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TTC/Pregnancy on Prednisolone or similar part 6

999 replies

Arianrhod · 02/03/2012 10:30

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
Stogan · 08/03/2012 07:07

Well feeling truly awful Sad
Sorry but this is a gonna be a very self indulgent post so pass now if u like just need to get it off my chest.
Can't get thoughts of things going wrong out of my head. I've absolutely no reason at all I think I'm just being very unreasonable and scared. Was woken up at 3.15 this morning after a nightmare about a tiny white coffin and announcements of a little angel on Facebook. Hence no more sleep for me until 4.45 and have been up since 6am. I just can not help thinking that I've let myself give in and get excited and so many things can still go wrong. DH bless him is trying his best to reassure me," all our problems were in the early stages and there have been no problems indicated with babes" but I just can't help but think that this is going to end badly in the next 72 hours. What the hell is wrong with me? Surely this will do more damage than good thinking this way? I'm so sorry to be so negative after giving so many people hope. I'm trying to be positive honest I am but it's like my brain and concience won't let me, please help ! Sad

suemays · 08/03/2012 07:16

stogan it's perfectly natural to feel so scared and anxious as you have been through so much to get where you are and therefore have a lot to lose. At least you are being induced so will be under the care of the hospital from the beginning. Good luck for tomorrow I am sure all will be ok!

suemays · 08/03/2012 07:17

pq good luck for today, hope all is ok.

Coconutfeet · 08/03/2012 08:18

Stogan, I can completely relate to your anxiety because I was exactly the same last time round and can feel those worries welling up a little this time round again. I'm just speaking from my own perspective here, but I think maybe it's because we've become so used to disappointment during this journey that we put an armour up to protect ourselves. Then, if we allow ourselves to get a bit excited, we panic and get angry with ourselves, because we feel good things can't possibly happen to us. But they can!

Just remember, you're going to be in the best possible place tomorrow. They'll have a really close eye on you and won't allow anything to go wrong. You'll feel like you can't do it, but you can, and it'll be amazing when you finally meet your baby. Try and get some rest today, as you'll need all your strength tomorrow. Youtube has some natal relaxation video things. Maybe it would be worth trying to do a few of those to calm you down? Feel free to come back on here for some reassurance though. It really scary isn't it.

I'm going to be eagerly checking in for your birth announcement. Hope you've got your DH primed how to use MN!! Good luck xxx

Thanks for the offer of the broker Digi. At the moment we've got a mortgage offer and I'm hoping we'll be able to find somewhere before it runs out, but if not I might come back to you. I think dp's a little more complicated, as he had a permanent job in between some of the freelancing a while ago so doesn't have three years clear freelancing accounts.

Stogan · 08/03/2012 08:36

Thank u so much coconut so good to know I'm not being TOTALLY irrational and others have felt like this, I'm welling up again but in a good way thank you.
Will try you tube later today and try to relax a bit xSmile

willitbe · 08/03/2012 08:58

Stogan - your hormones go into overdrive just before birth, and it is totally understandable. Also as coconut said, with what we have all been through we all try to protect ourselves from disappointment by trying to keep the dream at bay and instead fear the worst. Try to allow some hope in today, and see if the natal relaxation works and that you are able to relax today. It will be easier once the induction starts as you will be busier then, just try to take a minute at a time today. Will be thinking of you.

batteryhen · 08/03/2012 09:03

stogan - It's just your defence mechanism kicking in. I agree with what coconut says - we are so used to our experiences ending up badly that we actually can't believe that we might be lucky this time xx You willbe fine - the Drs and midwives wilkeep a very close eye on you. Good luck for tomorrow xxx
PQ Good luck for your scan, I will be lurking xx

I too am having a wobble about the amnio. I am not sure I want one now- and am thinking that maybe it was a sign yesterday that the baby wouldn't let him do it? :(

Dunnitt · 08/03/2012 09:11

digitalgirl sorry if I've missed something, but what is GD?

Thank you everyone for your reassuring words about my twinges. They have eased a lot after a nights sleep. So sure it was as you all said, which should be a good thing if the uterus needs more room!

stogan looking forward to reading the birth announcement!

