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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To want to leave my terminally ill husband and disabled son behind

220 replies

FedUp2025 · 24/01/2025 08:37

My husband is ill with stage 4 cancer.
My 5 yr old son has severe adhd and is a nightmare. Volatile, agressive and manipulative. No amount of love or positive parenting has made any difference whatsoever to this child.
I'm fed with the pair of them. I get nothing but abuse and and shouting all day at me.
I'm done. When I forget things I'm supposed to do for them or miss 1 item off the sopping list. All I get is how selfish I am and how they hate me.

After my husband passes I just want to put this child into care and live a peaceful life.
AIBU?

OP posts:
Largestlegocollectionever · 24/01/2025 10:56

Leave 'd'H and sort your child out - at 5 it's not fair. You need to get your child out of that toxic enviroment.

abracadabra1980 · 24/01/2025 10:57

I really feel angry on your behalf that you are not getting the support and / or respite that you so clearly need. Is your husband capable of looking after your son for a couple of nights so you can just go to a hotel for a break?
I have had years of 'helping to care' for my elderly parent and it still has lasting effects on me now, (I wasn't ever the main carer but still my life wasn't my own) It was utterly traumatic. There was no help from social services because they knew he had family support. Nobody cares whether the carers are at breaking point.
I have also had to deal with my (now exH) who had ADHD. We live separately but get on ok together on that scenario. I have told him should he ever need help, I shall be there for him, but the minute he shouts at me, I'm off. He has an extremely volatile nature and personally I think he used the ADHD diagnosis as an excuse for his volatility. I wasn't buying it, and never will.

Yalta · 24/01/2025 11:02

Phthia · 24/01/2025 09:00

Has your husband always been abusive, or has this just developed with his illness? Could he have ADHD?

Having ADHD doesn’t make you abusive

Hwi · 24/01/2025 11:02

A woman I knew was in a similar position, abusive husband and son with autism. Only husband was not ill, but abusive. Her happiest day, she told me, was when she got sepsis (!!!!!) and was hospitalised for a month, 2 weeks of it on a drip and 1 week unconscious. She did not want to be discharged afterwards. She was so happy to be left alone, even if in an underfunded, badly run hospital where they forgot to feed her. Her son was placed in care whilst she was in hospital because her husband did not come home for a few days and the neighbours called social services. She buckled and got her son back, she was feeling bad about him and she is now back in the cycle of abuse.

Yalta · 24/01/2025 11:04

what medication is your DS on

Rosscameasdoody · 24/01/2025 11:05

JustMyView13 · 24/01/2025 10:55

Respectfully, if this man is a bully and you’ve put up with it this long, do not rush to walk out at this point if he has life insurance policies & pensions which pay to you on death. This is a moment to be savy. You also do not need to accept his shit. Stand up for yourself, tell him if he’s so perfect he can do his own shop. Otherwise, show some respect if he wants you to carry on providing & supporting. Tell him his cancer is not a hall pass to be an arse.

Do you have family you can lean on? If not, do you have access to counselling? It might be good for you to speak to someone detached from the details and personalities.

As for your son, I agree he’s mirroring what he see’s. I cannot offer any real help other than to say do you have MacMillan nurses supporting you if you’re in the UK? Perhaps that could facilitate you doing some things with your son away from the house to rebuild your bond.

Once your husband passes, you can make an informed decision about what’s next for you and your son. No judgement from me if you decide to make more permanent decisions about your sons future care, but you don’t have to make a decision right now whilst you’re in the thick of it all.

Jesus wept !!!

Yalta · 24/01/2025 11:06

Rosscameasdoody · 24/01/2025 11:05

Jesus wept !!!

It’s called getting your ducks in a row

user1471516498 · 24/01/2025 11:07

Has your DH always been like that or is this new? Is the behaviour change a manifestation of the cancer?

Rosscameasdoody · 24/01/2025 11:09

Largestlegocollectionever · 24/01/2025 10:56

Leave 'd'H and sort your child out - at 5 it's not fair. You need to get your child out of that toxic enviroment.

The child hasn’t got a terminal illness, her DH has, and depending on the prognosis the situation will resolve naturally soon enough. Life isn’t fair. Do you think her DH suddenly finding himself with a terminal diagnosis is fair ? The environment isn’t toxic, it’s angry, sad and strained to the limit, and to advise OP to leave with her child and possibly end up in a worse situation is totally irresponsible. She needs help and support to deal with the situation as it is, not advice to run away from it and probably hugely regret a decision made during a time of unbearable stress and grief.

