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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think MNHQ should delete all chat about ‘the golden/bonus dose’ for those on WLI?

240 replies

istrich · 01/05/2025 16:03

I use the weight loss forums quite a lot and with the arrival of WLI they are busier than ever. But, it’s worrying the amount of people who are misusing their prescription and discussing with others how to do so. Should MNHQ take action here?

OP posts:
SpidersAreShitheads · 01/05/2025 17:50

SilenceInside · 01/05/2025 17:37

@SpidersAreShitheads it's really up to the pharmacies regulatory body (GPhC) to crack down on pharmacies using referral code systems and influencers that are against the law for selling prescription only medication. It is not something that MNHQ can control or should try to control. It needs to be controlled by the pharmacies understanding that they will fail their inspections and be subject to sanctions if they behave in a way that breaks the law.

MedExpress who are the worst for this have already changed their rules on referral codes, which has led to a huge reduction in the number of posts pushing them.

Yes, absolutely. I have heard anecdotally that there's been a crackdown which can only be a good thing. No one wants to stop people from getting WLI that they genuinely qualify for but these are powerful drugs and really do need to be prescribed within the limits they've been approved for.

I saw a post yesterday with someone recommending knocking inches off your height to get the weight to the right BMI to qualify.

There was someone else who was already tiny - I think their BMI was 18 - complaining that they couldn't qualify. Posts with suggestions on how to cheat the system are downright dangerous for anyone reading with these kind of body issues.

Also, I would say that MN do crack down on other posts where inappropriate medical advice is being given, so I don't think it's beyond the realms of possibility to stop unsafe/unethical advice being given on WLI too.

KnewYearKnewMe · 01/05/2025 17:51

minnienono · 01/05/2025 17:44

Whilst using the medication to squeeze an extra dose seems prudent to me, what does concern me is that people or knocking inches off their height to get prescription ms and bragging about still taking it now being a size 6. I personally don’t think these drugs should be issued without an in person consultation with a proper doctor then an person check up periodically to ensure weight is still high enough to be appropriate to take these powerful drugs

my provider sends a letter each month to my GP, showing height, weight, BMI and dosage prescribed. As far as I can tell from the weight loss pages, other providers do the same.

my NHS app ‘documents’ page has never been so busy!

istrich · 01/05/2025 17:54

beenwhereyouare · 01/05/2025 17:44

" It was certainly reduce the amount of threads about it"

And yet you've added another.

Yes, YABVVU.

Yes I know and I couldn’t reach that conclusion without the thread, so?

OP posts:
SilenceInside · 01/05/2025 17:55

@SpidersAreShitheads I don’t think I’ve ever seen a post removed by MN because it contained dodgy medical advice. I’ve seen lots of posts on all sorts of topics left standing. Sporner’s Corner is rife with them!

I will say, from being on the WLI boards for a long time now and posting a lot, that there are some regular posters who pop up on these kinds of threads and post the sort of comments that you describe. It isn’t lots of people, and they usually get robustly challenged.

istrich · 01/05/2025 17:56

BethDuttonYeHaw · 01/05/2025 17:45

Where are these ‘black and white rules’?

not anywhere in my packaging, app, medical information that I can find

Ok the invisible rules then. You know what I mean

OP posts:
istrich · 01/05/2025 17:57

WhitbyWoo · 01/05/2025 17:43

I’ve been using the bonus dose for a year, no issues at all.

i thought it was there for the priming stage. There no problem at all with using it.

What issues are you suggesting there could be?

i am not. I accepted ages ago that IABU

OP posts:
Youbutterbelieve · 01/05/2025 17:57

istrich · 01/05/2025 16:20

You cannot take the ‘extra’ dose from the pen

Yes you can! Very very easily. When wegovy was ozempic you could get a prescription for however many doses the pen contained.

The last dose in a pen is absolutely safe to take!

istrich · 01/05/2025 17:59

Youbutterbelieve · 01/05/2025 17:57

Yes you can! Very very easily. When wegovy was ozempic you could get a prescription for however many doses the pen contained.

The last dose in a pen is absolutely safe to take!

But why is everyone saying you cannot take it form the own and you need to use an insulin needle?

OP posts:
SilenceInside · 01/05/2025 18:02

@istrich I don't know what the previous poster is referring to regarding Ozempic/Wegovy, but with the Mounjaro pens, once you have done the four normal doses you can try to do a "hard" twist of the mechanism. The mechanism is locked, but if you turn the pen hard enough you can break the locking mechanism and then the pen will turn out to the 1 position as normal, and you can inject.

