TTC Super Ovulation...

[duggs1976]

hey ladies,

There are a few of us who are ttc after mc's, however there will be ladies out there who are also ttc for the first time or second or third without success. If anyone is on, considering or had success on a super ovulation programme then do join us. How long did it take ? Did you try IUI with it.. ? Did you have PCOS?

Kicking this off and hoping some of you will join....

Snoopy I have posted you a message on the other thread - please let me know if I can do anything/if you need someone to talk to etc. I can't imagine how you must be feeling.

Lisa anyone can get a 'free' NHS hysteroscopy if they have recurrent miscarriages as it's a recognised evaluation of the condition. You only need to go to your GP and request a referral. I was holding off having one as also didnt want any more procedures but its only a minor one which lasts around 20 mins and you are not under anaesthetic but have a camera put inside your womb. Saying that, I am dreading tomorrow!

Oh gosh snoopy, you poor thing. What a shock for you. Try not to panic too much until you have all the information. Difficult, I know, but my step sister found a lump just over 3 months ago and was diagnosed with breast cancer. I didn't mention it before as I didn't want to scare you. She was treated very quickly and had a double mastectomy and is now waiting for reconstructive surgery. She has just had blood tests a week ago and has been given the all clear and told she doesn't need to have chemo and will be having implants put in in a months time. Hopefully, you will have caught this early. I've got everything crossed for the best possible outcome for you. The ironic thing is that now the NK Cells can hopefully work in your favour as one of their main roles is to kill cancer cells. Please do keep us posted on how you are getting on won't you?

sue, I am fully expecting this potential egg to break down and "get thrown out with the wash", in that it's now CD24 and I've just had the surge, so ovulating today or tomorrow. My cycles are usually about 25/26 days long so I'm not holding out much hope. If I haven't come on by Tuesday then it sheds a slightly different light on things. Not that I may be pregnant, but that my body is giving me some sort of luteal phase. If that happens I will call UCH and postpone my hysteroscopy to be on the safe side. I have spoken to Louise about all of this and she thinks this is the best plan.

lisa, Louise told me that I didn't necessarily need a hysteroscopy to go ahead with the SO treatment because they reckoned they could build up my lining with the progynova, which did work. She did say that I would definitely need to have it done if I were to go on to IVF. If there is any suspicion of scarring, especially if you have a copy of a report stating that, then you can get referred for a hysteroscopy on the NHS.

snoopy big hugs x

sue and kittens Thanks, I have already been to my GP who said she could refer me but there was no guarantee that they would go ahead with one and although the waiting list is 4-5 weeks to get referred but who knows how long after that before the procedure would go ahead thank you tory tosspots, also on the NHS they look first then book you in again if they need to do anything, I'm also 39 and in my area help is limited due to my age so if I do need one then i'll go privately. kittens they said that the Tamoxifen had improved things,also ari gave me the heads up on some supplements. I'll see what happens, personally I feel I should go back to old skool and try without all this stuff. I got pregnant quite easily and had good cycles but since Dec I've been given all these different treatments and i'm getting no where :(

There are similar restrictions to do with age where I am too but they said the hysteroscopy was the one, and only thing they could do for me. I'm 42.

I was amazed to get my appointment so quickly but my plan had been to get referred and wait. That way if the 6 cycles of SO didn't do the trick, the appointment should be through in time to get it done before IVF.

kittens i would just hate to wait and get to the appointment and have them tell me they won't do it, more rather scrimp and save and get it all over with in one go, DH has been waiting months for his hernia op hoping I don't need it in the end

Lisa I was told today when I went in for my NHS hysteroscopy that if they found any polyps or fibroids they would treat them there and then without having to come back in. Lucky enough all was fine for me so it's another thing to tick off the list. In a way I wish they had found something that could be treated so that it would give me an answer! I asked the consultant if a hysteroscopy would pick up something different to any other scans and he said it was the most effective and concise way of seeing inside the womb. He also said that other scans might not pick up irregular shaped wombs which they can treat. Apparently he has seen some patients who have already had one child with an irregular womb (without knowing) but then had miscarriages. It ws just pure luck that the 1st pregnancy worked. The whole procedure lasted around 5 minutes for me and didn't hurt or feel at all uncomfortable. I have a bit of bleeding but thats about it (plus all the water they pump you up with). BTW I was 40 in April and the whole process took around 6 weeks from GP referral to appointment so much faster than I expected.