Arianrhod · 08/03/2012 09:57

GD = Gestational Diabetes, yes? Hoping that's not the case digi but I understand it's manageable if so.

stogan Your fears are absolutely understandable! To be honest, I think every mum-to-be starts worrying as their due date draws near, and with what you've already gone through, concern about things going wrong are completely natural. I would only echo what others have said - you will be monitored very closely, and you will be in the right place for the best care anyway. hugs, and lots of luck for tomorrow - make sure your DH knows how to use MN!! We'd all like to be able to virtually welcome Baby Stogan into the world :)

OP posts:
freelancegirl · 08/03/2012 10:09

Sorry ? I?ve been AWOL. First of all at a really long shoot and edit on Tuesday and then from 9pm that night for a 36-hour bedathon during which I have had an awful fever, body aches and eventually lots of vomiting. Cue lots of worrying about whether this has damaged the baby. So I texted Louise (preferred this option to seeing my GP) and she said to continue resting and drinking fluids and keeping an eye on temperature. She has a lovely, calming manner! I did as told and today am feeling marginally better. Enough to get out of bed and have a piece of toast. Oh and checked the heartbeat and the baby is still alive and kicking. Am exhausted though, just having got up, had breakfast and made the bed!

Digi do you have some more peace of mind now you have spoken to a few people about the measurements. From what the others said on the Pregnancy thread too it looks like hopefully it is not a huge issue.

Dunnit, don?t worry about those twinges. I had a lot of them too. In fact I think you will continue to get twinges of a certain type or other throughout the whole thing. If you think about it ? it would be impossible for our bellies, organs and everything to grow as much as they are going to without us feeling any of it! Try to look at it as a good thing. Hard I know. Oh and don?t freak out when you DON?T get them either ? they come and go! Oh and GD is gestational diabetes.

PQ is your scan today?! Do check in and let us know how it goes. Maybe I am confused and it is tomorrow. Either way mine is tomorrow too so I probably won?t have time for a Friday coffee (as it becoming traditional?)

Sorry about the amnio situation Battery, very frustrating and just prolongs the worry.

Am with you on the house hunting Coconut. Where HAVE all the properties gone?! Thanks for all the advice too (earlier on) from everyone re moving with a baby, schools etc. Yes I guess it might be something we have to consider! DH and I are both self-employed too so have similar mortgage issues.

Hello to Duggs and her flying visit from Vegas! And also good news on the scan Charlie!

Stogan, none of us can blame you for feeling worried! The others are right though, you are going to be in the best place. We are all going to be thinking of you and we know that in a few days time we will be hearing from you (or Mr Stogan!) about the gorgeous little baby you?re holding. Our first Pred Thread baby! Well, apart from Frozen of course who has a Pred baby but not a Thread one iyswim. I don?t think birth is the most pleasant experience on this earth but it will be magical afterwards so just look forward to that xxx

Sorry to miss things but am back in bed (well, ON the bed this time) and got to try to muster up some energy to get up and start some work.

I know a lot of people have scans coming up (including me - anomaly scan tomorrow at 3pm at FMC) so really hoping it's all good for us all xx

snoopygirl · 08/03/2012 10:58

Oh stogan all you can do is try to keep your mind occupied, watch a movie/go for a walk or have a friend round or something. it's not long at all now and will be over before you know it. They will look after you well and you are in the best place for anything (drugs)!! Grin that you may need. Just try and get some rest while you can as we never know how long these things are going to take (hopefully not too long). Wish I could give you a big hug, so here's one (((hugg))).
Take it all in it's such a special time. Don't forget your camera for that lovely picture of the three of you after? GOOD LUCK!!!!!!!!!!!!!!!!!!!!!!!!!!!! [SMILE]

battery sorry you have to wait another week for amnio. I had one and it's nervewracking enough but at least it's going to give you peace of mind.

pQ good luck today and free for tomorrow.

