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Bereavement

Find bereavement help and support from other Mumsnetters. See also your choices after baby loss.

the safe and welcoming support thread for anyone affected by the loss of a child, a place to share, to shout, to cry and smile and to remember our beautiful stars and sunflowers

982 replies

crumpette · 15/06/2010 20:56

This is a thread for anyone who has lost a child or been affected by the loss of a child no matter how big or small or how recent or long ago. We understand.

In memory of the light of my life, Lucia, and all of our little ones taken too soon. x

OP posts:
JetLi · 30/06/2010 21:05

Woollyjo - you & Niamh have been constantly in my thoughts today. I am lighting a candle here for Niamh & your family this evening

JetLi xx (from the July 2009 thread)

shabba - I will light a candle for your son Matt also. You are an inspiration to us all with the support you give

woollyjo · 30/06/2010 21:11

Thanks all, its been a tricky day, feeling crap and exhaustaed so going to bed xx

mel1981 · 30/06/2010 22:04

Hi all, just poppping my head in... its been so long.
I dont get on mn too much and ive had my head elsewhere DS4 is currently getting diagnosed for a disability/disorder (not even sure what to call it) atm so weve been so busy since Feb with hospital appointemnts, physio, tests and the list goes on...

Still think of my Jack everyday even though my heads full to the brim with all the crazyness going on.

Happy birthaday to Matt and Niamh thinking of you and your familys tonight, am off to find a candle to light.

Take care everyone will try to get on again sooner rather than later. x

shabbapinkfrog · 30/06/2010 22:11

Its so good to see some 'old faces' on here tonight. Woolly I hope you sleep well....have been thinking about you all day. xxxxx

This is the first birthday that I haven't had a 'sign' from Matt. It feels a bit weird. I usually get a strong smell of lillies (my favourite flowers) or I hear him....but, NOTHING, little monkey LOL.

Keep asking him to let me know how he is - bet he is saying 'Wish me Mam would stop pestering me!!'

mel1981 · 30/06/2010 22:13

Theres still time Shabbs... keep your ears open x

SassySusan · 30/06/2010 22:26

Message deleted

shabbapinkfrog · 30/06/2010 22:36

Mel you read my mind

I couldn't have them in the house when Matt was here. He had 'awergis' (an allergy to perfume or highly scented flowers>> and I think thats why I get the scent now. Matts speech was so funny - he struggled with pronouncing the letter R and L...for instance his 'primary school and nursery girlfriend was called Rebecca and she used to have red ribbons in her hair to match her uniform' He would say 'Awww Mam (the only one of my boys to call me that) I just wov Webbeca, her has wed wibbons in her hair evwy day, i have kissed her on the wips and she is wovwey.'

It really, really isin't a sad day...it is a day of extra longing to see him, a day of whispered words to him, and a day of thanksgiving for his short but eventful and happy life. xxx

Thank you everybody for your love and support it means the world to me xxx

shelleylou · 30/06/2010 22:52

I've just relit a candle again for you both.
Im sure you Matt will get a messge to you somehow

peterpansmum · 30/06/2010 22:53

Awww Shabs that's lovely to hear - i long for the day when i can view Gregor's birthday in that way... maybe one day x

cathcat · 30/06/2010 23:08

Just popping into this thread to say hello to Woollyjo and thinking of you and little Niamh. I see it is Matt's birthday too, so thinking of you also Shabs.

shabbapinkfrog · 30/06/2010 23:29

PPM you will love - I promise you xxxx

Night girls - thank you for your continued support - it is so appreciated xxxx

CazEM · 30/06/2010 23:54

Hello ladies, I hope you don't mind me joining and posting on your thread. I need somewhere to be honest with myself and let it all flow out and found your thread and it seemed like the place to go - I'd found the August 2010 thread on Mumsnet throughout my pregnancy a wonderful community and such a help for advice and virtual friendship.

I don't really know where to start, the last 4 weeks have been such blur and it all just hurts so much.

Our precious baby girl, Anabelle (but was already known affectionatly as Belle for short), just 32 weeks grown, was born sleeping last Monday, 21.06.2010 at 00:08 weighing 4lb 5oz after a very traumatic 5 days of trying to induce labour.

We'd gone to the hospital on the Wednesday 16th for the 2nd time in just over a week because she had gone quiet. When we'd gone the first time on the 6th when she had gone quiet the first time we were told I was going into prem-labour and that her heart rate kept dropped with every contraction, she was very almost delivered by emergancy c-sec then but I was treated quickly to stop labour, and she picked up. So we were kept in for a few days to make sure we were ok and then sent home to rest.

Everything seemed normal again for a week and then she went quiet again. We went back to the hospital, as I said on the 16th and they were immediately very concerned, devastatingly after a scan they told us our angels heart had stopped and she'd gone to sleep. We were, are completely heartbroken. She was wanted so much, planned and tried for as soon as we got married last summer.

They started me on a course of drugs the same day to induce labour - but it wasn't until the Sunday evening when they broke my waters that I went into active labour and Belle then finally arrived 5 hours later. She was totally beautiful. Our first baby. Nose just like her Daddy's which I was thrilled about because I'd been saying for weeks I thought she was going to have his nose from her scan pictures.

