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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think MNHQ should delete all chat about ‘the golden/bonus dose’ for those on WLI?

240 replies

istrich · 01/05/2025 16:03

I use the weight loss forums quite a lot and with the arrival of WLI they are busier than ever. But, it’s worrying the amount of people who are misusing their prescription and discussing with others how to do so. Should MNHQ take action here?

OP posts:
GustyBaloo · 01/05/2025 17:35

istrich · 01/05/2025 16:58

None. Well none yet anyway. There is a bigger picture though and the future of these medications is vastly unknown. The misuse of the pens could lead to tighter prescription regulations and higher cost which will ultimately affect me at some point. So yes I do have an interest but also it’s worrying to see ill informed people messing about injecting themselves
.
as an aside becsue it’s obviously not on mumsnet but the amount not videos of people taking their WLI and they wipe themselves and not the pen is shocking.

I think tighter regulations have already been seen. Photographs, official ID, notifying GP.

So are you taking one of these meds and worried that you'll not be able to continue due to the golden dose issue?

As for people wiping themselves and not the red opening on pen... Some people will never read the instructions. They probably have IKEA cabinets on the wonk and creaky.
I don't think that they'll bring down a multi million pound pharmaceutical industry though.

Ikeas still going. I bet there were many more injuries gained putting a bed together than there have been self injecting.

If jakeys can manage it in to a vein, it can't be that difficult in to a bit of belly flab.

istrich · 01/05/2025 17:35

TheBroonOneAndTheWhiteOne · 01/05/2025 17:32

You can always hide the WLI board.

It's none of your business to police what the majority of people who use MJ do perfectly safely.

I know, I was asking if IWBU, which I was.

m not going to hide the boards like I alsrwady said I am using them often

OP posts:
AugustMounjaroTeam · 01/05/2025 17:36

Hopefully the codes will soon be a thing of the past. I agree that it is entirely unethical to make serious prescription medication an MLM scheme.

Am also always upfront with people about the very minor side effects I've had, but the best part of 5 stone down I also say it's been life changing for me.

Wakemeupbe4yougogo · 01/05/2025 17:37

The vast majority of people using them are abusing them in the first place, hence not getting it through a GP and having medical supervision. I'm buggered if I'd risk my health for a lazy fix.

istrich · 01/05/2025 17:37

GustyBaloo · 01/05/2025 17:35

I think tighter regulations have already been seen. Photographs, official ID, notifying GP.

So are you taking one of these meds and worried that you'll not be able to continue due to the golden dose issue?

As for people wiping themselves and not the red opening on pen... Some people will never read the instructions. They probably have IKEA cabinets on the wonk and creaky.
I don't think that they'll bring down a multi million pound pharmaceutical industry though.

Ikeas still going. I bet there were many more injuries gained putting a bed together than there have been self injecting.

If jakeys can manage it in to a vein, it can't be that difficult in to a bit of belly flab.

This is a totally different perspective that really helps - thank you. I realised IWBU but this post has made me understand why/how and it make so much more sense with the IKEA/junky examples

OP posts:
SilenceInside · 01/05/2025 17:37

@SpidersAreShitheads it's really up to the pharmacies regulatory body (GPhC) to crack down on pharmacies using referral code systems and influencers that are against the law for selling prescription only medication. It is not something that MNHQ can control or should try to control. It needs to be controlled by the pharmacies understanding that they will fail their inspections and be subject to sanctions if they behave in a way that breaks the law.

MedExpress who are the worst for this have already changed their rules on referral codes, which has led to a huge reduction in the number of posts pushing them.

Oreosareawful · 01/05/2025 17:37

I’ve either broken the pen or sucked out the last dose of every single pen I’ve bought. I’m an adult and can make my own decisions, just like choosing to go on the medication in the first place. It’s ridiculously expensive and I wasn’t prepared to throw away a fifth of the pen each time!

I'm almost five stone down and it was the best thing I ever did.

MadKittenWoman · 01/05/2025 17:38

I have no need for WLI but it sounds sensible to me to get the remainder out!

TourangaLeila · 01/05/2025 17:38

istrich · 01/05/2025 16:54

I’m going to suggest those patients are shown how to do it safely and given the appropriate equipment rather then buying needles on Amazon etc though. I think there is a huge difference

Are you this risk-averse in other everyday situations?

There's nowt wrong with the needles on amazon.

I honestly don't understand your concern. It seems to be based on the principle of the situation that it's "only designed to give 4 doses". Which is is true, but does not automatically make manually taking the 5th availabe dose dangerous in any way.

istrich · 01/05/2025 17:39

Wakemeupbe4yougogo · 01/05/2025 17:37

The vast majority of people using them are abusing them in the first place, hence not getting it through a GP and having medical supervision. I'm buggered if I'd risk my health for a lazy fix.

GPS are not prescribing them for weight loss here though so we have to use a pharmacy, there is more supervision over my prescription for MJ than my GP gives DH for his much more risky meds.

you might think it’s an easy fix, but for me it was the only fix after years of trying and a shot load of ill health which has now been resolved

OP posts:
BethDuttonYeHaw · 01/05/2025 17:40

People are grown ups who should be able to discuss things like this with other grown ups.

without policing from people who think they know better and want to enforce their opinions on others.

istrich · 01/05/2025 17:40

TourangaLeila · 01/05/2025 17:38

Are you this risk-averse in other everyday situations?

There's nowt wrong with the needles on amazon.

I honestly don't understand your concern. It seems to be based on the principle of the situation that it's "only designed to give 4 doses". Which is is true, but does not automatically make manually taking the 5th availabe dose dangerous in any way.

