Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

[sunnyday01]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

Hi dildoos? How u doing?

I slept these last 2 nights so well. Last week I don't think I was able to sleep more than a few hours. I hope my appt next next week doesn't have bad news!

Trying- fx crossed for you, I'm sure though there will be positive things to be do either way.. You've all the best informed people on your side, so try stay positive.

Hope- it's so lovely hearing how well things are going.. Do keep in touch and let us know every mini milestone as it helps us all keep the faith!
Congrats to Snoopy too! This thread will become more positive as the month rolls on, I can feel it!
Personally I'm just waiting for af- have all the signs and should appear tomorrow. Tbh would be scared if I was wrong as only took half pred for 4 days when started to get pre ad symptoms. I'm looking fwd to SO bringing me luck.
The sun is shing today - hope everyone is enjoying their Subday .. I've just eaten two walnut whips!! Oink.. But had fruit and yoghurt for breakfast.. Can't be good all the time ;) x

*Sunday!

Yum walnut whip! Def can't be good all the time! I had a slice of cake yest :)
Having a nutribullet drink though now!
My af arrived, obv I knew it would so actually not bothered. It's got to happen at some point, I just can't understand why this time is taking me so long! It's not like I've aged by 5 years that it should be taking so much longer. Anyways wot can u do! Onwards and upwards! Rosa I hope ur ok with the needles etc, just get ur DH to do them!
Have a lazy Sunday everyone x

Hello all, just one more question haha.

Did you have any odd symotoms on cyclogest? I haven't had any bloating, cramps or nausea, my chest is a bit bigger but doesn't really hurt. What's worrying me is that I'm finding it really difficult to get through the day without crying. The crying had started the day before I started the cyclogest so I'm not sure if it is that but I'm finding it really hard to deal with. I literally start sobbing for no reason. This didn't happen with my last pregnancy.

Oh snoopy. I think it's just the stress of it all. I cried alt day with my third preg as the anxiety of it all was just too much. And I'm not that much of a cry baby. But I did just really struggle.
With my second preg that was going along perfectly till week 9, and I had a good 6 week scan. I had No syptoms at all till 6/7 weeks. Then serious vomiting began. However in my first I had sore boobs from 2 days before hpt. I think each preg is very diff. It's easy to overanalyse. Try some Meditation, postive thinking, go to work or stay at home (whichever allows u to be stronger). I don't think I looked after myself well enough last preg. I regret that. So just be kind to urself, prioritise u (if u can, know its hard to be shelfish!) and believe it will work out x

trying sorry AF arrived. you're right, it is hard to be selfish.

There were more tears tonight so I've not gone in for my night shift. DH and I are on the same team so I'm staying with mum whilst he's working. I have to tell work so I can be moved into an office role. Last time I was in an office where I didn't have anything to do and this time they want to move me to an office with three heavily pregnant women and a manager who doesn't want me there and has already told people I'm pregnant without my permission.

I'm really scared I won't be able to cope when my mum goes away for a week at the end of the month, she's only a five minute walk away and I'm really relying on her emotionally at the moment.

Hi everyone, hope you all had a good weekend! It's so weird not thinking about trying for a baby or where I am in my cycle, not sure if I'm enjoying it or missing it lol. Signs indicate I'm ovulating over next few days so at least things seem to be getting back to normal.

Snoopy - sorry you are having such a hard time, work sounds like a nightmare and the office manager sounds like an idiot- I think it's very unfair to tell everyone, without at least talking to you first. I think when you have had previous mc it is very emotional being pregnant but you have to try and stay strong and be positive, you have a baby growing inside you and it needs to know that you are positive and strong - positive mental attitude and all that - i really think that makes a difference. Like trying says, look after yourself.

