Dla part 10

[Patientlywaitingx2]

Called up today and the wait gets pushed back further and further has anyone been awarded recently

This wait is driving me insane now. Week 14 today 😴

I've seen a very small amount of people on 19th and 20th December be awarded on a FB Group. That gives me a little hope. 2 weeks til 14 weeks for me

@Snickerdoodles19 yeah I will ring end of next week fingers crossed 🤞can I ask what you sent off as evidence as the renewal form is obvious smaller than the initial one. I have repeatedly said he need constant supervision and that he needs help with all care need and that he has Sen statement as he attends a special needs high school. I haven’t sent his echp off as I haven’t received it yet.. but I have sent letters from his pediatrician doctor ,occupational therapist his Psychologist who also wrote in his form for me. A letter from his learning disability nurse..who all have confirmed he needs help with all care needs,supervision all the Tim and poor sleep And still uses nappies in night and to do a number2… I feel like I’m missing something or I might just be panic and thinking I haven’t sent enough .

@Boymom10 it sounds to me like you have sent more than enough with your form, it will be too late to send by the time you receive EHCP, I sent hospital letters, school support letters, home/school diary exerts, prescription list, photographic evidence of damage done to my home, the dangerous behaviour he displays(climbing, things constantly in his mouth then I wrote 10 pages about everything covering his everyday life and how much he suffers xx

@Snickerdoodles19 oh wow!!!! I didn’t write as much as you as I thought it’s quite repetitive as I do all is care needs eg dress wash toileting. I just kept saying he need’s constant help care and supervision throughout. And he is of a much lower developmental of a child of his age (12). And that he doesn’t leave the house as it’s to much sensory stimulation for him and all the letters can confirm this in better details aswell . I have never thought of sending photos.. as he has self harming behavior which is triggered by not understanding etc I could have sent photo to show them. Thanks for the reassurance. I’m having a constant battle with myself that I’ve done it wrong 😑

@Boymom10 yeah my son also self harms, bites his arms, sucks on his skin and punches himself in the head, I also sent photographs of the bite marks on his arms, I think it just easier to back up the things you say as much as you can, i just think it’s best to reinforce the matter that he needs constant supervision and support in all that he does x

Our 12 week mark is next Thursday 23/03. However not confident we will hear then. I'm hoping that our form is pretty straight forward and easy, can't imagine it will take a DM to long to decide on rate, I hardly sent in anything, her diagnosis, her care plan, glucose monitor prescription and then a letter from her diabetes nurse and just the form itself. It's so repetitive, they make it much longer then it needs to be. I'm sure they do it just to put people off. 👎
scan date 29/12

I have received a letter today. Scan date 19/01

’we are sorry we have not given you a decision on your claim for DLA yet we will deal with your claim as quickly as we can’

when I spoke to someone the other day they said 14/15 weeks and advised that the additional documents I sent won’t be scanned for 2/4 weeks

You just described my son

Your the same as me aren't you I rang yesterday still wasn't with a dm

Mines the 20th. Think yours is the 19th isn't it? I'm hoping mine isn't with DM as I sent off the blue badge report yesterday x

I still haven't sent all his other stuff off I think it will be declined anyways x

@Patientlywaitingx2 what makes you think that? I keep flipping between thinking he will be declined or at least deserve MRC. All this waiting is no good lol x

@Patientlywaitingx2 its hard going isn’t it, he’s suffering really bad at the minute with his tics and he’s constantly got to have something in his mouth to chew on. It’s got that bad he’s eating the fluff off of my cushions and chews the throws and threads them.

I rushed the form the night before I posted just don't think I put enough on it. Nursery wrote on it for me also but I felt like I didn't detail enough xx

Been following this thread for a while. I’ve just had a payment go into my bank for my claim. I’m not sure what rate it is as my scan date was 9th of Jan and I got paid £1,016.40 claimed without a diagnoses for suspected ASD. Daughter was 28 months old when I made the claim. Wasn’t sure it would be a successful claim. All I sent in was some referral letters as on waiting list for SALT and a CDC assessment. Also got her nursery SENCO to fill in the bit of someone that knows her. Good luck to you all!