But, it's hard to do, and sometimes the pen mechanism just completely breaks and you can't inject with it any more. So people use 1ml syringes instead to extract the remaining liquid, and not have to worry about trying to force the pen mechanism or the mechanism breaking.

LolaLouise · 01/05/2025 18:03

istrich · 01/05/2025 17:59

But why is everyone saying you cannot take it form the own and you need to use an insulin needle?

because they capped the pen off, probably to make more money. Their own information states that the medication is safe for 30 days once opened. So assuming you inject every 7 days as advised

jab1 - day 0
jab 2 - day 7
jab 3 - day 14
jab 4 - day 21
jab 5 - day 28

The fact the last dose needs to be drawn off with a clean sterile, also safe as they are used millions to draw up insulin from a vial not a pen, which has the same rubber bung on top as what is used in the pen, insulin syringe, doesnt make the medication any less safe.

TheBroonOneAndTheWhiteOne · 01/05/2025 18:04

istrich · 01/05/2025 17:59

But why is everyone saying you cannot take it form the own and you need to use an insulin needle?

Because the quantity of MJ left in the pen is 0.8ml, which is more than one dose. One dose is 0.6ml.

So it's important to use a syringe and needle to extract the correct quantity of medication accurately.

Youbutterbelieve · 01/05/2025 18:06

istrich · 01/05/2025 17:59

But why is everyone saying you cannot take it form the own and you need to use an insulin needle?

It sounds like you are visualising someone using a medical style needle and syringe to suck the medication out of the WLI pen and then inject themselves. But they aren't doing that.

The pen and the needle are separate elements. The pen contains the medication and depending on the supplier, will come with 4 needles. You can buy extra needles - readily available, without a syringe or pen.

The pens are the exact same as pens diabetics use for insulin (and most other patient administered injectables) and the needles are not pen specific. Most diabetics keep a large stock of needles in case one is bent or the thread is slightly off so it doesn't screw on the top of the pen correctly. It's sensible to have an excess stock of needles for the same reason. The needles are colloquially known as "diabetic needles" (as opposed to hypodermic) and if you search that term you get the correct ones.

Youbutterbelieve · 01/05/2025 18:07

LolaLouise · 01/05/2025 18:03

because they capped the pen off, probably to make more money. Their own information states that the medication is safe for 30 days once opened. So assuming you inject every 7 days as advised

jab1 - day 0
jab 2 - day 7
jab 3 - day 14
jab 4 - day 21
jab 5 - day 28

The fact the last dose needs to be drawn off with a clean sterile, also safe as they are used millions to draw up insulin from a vial not a pen, which has the same rubber bung on top as what is used in the pen, insulin syringe, doesnt make the medication any less safe.

Edited

You can break the cap off and just use the pen to get the extra out, no drawing it off. I'm on Wegovy and the husband is on mj and we both do this.

TheBroonOneAndTheWhiteOne · 01/05/2025 18:08

It sounds like you are visualising someone using a medical style needle and syringe to suck the medication out of the WLI pen and then inject themselves. But they aren't doing that.

You're wrong. Most people are doing exactly that.
I've been doing it since my first pen, many months ago.

LolaLouise · 01/05/2025 18:08

Youbutterbelieve · 01/05/2025 18:06

It sounds like you are visualising someone using a medical style needle and syringe to suck the medication out of the WLI pen and then inject themselves. But they aren't doing that.

The pen and the needle are separate elements. The pen contains the medication and depending on the supplier, will come with 4 needles. You can buy extra needles - readily available, without a syringe or pen.

The pens are the exact same as pens diabetics use for insulin (and most other patient administered injectables) and the needles are not pen specific. Most diabetics keep a large stock of needles in case one is bent or the thread is slightly off so it doesn't screw on the top of the pen correctly. It's sensible to have an excess stock of needles for the same reason. The needles are colloquially known as "diabetic needles" (as opposed to hypodermic) and if you search that term you get the correct ones.

They are. I use a needle and syringe to draw out the medication from the medication from the pen as its more accurate than trying force the pen to administer the last dose. The pen stops turning after the 4th dose has been administered, you can force it, but the clicks are different once forced, i feel its safer to ensure the correct dose is given by drawing it off into a syringe. but everyone taking it is an adult and can make their own judgement call.

