DLA Wait Times Part 8 (2023)

[gingergingerginger]

It's looking like we're going to need a new thread. Good luck to everyone waiting for a decision. Our scan date is 02/11 so it could be any day now, but most likely another week or two.

Week 13 for me too! I was told to call back a week Wednesday and check progress….

Wish me luck -.-

Rang for an update scan date 04/11 they've requested more information from the senco at school which now means I can be settled in knowing its going to be refused as the senco sews no issues and has blocked us every step of the way with everything. Good luck to everyone and hope your journey runs a lot smoother than mine.

Good luck guys

Ah that’s shit. I’m dreading the same thing as ds is quiet (silent) and compliant at school. To the point that when someone made him cry the teacher spent half an hour with him and he still couldn’t tell them what happened.

So this guy seemed more helpful than any other person I’ve spoke too. He’s going to email them to say the date is coming up, so can you do it at some point today. I’ll probably call back later too see if there’s been a update

I’ve just called. She apologised profusely and said I won’t hear anything until we’re on week 15 at the earliest. Scan date was 17/11 she said you can’t count Christmas week either because the offices were closed so I’m on week 11 😢

@Als2017 hi this is week 16 for me and it has been with DM for a week, I am on the phone now waiting for them to answer so will update everyone when I know 🤞🏽 wish me luck

Good luck xxx

Good luck everyone calling today. Sorry to hear that @AdhdMumOf3. Because things aren’t hard enough for our families and our children, they all need to make it harder. Good luck anyway 🍷

Which is completely different to what I was told last week! I’m not three days before you and was told to ring back next week which will be 14.5 weeks

Just got off the phone mine is still with a DM and I should hopefully hear by end of the week/early next week

@AdhdMumOf3 I’m sorry to hear that, tbh the school my son goes to now are no help at all, his teacher says he has NO problems at all basically and don’t support with his ASD pathway so if the DM needs to talk to his school he will defo be declined too 😢

Morning everyone just an update I called this morning and my child has been awarded I'm so happy all the waiting is finally over

My little boy is diagnosed adhd, restrictive eating, sleep problems and social anxiety and sensory processing difficulties. We're also on the asd pathway and our senco literally said ohh boys will be boys there's nothing wrong, it's so hard having to fight everything all the time for fair treatment. I'm gonna start asking the senco to come round mine at 2 in a morning when he's in full swing and work her magic because she's obviously great at curing people and their problems haha x

Ahh that's brilliant.. So. Chuffed for you :) perfect way to start the week xx

Our SENCo said ‘oh everyone’s a bit autistic aren’t they?’ 😱😭

Honestly baffles me how some of these sencos got the job.

@AdhdMumOf3 how can they possibly say nothing is wrong when he’s already diagnosed with adhd and generally adhd and asd go hand in hand, what type of evidence did you send in? The senco at my sons school is fantastic and she’s the one that actually helped get my son diagnosed as she was his teacher back in y3 if it wasn’t for her id probably still be fighting for what’s right for him, she’s also bringing educational psychologist back in as she thinks there’s more going on, he’s got sleep issues,tics and sensory issues plus possible PDA

My scan date is 15th I called this morning and they said the dm won’t get my claim until week 15 and then it can take 2 weeks for a decision, I’m sure each call handler tells differently each week.. so frustrating 😫

@AdhdMumOf3 its ridiculous so my son has always had sensory issues from a baby he also has meltdowns, don’t sleep properly at all and in his old school his teacher and Senco approached me and said they believe he has Asperger’s syndrome and started the process to get him on the ASD pathway but we had to move which meant changing school and now this school is awful and say he has no problems at all but then sent of a ASD referral for the ASD pathway which makes no sense at all

i am now waiting for him to be referred to a sleep clinic and he is now on the ASD pathway in our new area which can take a couple of years for a diagnosis 😢 I just hope we get an award I think it’s ridiculous how we are always fighting these people like they live our lives 🤬

Thank you that’s really helpful.

Called DLA on 13/10/2022, my youngest is autistic, no sense of danger and isn’t safe to let him on his own at all. Needs constant supervision and requires help with everything. He got kicked out of nursery last September when he just got the 30 free hours, he’s 3.5 now. He has an Early Years support plan, extensive appointments with Neuro teams, SENCO, speech therapy, PORTAGE and multiple things with his new nursery which he goes to for six hours a week. (They can’t offer any more hours due to staffing and he can’t be there when it’s collection times or drop offs due to open gates, he runs off instantly and will run into the road). He hates being in cars and in a pram but walking with him is a no go at all. I called up DLA this morning for an update as two weeks ago I got told to call today and they should have an update. Now I’ve been told it could be another 2/3 weeks making it 15/16 weeks since I sent off the claim.

I had to gave up a full time job to care for my youngest, I’ve used up all my savings now, credit cards. I can’t get a loan, my freezer broke over Christmas and increased my energy bills by £300 for this month. My only option is to work nights and not get any rest in the day to care for my child. I’ve gone from being able to afford to fix my car if it broke and being able to afford to buy the odd treat for the kids, to not being able to replace my own bras, buy my eldest new (or even second hand) clothes as she’s growing, to now having to sell my household valuables to pay for my car to be fixed. Please tell me there’s a light at the end of the tunnel? That it’ll all work out. Because right now I’m barely keeping my head above water and worried I’ll have the kids taken away from me because I can’t afford to feed myself after this week.

sorry for the long ass post. My youngest doesn’t sleep for long periods of time, he is up every hour or other hour if I’m lucky. Husband works full time but his wage covers the bills just. I refuse to get a payday loan as the interest alone will destroy us. I tried going to a food bank for help but wrestling my autistic child in there was horrible and frankly I got judged by other parents because he was in a pram still at 3years old. (Open doors and lots of people are a no go for him). Family are useless and “well (insert child’s name) is a handful and he won’t tell us what he wants, he’s just naughty”. Does it get better?

Yh school is saying noffing wrong with my son but just he can't talk yet few few words but doctor do thing something is wrong cuz he seen him and he's like there not two kids it's one child and i can see it i his four now 4 he stuggle to walk i only got two letter from doctor for my dla i really hope he gets it ..

And i hope all of Ur children get it as well there need it

Like my older son gets dla because school is worried about him then we know he would get it .

Family fund need that's a help as well

My 4 years old dnt slep at night dnt talk just few words and he switched light on and off bang is head on the floor lines his cars up ot anything he will line them up hit me alot and his dad plus his siblings bath time are the worse in my house for him he will cry alot dnt even know y? And he I'll hit both is hands together something there as well walking he stuggle alot and he I'll just if he had to walk he will just go in the road dnt care or sit middle of the road done twice to me