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Conception

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TTC/Pregnancy on Prednisolone or similar part 5

999 replies

suemays · 25/01/2012 16:48

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
Coconutfeet · 22/02/2012 21:16

Evening all.

Hopeful Fantastic that the scan went well! Crap that you?re feeling awful though.

Great news on the numbers PQ. Another little hurdle crossed. Lots more to go still, I know?

Lisa ? I have read back and only seen that you have been offered lots of advice from a number of people who have tried to answer your questions, rather than judgement. Sorry if it seems that way to you. I think whoever said that you were lucky to be seen on the NHS meant that many women are fobbed off completely or given very limited support on the NHS and eventually see private treatment as the only available option. I know that this was the case for me (due to my age) and some others here. We cobble the money together in various ways and it?s not easy. And of course this isn?t an option for everybody. We all understand I think, given our experiences, how incredibly frustrating, painful and lonely this journey is. I know that I, for one, would definitely not be pregnant now if it wasn?t for MN and the advice I received on the miscarriage boards. This particular thread has also been an invaluable source of advice and support. Just knowing that other people understand is fantastic. I hope you do find some answers to your questions.

Stogan ? Don?t feel bad about the weight gain. The actress/model Milla Jovovich gained 5 stone while pregnant. I remember reading an interview with her when she said that she was eating whole chickens at a time, or something. She?s lost it all now though!

Congrats on the lovely lining kittens! Sorry the scan results weren?t so good. Hopefully Digi?s right and things will suddenly sprout.

Digi How are you coping with commuting to work? Do you have to use the tube?

Duggs Very excited on your behalf. When does it all kick off?

I?m up for a meet-up. Would really like to finally meet some of you in the flesh.

I?ve just agreed to work until 2 weeks before my due date (with Easter holidays just before). Am now wondering if it?s mad, as quite a lot of my teaching already involves directing proceedings whilst sitting on a wheely chair.

I?m sure I?ve missed loads of you out. Sorry if I have.

ChoccyPud · 22/02/2012 21:51

Yay for good scan news. Cinny that was such a lovely post, especially coming from someone who doesn't normally post, I'm sure we all appreciate you sticking your head above the parapet :)

As for me, AF seems about to make a grudging appearance. For someone who's been a 28 day girl since I came off the pill 3 years ago, save for various wtf cycles, today is day 29 and I'm barely spotting. Bit achy though so hopefully it'll kick off properly overnight/tomorrow. Interesting how the body reboots slightly differently after a mc. Most of me is excited about trying again but there's also a niggly voice in the background screaming with panic.

Re a meet up, I can do 10 or 24 March, which I think digi said she could do. Anyone else ok with either of those dates? Without wishing to add to your workload digi, I wonder if you'd mind choosing a venue that would suit you? Understand you not wanting to stray too far!! Near a northern line tube is fine for me, I come into Waterloo.

I think as well as me and digi, PQ duggs coconut kittens have said yes so far. Sort out venue etc on PMs.

Pebbles73 · 22/02/2012 21:55

Hi all just wanted to echo what everyone has been saying. I am surprised you feel like that Lisa as I have found everyone to be so warm, friendly and happy to give advice and support which is just what we all need. It's nice not to feel alone while going through all this crap and nice to be able to offer advice although not much experience yet except in ivf,. Was so lovely to meet with some of my fellow super overs last week and am up for meeting in London as well. :)

Kittens what a pain having to pay for another scan but fab news about your lining. I have my scan on Friday but think will be in the same boat as you and will be too early. Hopefully the next scan will be better and you can start swi.

Great news about your scan Hopeful :)

Wow Duggs you don't hang around! How exciting to be starting your first ivf cycle and sooo hope that this does the job for you. Do you have sn irregular cycle as I think that's when they normally put you on the short protocol?