I guess I am a bit, yes. But I get it IABU

OP posts:
KnewYearKnewMe · 01/05/2025 17:41

I do it every time. I’ve lost 4 stone since October and am nearly at a stage where I will go onto a maintenance dose for the long term.

the ‘golden dose’ is just extra, exactly the same, in-date medication. The ‘delivery vehicle’ - ie, the pen, is limited to 4 dispenses because of the way it’s made.

That doesn’t mean the remaining medication is any less safe or effective if dispensed via an insulin needle.

SilenceInside · 01/05/2025 17:41

Wakemeupbe4yougogo · 01/05/2025 17:37

The vast majority of people using them are abusing them in the first place, hence not getting it through a GP and having medical supervision. I'm buggered if I'd risk my health for a lazy fix.

Err, nope! It's not abusing them to get them via an online pharmacy. It's just a private prescription from a regulated pharmacy. No one is able to get it via the GP for weight loss because the NHS has chosen not to roll it out yet, and will only roll it out to people with very high BMIs and several weight related health conditions initially.

No one is asking you to risk your health for a "lazy fix". I was quite happy to, because over the last 42 weeks I have lost several stone and am now almost out of the obese category for the first time in about 25 years. My health is massively improved as a result.

BethDuttonYeHaw · 01/05/2025 17:41

Wakemeupbe4yougogo · 01/05/2025 17:37

The vast majority of people using them are abusing them in the first place, hence not getting it through a GP and having medical supervision. I'm buggered if I'd risk my health for a lazy fix.

this 👆is just total uniformed shite and prejudice

is this the wider audience here and less likely to have bias you were looking for OP

HollidayRanger · 01/05/2025 17:42

I used it every time, it kept it affordable and there was always way more than one dose in there. I liked to think of it as my Brucey Bonus one, it was a no brainer to me when I was on them

istrich · 01/05/2025 17:42

BethDuttonYeHaw · 01/05/2025 17:40

People are grown ups who should be able to discuss things like this with other grown ups.

without policing from people who think they know better and want to enforce their opinions on others.

I definitely don’t think I know better

It wasn’t my own opinion I was using here it was just the black and white ‘rules’ - I realise that’s my problem though

OP posts:
SpidersAreShitheads · 01/05/2025 17:42

AugustMounjaroTeam · 01/05/2025 17:36

Hopefully the codes will soon be a thing of the past. I agree that it is entirely unethical to make serious prescription medication an MLM scheme.

Am also always upfront with people about the very minor side effects I've had, but the best part of 5 stone down I also say it's been life changing for me.

I really appreciate these types of honest posts and 5 stone is amazing! You must feel great!

I lost three stone towards the tail end of last year but I have another 7 stone to lose and I'm just stuck. Perimenopausal, I suspect hormones are a major factor. Nothing is shifting and I'm just scowling at the scales every week 😂

I keep side-eying the WLI 😂 I don't think I'll take the plunge as my whole digestion system is weird - and I had acute pancreatitis in the past. I'm also one of those people who always develops the rare side-effects. I got a blood clot from one of the COVID jabs, for example, and ended up in hospital.

I do genuinely love seeing success stories though and it's great that WLI are helping so many people.

WhitbyWoo · 01/05/2025 17:43

I’ve been using the bonus dose for a year, no issues at all.

i thought it was there for the priming stage. There no problem at all with using it.

What issues are you suggesting there could be?

beenwhereyouare · 01/05/2025 17:44

istrich · 01/05/2025 16:37

No I don’t I was just raising the discussion as to whether or not this should be a topic that’s not allowed. It was certainly reduce the amount of threads about it, even if they can’t eliminate it

" It was certainly reduce the amount of threads about it"

And yet you've added another.

Yes, YABVVU.

LolaLouise · 01/05/2025 17:44

I havent read the thread. But, the pen design is also used for insulin, insulin is a personalised dose for the patient, from a handful of units, or clicks, up to 80+ at times. In teh inulin pens, there is no amount at the end considered unsafe to use. Everything in the pen is useable for the same 30 day once first used. I firmly believe, as a nurse, the 4 doses only is for ease of ordering and use. Maybe profits too. That medication is just as useable as the first dose, so long as it is used within 30 days as the manufacturer states.

I personally have drawn it off with an insulin syringe to the 60 units, or 0.6ml every pen for 9 months. Its safe, its in date, its carefully measured out. Its fine.

37.5kg/6 stone down, ill continue to use it.

minnienono · 01/05/2025 17:44

Whilst using the medication to squeeze an extra dose seems prudent to me, what does concern me is that people or knocking inches off their height to get prescription ms and bragging about still taking it now being a size 6. I personally don’t think these drugs should be issued without an in person consultation with a proper doctor then an person check up periodically to ensure weight is still high enough to be appropriate to take these powerful drugs

Azureshores · 01/05/2025 17:45

Wakemeupbe4yougogo · 01/05/2025 17:37

The vast majority of people using them are abusing them in the first place, hence not getting it through a GP and having medical supervision. I'm buggered if I'd risk my health for a lazy fix.

The vast majority of people are abusing WLI's? Really?? How do you know this?

BethDuttonYeHaw · 01/05/2025 17:45

istrich · 01/05/2025 17:42

I definitely don’t think I know better

It wasn’t my own opinion I was using here it was just the black and white ‘rules’ - I realise that’s my problem though

Where are these ‘black and white rules’?

not anywhere in my packaging, app, medical information that I can find

nomas · 01/05/2025 17:49

istrich · 01/05/2025 17:20

Well I’m no lawyer so I didn’t know that would make them liable.

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