TTC Super Ovulation...

[duggs1976]

hey ladies,

There are a few of us who are ttc after mc's, however there will be ladies out there who are also ttc for the first time or second or third without success. If anyone is on, considering or had success on a super ovulation programme then do join us. How long did it take ? Did you try IUI with it.. ? Did you have PCOS?

Kicking this off and hoping some of you will join....

[brownstag]

Hallo everyone again; I've been off the treatment for a bit but have just restarted.
Mr S has got me on hydroxychloroquine but taken me off the steroids (horrendous insomnia); he doesn't know how this will work out on its own however. I took letrozole this cycle and was pleased with the lining (7mm) and improved cervical mucous. However, I still only produced one follicle, 15.5mm at day 10, so will increase to 7.5 next month, assuming I'm not pregnant. A friend of mine has just conceived on the same treatment with Mr S, her first superovulation cycle, so I'm feeling hopeful. She has very high natural killer cell levels, so is on the the whole shebang of immunosuppressive treatment.
Also, for anyone with luteal phase length problems, I have been taking coenzyme q10 recently, and since then my luteal phase has been 14 days instead of 11. I read it's meant to help delay the menopause as well as improve fertility in men. Also, I seem to remember above someone mentioning DHEA. I also wanted to use that but Mr S said no, it can cause bladder cancer.

[cubhouse]

Hello everyone. I'm trying to find a clinic in London that will prescribe letrozole for me, I've tried clomid for 6 months with no success and went through an abandoned ivf cycle. My doctor at the private clinic told me letrozole isn't legal for fertility purposes in the UK, but I see on this thread many of you have used it! To those of you who have used it, would you be able to tell me name of the clinic you used or even better, an NHS hospital in London? I'm desperate to avoid ivf, sorry to hijack this thread

[suemays]

New thread here
www.mumsnet.com/Talk/conception/1475108-TTC-Super-Ovulation-part-2

[eurochick]

Good luck today duggs! I cannot believe we have almost filled this thread. It has taken 5 months though. Lordy, that makes me almost halfway to 37 as it was started on my 36th birthday!

[Pebbles73]

Just wanted to say a quick good luck for the appointment today, Duggs. Hope they have some good advice for you as to what to try next.

Waves to everybody else.

[duggs1976]

No everything I've done I've had to pay for with exception of hysteroscopy ! Great.

[suemays]

Ari I am not having any symptoms either so will prob be out this month too. Annoying as I was hoping to get a chance to conceive whilst the steroids were not messing up my cycles - god knows how it will effect it next month!

Buzzy sorry to hear about your AF arriving. Due dates are also hard to get over but I have had 6 now so dont even bother checking when they will be when I conceive now. It makes it less painful!

[buzzybee123]

pink its certainly not cheap

ari i've had a temp drop and spotting so AF is just around the corner, so is my due date :(

[pinkdragon]

Gosh but look at the price of all the tests. Do you think it's possible to not have to have them all seeings as they've been done before?

[Arianrhod]

duggs Just out of interest, did your GP have to refer you to Dr G, or did you self-refer? Not sure if my healthcare would pay for a second lot of tests, might be able to swing it ... worth thinking about though. Mind you, he might be another one who dismisses me because of my age!

[Arianrhod]

I'd love to know if Dr G recommends more/different tests to Mr S. I'm very wary that we aren't tested for everything going when we visit Mr S, fabulous though I do think he is. I just feel there may well be more going on that we're not finding out about - after all, I didn't know the three things that were identified as 'wrong' with me until I had Mr S's tests, who knows what else there is 'wrong' that I still don't know about?

[pinkdragon]

Good luck with the appt and let us know how you get on. All this does cost a fortune huh, I have just got a second job so I can afford to keep on trying!? Prof Q is £360 and I was considering her for a second opinion but she is still all about the steroids. Will be interested in what gets said duggs x

[duggs1976]

Tomorrow 2pm! Thought another £150 is worth it after the money I've spent- wasted will update you all x

[Arianrhod]

duggs When are you going to see Dr G? I would be very interested to hear how you get on with him, if you don't mind sharing it with us?

pebbles Very interesting to hear the comment about aspirin ... as you and duggs say, I wish to goodness those who are the experts in this field would agree on treatments!

Rachie welcome to the thread, and as sue says, don't despair, there are always things that can be done!

sue I'm also testing Sat, as am 12dpo. Not feeling anything at all this month, not even the sore bbs that I always get after ovulation, so I'm presuming ain't nuthin' goin' on worth testing for!

pink sympathise on the WTF cycle. It's amazing how many of us are getting these cycles around here!

buzzy I too am awaiting AF with some interest, to see whether stopping the steroids along with the l-arginine/Vit E has done the trick. We'll see! :)

/waves to everyone

[duggs1976]

Yes I saw dr raj rai in dec on nhs and he totally dismissed steroids saying they were unproven and told me to stop asprin. So confusing. He missed my PCOS ( could have been cycle day not much to see) and when I returned he said if I was on metformin to lower blood sugar level then steroids would just counter balance as they raise it!!!!!! Ahhh I chose to stop asprin and ignore steroids advice. Now 6 mths on I've stopped both!!! Let's see what dr g has to say!

[Pebbles73]

Just read the following in a zita west book that might be worth bearing in mind for anyone planning on trying ivf. Dr Raj Rai at St Mary's said asprin should not be given before a bfp as there is increased risk of miscarriage and that during ivf stimulation may decrease pregnancy rate!! I wish they all agreed on treatments!!

[suemays]

Ari yes it was me whose FSH went from 11.2 taken in January after my CP to 6.9 in April during my 2 cycle break. I think the acupuncture and stoppage of steroids has bought it down.

