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Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

TTC/Pregnancy on Prednisolone or similar part 5

999 replies

suemays · 25/01/2012 16:48

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
Havingkittens · 22/02/2012 15:16

Lisa, I think thew Annabella that free referred to is the one I said that was Mr S's PA at the NHS clinic. She is very pleasant and helpful. I think she is a different Annabella to the one you are referring to, as she has long hair and I don't think she is a Cypriot. She is also not a registrar, as far as I am aware.

I know that everyone who pays NI is entitled to NHS treatment, so it is not "free" as you suggest, but it is certainly true that some people have access to the NK Cell treatment on the NHS and a much greater number do not, hence people referring to you as "lucky". It depends, partly on postcode, but also on how cooperative your own GP is. You are lucky to have a GP that was happy , and not skeptical or stubborn as many are, to make this referral, as was I. However, the NHS has many financial constraints and red tape that you don't come across when you are paying for the treatment. So, If you are with Mr s's clinic on the NHS, they deal with recurrent miscarriage. Nothing more, nothing less. If you suffer with unusual cycles that make achieving pregnancy difficult then this will come under their fertility juristiction, not recurrent miscarriage, and so will not be addressed by the NHS' recurrent miscarriage clinic. Yes, it's true you will get conflicting advice from them. It's ridiculously frustrating and all of us that have been trying to get the treatment on the NHS have suffered extreme frustration in one form or another. From what I can tell, the main benefit of being seen there on the NHS is that you don't pay for the tests and get the medication at a better rate. I felt that after that, I was pretty much alone until such time as I fell pregnant - which I didn't. I have been waiting since October for a referral to the Fertility Clinic on the recommendation of one of Mr S's registrars, only to now get a letter saying that I am welcome to make an appointment for tests and advice but that there really is nothing much they can do for me because I'm 2 years older than the cut off point for fertility treatment on the NHS. So, now I am in a position where if I want to have any success in getting pregnant I have to pay for private treatment.

I am somewhat offended, on behalf of myself, and the others on this board who have tried at every turn to give you the best advice we could for each post you made, only to be told that you think we are pretty much a bunch of judgemental snobs who are looking down our noses at you. Why would we? Because we are paying for treatment and you are not? I was initially in no financial position to pay for treatment, hence my request for an NHS referral. Now that I have no other option, it happens that I actually do now have the money to pay for it. Not because I am luckier, or somehow "superior" to you, but because my mother died recently and left me her savings. You have no idea how any of us have cobbled together the money to pay for the treatment that we are having, because some of us have no choice. Please do not assume that we are in some way over privileged types who can afford to throw money around at private healthcare whilst looking down our noses at those who are seeking NHS treatment. Angry

In other news.....

I had my follicle tracking scan today but it seems it was too early. I though it would be to be honest. Frustratingly that means I have to pay for another scan Sad boooo! The good news is that my lining is "beautiful" according to the consultant who scanned me.

Sorry, would post more personals but I have to prep for a job tomorrow, sort out my drowned rat hair after being caught in the rain, go to the supermarket and get out of the door to go to the theatre, all in about 3 hours. I just felt the need to post the above. Now I will go and gather my toys and put them back in my pram Wink

Stogan · 22/02/2012 15:21

Can only echo everyone else's thoughts. This thread has been my life line for the last 8 months and I feel quite sad that people feel we have judged them or not treated them fairly. U ladies have helped me and my DH so much from start to finish and I'd like to think I have helped others too, although I'm pretty rubbish when it comes to super ov and cycles and things like that I feel I can provide help and support for people who are just begining the journey and like to think u ladies can call on me in future even after my little one is here as I'm sure I will find myself back on the treatment again in the future !
Sorry to go on but it is quite upsetting (well my hormones are a mess so they ain't helping) would still like to wish everyone all the best whether on this thread or any other xxxWink

mercator · 22/02/2012 15:38

Just wanted to add to the posts above. All you ladies on this board have been absolutely amazing in terms of help and guidance with the various treatment plans be they NHS or Private and without which I may never have had the faith to embark on this journey. I never imagined meeting such a wonderful bunch of 'girls' in cyberworld.

I sadly was too old to embark on an NHS route as I am 43 (there I?ve said it) and simply did not have time to wait as this is my last year of trying for a second baby. But I had also been rather let down by my own GP and the NHS as regards miscarriage saying I was simply too old (eggs and all that) and felt I had no alternative but to go down the private route for NK cells after reading de beers book. In fact I only found out by sheer chance that NK cells could have been tested on the NHS at Epsom but I believe that is something that most people are unaware of.

On a lighter note hope everyone enjoyed their pan cakes yesterday!

Arianrhod · 22/02/2012 15:39

Woohoo kittens for your "beautiful" lining Grin

ChoccyPud · 22/02/2012 15:56

Loving kittens' beautiful lining. Brilliant
:)

Talking about how lovely we all are (coz we are), is anyone up for organising another London meet before digi gets too close to EDD? Maybe another Saturday lunchtime rather than an evening. Quick show of hands...?

PQ77 · 22/02/2012 15:58

yip choccy

snoopygirl · 22/02/2012 15:59

kittens beautiful lining! lovely! Bugger about timing though when do you have to go back?

Arianrhod · 22/02/2012 15:59

I shall be there virtually, since I can't do weekends unfortunately :( But I shall be there in spirit, if not in spirits .. :)

Stogan · 22/02/2012 16:02

I'm with ari can't make meet 1.is too far and 2.will hopefully either be in labour or close to it !! Gutted I won't get to meet any of u ladies Sad

snoopygirl · 22/02/2012 16:03

Wish I could but just too far for me Sad

Havingkittens · 22/02/2012 16:16

I've just spoken to Mr S. Only 1 follicle and it's very small so have to go back for a scan on Monday but may not be successful this cycle Sad.