suemays · 22/02/2012 22:09

Lisa I apologise if I have offended you about the comment I made about you 'being lucky to be referred to St Heliers on the NHS' - I was comparing your situation to myself and others who were not offered that. After I had been to St Marys with no luck, I asked if I could be referred to St Heliers on NHS but as I lived outside of their postcode I was told it could take 1-2 years to get a first appointment. As we had wasted a year going through the St Mary's system and yet another miscarriage with no real support or answers we decided to go privately.
I certainly have not got the spare cash laying around to do this and have been forced to give up full-time work to avoid the stress of miscarriages and have had to take out credit cards to pay for the treatment (something I am not proud of). I am angry that you feel some of us are 'looking down our noses at you' as that certainly is not the case. This awful connection that bonds us together would certainly not inspire bitchiness but the complete opposite as all we want to do is support each other - something that UK healthcare whether its private or NHS has a shortfall. It's your choice if you do want to leave this thread but we have all tried to be honest with you and support you taking our own time to answer your questions. Sorry if you don't like the answers but I always think honesty is the best policy even if it's hard for you to hear it. None of us are experts on here but we are trying to muddle through as best as we can and don't forget we have been through exactly the same as you at different stages. Anyway, good luck for the future and please don't feel you have to leave this thread.

OP posts:
digitalgirl · 22/02/2012 22:26

On phone so sorry if I miss anyone.

hopeful yay for good scan news!!! Must be a relief! When's your next one?

battery and hooray for hb on the Doppler! Hope glucose trace was just a one off.

duggs gosh, all systems go for mid-march then! Will you be on 25mg of pred for the 2ww? How does Mr S's treatment fit around ivf?

cinny lovely to hear from you, hope all's well with you.

choccy hope it's only a few days out this month and everything settles down next cycle. Have thought of a venue, will go through thread and pm all those who are up for it in the next few days.

coconut how's the property search coming along? Thanks for the reminder about Milla Jov weight gain, don't know about stogan but that's definitely made me feel better! I get a lift to the tube and it's the same line all the way to work so it's manageable - but I get off at TCR which has steps up from ticket hall to street level and am usually huffing and puffing by that point (and annoying all the commuters stuck behind me on the stairs).

DH is on a rare night out tonight, my mum did bedtime stories for ds, and I've just blubbed along to OBEM while eating a Magnum. Living the dream ladies, the dream!

suemays · 22/02/2012 22:31

PQ great news on the HCG result, I hope this one works out for you!

Duggs glad to hear you are moving forward with your IVF plans - interesting that they send the embryo to Dagan Wells. Did you see the link I put on the SuperOV thread about the new technique he is pioneering? What made you go for the London Womens clinic by the way? I am in the process of shortlisting some clinics just on case superov doesnt work.

Choccy you are bound to feel scared starting again.

Kittens sorry about your scan results but dont forget that mine were bad at day 9 and I eventually ovulated on day 20 this month after seeing 2 good follies. It's normally day 12 so a massive difference. I am always harping on about the fact I think the preds mess up our cycles so it makes it hard to know when to go for the tracking scan. Its great your lining is nice and thick - did you say you have ashermans as I am sure that not having a thick lining can be a symptom of Ashermans?

Battery well done on the scan - dont worry too much about the glucose level as I had that with DD but it was gone on the next test.

Well done Hopeful too on your scan!

Not sure if I can make the London meetup as I am going to see Disney on Ice with DD on the 10th and DH is away on 24th so would have to find a sitter.

Snoopy good luck with the scan tomorrow!

OP posts:
freelancegirl · 22/02/2012 22:39

Oh my goodness I?ve missed such a lot! I have been lurking (with interest..) all day but I?ve had a very full day?s work. The baby must have had a serious shock that the vessel which is carrying it actually walks around and moves! I didn?t get finish work until just now.

I am not sure whether I can address everything but I agree with what everyone else has said to LisaCN. I feel quite upset too that our advice has been brushed over and feel a bit like we?ve been accused of something we are all most definitely not. I think it?s time we all moved on from this but it seems that you need to find an expert to help address the LP phase issue first which might well be a reason for the miscarriages. I would say, for future reference, that it is obvious you are very upset and frustrated by the way medical professionals have dealt with you (I hope that you are just taking it out on us in a somewhat misplaced manner) and, hard as it is when you are feeling so helpless and unsupported, a friendly attitude goes a long way in encouraging people to go that extra mile for you. Unfortunately, as everyone here has said, we have all had to fight for treatment on the NHS and will all continue to do so. I am not NHS bashing either, I think the NHS is brilliant and we are very lucky (as a nation) to have it. However there are just some areas that rightly or wrongly are at the moment too specialised to be covered on a wider basis. Maybe this will change in the future.

On that subject too ? Coconut I think I agree with you and say I too would not be pregnant and (hopefully) staying pregnant if it wasn?t for the info I have gleaned from the miscarriage and conception boards (including people that are on this thread) so I feel very lucky to have found this resource.

