This will be very outing but I honestly feel so heartbroken and I am sure I am probably over reacting.
DD is year 6 of primary school, she has not had it easy and ill health has meant she has had a unique education journey so far.
she is an able, sweet and kind girl who causes very little trouble for anyone.
she has an IV central line called a Hickman line which she has had since neonates. She although has been through a lot tries her best at everything she does and is capable of most things when well.
the only thing that is fairly restrictive is water based activities due to high risk is sepsis - something we know all too well can put her life at risk. We have to take care in physical activities but that is usually easily adapted and she participates to her level of ability.
the school are aware of the issues surrounding this due to a few times now it being a barrier.
year 6 SATS are this week and between some medical appointments she is sitting them like everyone else.
she was excited about Friday because she anticipated something fun was going to happen with her class due to SATS ending Thursday and she was right.
The school however did do any risk assessments before booking a trip to a riverside water activity centre where they will be kayaking etc in the in the River Thames. She is the only child again that won’t be able to attend ( she can not participate in residential which for many reasons I accept and agree )
I could of maybe swang it with the hospital which again was something the school has had previous experience with regarding daughter to allow her with a specific swim gear that we could lend from a charity but they have given me 4 days notice.
tonight I have had to sit and tell DD that she will most likely not be able to participate in the Friday after her working so hard.
she is so upset and I am so angry but I know probably like I will be told in here she is one child 🥹🥹