time I would get a bfp... Does anyone know if he would allow me to TTC when I'll be out of the country until week 5? Don't want to wait anymore :(

Hi drtcc. Sorry for your losses. Please do join us!

Hmmm I'm not sure as he gives intralipids on a bfp....but he may be ok to delay it to week 5? If u have hugh tnf he will ask u to wait till he brings it down...I hope u do get bfp again quickly! good luck for ur results...

Thanks for the reply trying :)

I've logged in to his website and in the treatment section it says that for normal, borderline and High NK there aren't intralipid at bfp... For high NK there's intralipids at wk 6.

Has that been accurate for you all or did patients get intralipids at bfp regardless of NK level?

I noticed on older threads they use to occasionally posts threaders progress which was so great. So they had a list that would be updated periodically of who was trying, bfp, 1st trimester, 2nd trimester, 3rd trimester, and given birth. It was such a great way to keep track of how the treatment was worrying for current patients!

How the treatment was working * not worrying lol!!

Welcome Drttc!