It?s lovely to see posts like yours Cinny! We are all doing our best to supportive, inform and just be there for each other when we need to ask random questions or just have some hand holding. Thanks! And do feel free to come and chat more.

Hopeful, that?s great news about the scan!! Good stuff. You must be so pleased.

Battery am really pleased about your appointment and heartbeat too! Glucose hopefully won?t mean too much.

Kittens, well said with everything. But sorry about the one follicle. Digi?s story aside, wasn?t there someone else who had a crap egg situation on the scan and then went on to conceive? Or it might have been that they didn?t think they had ovulated.

Duggs, Pebbles is right, you certainly don?t mess around! Well done with sorting out the IVF so quickly. Am excited to see what this brings.

Digi I don't even you those steps at Tott Court Rd when heavily pregnant, everyone pushing by. I do like the thought of you sat like some pregnant Bridget Jones sobbing into your icecream to OBEM (a programme I haven't yet been brave enough to watch BTW).

Am away on the weekend of March 24th (Nan?s birthday oop north) and generally in Brighton on weekends but could probably make my way up here for a meet up. Or do a daytime weekday one for any fellow slackers Grin

Well, am bloody exhausted. I?ve been working ALL DAY Grin. I realise plenty of people work all day but I think it was a shock to my system. I got in at 10pm having done two shoots back to back. All much needed cash of course so can?t complain. Exciting to film inside the Olymic stadium at night but also bloody freezing!!

picolina123 · 23/02/2012 08:26

hi everyone,
its not fair that the clinic isnt avaliable all over the uk to everyone,i for 1 have learned more from all of you than the clinic which is great in one way and wrong in another if you see what i mean, i told my friend last night , she lives in the area and has had 6 mc already to call and see if she can do privatley, at least the tests since she still doesnt have the referal, i was lucky my gp was a fan of mr s , shes 40 this year.

i ordered that book everyone keeps mentioning - Dr beers?? prob spelt that all wrong ! just some light reading for my trip if i dont get to it any earlier.

On the mc news , still slight cramps and very bloated which is making the cramps worse , stopped the tea and pineapple just incase its that.

pebbles i cant wait to go back, i dont know if its just me but the atmosphere here in the uk is go gloom and doom or may be its just the last 6 mths have been crap 4 us . booked a couple of nights in a hotel in the city so we can be tourists for a couple of days but otherwise i just want to hang out wit the fly and sit in the back yard and it better not rain !!!

battery goods news about heartbeat, cant wait till i finally hear that- NEXT TIME (i hope)

kittens im sorry to hear you have had bad news , i wish i could offer advice but im totally clueless , thank god we have such a variety of experiences on here , but its like " give us a break!!"

freelancegirl · 23/02/2012 10:15

Just updating for today and adding Hopeful's dates. Moving all BFPs forward one day. Any other updates do go ahead copy, add, paste xx

Thurs 32nd Feb

BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 37+5 Due 10/03/12
Digitalgirl - High NKC - BFP cycle#2 32+3 Due 16/04/12 AN appt 6/03/12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 29+3
Comedy - V High NKC - BFP cycle#2 ? 26+6 C section booked: 14/5/12

2nd Trimester
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 26+1 Next scan March
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 25.6
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 18+2 Next scan TBC (20 weeks at Epsom General)
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 18+1 Next Scan 6/03/12
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 15.0 next scan at 16 weeks.
coleyoz - V High NKC. TTC #2, BFP cycle2, 14+4, Nuchal scan TBC

1st Trimester
Hopefulfor2nd - High NKC - TTC#2. 9.0 Next scan TBC
Mercator - V High NKC, TTC#2. 9+6, next scan 23/2/12
dunnit - V High NKC, on Pred, IVIG, prog and Clexane. 9.0 next scan?
PQ77 - V High NKC TTC #2 (BFP cycle one but mc) 4.2

TTC
Waiting to test
buster76 -V High NKC, Factor V Leiden.
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
BellyD - V High NKC - TTC#?
Suemays - V High NKC, TTC #2. Superov cycle 2. Testing on 1st March

Waiting to ovulate
Cherrycheeks - V high NKC, TTC#2
lisacn - high NKC TTC#1
Snoopygirl - V High NKC TTC, cycle 4, Super Ov Cycle 1 testing approx 9/3
Havingkittens - Upgraded from High to V High NKC TTC #1 On Super Ov
Pebbles - High NKC, PCOS - TTC#1 super ov cycle 1 (post IVF - 1 chemical, 1 mc) On Super Ov, follice scan 15/02/12
eurochick - High NKC, superovulation cycle 3, pred cycle 3,

