there's spina bifida in my family. my uncle is seriously mentally and physically handicapped with it . he's paralysed from the chest down and has the mental age of an 8 year old.
but he's had a good life, my grandparents never deprived him anything, they brought him on holidays, sent him to school, did everything they could to make his life somewhat normal. he lived with them til he was in his 30's and has lived in a fantastic care home for about 15 years now. he has a job there, they take him on fantastic holidays, he has friends and fabulous carers. he's in his 50's and is possibly one of the oldest people ever with his severity of the disese.
i asked my dad years ago when we were discussing it whether having seeen first hand what my uncles life was like, would they have still had me if i'd had SB. he said without a doubt they would have (my dad is fairly blunt and he was drunk... he would have told the truth even if it was the other answer)
my kids are at high risk because of the family history, ds was born with a dimple in his back that suggests his spine didn't close as fast as it should have (i didn't know i was pregnant so wasn't taking folic acid). i'm triple dosing on FA to protect this baby but even so if an ultrasound showed SB i couldn't imagine wanting this baby any less.
there are circumstances in which i can understand termination..... but surely terminating because the baby was SN would haunt you for the rest of your life?
sorry done ranting now