I'm up for a meet up, although I am starting to get busy with private client bookings on weekends with the wedding season approaching, so can't always guarantee my availability.

Haven't seen any posts from scooter for a while, hope she's ok.

snoopygirl · 22/02/2012 16:27

Oh what a pain. Jeez I hope for our sakes and our pockets that he can fine tune things for the second month!!

Havingkittens · 22/02/2012 16:50

Indeed. Definintely no IUI for me this month. Too risky. I've not had a chance to go on the SuperOvulation thread recently. How are you getting on snoopy?

PQ77 · 22/02/2012 16:53

welcome back kittens. Sorry about your scan news though Sad .

I have been in touch with scooter and she has her follow up appt this week so I have told her to come and tell us how it goes Smile

lisacn · 22/02/2012 16:57

I'm sorry that so many of you are offended, that was not my intention but I am entitled to my opinion as many have you have vented yours on here

mercator · 22/02/2012 16:58

Kittens sorry about scan results.

Re: the meet up London is probably a bit more difficult for me sadly.

snoopygirl · 22/02/2012 17:00

I've got my follie scan at 4.30pm at nlc. i was just looking (after reading euro's timing issues on SO board) at calendar and my notes of when I've ov'd in last 3 months and it's pretty much been on day 10/11 each month. I hope they can see something relevant, although to be fair to Dr S he did warn me about possible 2 scans at first. I couldn't do that every month it's just too expensive. euro said the Letrozole mucks about with cycles too. anyway see what tomorrow brings. PITA all this but have to keep plodding on I spose.

digitalgirl · 22/02/2012 17:45

kittens you'd be surprised what can happen in a few days. When I had a scan in my last WTF cycle, the consultant said I had a few small follicles but was unlikely to ovulate for a couple of weeks or might even not ovulate at all and just have a period. I ovulated 3 days later. The important thing is that your lining is looking good - so whatever those follies decide to do at least there's a nice comfy bed waitnig for them.

Am up for a meet-up - anywhere near a northern line tube station, north/centralish would be extremely helpful as my mobility is pretty limited now. I've got stuff on 3rd March, but could potentially do the weekend after and maybe the weekend after that. Any later and I'd be reluctant to travel anywhere without DH nearby (early labour last time)...

hopefulfor2nd · 22/02/2012 19:24

Evening ladies!

Well, all good here! Measured at 8.6, lovely strong h beat. Mr s really pleased. Was an internal though, but brilliantly clear scan. Even heard the heart beat!!
He was suprised how sick I'm being as steriods are used to treat bad sickness so I dread to think how bad id be without them!
Sorry for lack if personals but I'm off to bed, been a long day, and I thought you'd all be wondering!
Love x x

cinny76 · 22/02/2012 19:30

Hey ladies,

As a reader/lurker (and limited poster) I just wanted to say that I find the information on here invaluable. When I found this thread it answered questions that I didn't even know to ask. Personally although I research and read everything I can, being guided and advised by others in a similar position has broadened my knowledge and most importantly reassured me (without me even speaking often) that others share my concerns/impatience/sorrow/hope/joy and declining bank balance!! Thank you for being so candid and those with bubbas on the way...thanks for being my hope & inspiration! Grin

Stogan · 22/02/2012 19:46

Aw fantastic news hopeful YEY !!! X

batteryhen · 22/02/2012 20:12

Hello Ladies I love this thread, and would like to say that we are all struggling/coping and trying to reach the ultimate goal in our own ways. We are all doing brilliantly :)

kittens Hooray for lining, but crap that this is not your month, but as Digi said these things can change quickly so I will keep my fingers crossed xx
cinny I love your post, thank you for popping in!
hopeful Lovely news and and brilliant to hear the heartbeat xxx
digi Love the fact that you are getting larger and larger :)

I always want to do a massive hello to everyone :) So hello to aall you regular posters and lurkers xx

news from me : I had my 16 week mw appointment today - a bit early as I am not around for the next few weeks. I too heard the hb on the doppler :) However, the mw found some glucose in my wee :( However when I tested it a bit later it was clear ?? So she has sent it off and we will see what it says.

Big wave to everyone xxx

duggs1976 · 22/02/2012 20:46

Great news PQ, Hopeful and battery !
And adios Lisa good luck on the BC thread...
Had my IVF and CGH app today at London womens clinic. So lovely. Am quite excited. pebbles am on short protocol and will transfer in same cycle - day 3 embies. They send off to dagen wells at Oxford reprogenetics for CGH.
kittens sometimes takes a cycle to get u on the correct dose - good news on liningGrin would be up for a meet Grin

snoopygirl · 22/02/2012 21:01

Yes what a sweet post cinny x you are not on the list btw - do you want to be on it or do you prefer to lurk? Smile

Great news battery & hopeful way to go!

duggs how exciting. When does it start then? got everything crossed for you.

duggs1976 · 22/02/2012 21:10

Well next cycle start mid march! so I could technically squeeze a natural ttc cycle in if "we get down to it" next week. . . Am a bit scared to though as scared if it does work and I get a bfp (v unlikely) it will be a bad egg. Feels like a roulette wheel gamble. Be patient and calm and wait for IVF and CGH or take every opportunity and give it a go. don't think DH could handle another mc(or handle me after one) so he is for waiting for CGH. Is not a bad dilemma to have ( well it is in real world but not bad by cocoon house standards). Head nurse was very interested in dr s and took his details so she can refer others to him if necessary. They currently only refer to dr gorgy.

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