WTTC
ScooterChaser - V High NKC - TTC#2 -awaiting follow up appointment
ChoccyPud - V High NKC - TTC#1 from March
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
picolina - V High NKC
duggs1976 - High/V High NKC - TTC #1 - tried Super Ov, due to start IVF
Willitbe - High NKC TTC #? Steroid prescription from GP

picolina123 · 23/02/2012 10:34

not sure if anyone has had this during MC but besides the bloating my bottom is really ichy(tmi i know!!) its more obvious today. wonder if its due to steriods.

eurochick · 23/02/2012 10:39

Morning all. I've updated on the superov thread, but in short, on my third cycle, we managed to time the scan just before ov but I only had one 22mm follie (and one smaller one on the other side). So Mr S said to take the trigger shot anyway. He would have upped the dose to 7.5mg next cycle but I have told him I am planning to start IVF then, so this is my last superov cycle for now. I think I ovulated overnight without the help of the injection anyway as my temp was up this morning, but it was good to see a follie of a good size on the screen, even if it was only one. At least there are no signs of OHSS this cycle unlike last time.

I've been catching up on the thread after being away from my desk for most of yesterday. I'm sorry lisa that you are having a rough time of it and are feeling so frustrated. Please don't take it out on the people who are trying to help though. FWIW I share some of your views on the NHS. I think it is pretty much the worst system in any first world country, bar the US. It does a few things very well (emergency situations, ground breaking surgery, etc) but many things very poorly, and I think fertility care comes into that category. I am surprised how quickly I have moved through the system and how good most of the people on the NHS have been (I had very low expectations after hearing about the experiences of others), although the testing has been rather perfunctory. If you don't fall into the standard egg/sperm/tube issues they don't investigate further. I also agree that we shouldn't be grateful for what we get because it is "free". It isn't. I pay massive amounts of tax and NI to support it and take out far less than I contribute. Which would be fine if it was there when I needed it. Anyway, this is a discussion for a different thread, but I just wanted to say please don't leave. You sound down and frustrated and could probably use the support of this thread at the moment.

to everyone else! We are trying to plan a holiday for March so I am not sure at the moment whether or not I will be around for either of the suggested meet up dates but will come if I can.

willitbe · 23/02/2012 10:58

Thurs 23rd Feb

BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 37+5 Due 10/03/12
Digitalgirl - High NKC - BFP cycle#2 32+3 Due 16/04/12 AN appt 6/03/12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 29+3
Comedy - V High NKC - BFP cycle#2 ? 26+6 C section booked: 14/5/12

2nd Trimester
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 26+1 Next scan March
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 18+2 Next scan TBC (20 weeks at Epsom General)
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 18+1 Next Scan 6/03/12
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 15+0 next scan at 16 weeks.
coleyoz - V High NKC. TTC #2, BFP cycle2, 14+4, Nuchal scan TBC

1st Trimester
Mercator - V High NKC, TTC#2. 9+6, next scan 23/2/12
Hopefulfor2nd - High NKC - TTC#2. Next scan TBC - 9+0
dunnit - V High NKC, on Pred, IVIG, prog and Clexane. 9+0 next scan?
PQ77 - V High NKC TTC #2 (BFP cycle one but mc) 4+3

TTC
Waiting to test
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
BellyD - V High NKC - TTC#?
Suemays - V High NKC, TTC #2. Superov cycle 2. Testing on 1st March

Waiting to ovulate
Cherrycheeks - V high NKC, TTC#2
lisacn - high NKC TTC#1
Snoopygirl - V High NKC TTC, cycle 4, Super Ov Cycle 1 testing approx 9/3
Havingkittens - Upgraded from High to V High NKC TTC #1 1st cycle Super Ov
Pebbles - High NKC, PCOS - TTC#1 super ov cycle 1 (post IVF - 1 chemical, 1 mc) follice scan 15/02/12
eurochick - High NKC, superovulation cycle 3, pred cycle 3,
Willitbe - RMC, NKC not tested, TTC #4 cycle 1 (after miscarriage number 12.) Fertility consultant prescribed pred.
buster76 -V High NKC, Factor V Leiden.