Throughout the labour I was on a morphine drip, I was under the understanding it was supposed to take all the pain away - but all it did was sedate me so I passed out between contractions - I felt everything. I'm glad I did now, because I felt that for her. I now think the morphine was there just to make me sleepy and keep my anxiety levels down more than anything else. I had gas and air which I don't think did an awful lot, but couldnt have an epidural due to developing an infection and being on another drip being treated for that.

Those 5 days waiting I really struggled with still being pregnant, but not. It is so hard to put how I was feeling, am feeling into words. Most of the time at the moment I don't know how I'm feeling - people ask, and the honest answer is "I don't know" - there is such a mixture of feelings I can't identify any one.

We kept her with us was 12 hours after she was born. The hospital were amazing and I can't fault them - the love and care we were shown was excellent. They supported us with everything we wanted to do with Belle and helped us capture memories, handprints, footprints, photos, handprints for a special bracelet we're now having made so a part of her is always with us. We treasure those hours we were able to spend with her, holding her, kissing her, dressing her.

Her funeral was Monday 28th, and it almost felt surreal, and seems a long time ago now, yet its only 3 days. We planned it ourselves and tried to make it special for her. We wrote our memories of the entire pregnancy and birth, al the special times we'd shared with her before and after she was born. We wrote her a letter and left it with her in her casket, telling her our memories and all the hopes and dreams we'd had for her. I think it helped knowing she "knew" how much she was loved. I believe wholeheartedly she is safe with Jesus now.

To make matters worse next door's baby girl was born the day before ours died. I'm struggling with hearing her crying - then I feel guilty for resenting their happiness and feel like a terrible person.

I just don't know where we are now, don't know what or how I'm supposed to be feeling or doing, don't even know how I feel in reality - everything seems blurry.

My DH has been amazing, I'm so proud of him, the tower of strength he's been for me and the way he managed to bear Belle's casket on Monday even though he was falling apart inside. He is my rock and this dreadful couple of weeks has shown what a truely wonderful man I married.

What happens next? I'm terrified, but I don't know what of. Questions are already going around in my head, does this mean I can't carry babies safely? They've taken bloods and placenta to do tests on to try and find a reason but they gave the impression they weren't really expecting too - we didn't want a post-mortom on our tiny girl so perhaps we'll never know. Perhaps there is nothing really to know and it just happened, I just feel so guilty - I was supposed to keep her safe and I just feel like I failed her in the worst possible way.

I think I've rambled on long enough now, if there is anyone here who could offer an experience or advice on how life goes now please tell me if you feel you are able.
I apologise for my incredibly self-centered post and send my wishes to you who are remembering you precious children's birthdays today.

cathcat · 01/07/2010 00:31

Caz, I am not on this thread but I couldn't not reply. I'm so sorry this happened to you and your darling girl. No-one would ever call your post self-centred - all the ladies here will offer you wonderful support when they see your post tomorrow. They rally around all who come to this thread and will help you in any way they can. Hold tight until then.

charleymouse · 01/07/2010 01:09

CazEM I am so sorry to hear about your beautiful Angelbelle.

I am so sorry to meet you like this but welcome to the thread; we cry, rant, shout and sometimes even laugh on good days. There is usually someone here to lend an ear and let you know you are not alone. Whatever you are experiencing is normal, you are not going mad; you have lost the most precious thing in your world, your darling daughter Annabelle, your world is upside down and back to front and other people have the audacity to continue and the world keeps turning and all you want to do is shout STOP do you not know my baby has died?

You have not failed your baby in the slightest, although you know this to be true you will feel a lot of what ifs. It is not your fault, you will get through this but it is one day at a time sweetheart one day at a time. It is such cliche but time does help. I am 3 years along my journey and it does not get easier, you do not forget, or get over it, or but you get better at coping and you get more days where you can think and remember with a smile rather than with a weep.

I am glad you and your DH had time to spend with Annabelle and have made some precious memories together. Take care and remember you are not alone but this is a very hard path to take and I feel for you and send you much love. You are in my prayers tonight.

shabbapinkfrog · 01/07/2010 06:37

Morning girls xx

Caz - as Charley said welcome to our thread but so very sorry we had to 'meet' here.

So sad to hear about your precious DD. I think that Charley got it right when she said that you never get 'over' the loss of a precious child you just, somehow, learn to cope with the grief. The longing to see them again grows stronger in time but your memories of them comfort you.

Im very glad that your DH sounds an amazing man. Hold each other close and never stop talking and loving each other.

Yesterday was my Matts birthday and we had the 'elephant in the room' all day. My DH of 32 years couldn't speak about Matt (it was also his oldest brothers birthday, he died about 15 years ago). His words were stuck if you know what I mean.

The support you will get on this thread is amazing. A fantastic bunch of ladies who care. xxxx

CantThinkofFunnyName · 01/07/2010 06:51

Good morning all. I'm terribly sorry to gatecrash your thread here but as some of you will know, I am in touch with Crumpette in RL. She has asked me to come here and let you all know that she is OK but MN has blocked her from logging in through a bit of "troll calling". I had email correspondence with her last night and I can absolutely vouch that she is not trolling about her beautiful DD. She is so upset over this, she has sent me pictures of proof of her DD when she was well and then the pictures of her in hospital after all the operations and dying. They were not pretty pictures at all and she only sent them to me to "prove" she is for real.

