To think MNHQ should delete all chat about ‘the golden/bonus dose’ for those on WLI?

[istrich]

I use the weight loss forums quite a lot and with the arrival of WLI they are busier than ever. But, it’s worrying the amount of people who are misusing their prescription and discussing with others how to do so. Should MNHQ take action here?

We just turn it really hard too. Not sure anything snaps exactly, but a 'hard twist' enables us to use a fifth dose.

@surreygirl1987 and @Youbutterbelieve sometimes that hard twist (which breaks the locking mechanism) actually breaks the whole internal mechanism and the plunger doesn’t work, so you can’t inject as normal. Hence using a syringe. Which you can then just continue with next time, rather than bother trying to hard twist the pen.

Many thanks- never had that issue so I'll just carry on as I am unless I do. I appreciate the advice though.

I know what people are doing, that question was off the back of a poster saying you can take take it form the oen so I was asking why people are using insulin needles if they can take it (physically) from the pen as my understanding was that you cannot take no longer do this

It wasn’t a question for MN so that’s why didn’t put it on site stuff it was a general discussion if that would be reasonable, Turns out it’s not so no need to bring it to site stuff.

Sorry I was led to believe the one would not physically give the extra amount as lots of people say you need the insulin needle to extract.

Can I ask what prompted the post though?

In all honesty, you're not wrong in that prescription drugs are being openly abused and the means to do so are posted freely.
I openly abuse Mounjaro to get an extra dose.
Sometimes I abuse my other prescribed drugs to get some extra sleep! But I'm not condoning that, or naming the drugs or what I take because that would be frowned upon.

So, you aren't being unreasonable. You don't have to accept that you are.

I'm interested in your reasons though for not wanting it discussed.

Because I'm nosey like that!

I don't think it will be too long until 'golden dose' posts are banned. They are after all giving information about abusing a prescribed medication. I've got my syringes and badly built IKEA flat pack rubbish and I shall abuse.

I get prescribed 240mg codeine daily. I don't take it daily. If I took full dose I'd be in la la land feeling dizzy and shit. I don't like the stuff.
However if I did and started explaining to people that it's much better to snort it (for example!) I'd soon be banned.

So, OP isn't wrong. Those of us doing it have made our choices and don't see it as wrong.

It's a very fine line I think that's being drawn.

I get extra needle heads from pharmacist. 5 for a 4 click pen.

Once the pen has done it's full 4 clicks of 0.6 it will lock though, so no extra dose without withdrawing with a separate syringe.

I've never heard of a separate syringe being sent out with pens.

This is the issue. Like others, you are also being led ny misinformation. I completely understand your perspective and how you have got this (incorrect) information, but you are wrong in this instance. I've actually run this via my GP (when I went in for a chat about possible side effects) and he thought it was a 'no-brainer' and 'completely safe'. I haven't touched an insulin needle. If I wanted to, I'd run that by my GP too and if he said it was fine, I wouldn't have a problem with that either. There are MANY people spreading misinformation on mumset about WLIs... but you are doing that as well with your posts.

Yes you can. I’ve drawn it up with diabetic syringes which I bought from the chemists.

Of course they shouldn't. Mumsnet has always allowed free speech. There's always both sides of the argument available. We are all adults and are able to sort through information and assess risks for ourselves.
And actually allowing discussion makes the risks clearer.

I have used a pen longer than 30 days as I ordered a 5ml but only wanted 2.5. Instead of chucking the whole pen I just halved the dose and then I did a couple extra off the end because of course there was loads left after 4 weeks. I read up on it and decided to take the risk to go a couple of weeks past 30 days otherwise idve been chucking away loads of very expensive medication that I am paying for.
I didn't extract anything though. I did not need to break the pen.
But I sympathise with people who consider doing golden doses. I'd never do it myself because I'm just not confident enough loading the syringe in that manner. But anyone with diabetes probably would know how to do it anyway so I understand why they do that, they don't want to waste money and are confident they can do it safely.

Well my GP says it's safe. I'm more likely to believe him than a random stranger on mumsnet 😬

Can you? I didn’t realise that. I had to throw it away which is very expensive at over £30 a dose

Maybe if the incompetent NHS didn’t make you jump through a million hoops to get the medication such as being sat in a circle with other fat people and being told to have 2 weetabix and a smoothie for breakfast, only to then be told that it’s not available, then maybe people could get it on the NHS and then wouldn’t need to take the extra dose (as the NHS likes to squander everyone’s money). However, if I’m paying bet £150 a month for it then I’m getting every last drop!

You’ll especially love that I’m on a lower dose but order the higher dose as it’s the same price and just inject less 😱😱 shock horror!

I’d like to know too!

I don't see the problem here. If people are using a syringe to get the last of the fluid in a pen what's the big deal? It's the same fluid they have been injecting for 4 weeks before. The extra amount is to allow for the priming of the needle before each injection. 🤷‍♀️
What's the big issue here?

Where has the PP got the idea from that the majority of people on MJ are "abusing" it? What does that even mean?

@BoldAmberDuck how to use the remaining medication has been explained several times on this thread. Either you try to hard twist the pen mechanism once it’s locked and hope it doesn’t totally break. You can then use the pen as normal for one more dose. Or, you can extract the medication using a 1ml syringe. That’s all it is.

how is it taken then? if not via the pen?

Thank you

I'm glad you are engaging with your GP.

That's not entirely the point though about giving out information regarding a prescribed medication that's not intended to be used that way.

I get the extra dose, I've got my needles. I'm just playing devil's advocate especially since many don't even want their GP knowing, let alone the advice.
My GP would think it's great, he knows me.
My nurse rolled her eyes at me. That's fine, she knows nothing about me.

No, the "wider audience" doesn't know what the F you're talking about and don't care.

(I didn't even know what WLI was until I clicked open the thread)

I think it's the issue that, that last dose isn't part of your prescription. Therefore advice is being given on how to use a prescription drug that is against advice.

It's not a problem to me. I do it. Like I said though, if I started telling people how to use my 240mg codeine prescription differently, then it would be a different matter.

I clicked on this thread purely because I had no idea what the thread title meant. Now I know. Streisand effect, innit 😂

It used to be that you could ‘hard click’ and get the extra dose, but it appears they have changed the mechanism as it’s no longer possible. This is why people use syringes to extract the 5th dose. It’s nuts not to, imo.

We’re talking about very safe sub-cutaneous injections - it’s not like people are popping a vein.