Rachie don't despair as my friend's husband had a similar situation so he went to Zita West and had a full nutrition assessment where he was put on supplements and weekly acupuncture. His sperm count went back up and she is now 6 months pregnant with twins via IVF.

Pinkdragon you never know, you might have caught ovulation so dont rule it out yet!

Duggs I feel like you - one minute I want to go full steam ahead and go for IVIGs etc and the next I feel like giving up! I think the lack of money to spend a fortune with other clinics is the main factor stopping me. I do wonder how much of this whole business is down to trial and error and luck. How do we know for sure that the pregnant ladies on the other thread would have had success even if they were not being treated for immunes?

I was another one who didn't buy any new clothes thinking I would be pregnant soon! Now I try and buy clothes that hide my pred belly!

Kittens good luck with the hysteroscopy, Mr S said I probably didnt need one as he couldnt see any scarring but as it was free he said to go for it! Plus if I do decide to go down the IVF route I hopefully wont need it done again.

Pebbles I am testing this Saturday as will be 11DPO. I normally get a BFP at 10DPO plus I am at a wedding on Saturday so will know if I can have a few drinks or not! I dont think I will be lucky this month though as think I missed OV day with DH being away. Back on the preds now so suffering from being hungry too!

Buster I think (but might be wrong) that the follies should grow 1-2mm each day but they can stop growing before they mature (at 18mm). There should have been some kind of growth between the 2 scans I would have thought. What did Mr S say?

[Pebbles73]

Thanks Duggs but even if I get a positive test not sure how hopeful I will be that it will ammount to anything. All this immune stuff is driving me mental!
You are bound to be all over the place and great you are looking at other options before moving onto adoption. I really feel for you and beeh hoping you were ok. If this cycle doesn't work for us I don't know what will. I guess it's back to super ov and then paying for a fresh round of ivf which is what Mr S said we should do. Because of the pcos he said a fresh go after being on the metformin would be best option or try the super ov if we didn't have the money.
Will be interested to see what Dr Gorgy suggests for you, don't give up hope yet, will be thinking of you.

It's so great to have you understanding ladies to talk to.
Buster I an indeed following Mr S plan while having ivf at Oxford although haven't told Oxford. When I had my miscarriage back in October after ivf at Oxford I asked about immune testing and they weren't that keen and said try again first. Free from the pred thread is one of my best friends in real life having known her since I was eight suggested going to Mr S for testing as she suspected high killer cells and she was right! Thought the steroids would be my answer but after seeing everyone else experience's I am waiting to see. I shouldn't be despondent though as first ivf try with them. Sorry for long post, you can tell I at home alone on the sofa going mental from drugs and worrying!!

Crap about the wtf cycle pink dragon, if it's not one thing it's another!!

Welcome to Rachie and sorry you are having a hard time.

[pinkdragon]

marking my place and wondering wtf is going on this cycle...am day 22 now and no sign of ovulating unless have missed it. think will forget about this month, at least I haven't taken the pred so it will be a sort of month off from it. duggs, think good idea to explore all options...i often wonder about doing the same

[buzzybee123]

ari yes Mr S was happy with my lining at my last scan, didn't ask what it was this time, the scarring looked better too, that is why he said no to hysteroscopy. I'm waiting for my first AF on the L'arginine and vit E

[pinkdragon]

me too

[duggs1976]

Hi rach welcome to SO thread. I've been missing in action for a while. Hello ladies - pebbles soo slow these last few days. Fingers crossed for you. I'm all over the place mentally - jumping from adoption to surrogacy to more SO weigh hydroxy. I've actually just booked into see dr gorgy on Thursday just to understand what dr s doesn't cover with his immunology testing. I've had the whole shebang with him even though am not v high cells so need to understand all options before next step. Will report back ladies.

[rachie12]

Hi, im 27 and my husband is 31 we have a beautiful daughter who is 4 in august she was conseved naturally but did take us 3 years, we are no trying for our second baby and have been for over 2 years we asked for help after a year because i didnt want it to take 3 years again! i was put on 50mg of clomid for 3 months as i didnt ovulate, i have polosistic overies, lots of scar tissue from c- section and appendix removal and a blocked right tube, i have found out today that my husbands seamen results came back as 0% active! i have no idea what they will do now i dont think im ever going to have another child i dreamed of having a big family too :( Rach

[Buster76]

No pcos has never been mentioned before pebbles
Thanks for the info Ari

Are you following Mr S plan with your IVF pebbles?

xx

[Pebbles73]

Sorry to hear af arrived Kittens and what a pain having a wtf cycle for no apparent reason. Don't all these drugs just drive you mad!! Good luck with the tests and hysteroscopy.
I know where you are coming from re the clothes, every ivf cycle I have I think right stop buying clothes as you may get pregnant. This time I thought sod it and bought a couple of things to cheer myself up at the weekend!

Sorry your scan didn't go well Buster although it seems your lining is fine. Has pcos ever been suggested to you before or was that a bit out the blue? I had all sorts of scans before being refered for ivf and was told I was fine and then when I had a scan for ivf they told me I had pcos. Doctors are very frustrating with the conflicting advice!

It was indeed Sue whose fsh came right down, and Ari my memory is also rubbish at the mo!

I have a week and one day to go until test and it is driving me mad, so hard to stay calm and relaxed particularly when taking pred! Had really bad munchies last night and found myself munching ice cream with crushed brazil nuts (for the selenium of course!) and this lovely biscuit paste stuff you can buy in France. I very rarely eat ice cream so guess it is the pred making me do it!!

Hi Duggs how are you doing at the mo? Sending a big virtual hug your way.