Stogan · 08/03/2012 14:52

Want to thank u all for ur lovely messages of support. Unfortunately not sure how much more I can take. Have just had the most horrendous call, my friend gave birth just under 3 weeks ago and was in a car crash last night and her darling boy has been killed. I can not even begin to comprehend what my friend is going through and am now feeling so guilty for being so negative about my impending weekend. To cope with losing my babies without ever meeting them was the hardest thing ive ever had to do but she had had him with her for 3 weeks and has now lost him. The most tragic news I've ever heard and am angry as I got the call from a person who calls me a friend and she couldn't wait to tell me whereas my real friends decided to call DH first and let him decide on whether to tell me or not which he had decided not to until we had got this weekend out of the way. I now feel upset but very confused as to why my other friend felt that the first thing she should have done was tell me. Oh god I'm ranting and not making any sense I'm sorry I just don't know what to do. DH is on his way home I just feel so guilty

Arianrhod · 08/03/2012 14:56

OMG stogan, I'm so so sorry for your news, and so very sorry for your poor friend. Why on earth the one friend thought it was a good idea to tell you I have absolutely no comprehension at all. But listen, you must NOT feel guilty yourself - this wasn't in your hands, it wasn't your doing, and it has no bearing whatsoever on you and your impending arrival. What's happened to your friend is unbelievably terrible, I couldn't even begin to imagine the heartbreak she is facing, but it is NOT your fault that you are about to meet your long-awaited little one. Think of it this way - when you had your sad miscarriages, would you have wanted your then-pregnant friend to feel guilty that she was pregnant while you had lost yours? No of course you wouldn't. Please, just concentrate on what you're about to be doing, I know you will feel awful for your friend but you mustn't feel awful in yourself, if that makes sense.

Huge hugs, take very good care of you.

OP posts:
PQ77 · 08/03/2012 15:44

stogan that is terrible bone-chilling news and an awful shock. It's very easy to say but please don't feel guilty - just what ari says really, she has put it so well. We're all thinking of you and you need to stay focused on you for just a few more days now.

As a complete irrelevant aside, but since i have been bleating on about it, have just come back from my scan. I thought it would all be for nothing as at 2am i woke up with a huge red blood bleed - towels, change of bedding, dryclening mattress topper type incident (and I actually called in sick to work this morning as i felt so wiped out). But sure enough there is an embryo measuring spot on for dates with a hb of 123. Me, DH and Dr all very surprised. There is a patch of bleeding lower down in my uterus so the Dr said to expect more brown spotting and possibly more fresh blood. So about as reassuring as we can hope for at the moment.

still a bit wiped out so will just have to wave feebly at everyone else.

Dunnitt · 08/03/2012 15:51

Stogan. On my goodness. I can't quite believe that you have been told such awfull awfull news now of all times.

Of course it's going to send you into a spin. But you must try and muster that inner strength that is there somewhere, and focus on what you have to do over the next coming days to bring your baby safely into the world.

We'll all be thinking of you.

digitalgirl · 08/03/2012 16:00

stogan ari has put it very well. Such terribly sad, shocking news Sad - that would knock anyone for six even if they weren't about to have a baby themselves. But please please please know that you and your DH deserve to get excited and feel happy about your impending arrival.

OMG PQ what a dramatic 12 hours it must have been for you. So glad to hear all is well and that the bleed had nothing to do with the little bean. Feet up missus, you must be in shock, need you to be strong for this little one. I guess this is one time when an early scan HAS been reassuring. Have you asked Mr S/Louise if you this has any implications for the aspirin you're taking?

FrozenNorthPole · 08/03/2012 16:16

Stogan, I'm terribly sorry to hear your friend has suffered such a devastating loss, and understand why your emotions must be all over the place right now. I hope you're getting good support from your DH at this hard time Sad

PQ - a big PHEW and hurrah for a strong little embryo ... but I know how stressed you must have been over the last few hours. Talk about an emotional rollercoaster, and no wonder that you're wiped-out. Hugs.