WTTC
ScooterChaser - V High NKC - TTC#2 -awaiting follow up appointment
ChoccyPud - V High NKC - TTC#1 from March
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
picolina - V High NKC
duggs1976 - High/V High NKC - TTC #1 - due to start IVF

Hope I have done this right as it is the first time I have done it here.

PQ- one day at a time, at least good news so far for you.

Glad to hear of good scans for ladies here too.

Can I ask all the lovely experienced ladies here , what tips would you give for starting pred. Consultant told me I should be taking 10mg am and 10mg pm, as apparently was the protocol for the Siobhan Quenby trial. From you, I would like to know how to avoid most of the side-effects.

So do I need to change diet? ,
do you separate out when you take vitamins etc? (I think I remember someone saying they took different tablets at different times of day),

From previously taking prednisolone, I remember the bloat and moon-face being a problem, - what can I do to help this be less?

When the consultant was giving me the prescription, he was helpful in saying that the likelyhood of me having another baby using the pred is as likely as wishing on a black cat!!!!! Hmm He tried every arguement he could think of to try to tell me that IVF using donor eggs was the only way I would have another successful pregnancy. He gave in in the end and realised that I would not be doing what he wanted and that since he already prescribes prednisolone to his IVF patients he could give me no reason why he could not prescribe it to me.

freelancegirl · 23/02/2012 11:07

Hi Willit. Exciting that you are going to be starting the steroids. Why did the consultant sound so negative about it?! Here are a few pred tips:

-I would say take it all at once first thing in the morning - some people get terrible insomnia when they split it up.
-I chose to separate out other tablets but I know plenty of people who took others together. Vitamins (pregnancy ones) are best taken with main meal anyway as otherwise they can make you feel nauseous. I took the aspirin mid-morning.
-Investing in a 7 day pill box with four boxes for morning, noon, afternoon and night was handy for me as I also take thyroxine at night.
-Bloat and moonface - there is nothing you can do I am afraid. But it will go! If you are taking more than 25mg Mr S prescribes Omeprazole to help protect the stomach lining. I have taken this both times I was on 40mg. I think it really helped with some of the tummy problems but I didn't really have these on 25mg.

willitbe · 23/02/2012 12:07

Free - thank you so much, that is really helpful, the consultant is very negative due to my age, I am ancient!.. He blames all my miscarriages on my age, does not believe in auto-immune disorders really and thinks that they are all dealt with by treating with progesterone, heparin and asprin. He is shocked that this treatment has not worked with me, but then he is surprised I am getting pregnant so easily considering my very low AMH test. I am just pleased that he has finally relented and allowing me to try what I think might work. Now I still have a 50% miscarriage rate due to age, if the pred works, but, that is significantly better than 100% miscarriage rate I have had in the last 3 years.

snoopygirl · 23/02/2012 12:08

Hi willit it doesn't seem to matter to me what time I take vits etc BUT definitely take pred as early as possible in morning. Unfortuantley it does cause insomnia! The weight gain seems to be inevitable on pred but after moaning about my weight in last couple of days and after week off pred i def feeling a bit lighter and not so bloated. Been trying to not snack and do lots of walking. it's hard though as pred just makes me want to stuff my face!
Good luck!

Can I just say that the support on here is fantastic Theres a real comeraderie on here and like minded brilliant bunch of women! I would be really in the dark if it weren't for this board. I know exactly what my womb lining/follicles should be measuring later, and so much other random but really useful stuff! It's empowering to be able to go to the appointments armed with this info, instead of being nervous about what's coming next or having to try and absorb all the information at once. Taking control of our destiny ladies whatever the outcome!! Long may this thread reign! (Cue rousing music and tears) Grin Thanks

snoopygirl · 23/02/2012 12:12

willit Your consultant-talk about contradict himself??!! Oh and i only took Omerprazole when briefly on 40mg. Otherwise no tummy problems but everyones different on that front. When I did take it it seemed to work within about hr and half.

Coconutfeet · 23/02/2012 12:44

Willit - Not sure how "ancient" you are, but I'm 44 and 29 weeks pregnant on the programme. So, it can work out!

Coconutfeet · 23/02/2012 12:46

Oh, and I took the pred immediately on getting up, in order to minimise the insomnia. I took all the vitamins etc at the same time, as I've got a lousy memory and would never remember otherwise.