i also rushed my form a bit and felt like I didn’t go Into a lot of detail I didn’t even do additional pages. Just used the boxes that was provided. Maybe sometimes less is more because when writing a lot you can sometimes maybe accidentally contradict something with wording or how you’ve explained. When there’s less in depth info prob less chance of that. I did bullet points and kept them short and to the point. Was horrible anyway as it’s so negative and I really struggled with that bit. I thought I would be waiting until end of April realistically and expecting a decline so I’m hoping you all don’t have much longer to wait. Fingers crossed :)

I didn’t want to rush it. I was just exhausted and had had enough of the horrible thing haha

@Reebee123 totally agree with this - less is more. I feel I may have added too much and possibly contradicted but its all the honest truth so if they need me to elaborate I can. But i feel the DM will need to be quite intelligent to understand all the medical reports I have sent so I may have shot myself in the foot. I am on week 11. Scan date 29/12. My son has a long term brain injury with complications to date. In reality I needed to send the reports across as he has a lot of medical professionals involved with him. I did the job of the DM by sending the reports so he doesn't have to request them but I hope he says thank you by accepting and giving DLA to my son!

you should be fine :) I think there’s so many factors at play like people say. I’ve seen some people who in my opinion are entitled to it without a doubt but get declined. Some people give lots of evidence and some people nothing and the results vary dramatically. At first when I applied I was super confident that I was going to get awarded as my child without a doubt needs more care. But reading other peoples posts on here and on Facebook with children who require much more care than mine get declined made me doom and gloom and think I would have to fight the decision. They seem to be working through them quicker now at least

Yes on my renewal I have just constantly repeated that he needs constant help and supervision to keep safe and with all care needs and a substantial amount more than a child of his age due to his asd / learning disability. And how he has self harming behaviors and his behaviors are challenging I have repeatedly put that in every question. And a little more detail. My supporting letters from professional all say it aswell says he is fully dependent on family for all care needs. I was told by health visitor many years ago to keep it short and sweet but it never seems enough. She said just always back it up with letters/reports

My daughter self harms too it’s horrible. She’s non verbal and she gets frustrated when she can’t get through to me what she wants/needs. She will punch herself in the face. Bite herself. Bang her head and so on. She has no understanding at all. She’s scoring between 6months and 18 months on one of her reports. She is now 31 months. The 18 months was more for her motor skills and the rest she was max 12 months. Social was 6-9 months I think. I’m at work now. I’m a single parent (her dad went on holiday and didn’t come back) doesn’t pay a penny has no involvement. (She was a planned baby from a 6 year relationship. Wouldn’t think it would you haha). Had to deal with a lovely meltdown before I even got her in the car this morning. I feel hot and sweaty before I’ve even got to work! I agree it is challenging. We wouldn’t change them for the world. But it does really take its toll on you sometimes doesn’t it.

@Reebee123 sending hugs to you!!!!! I would not change my son for anything in the world I sit some nights and cry but just from the exhaustion and emotions of the day. He’s 12 and still sleeps in with me for the very little amount he sleeps (2/3) a night 😳 some nights my poor mum who’s 72 has to sleep over so I can just get some sleep but he still comes looking for me.. I just think something these DLA letters you just can’t get through emotionally what it’s like every day. I mean I have put he’s in nappies throughout the night and to do a number 2 but I can’t see them imagine what it’s actual like changing a boy of 12 nappy every day and 2 /3 times a night it’s physical exhausting he’s 5ft 7 and wears a man’s medium clothes..but he is honestly the light of my life

Thank you :) I send them to you too. Your situation does sound challenging but sounds like you’re doing an amazing job! It’s not just me that has a cry after a tough day then! Sometimes I feel I’m the only one! My mum helps me as much as she can and she’s 71 so similar age! She doesn’t help with overnight care as she cares for my sister who has Down’s syndrome and other health issues. My mum has my daughter today though and she’s taking her swimming which she loves. The tiredness just makes everything so much worse! I struggle to function most days. I woke up to find my daughter in the cats litter tray the other night eating the litter!!! It’s like you have to be switched on constantly even in your sleep. She also ripped off like a casing that was concealing some wires coming out of the wall. those things are recent never mind her breaking all the slats in her bed frame from constantly jumping on it. They keep us on our toes alright lol x

I just got off the phone, he was awarded high rate care from November, and low rate mobility is being added in June when he turns 5.
I bloody cried on the phone, the poor woman lol
My date was 8th December xx