Kittens I moved my appointment from next week to today as I was worried I might be OVing next week and every week counts! Sounds like you have a good plan with waiting to see if your AF has come. They get a lot of cancellations for this sort of thing anyway so it wont matter if you do cancel it.

Lisa as you have had recurrent miscarriages you are entitled to a hysteroscopy on the NHS as its one of the recognised ways of treatment/diagnosis. I am surprised your GP told you there was no guarantee you would get it done. I had a gynae consultant appointment at my local hospital a couple of weeks ago where they ran through my history first before the actual hysteroscopy appointment came through. They would tell you there and then if you were eligible for the surgery so I am not sure a GP is correct to tell you that!

The consultant today told me its only around 1% of people he sees that need to come back in for further treatment as the majority are either OK or need minor lesions removed which they can do at the 1st appointment. Hope that helps!

sue thanks I really do think its a postcode lottery, i can ask my GP to refer me as it won't hurt, Mr S's colleague said that they would need to remove the scarring but it certainly didn't look as bad this time round, i'll see what my next peroid is like too, i'm hoping it will be better never thought I want for a heavy peroid.

Dear all, 2nd SO failure, so onto my 3rd attempt now with an increased dose of Letrozole i.e 7.5. AF turned up almost a week early. I didn't even get a chance to get my sticks out! I am going to ask about Hydroxy and Selenium next time I go to the scan to see what DR S says.

Snoppy as discussed on other thread I am thinking of you and hoping that you have a swift recovery. I am leaving your record exactly as it was as I guess we all hope that your journey on here will continue. Please let us know how you get on.

Duggs pred 7 & SO 4
Pebbles pred 1 & SO 1
Snoopy pred 7 & SO 2 (not doing SO this month) Testing 2nd/3rd May
euro pred 5 & SO 3, now on IUI
Kittens Pred 10, not ovulating on SO3, waiting for FSH test & changing treatment next cycle (13 months overall on pred, but inc 2 month and 1 month break so far)
Abney SO3 - Waiting to scan 14/5. Left ovary not considered to be functioning properly Dr S increased Letrozole to 7.5 this time round.
Suemays pred - 3 rounds then had a CP, 3 further SO then another CP in March (total of 6 months on preds). On 2 month wait.
Carebear1 SO 1
Arianrhod SO 1 waiting for first scan 5th May

snoopy I am so sorry, that must of been a huge shock. I hope the oncologist can give you some positive news. Wishing you lots of luck, keep strong xxxx

abney Sorry to hear your 2nd cycle wasn't successful. Can I just ask, you say your AF turned up almost a week early - does that mean you have a short LP? And is that the Letrozole that caused that? What did Mr S say about the early arrival of AF?

Interesting to hear you're entitled to a hysteroscopy on the NHS if you've had repeat miscarriages. It's never been suggested to me, not even by my very helpful GP. How would you know if it's likely you need one?

Sorry, I meant abney did you have a short LP this cycle, not do you generally have a short LP! Finger fatigue :)

abney sorry to hear AF has turned up so early can I ask did you get good follie stimulation from the Letrozole?? My Gonal F arrived in this massive box, had to sign my name 3 times, you'd think I was taking charge of the crown jewels

ari the NHS are so tight that they will not be wanting women to have hysteroscopies will only do it if they feel there is something wrong in there, but as their general attitude is that miscarriages are just one of those things its no surprise that they don't inform you about them, after my 2nd ERPC they came and told me they had perforated my uterus, the only thing I asked was would this affect me getting pregnant in the future, they said no [comfused]

lisa you ARE taking charge of the (equivalent of) the Crown Jewels - you seen the price of this stuff? :) Hear what you say about the NHS, I will ask Mr S if it's something he thinks I should investigate. Although I expect following the advice to kittens, since I've said already that we can't do IVF maybe he will think it not an issue?

ari I thought around £80 to £100 I was a bit by the price, it better work and produce me two good eggs so I can have my twins and be done with it. I'm in two minds about the hysto part of thinks I've had enough poking and prodding and another part thinks well why not it can't hurt.