Arianrhod · 23/02/2012 13:27

willit just to add to the general debate - I take my 25mg pred in one go very first thing (with breakfast) to try to allay some of the sleeping issues - but I do still wake up a lot during the night, unfortunately. I take all my vitamins at the same time, aspirin between 6pm and 9pm (as that is when Mr S told me to take it, when I asked why he said that's commonly held to be the best time of day for maximum efficiency. I've never heard it said anywhere else though!), and thyroid medication last thing at night.

Incidentally it may be of no interest/relevance to anyone else but my acupuncturist (who is also studying for her homepathy accreditation) has started me taking the combination of all 12 tissue salts. She seems to think it will help?

As for age - well I'm the same age as coconut, 44, although not managed to be successful with the pregnancy bit, and Mr S doesn't think I'm too old to be trying this, he is hugely encouraging and says I should definitely keep going. So yah boo sucks to the stock answer of "you're too old", as long as you feel able to keep going and trying then go for it!

And woohoo for the fabulous scans!!

eurochick · 23/02/2012 13:44

I also take the Pred in the morning, as recommended by Mr S to minimise insomia (although I still struggle with it anyway). I usually take all my other vits at the same time, including the aspirin. I hadn't heard the 6-9pm thing before, Ari.

picolina123 · 23/02/2012 13:56

willit i will be 41 in a few mths so your not alone ! i invested in 4 of giant weekly med boxes, go them off amazon but i saw some nice ones in boots the otherday for around the same price, i kept 2 at home at 2 at work so i ahd 2 weeks supply. omerprozole at 9am when i got to wrk, then pred, pregnacare an hr laterafter i ate ,then when i had dinner(7pm) i took asprin and omega 3 and vit d3 and proesterone when i went to bed. i read in a few a places not to split the pred on on my prescription it said to have all at once. re diet salt seems to be a big thing and i found it very hard not to cook with it and my face is plenty moon!! also the usual, eat lots of veg , lots of water and exercise.

freelancegirl · 23/02/2012 13:59

Awww thanks Snoops. I think I said earlier too, I probably wouldn't have found out anything about recurrent miscarriages, this condition, treatment, specialists anything if it wasn't for, not this board obviously as I started it, but if it wasn't for some of the other boards here - many of the same posters still herein and regulars on the Pred Thread. And I have continued to learn ever since.

Tissue salts Ari...? OOH haven't heard of those. Havent heard of aspirin in the evening either, but I guess I could shift.

Talking of aspirin, those ahead of me in pregnancy - did you all stop at 20 weeks? I know that was in my initial protocol but I probably won't be seeing Mr S until about 25 weeks (yes, yes - I feel compelled to add 'assuming I last that long'...). I could email of course but might just carry on with it. I did email Louise re the Hydroxy and she says to carry on with it for the moment too.

Ok, wish me luck, I am going to brave a gentle workout at the gym. Then afterwards DH and I are going to Wagamamas for a bite to eat.

freelancegirl · 23/02/2012 14:02

BTW, not sure if everyone knows but Mr S is off having surgery after this week for a couple of weeks or more I think.

suemays · 23/02/2012 14:19

I also take the preds with breakfast and then all the other drugs - aspirin, vitd3, pregnacare, selenium and hydroxy with my evening meal. I still get a bit of insomnia though!

OP posts:
PQ77 · 23/02/2012 14:24

hello all, and I just wanted to say a special hi to cinny for such a lovely post, do feel free to tell us a bit more about yourself Smile

Great scan news, I lost track of who's who in the flood of good news - but I think most recently things are going well aren't they hopeful, excellent stuff

free aspirin is now indicated as being good for pre-e and to be taken post 20 weeks IF you are showing signs of developing it. Otherwise I think it is a med that you really do want to wean off as EDD approaches as it can have issues for bleeding/surgery/other stuff. I am sure Dr Google can inform better than I can though Grin. It was quite an eye opener seeing how long it took my little skin operation (three stitches) to heal over the other week being on aspirin, I didn't like to think how long it would have taken me to heal if I had a c-section while on blood thinners.

have pm'd choccy about meeting up.

digi i also cried all the way through OBEM, i was so sad for that post-still birth lady being sent home when she was all pysched to meet her baby with a nice calm elective c-section...only to be sent home and end up with an emergency c-section later. But she had her lovely baby in the end didn't she.

duggs glad that they made you feel so positive at the ivf clinic. also keen to hear how the steriods work into treatment plan.

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