Youbutterbelieve · 01/05/2025 18:09

TheBroonOneAndTheWhiteOne · 01/05/2025 18:08

It sounds like you are visualising someone using a medical style needle and syringe to suck the medication out of the WLI pen and then inject themselves. But they aren't doing that.

You're wrong. Most people are doing exactly that.
I've been doing it since my first pen, many months ago.

Why? We just turn the pen really really really hard until it snaps the capper.

LolaLouise · 01/05/2025 18:10

Youbutterbelieve · 01/05/2025 18:07

You can break the cap off and just use the pen to get the extra out, no drawing it off. I'm on Wegovy and the husband is on mj and we both do this.

I personally wouldnt as it not accurate, i tried it, it didnt click as cleanly as the previous doses, you cant guarentee you arent giving more or less of the medication, therefore i used an insulin syringe to ensure its exactly 0.6ml.

SpidersAreShitheads · 01/05/2025 18:10

SilenceInside · 01/05/2025 17:55

@SpidersAreShitheads I don’t think I’ve ever seen a post removed by MN because it contained dodgy medical advice. I’ve seen lots of posts on all sorts of topics left standing. Sporner’s Corner is rife with them!

I will say, from being on the WLI boards for a long time now and posting a lot, that there are some regular posters who pop up on these kinds of threads and post the sort of comments that you describe. It isn’t lots of people, and they usually get robustly challenged.

I've definitely seen some - but I'm a night owl usually so the dodgy posts that pop up then quite often are VERY dodgy 😂

I've not actually ever visited Sporner's Corner! I also deliberately stay away from the WLI board now because I found myself feeling incredibly irritated with the lack of transparency from those banging on about sharing their codes. In fairness, this was quite a while ago and I've not been back.

It's really difficult to discuss this subject without sounding like I'm being critical of WLI or the people that take them, and that's not my intention at all. I just wish the prescribing was handled differently - that's my main gripe really.

EvangelicalAboutButteredToast · 01/05/2025 18:14

I think you are being a big girl’s blouse. HTH.

Bellie710 · 01/05/2025 18:15

istrich · 01/05/2025 16:10

Because the prescription is 4 doses using the pen as directed not 5 doses, 4 as directed and one with a needle you bought online?

whatever you think about taking the extra you cannot deny the misuse element

I spoke to my Dr about people doing this and she said fair play, it is exactly the same stuff that you are injecting just gives you an extra weeks dose and saves on medication and money.

It is not misuse unless you are withdrawing the last dose and selling it someone else, the prescription is yours!

GustyBaloo · 01/05/2025 18:15

istrich · 01/05/2025 17:37

This is a totally different perspective that really helps - thank you. I realised IWBU but this post has made me understand why/how and it make so much more sense with the IKEA/junky examples

Blimey, I hope you aren't being sarcastic because your reply would be a first for me 😂

It's true though. The injury odds of injection v's flat pack.
I should know!

LolaLouise · 01/05/2025 18:16

SpidersAreShitheads · 01/05/2025 18:10

I've definitely seen some - but I'm a night owl usually so the dodgy posts that pop up then quite often are VERY dodgy 😂

I've not actually ever visited Sporner's Corner! I also deliberately stay away from the WLI board now because I found myself feeling incredibly irritated with the lack of transparency from those banging on about sharing their codes. In fairness, this was quite a while ago and I've not been back.

It's really difficult to discuss this subject without sounding like I'm being critical of WLI or the people that take them, and that's not my intention at all. I just wish the prescribing was handled differently - that's my main gripe really.

I had to jump through hoops to get my first pen and that was before the prescribing changes. i was very clearly over weight, BMI high 30's, but it took many photos and a direct conversation with them for them to accept me and prescribe. It needs better regulation on who can sell it, but people will go to dodgy websites and back street salons for anything. Thats not the fault of the medication, or the regulations on prescribing, its that people are dumb and the "black market" appeals to that dumbness.

surreygirl1987 · 01/05/2025 18:16

istrich · 01/05/2025 16:20

You cannot take the ‘extra’ dose from the pen

Yes you can. I do. Using an extra needle sent to me by the same pharmacist, with the pen. I take the full extra dose, within the expiry timeframe. There is absolutely no risk.

I agree with you thay there's lots of dangerous information being spread and practised, but this is not an example of that.

KnewYearKnewMe · 01/05/2025 18:17

@Youbutterbelieve

I use a separate insulin syringe and draw off the required amount.

ilovesooty · 01/05/2025 18:17

Julesni77 · 01/05/2025 16:06

Would this not be better on the weight loss forums?

Or on Site Stuff