Sorry ur struggling snoopy. Like sunny said, be postive. it makes a diff. hope ur DH can helpi when ur mum not around. People r idiots! My boss told my whole department when I miscarried! And I'm a medic!!! And he knew it was confidential. U would expect more sensitivity but actually he's just a gossip. It really affected me as I'm a very private person. I've learnt to just ignore all that crap and focus on me and DH now, people have nothing better sometimes to do with their life than gossip. They gossip if u have bad or good news, so now my attitude is that they can just F off! I could have made a song and dance about it at the time but was so upset I left it. But whenever I see him my blood boils! An issue to discuss at my counselling session as I still ruminate over it.

Sunny-enjoy the break! U will be back on it soon, glad things seem to be going back to normal. I'm gonna ask mr lower about his opinions of SO for me , as I'm ovulating and have a normal LP I'm reluctant (this is of course that no major problems are picked up next week).

Hi Ladies,

Snoopy sorry it s so stressful for you at the moment. Like the other s say stay positive and re work do whatever you have to to make it easier on yourself, no one else matters in the bigger picture.

Sunny bet it s weird not ttc, i actually found it really hard to ignore fertile signs the mn after my mc but def good to give your body a month to recover.

Hi everyone else.

I got a bfn 11 dpo this morning and don t feel preg so looks like i m out. I m ok about it as we ve got our ski weekend in a couple of wks and a review and repeat bloods with mr s the week after so will be a chance to reformulate the plan. I did nt take anything ghis month and thankfully looks like my cycle bounced back ok. Think i will give pred another try nxt mn but maybe ask about a sl lower dose to see if that avoid screwing my cycles ! Also depending on what cytokines have done might consider humira ....

I understand how you feel about SO trying as i too ovu myself and have a normal LP but i am considering it because i guess at my age more of the eggs may be duff so if u get two it s almost like have two months chance in one. However my reservation is if my cycles react to that too ! Maybe i should plan one month where i throw the kitchen sink at it and accept i ll prob have to put dh out to pasture for the next month while it all recovers !!

Sunny/determined-on SO how many times do u get scanned? Is it just the once a month? And any issues with the meds? I'm gonna give it another month or 2 and then seriously consider it....determined the month u got preg how many follicles did u have? Just wondering if it Improved that or just ur lp?

Hula glad ur cycle is behaving! I think ur plan to throw in everything is a good one! I don't know why I'm being so hesitant!

And sunny did u ever get ur DH sperm back. I'm hoping my DH goes this month!

yes we did get the results back - apparently we didn't have the right pot so we had to get another pot and book another appt - so annyoing esp as they lost the first sample we did too!

I have no issues on SO, no side effects on the drugs, and you only have one scan (well i have only ever had one scan) i think dr s likes to see you the first couple of months as he needs to check how you are responding (for example i was put on 5mg and was responding ok so he was happy for me to go locally). I guess if for any reason you were not responding well, he may ask you to go back but i haven't heard that from anyone recently (although seen that on previous threads of this fourm - maybe that was when he was still experiementing with it all?). I always had 2 follicles, except month 3 where i has only 1 (was put up to 7.5mg) and then in month 5 I had three. Will be interesting to see how it goes when i am back on it next month.

Since starting the prog of treatment - SO/pred etc my cycle has gone from 30 days to 27/28 days.

Thanks sunny! I think I'll wait for these investigations and give it a go at month 8. No point if theres a reason why its not happening naturally. Still can't understand why not gotten preg. It's so weird! 3 easy goes now its all stopped!
Postive thinking, postive thinking!