Me - again, completely insignificant compared to Stogan's news, but quietly mentalling about NT scan on Monday. Trying to write a lecture which has to be delivered TOMORROW and all I can think about is how my initially low beta HCG might indicate a chromosomal issue. Ugh.

batteryhen · 08/03/2012 16:30

stogan What awful news. Some people can't wait to be the bearer of bad news, your 'friend' probably didn't think how it would affect you. It's hard but you must concentrate on your little one too xx
PQ fab news :) When is your next scan?
frozen You are my hcg twin.I know I am having an amnio but nothing so far has been identified withy baby and my HCG was lower than yours! I told my friend about the low hcg today and immediately she said ' oh your'e having boy' :)

hopefulfor2nd · 08/03/2012 16:39

Stogan, words cannot describe how your friend must be feeling but to echo everyone else, it doesn't mean you can't be excited about youre impending arrival.
Tomorrow will be an amazing day, good luck.
Holdoll, goodluck also, I'm sure you'll see all u should tomorrow
Pq, oh my gosh, so pleased you've had a reassuring scan after the bleed. It's so frightening to see any colour at all.

A quick update from me. Had my booking in appt last week, all fine but as I was 10 weeks the midwife couldn't get me in for nt scan til Im 14 weeks which is the cusp, but just rang and got a appt for Monday am instead when I'll be 11 4.
Went to see Louise yesterday, lovely scan, all good, measuring as should. Baby jumping up and down. Amazing.

Waves to everyone else, sorry couldn't write more, gotta get ready for work x x x

snoopygirl · 08/03/2012 16:44

stogan that's absolutley horrendous. Please don't feel guilty you deserve this baby and this is just one of those tragic incidents in life. Don't stew in anger either over the so called 'friend' forget her and concentrate on you and baby. xx

snoopygirl · 08/03/2012 17:00

pq and hopeful glad your scans went well and hope bleeding stops quickly pq not nice, take it easy.

freelancegirl · 08/03/2012 17:12

Oh my goodness Stogan, what awful news. Life is so cruel sometimes. Your poor, poor friend. Please try to not let it have a bearing on what you?re going through. I know it sounds awful but try to put it at the back of your mind. You have a baby to concentrate on and he/she will soon be here for you.

PQ am so damn relieved it all went well today. Jesus ? you must have been freaking out last night. Did they say it was a heamatoma or something? Either way it sounds like the bleed is not getting in the way at all of the pregnancy so that?s very good news indeed.

Hopeful good news on the scan and also the date change for the NT too.

Frozen I can?t say anytong conforting about the scan on Monday as I know what the mentalling is like but just rest assured that what happened before sounds very rare and that chances are that this time it will all be ok. We all know what that pre-scan anxiety is like and it?s just a case of living through time moment by moment until we get there.

I am feeling too rough for anything right now so hope I will be ok to make the scan tomorrow. I have to make it really. I walked down the road earlier to meet DH and it fair wore me out. I think I will treat myself to cabs to and from the tube tomorrow to make it that little bit more manageable.

BellyD · 08/03/2012 17:31

Stogan so sorry to hear the horrific news about your friend, just awful and so terribly tragic. You must stay strong, and snoopy is right you deserve your baby and you should in no way feel guilty about being anxious, it is all totally understandable and pretty uncontrollable I should imagine with all those raging hormones. Best of luck, will be thinking of you.

PQ thank god everything is ok, what a relief. You must have had a dreadful shock.

Free hope you feel better soon and best of luck for your scan tom and also to holldoll for yours.

Stogan · 08/03/2012 18:22

Thank u all for ur support. Just saw the crash remains on the news and can not believe this has happened.
So sorry I have been incredibly selfish today. I have read everyone's posts and send very one lots of love and luck with everything I just can't get my head around doing personals now.
U are all so amazing thank u all so much for ur support and kind words. X

willitbe · 08/03/2012 18:47

stogan - so sorry to hear of your friends tragic accident. Others have said what I would, so just know my thoughts are with you and your friend. I am glad your dh will be home with you soon to be with you.

PQ - wow what an emotional day, no wonder you are exhausted. Take it easy and enjoy the reassurance from the scan.

Free - sorry to hear you are feeling so rotten, hope you feel better soon and that your scan goes well tomorrow.

holldoll - hope your scan tomorrow is able to give your some reasurance.

Frozen - high hcg is more indicative of chromosomal issue than low hcg. So hopefully your nt scan will be reassuring for you. Low hcg is often seen in boys!