TTC or pregnancy on prednisolone or similar part 9

[sarahs999]

Oh dear - we reached 1000 posts on thread 8 without noticing! I hope you can all find this. THis is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Thanks Ari that's good to hear! Most of my friends have had better 2nd births too so Im trying to focus on that! I do so hope you achieve your dream of DC2 very soon.
Delta Not long now for you either! Interestingly I only took the Pred from BFP too so it seems it can work when taken later! I couldn't bear the disruption to my sleep for 2 weeks every month so decided to wait until bfp! Good luck with labour/birth!

delta thank you for posting that. its so nice to hear of multiple success on the treatment. it gives us all hope. congrats!
nice to see you olives

delta and olives lovely to hear your fab stories, glad you're both doing so well.

I just had a scan at the clinic. I'm 6w5d, they saw a sac of 18.5mm but there is still nothing showing inside the sac. I have to go back in a week's time. Mr S said not to write it off yet, the sac looks really healthy and is growing well, but if no baby is seen next week then it won't be good news. Gutted and scared. If anyone has had a similar experience I'd be grateful if you could share, good or bad as I'd rather be prepared. I know it could go either way.

Am really hoping for some good luck after a year of complete and utter devastation.

Congratulations delta and olives--so wonderful to hear your stories. Please do keep us posted!

mollie I am so sorry to hear your scan was inconclusive. I hope you get better news next week. At this early stage there is such a large margin of error, you never know what might happen.

cartoon best of luck as you wait for your scan. I had one at 5+6 and then again at 6+5. They are a mixed bag, as you almost never hear the news you want to hear, which is that everything is absolutely fine and there's nothing to worry about. (Cue more boob prodding and symptom spotting...)

By the way, are people getting palpitations on the pred? I thought this was a pregnancy symptom (wishful thinking...)

Hi everyone - I previously posted asking about recurrent miscarriage after 2 mcs - at 11 and 13 weeks. I thought I would share our good news as I was in a very dark place for a long time and the positive stories used to really give me hope.

It took us 14 months of ttc (after immediate pregnancies the first 2 times) and I am now 17 weeks pregnant with a little girl. I was supposed to take prednisolone when ttc but it made me a little loopy every month so after seeing a herbalist, substituted it with Chinese medicine mushroom capsules - Messima - which are supposed to reduce inflammation. You have to take it for about 4/5 months to get an affect and, I don't know if it was this, but we fell pregnant after about 4 months despite me being at the lowest and most stressed I have ever felt. I then took prednisolone, cycologest, aspirin and fragmin under Mr Mayonda's recurrent miscarriage clinic at St George's. I've had panic scans practically every week and we had our 16 week scan last week - all is still well.

Mr Manyonda advised me to go off all medication which I have done, albeit very nervously.

I have a question for ladies who have come off prednisolone. The last week since weaning off it I've felt pretty rubbish - very tired, quite nauseous in the morning and don't think the baby is moving that much when previously felt her quite a bit. My uterus also feels quite sore and tight all the time. Do you think this is just due to weaning and my uterus growing or does anyone have any advice? I am obviously going to panic and worry about everything until this child is about 37.

Thank you and wishing you all the best of luck xx

mollie sorry you didn't get the news you wanted. I've heard plenty of similar stories and its all been ok in the end. that is the trouble with early scans. you've asked for any stories good and bad. so stop reading now if you've changed your mind.
my last preg was like that. I had a scan at around 6wks. there was just an empty sac she didn't seem to worried. commented that the sac was quite large but said maybe it was just a but early. went back the next the sac had grown a couple of mm but still empty. the next week the sac had started to shrink only by a small amount but enough for them to decide it was a blighted ovum.
I'm really sorry I hope I havent upset you. the thing with these early weeks is that things can change so much in a matter of days. there's every chance that every thing will be present and correct when you go back. try to stay positive and away from Google! I know the wait is horrible with all this uncertainty.

Thanks guys, thanks cartoon for the info, so sorry that happened to you. Being left in limbo is so hard. Do you know how big the sac was by any chance? My sac has been growing a lot between all three scans, really hoping its not a blighted ovum but am prepared for it. Wish I had more pregnancy symptoms. Its going to be a long week, that's if I get to next week ok.

I can't remember off hand. I could check my notes, but i don't think it'll help you feel better. I really feel for you. limbo is exactly right its still so fresh in my mind its a horrible time. like you say lacking in symptoms just makes it harder, but I keep telling myself its because of the pred.
please try and relax as much as possible.

Its just a waiting game isn't it. Mr S did say he was cautiously optimistic, so I don't know what to think really. Will try and relax and not google constantly! Hope you're feeling ok.

Welcome rubyd and congrats on the pregnancy.

that's good that he said that.
I'm still getting brown mucusy discharge so am fairly worried that something isn't quite right. I'm just trying not to think about it now or Google! every symptom I've had could be good, could be bad, could be the drugs. you can't second guess anything.

It must be horrible spotting all of the time. My friend did bleed in her first trimester and had a healthy baby, as other ladies on here have said too, but I know its worrying. I'm just obsessing over lack of symptoms but like you say its so hard to tell when taking the pred.