She wanted you all to know that this thread in particular has carried her through some awful times not only the loss of her child, but her life in general, full of many unlikely problems that most people are fortunate never to have to endure.

I am unsure whether she will "rejoin" MN as she is upset and angry about the blocking when she needed the support.

Much love to you all and I apologise for gatecrashing but hope you understand I wanted to keep my promise to Crumpette.
x

shabbapinkfrog · 01/07/2010 07:39

Thanks for letting us know. She also put pictures of her DD on her profile so we could all see her. I don't think anybody here has any doubts about her DD - I remember clearly seeing a beautiful picture of her. Next time you speak to her please send her our love. xxxxx

lottiejenkins · 01/07/2010 07:44

I should have posted this yesterday and I forgot!
for our special children, one of our special songs

travellingwilbury · 01/07/2010 07:47

Cant , there are no doubts from me either , I am just delighted that she has got out of that relationship . Please send her our love and I am so pleased she has got you on her side .

Shabs how you doing this morning ?

Cazem , I am so sorry you have had to find yourself here , the one place nobody wants to ever be but we will do all we can to support you . Others have got mor experience of what you have been through but I am so sorry of all you have been through .
And you never need to apologise for anything you say here xx

AbiAbi · 01/07/2010 07:58

Morning everyone

Shabs your post at 22.36 made me cry, in a good way. You are so zen and strong in your writing, and your love for your boys shines through. I'm going to buy some lilies today and put them in the living room, for Matt and all our gorgeous little stars. In fact I'll get stargazers!

Sassy- thank you, that's so nice of you! I'm ecstatic, but obviously it's so bittersweet too. Hasn't been the easiest pregnancy either so far, still 19wks down.

Caz- I am so, so very sorry for your loss. My DS died at 7wks, from an undiagnosd bowel problem. I know exactly how you feel with the 'well what do I do now'?! feeling. I spent 2 months purely indulging myself, taking long walks, cooking ridiculously extravagant meals, drinking a lot of wine(!)... There's no right or wrong thing to do now, just take it easy on yourself, be selfish for a few weeks and keep talking to your partner; share every wonderful memory you both have of your gorgeous girl. I'm typing on my phone so have run out of room, but will be back on later xx

shabbapinkfrog · 01/07/2010 08:05

Abi I love the fact that you are getting lilies....they are so beautiful. Thank you xxxx

SassySusan · 01/07/2010 10:03

Message deleted

AbiAbi · 01/07/2010 11:22

Ha, dont worry, its a nice type of stalking!

Yes I'm feeling really positive now - the combined test results (1:65 of being Downs) were a MASSIVE blow at the time, but I feel much more positive now. We chose not to have diagnostic testing. I cant explain why really, it just didnt feel like the right decision, for me, at the time.

We had a 16wk reassurance scan, and our baby has a nasal bone, good heart action, good brain development etc, so it all looks fairly positive - plus they are pretty sure its a girl, which is good as it means Archie stays as my little man for a while longer, and it helps separate the two pregnancies, if that makes sense. We have our 21wk scan on the 12th July, when they will have a really in depth look at everything going on in there fingers crossed...

Caz - I would second Susan when she says be gentle with yourself, dont do anything that you dont want to do, dont force yourself to be "okay" for other people. Sending lots of love and positive thoughts your way.

Shabba - I'll post a pic when I get them set up.... if I can find a vase anywhere; argh!!

xx

ILikeToMoveItMoveIt · 01/07/2010 12:28

Welcome Caz

The first thing I'd like to say is that you didn't fail Belle. All parents feel total responsibility for their children and their wellbeing, however there are times when 'shit happens'. I know that that is a big understatement, but it is the only way I can explain the unexplainable.

I'm glad you both got some time to spend with Belle and that you and your dh have supported eachother. It is so important to stay united and together.

Speaking for myself and probably for others on this thread, going on to have another child is a big leap of faith - even when we know that the death's of our children were down to bad luck (again, understatement).

Where do you go from here? Well, wherever you feel you need to go is the answer. There is no wrong or right or too soon, if you feel comfortable with your decisions.

Please post on here and ask whatever questions are in your head, there are no taboo subjects and at one point at least one of us would have had the same thoughts and questions that you do xxx

shabbapinkfrog · 01/07/2010 12:29

I had a 1:108 chance of downs with Tom. I was almost 41 when I had him. I chose the amnio - for me, at that time, it was right....but not sure I would make that decision again. I just needed to know. When I was scanned, however, they gave all the same results for Tom that they gave to you Abi. Especially concerning his heart function. It sounds to me you have made the right decision.

.....and yes, I know what you mean about it making Archie, your little man I knew from Toms scan picture it was another little boy also knew from Lewis's scan picture (DGS) that he was a little boy....think our family have lost the 'recipe for pink ones!!!' xxxx