Hi everyone - so got a bfn as expected today. Didn't plan to test as felt pmt symptoms for days but felt compelled as day 32 and a day longer than usual & still no sign. Wonder if hydroxy and /or pred lengthening my cycle.hmm
Looks like nobody posted for ages but I bet I see lots appear as soon as I post. I don't know what I do!!
Thinking of you all and hoping you're feeling positive x

Hi rosa sorry bfn. Ur starting SO soon though so hopefully that bfp is around the corner! Such a frustrating journey we r on! How long did it take u to get preg last time? Have a good day x

Hi there. Well I'm on about my 4th day of 25mg pred, after having had about 10 days of 5mg. I've really noticed my tummy being stuck out, and hard even - I can't just breath in to give myself a flat tummy, which is not normal for me. I'd assumed it was swelling from my egg collection on Friday, but it hasn't gone down so now I'm wondering if it is side effects of the prednisolone. Can anyone let me know if that is likely? I've done some googling but it's not clear to me if the people I've read about had been on pred for much longer.
I'm drinking heaps of water as instructed while on progesterone etc anyway, so it's not as if I feel bloated as such, but I definitely look it!!

I'm not sure about the egg collection stuff! But the pred can cause water to be retained so u get bloated! But unlikely after such a short course. Hope that helps?!
New girl at work just asked if I have a baby, why not, and how old I am?! So rude! Mind ur own business! I just said I wasn't in any rush!

Sorry about the bfn Rosa. Positive thoughts for us all for next month.

Trying - how rude some people can be. They must be really stupid to think that such questions are acceptable. Poor you.

Smidge - could be the progesterone too adding to the bloating, i didn t have it on just the 25mg pred. I take it now you re on the higher dose you ve had the transfer ? Everything crossed for you this is a sticky bean.

Thanks Trying & Hula. I'm not surprised but still feel your heart sink a bit to see it confirmed. Don't know what doing wrong. Got easily preg 3 times in a year and now nothing in 7m. Sunny gave me some Zita tips and think I'm not staying warm enough for someone with bad circulation and eating far too much sugar. New regime beckons for this next month .. If my new cycle ever starts!
Smidge... I have same problem ... Think it must affect digestion etc too.
Hey everyone else x

Rosa how disappointing .
Is it this coming month your doing so?
Trying- why oh why do perfect strangers manage to feel they should know very very personal facts about you? Grrrrrrrr and you were thinking positive too ! I am annoyed at her!
Sunny your doing well in your month off, have you has any thoughts for your next cycle?
Determind how are you?

Day 6 here but not really sure what I am doing this month. Af arrived on time Friday. Got to check next Monday that I have a negative test.

Hello hope, hula ,smidge, and everyone else.

X

Rosa I'm in the exact same place as u. Easy preg 3 times and now nothing?! So frustrating I used to think as long as I got preg one must stick somewhere along line. Now I'm confused! Anyways I've had a few days off the good eating and had a glass of wine yest (felt drink after 1 small glass!) so back on the healthy eating today! But like determined said before I don't think it makes huge diff, everything in moderation.
Dildoos been thinking of u-are u gonna try again or have a break? Hope ur holding up ok x
Hi to others

I am still not sure trying, some minutes I feel yes I can, a few minutes later it seems like a huge mountain I am unable to tackle at the moment.
I haven't been taking the aspirin, pregnacare or d3 up until last night and I think it's worth me taking them so that if I have that pull to try at ovulation I won't carry the what ifs?
DP gave me an option to sell up and move or do the renovations I would like, I have opted to stay put purely because if I have a larger home and don't manage to have another baby will something always feel missing?
So at the moment I am choosing kitchens, have builders around discussing plans and it seems to be occupying my mind. My dad is going into what would be a babies room and she is having her larger room as a play room so there is no spare space to be looked at in a sad way.
Trying what's next appointment for you? X

Hi dildoos. Sounds like ur undecided about what to do. U still need time to heal and regroup and decide what u want to do. I hope ur ok....hugs....must have been such a shock for u in general...not knowing u were preg and then miscarrying. I hope ur feeling stronger

My appt is on Monday.
I've become quite despondent about the whole thing. Trying to to forget it all. I give up! What will happen will happen and what will meant to be will be. I can't do anything! So I just have to move on with life and see wot it brings. Will give it a few more months then consider SO at month 9 I think (if tests all ok).

Waves to all x