Should we have a quick 'how many weeks' roll call? I can never keep up either. I'm 9+6 (is that all?? Hg makes you feel like you've been pregnant forever!)
Kitten: no opinions, but I can tell you my (somewhat dramatic) experience of combined screening last time, if you like?
There's backstory. I have pcos, and was not having cycles at all when we wanted to ttc ds1. Maybe one period a year, something like that. We saw a fertility specialist who basically put us on the road to ivf straight away. However, somehow I managed to fall pg on my only cycle that year (!) and got my bfp the day of my first fertility appointment.
I had been charting temps so I knew when I'd ovulated, and thus conceived. BUT for some reason the mw wouldn't listen to me - I knew I'd had a 45 day cycle, had ov'd around day 28-ish. But she used the dating wheel and put my dates down as what I knew we're over a week out. This meant my scan date was wrong. When I went for my first 12-wk scan (and nuchal) they were all like oh no, these dates are wrong
. Come back in two weeks (?) and we'll re-do it. So I got scanned and triple tested at what I think was not within the window of accuracy for this type of testing. Also, no one would listen to me when I said my hormones were very out of kilter due to my pcos - it's quite severe and has an effect on lots of other things, notably I get hormonal migraines. I do think it contributes to my having HG as well.
So anyway, I go for this nuchal test at 13+1 by their dates and 14+6 by mine. The sonography is very quiet and keeps shushing me when I try to explain about the dates - so I let her get on with it. She is frowning a lot and goes and gets someone else. Lots of whispering in the corridor. Comes back in and I say look, I'm not stupid. What's wrong? Really bluntly she says the nuchal fold is 3.5mm. I say is that bad. She says - well a consultant is supposed to speak to you but I can't find one. It's not good news though. Can you come back tomorrow to speak to the consultant?
Well I am in shock, but I've done my reading and I say - but I'm way over dates. No you're not says she and points at my notes (with wrong dates on them). I try and explain again about the long cycles but she literally bundles me out of the room and the receptionist is equally rude. I went home and called the mw who says the nuchal isn't any good without bloods. They didn't draw my bloods. So I go to the gp and they draw my bloods there.
About this time I was getting really bad with the hg and a few days later I'm waiting for DH to come home so I can go to the hospital. Phone rings. Hello, it's the specialist midwife. Am I Belle? Is Mr Belle there? No? When he gets in can I come to the gp's surgery? I said, look, I'm about to go to hospital. I think this pregnancy is killing me. It's clearly not good news but I'm on my way to hospital so can't come to gp, please just tell me now over the phone. Reluctantly she does so: our screening results are 1:2.
Well, could this be wrong, if my dates were out? No, says midwife. Yes, says Internet research while waiting for DH. Hmm, thinks I.
We ended up going for amino. I am a very matter of fact person and I asked the specialist doing the amino had he ever seen a 1:2 result turn out ok and that he was to tell me the truth. No, says he, he hasn't.
Well, I'm the first, then. Ds is completely fine. Only AFTER we found this out did a consultant finally listen to me, agree with my dates, and agree that the lateness of the test might have skewed the results. It's only a risk factor screening, not diagnostic, and is subject to your opinion as to what you do with the results. DH and I knew we would terminate for downs or other trisomys, and we agreed, so to us the test was important. I'm having it again this time (although we all agree on dates this time) and would have amnio again if a high result. But if you don't think you would terminate, or wouldn't have amnio, in my opinion the combined test will just cause you to worry. I needed to know.
HOWEVER: Disclaimer after all that - I have a history of weird medical dramas, I am very prone to things being weird, and I have all these known hormonal problems. I am the only person I know who has ever, ever had even a sniff of a high result, and certainly don't want to imply that the test is flawed. Most of my friends have had low risk factors and have been fine, and had nice scan experienced. I think I got a bit of a cow on scan day and my dates were clearly out (DS arrived on the due date I'd given the mw - boy was I smug) :)