See what Dr S says, my GP thinks he's a maverick good luck with your scan tomorrow, hope you've got some nice juicy follies

Hi all, Thanks for all of your 'sympathy' re bxxy AF turning up early. I know alot of people are saying about the steriods messing up their cycles but as I have been taking pred for more than 2 years on and off I knew that if my AF's altered in any way it would be down to the SO drugs.

Arianrhod My AF's are usually about 27 days and you can time it to the T, hence my shock about early AF (22 days). It has to be the SO drugs.

Lisa The first time on Letrozole 5mg I got 3 good sized follies on my right ovary (only a small one on left). The 2nd time only 1 good size one on right ovary (no other folies visable at all on either ovary). Dr S says he reckons my left ovary is not functioning properley so that is why I am now on 7.5 which I have started today. On the 14th it is supposed to be my right ovaries turn again i.e mother nature is supposed to swap over each month so theoreticaly I should have more follies than the first time. I am expecting 5 at least . You made me laugh when you said you at to sign 3 times. It makes the package you received sound really important .

abney you should have seen the size of the box !!! I have a lazy leftie too :), I think someone told me that if one side is not being a team player than the other side steps up to the plate and does a bit more ???

Well my kitchen floor is down, yay and I have the cutest plumber here changing my taps

Snoopy I'm so sorry to read your news. Sending you all the best wishes in the world for a speedy recovery.

Regarding Letrozole, has anyone found its lengthened their cycle and made them ovulate later?

Hey ladies .. Just a very quickie, had my scan this morning and surprise surprise I had a 'perfect' follie at 20mm ( CD11). Mr S pronounced himself "very pleased" even though there was only one .. in fact he pronounced himself "very pleased" several times! I said to him that he sounded surprised .. he said he was, because of my FSH test. I don't think he thought I would respond to the Letrozole. He told me to take the trigger shot today, which I have now done (I think that's the most unpleasant thing I've had to do to myself yet!), and doesn't now want to put me onto gonal-f - well, not yet anyway. He said we'll try the 7.5mg Letrozole next month, I would think it's too much to hope that my one lovely follie will do the trick first round! Oh and my lining was 7.7mm which he said he was also happy with, although I thought that a bit thin? shrug .. what do I know!

Anyway, a better result by far obviously than what was expected. So perhaps I'm not a complete write-off just yet!! :). Now to DTD, although it's just as well Mr S didn't say we had to do that tonight, since DP has come home from a day at the footy with his friends half-cut :(

/waves to everyone

ari that is good news :) My lining was 7.2 the first time and they said it was ok, I forgot to ask what it was this time. Good luck with dtd tomorrow

Arianrhod Well done on getting 1 good size follie. What a relief. Keeping my fingers crossed for you for a BFP in the coming days.

Ari good luck with the follie. I am OVing today/tomorrow so it looks like we might be cycle buddies.

pebbles any ivf news from you?

Hi guys. I was pleased to stumble across this thread as it's be nice to chat to others in similar situations to me. I am in my ....crikey.....16th maybe month of ttc :(. Had 3 m/c's with the last being in June last year and not been able to get pregnant since. Have been taking steroid all that time (with the odd month) break. Am just about to start SO programme, well, this month taken Letrozole but not having the scan for Ovitrelle.....am day 15 now and should have had scan day 13ish but was away so just going to wing it with OPK's. tbh I am very disheartenend that haven't had a bfp for nearly a year when previously (although mc'd) I could get pg pretty easily.

hey pinkdragon welcome, sorry your find yourself in the same boat as us. Before this I used to fall pregnant easily, since starting on the steroids I have had no end of bother with my cycles, fingers crossed that this is your month :)

Thanks. Assuming most people on here are under care of Mr S, has anyone seen Prof Q? If so, what did you think and any idea how to get a referral? Am getting sick of the mammoth trek to Epsom never mind the huge expense!

pinkdragon Yes I think we are all under Dr S, not sure about Prof Q, there are more women under Prof Q on babycentre, they might be able to give you more information, its under the nk cells and immunology board