Page 24 | DLA Wait Times Part 8 (2023)

gingergingerginger · 2023-01-27T09:54:33+00:00

It's looking like we're going to need a new thread. Good luck to everyone waiting for a decision. Our scan date is 02/11 so it could be any day now, but most likely another week or two.

Are your children’s vaccines up to date?

Set a reminder

Scanner20 · 07/02/2023 17:33

So happy for all the awards you've got today. Hoping for some positive posts tomorrow.. 13 weeks for us tomorrow and really hope we hear something soon.

harjinder01 · 07/02/2023 17:42

My son is 4 stuggle to slep

Lostatsea10 · 07/02/2023 17:45

Lots of lovely positive news today. Well done all who’ve been awarded 🍷

harjinder01 · 07/02/2023 17:53

I have told cdc doctor just waiting can't remember the name now but it's been soo hard as well i only sent two or 4 paper work in that's it i dnt think my son will get it but just let's see

WreckTangled · 07/02/2023 18:49

I’m so stressed we won’t get it as ds doesn’t require additional support at school, but this is because a) there’s only 45 children in the entire school so they’re able to support him without any additional funding and b) he is too scared to talk so outwardly is very well behaved due severe anxiety

lillysmammy · 07/02/2023 18:59

Congrats to everyone who got awarded, I can imagine what a relief it is to be able to support our children with everything they need!
My scan date is 23rd November and is with a DM, hope its not too long a wait for a decision.

My son is 4 in July and still has to sleep in bed with me, I cant leave him alone in his room because he doesnt sleep very well plus he can scale a baby gate like he's an olympic hurdler. Does anyone experience anything similar to me? Any advice on what I can use to make his bedroom safer? x

lillysmammy · 07/02/2023 19:06

WreckTangled · 07/02/2023 18:49

I’m so stressed we won’t get it as ds doesn’t require additional support at school, but this is because a) there’s only 45 children in the entire school so they’re able to support him without any additional funding and b) he is too scared to talk so outwardly is very well behaved due severe anxiety

Did you explain in your form that the school only has that many children so his extra needs can be met without extra support? If youve done that Im sure you'll be fine. xx

WreckTangled · 07/02/2023 19:12

I didn’t 😭 I did put in in SALT and OT reports which both have input from school on them and I did add extra about how he is. I guess just wait and see but I keep saying posts from people saying it was declined because they don’t need additional support at school. Ds’ teachers just get him to write things down or let him get on with not talking, it’s not an issue for them really. More an issue for me when he gets home having soiled himself again 🙄 I did put that in though!

Shellbod81 · 07/02/2023 19:16

Well done to everyone getting positive results today! ….is anyone on here awaiting a MR decision? Any idea how long they are taking please? X

lillysmammy · 07/02/2023 19:23

WreckTangled · 07/02/2023 19:12

I didn’t 😭 I did put in in SALT and OT reports which both have input from school on them and I did add extra about how he is. I guess just wait and see but I keep saying posts from people saying it was declined because they don’t need additional support at school. Ds’ teachers just get him to write things down or let him get on with not talking, it’s not an issue for them really. More an issue for me when he gets home having soiled himself again 🙄 I did put that in though!

Then i would write it in a personal letter, just start the letter off with their name, reference and DOB and explain that you are writing the letter to further explain their circumstances as you didnt feel you explained it enough in the form. Personal statements are taken into consideration much more than evidence sometimes. Explain every struggle, every need and explain why he doesnt need extra support at school. Something simple to explain to the DM so they get the full picture. It then stops the DM from making a hasty decision because " he doesnt need support at school" but they know the reason why because you have explained it.
Mine has a specifically one to one member of staff at nursery, he cant be left alone for a second, although hes nearly 4 hes not potty trained or anything, hes incapable of understanding what its all about. Ive also deferred him for a year from starting reception to give him time to hopefully catch up xx

WreckTangled · 07/02/2023 19:31

Thanks I will do that. Ds is much older and his needs are quite different as they’re all anxiety based in school, this comes out at home and he needs much more support than your average 10 year old. I suppose you’d say he masks at school.

Itsjademitch · 07/02/2023 19:40

harjinder01 · 07/02/2023 17:29

Itsjademitch how old is Ur son if you dnt mind me asking

Just turned 3 lovely

lillysmammy · 07/02/2023 19:42

WreckTangled · 07/02/2023 19:31

Thanks I will do that. Ds is much older and his needs are quite different as they’re all anxiety based in school, this comes out at home and he needs much more support than your average 10 year old. I suppose you’d say he masks at school.

Then definitely write a letter explaining everything so they get the full picture, dont just rely on medical evidence. A parental perspective is worth so much more because they are the only people that know the childs struggles and the support they need. xx good luck hun xx

tamxx · 07/02/2023 19:46

My boy is 9 and we still share a bed (king size) lol but due to his anxiety and not sleeping well it has to be.. anything for a better sleep for him 🙏🏻

lillysmammy · 07/02/2023 19:47

WreckTangled · 07/02/2023 19:31

Thanks I will do that. Ds is much older and his needs are quite different as they’re all anxiety based in school, this comes out at home and he needs much more support than your average 10 year old. I suppose you’d say he masks at school.