I'd be worried either way. I spotted with my first mmc but not at all with my blighted ovum. you just never know its so frustrating.
feeling worse today though. a friend has informed me this evening she is 13wks pregnant and well I felt sick. I just want to be where she is. it all feels so unfair. I just still feel like the most likely out come is that I will miscarry. ill have the shock of my life I think if all is well at my scan.
whinge over.

It is so tough for us ladies on here. We will get there!

Hi Mollie I am sorry to hear that your scan was inconclusive - it is awful having to wait for a week. I'm not sure where you are based, but is there a hospital with an epu near you where perhaps you could get a more detailed scan? From my experience with my recent mc, Mr S scans are quite quick and my follow up ones at Chelsea and Westminster were far more thorough, so they may be able to pick up your little bean. Also a friend of mine who had a recent 6 week scan at another clinic was told she was measuring too small and so she started freaking out, apparently the scanners at this clinic are notoriously rubbish (machines not the people) so she went for a second opinion elsewhere on Harley Street and all was well. Just a couple of ideas if you can't bear the wait. Keeping everything crossed for you. xxx

Good luck to everyone else with their early scans, impending births and us ttcers too.

belly could be on to something there you know mollie. I've not had a scan with Mr s so cant compare but my epu were very good. she checked my progesterone and was able to tell me with ovary I had ovulated from. actually I had a small bleed she could see in the scan like next to the sac but again she didn't seem worried so I didn't think much of it. it was the kind of thing that can't happen but usually gets reabsorbed. hope your feeling ok today.

Ruby I found the Pred masked some of my pregnancy symptoms so when I weaned off it the tiredness and nausea ramped up a gear! I wouldn't worry about sore womb symptoms, im sure that's just growing and stretching. And finally movements are very erratic at that stage as baby is still small enough to hide away in a corner so please try not to worry!

Mollie I have everything crossed for next week for you And you too cartoon!

GreenOlives - thanks so much for your advice. Seeing the midwife today so will ask her about prednisoline too - worried my NK cells are attacking the baby now even though 2nd trimester.

Mollie - such a worrying time but crossing everything for you too! I don't know where you are based but the EPU at St Georges in Tooting is very good and thorough. I practically lived there for about 12 weeks. :)

Agree with everyone, mollie--if you can't wait till next week, do go to your nearest EPU. I've had some really thorough scans at UCLH. They take their time and have very advanced equipment. Wishing you all the very best.

cartoon how many weeks are you? When is your 7 week scan?

hey rose how are you? I'm 6+2 now. my scan is on Wednesday.

Thanks everyone. I have been going to my local epu in wales as well, the doctor there doesn't say too much. Mr S was really good yesterday, so I'll see him next week and will also keep going to my epu to get all the help I can get. Louise said its 50/50 chance of going either way. Its an agonising wait but at least i'm prepared I guess. Life is so tough. I lost my baby boy last year when he was five months old as he was born so prematurely. I miss him so much and am so desperate for another baby but am feeling pretty despondent today. Sorry for self indulgent and pitying post, we all have our bad days.

Hope everyone else is doing ok xx

oh mollie I'm sorry to hear what you've already been through. I can't even imagine it. I've got my fingers crossed for you.

Anyway that's my self pitying over for today. I have to be strong. Even if this one doesn't work out I will have another baby one way or another. We are all strong women on here!

mollie your allowed days like that. I have lots!

Oh Mollie I am so sorry for your loss. You are so strong and brave. I am keeping everything crossed for you as you wait for your next scan. Everyone has good days and dark days, and we are here for you when you need to talk.

cartoon I am well. My brown spotting stopped at 7 weeks (now 8+3) but came back today. Grr. I am trying to be patient with my body instead of bemoaning the fact that babymaking is so hard for me when everyone around me is popping them out like it's no big deal. But that's just me being self-pitying. I am grateful to be where I am. Hope all goes well for your scan on Wednesday.

Mollie I'm so sorry you are having such a tough time. You seem to have been through so much already and I can't imagine how horrendous it must have been. I am in awe at how strong you are though! I feel sure you will get your take home baby eventually and will have all my fingers and toes tightly crossed for your next scan. I hope you can plan a few things in the meantime to distract yourself a bit, even though I know how hard that can be!
Cartoon Empathise about your friend as my best mate is also 13 weeks and just sent me the scan pics. I am really happy for her but its really hard at the same time and I'm not even pregnant right now. Good luck for your scan next week too, really hope all is well.
Congratulations to Delta and Olives, so inspiring to see people get so close to meeting their little ones. Ruby too, 16 weeks is a great milestone I can't even imagine reaching. Hoping you start to feel better soon.
Rose not sure if anyone has said it but I read somewhere that being pregnant can cause palpitations, something to do with an increase in blood volume. I thought the pred could too, but maybe that was just if you have any caffeine (?) I'm not taking it just yet though so no experience directly I'm afraid. Hope the spotting goes away soon.
Thinking of Stogan, hope you got your results and Duggs, hope you are ok.
Ari how is the Wobenzym (sp?) going? I've not heard of that one before?
Oh and meant to say I loved the idea of donating Nk cells for research some day Kittens
Well Cd 2 here, not that I'm counting down the days till I can start trying with the pred. I hope the next cycle is less confusing!
Waves and big hugs to everyone else. X