doctor appt friday for DS (sicky, off-balance, bad ears)

[EdgarAleNPie]

right - he's had an anti-biotic ear spray for two weeks. he has been particularly sick the past week so its doing bugger all

my plan for friday is to ask

-for heavy oral anti-bs to realy kick the infection (if it is bacterial, as if its in the inner ear an exterior spray won't touch it).
-for a referral to a paediatrician (which i can always cancel if he gets better before it coes through)

• anti-emetics/ anti nausea pills? he's been keeping very little food down. quite thin.

how does that sound for a plan?

he already saw audiology, they said 'yes, there's fluid in his ear.' is there any point in seeing them again?

He's now been down with this since November. Gone from running and kicking a ball to staggering around the house and falling over. can't manage more than a few yards without support.

ok, any thoughts?

I'm so, so sorry Edgar. My thoughts are with you and your family.

no ednurse that's very comforting. we thought he had ear trouble too - for so long.

i hope the medical professionals that helped us know we don't blame them, and we want them to carry on helping other children get better.

actually - whats the best way to discuss that with the hospital? to let them know we don't blame them.

If anyone is making donations to any charity Edgar, is there any in particular you would them to be?

Edgar - you are amazing.

Love to you all. I have been thinking about you for the last couple of days.

Edgar,
Much love to you and your family. You are quite extraordinary in your dignity. It probably means little but you will be in my thoughts.

edgar - the hospital you were in will have a pals - patient advice and liaison service. Pals is not just for complaints - you can pass on positive or neutral feedback too. If you get in touch with them when you're ready they can co-ordinate things for you. It will be really helpful if you can do that because I am sure all the staff concerned will be questioning themeslves. What's happened to you all is so very sad and hard to deal with. If you want a debrief with the consultants concerned they can arrange that to. Some consultants offer that automatically and others need a bit of a nudge but that sort of discussion can be very helpful. Even if you and dh don't want it, could be useful for granparents etc to attend.

Edgar and MrEdgar, returning to this thread I am humbled and in awe of your dignity and consideration for others. As SecretNutellaFix said if you wish to suggest any charity I would be honoured to make a donation in memory of your lovely boy

Hiya Edgar, When Gregor died I wrote to both the A&E staff and the Ambulance staff who tried so hard to save him for the same reason you talk about above. It was something I just 'needed' to do to make them aware I know they did all they could and I didn't blame them. I have no idea if you have older children or not but if so I can recommend winston's wish helpline as my ds1 was 4.5 when his brother died... they were really helpful for practical questions that he/I had. If you want to chat please do inbox me, love and hugs xxxx

I am so, so sorry for the loss of your beloved boy

Wishing you all much love and strength, and even though you don't know us, like everyone here will be thinking of you x

(I am sure it won't be foremost in your thoughts, but if there is anything practical that any of us nearby can do to help, please please ask.)

Edgar, you are realy wonderful to be thinking of the hospital staff when your own loss is so acute. You are a lovely family.

I would just like to echo what has been said. you are all behaving with such dignity and grace. you are so brave and wonderful, your darling children could not have hoped for better parents. reading your posts is so humbling. much love to you all xx

Edgar i am so sorry.
Love to you and your family xx

Oh Edgar, this came as such a shock and your grace in this is very humbling indeed.

We are thinking of you Mr Edgar and your DDs.

I now feel compelled to say that you don't need to behave with dignity and grace - you can scream shout and hit things as much as you need to - you have every reason x

Edgar & Mr Edgar: I'm so sorry to hear of your terrible tragedy. I've prayed for you and your family to give you strength in your dark days. I've prayed too for your little boy and his spirit which I hope you will always still feel around you. My thoughts are with you.

Edgar - don't think about the hospital now, in terms of 'blame' etc - write to the ones who helped you, were kind to your lovely boy, who worked so hard trying to make him better.

There will be things all the medical staff can learn from this, not to do with blame, to do with 'next time', but there is time enough for all that.

I'm sure the kindness and dedication in the hospital were wonderful. So sad that wonderful doesn't mean 'a miracle', but as far as I can understand anything so sad and dreadful, I can understand that you want to write to those who were kind and caring to your treasured boy.

Much love to the Edgar family from all of us in the BeatRoute household.

x x x

All eloquence fails me, but I couldn't walk away without adding my profound shock and grief on reading this thread.

I wish you all courage, cling tight to each other and your happy memories.

Edgar I am so so sorry. You sound like the most wonderful family. Sending you mine and my family's love. I also have a 2 year old DS and I will think of your DS when I tuck him into bed very shortly.

So deeply, desperately sorry to hear this. Maternal love seems to reach out to all children and it is with this primal love that I feel your son's passing, and your dreadful loss. Wishing you strength in each other, and joining in the love here that surrounds your beautiful boy.

Very sorry for your loss od a beautiful and loving DS Edgar, i made a pledge for him yesterday.

Take care of yourselves.

Edgar, Mr Edgar,

I remember reading your post earlier on the year and I'm so very sorry for your loss.

A candle is being lit in Sheffield for your son and for you all xxx