I found it helpful to just note down bullet points of what they find difficult and what I do to help. Its easy to say they do this and they do that but when you think about it, would they be able to do that if you didnt help before hand... so strip it all back and think about what they cant do without your assistance and you might be shocked with the outcome when you see it on paper.
Once you have it all written down on bullet points format your letter from all that. That way you will include all the information they need to make a decision. xx

WreckTangled · 07/02/2023 19:50

Oh I didn’t just send the medical reports I sent an addition two pages on typed bullet points too detailing everything he struggles with.

harjinder01 · 07/02/2023 19:51

WreckTangled that is same as my son how he is and my son has leg problems as well

lillysmammy · 07/02/2023 20:01

tamxx · 07/02/2023 19:46

My boy is 9 and we still share a bed (king size) lol but due to his anxiety and not sleeping well it has to be.. anything for a better sleep for him 🙏🏻

oh bless you! I have a super king and surprisingly enough my husband and I are hanging out the side of the bed! LOL the baby always has majority share!
His condition puts a huge strain on us as a family because we never get any down time or any time alone, so the thought of us being able to share a bed together alone is like a dream. Its just our son cant be left in his own room alone, we have a baby gate across his door but he scales it in a matter of seconds! We try to make time for eachother outside of work but its impossible. He consumes every minute, dont get me wrong i wouldnt change him for anything on the planet but its so hard! When he does sleep, I spend that time worrying about his future will be like. The endless amount of nights ive cried myself to sleep over it all just praying to see some light, some progress in him and nothing but saying all this he literally is the happiest little kid you will ever come across, in his little world everything is amazing! Which is wonderful because hes only 3 and half and thats all we want as parents, but god is it hard looking after him! xx

lillysmammy · 07/02/2023 20:14

Not to mention my DD who is 10 years old, hardly gets any attention, which also breaks my heart. She's a blessing I feel I dont deserve, shes super intelligent, polite, kind, absolutely gorgeous, everything you could wish for your children and she understands at the mere age of 10 that her brother needs her parents attention. She has never once complained. She can calm her brother down when he has a melt down, knows what he needs even though he doesnt talk at all and just comforts him when she knows it all gets too much for me. I couldnt be more proud to have her as my daughter and I know none of this has to do with the thread but writing this has made me feel so much better. I have serious mum guilt that im not being a great parent to her because Im trying to be the best parent to our son! Is anyone else in the same boat? x

Snickerdoodles19 · 07/02/2023 20:20

It’s hard going! My son who’s just turned 10 was in my bedroom until he was 7 1/2 because my sons couldn’t share a bedroom due to how they are! I didn’t allow them into my bed as that’s my personal area but my god when we moved to a bigger house and he got his own room the troubles began, he doesn’t sleep as it is and has meds for it but I generally get around 4/5 hours sleep if I’m lucky! I’ve often found 10 year old son asleep on the landing or in the cupboard where we keep the towels or he sneaks downstairs and gets his electronics, when he was younger we changed from a baby gate to the bigger style dog gates that have to be drilled into the door as he would constantly climb over it and mess about. It’s hard to raise our children and myself and my husband only get a couple of hours to ourselves at night when we go to bed, I’m drained most days but try to catch up on sleep when they are both at school

WreckTangled · 07/02/2023 20:21

lillysmammy · 07/02/2023 20:14

Not to mention my DD who is 10 years old, hardly gets any attention, which also breaks my heart. She's a blessing I feel I dont deserve, shes super intelligent, polite, kind, absolutely gorgeous, everything you could wish for your children and she understands at the mere age of 10 that her brother needs her parents attention. She has never once complained. She can calm her brother down when he has a melt down, knows what he needs even though he doesnt talk at all and just comforts him when she knows it all gets too much for me. I couldnt be more proud to have her as my daughter and I know none of this has to do with the thread but writing this has made me feel so much better. I have serious mum guilt that im not being a great parent to her because Im trying to be the best parent to our son! Is anyone else in the same boat? x

Have you contacted young careers?

WreckTangled · 07/02/2023 20:24

Carers not careers. Stupid autocorrect

126t · 07/02/2023 20:25

Hi my son as just been put on melatonin my dla claim as been sent off do I call them to tell them

lillysmammy · 07/02/2023 20:36

WreckTangled · 07/02/2023 20:21

Have you contacted young careers?

Show quote history

Shes not a carer, she just suffers because we are full time carers for her brother. Anytime i make some time for her, like a girly movie night, something always happens. My son either hurts himself or has the biggest meltdown and only wants me so she never has any time for herself. I know I sound like a bad mum, but Im not. Im just trying to juggle all the plates at once and keep going. I have no family and my husband only has a sister so we have no family we can depend on for support unfortunately xx

lillysmammy · 07/02/2023 20:41

Snickerdoodles19 · 07/02/2023 20:20

It’s hard going! My son who’s just turned 10 was in my bedroom until he was 7 1/2 because my sons couldn’t share a bedroom due to how they are! I didn’t allow them into my bed as that’s my personal area but my god when we moved to a bigger house and he got his own room the troubles began, he doesn’t sleep as it is and has meds for it but I generally get around 4/5 hours sleep if I’m lucky! I’ve often found 10 year old son asleep on the landing or in the cupboard where we keep the towels or he sneaks downstairs and gets his electronics, when he was younger we changed from a baby gate to the bigger style dog gates that have to be drilled into the door as he would constantly climb over it and mess about. It’s hard to raise our children and myself and my husband only get a couple of hours to ourselves at night when we go to bed, I’m drained most days but try to catch up on sleep when they are both at school

Dog gates?! Why didnt I think of that! If I had a gate a few inches higher he wouldnt be able to climb over them! Although, even if he was contained to his bedroom, I dont think I would ever sleep through fear something would happen to him. I dont think i sleep more than 4 hours every night since he was like 1 years old, Hes been prescribed melatonin but it has no effect on him. The GP has offerered a higher dose but there comes a point when enough is enough. I dont want to be able to cope because my son is doped up on medication, the decisions are so hard. Just wish my parents where still alive so I could ask for some guidance on it all x