Porcuporpoise · 24/01/2025 11:09

Londonismyjam · 24/01/2025 10:49

I feel your pain. I am in the same situation with very little support from his (adult) children. I had the same experience with the lethargy he has and I actually think that his dementia started much earlier than we realised. I’m dreading the future.

One of the things we realised in hindsight when we were nursing my dad through dementia was that it had started affecting him several years before he received his diagnosis. He'd gotten so difficult that my mum was literally on the brink of divorcing him - when he was diagnosed she decided to stay but it was at great personal cost.

Hurrayakitten · 24/01/2025 11:09

Collette78 · 24/01/2025 10:10

I wouldn’t encourage people to place a child in care, however in this context there’s no indication the child’s welfare is being prioritised and OP is almost making him seem like disposable object.

Having children can be challenging, One of my DS is challenging in many ways.

Would I consider ever abandoning my children or not putting their needs before my own - absolutely not.

Some of the responses on here are accusing the DH and DS (who is 5!) of “abusing” the OP.

But not many are considering that this child’s needs and wellbeing are seemingly being neglected by both parents, which is abuse.

Theres also no empathy for the DH who is dying … I challenge anyone to be the best version of themselves if they are terminally ill, in pain and aware their existence is ending anytime soon.

Is it fair on OP to be in these circumstances, no, however if this was a post about a man wanting to leave a terminally ill DW and 5 year old he would be lynched.

Where do you think the OP can drop off the child? You cannot just 'give your child into care'. Such care doesn't exist.

Do you have a child with SN? Have you ever dealt with the system? Probably not otherwise you would be sprouting this absolute nonsense.

Rosscameasdoody · 24/01/2025 11:11

Yalta · 24/01/2025 11:06

It’s called getting your ducks in a row

Well that’s a favourite bit of advice on MN isn’t it. Doesn’t make it right.

x2boys · 24/01/2025 11:12

yummyscummymummy01 · 24/01/2025 10:39

OP I can't imagine the amount of stress you're under. and I doubt for one minute you'd actually walk. The amount of pain in your household at the moment is enough to make anyone break.
I think previous posters comments about intensive support for your husband not being available until the end are probably right but in the meantime I think there may be some for your son. I would contact social services and explain the situation. I would not hold back on explaining how desperate you feel.
In the meantime a huge hug for you. My eldest child has had similar issues so to a small extent I do understand.

You might think that but there isn't.,respite is very limited and you have to jump through hoops to get it.

x2boys · 24/01/2025 11:15

Hwi · 24/01/2025 11:02

A woman I knew was in a similar position, abusive husband and son with autism. Only husband was not ill, but abusive. Her happiest day, she told me, was when she got sepsis (!!!!!) and was hospitalised for a month, 2 weeks of it on a drip and 1 week unconscious. She did not want to be discharged afterwards. She was so happy to be left alone, even if in an underfunded, badly run hospital where they forgot to feed her. Her son was placed in care whilst she was in hospital because her husband did not come home for a few days and the neighbours called social services. She buckled and got her son back, she was feeling bad about him and she is now back in the cycle of abuse.

How is this helpful?

commonsense61 · 24/01/2025 11:18

This reply has been withdrawn

This has been withdrawn by MNHQ at the poster's request.

GertrudePerkinsPaperyThing · 24/01/2025 11:19

ItsJustADream · 24/01/2025 08:40

Dying and/or having cancer isn't an excuse to be abusive.

Your child is having nastiness modelled to him by your DH (if I am reading your OP correctly).

Also being in a volatile home will absolutely make his ADHD worse.

I would be telling "D" H to change his attitude promptly or I would be leaving him.
I think the difference in your child's behaviour away from that environment would be interesting.

You do not deserve such treatment. Your needs are valid too.

All of this.

You may find your child’s behaviour improves once away from your DH

Shireswoman · 24/01/2025 11:21

My mother was absolutely hellish when she had her terminal diagnosis. My father just use to say 'there's no need of that A'.
My surgeon is having another go next week in saving me. I'm thankful and my husband has been great.
I was having a shit time a few weeks ago but @Rosscameasdoody helped enormously when my son was being an arse. A lot of it was fear. He's OK now.
This family needs help not advice on counting the silver. I'm lucky to have great friends close by, not everyone does.
The smaritans are good at sign posting.

Rosscameasdoody · 24/01/2025 11:23

x2boys · 24/01/2025 11:12

You might think that but there isn't.,respite is very limited and you have to jump through hoops to get it.

I love that posters are bandying about advice like ‘get respite’ and ‘he should get hospice care’ don’t you ? The plain fact is that in many areas lots of care homes have closed, plus the only way to move hospital bed blockers who aren’t ready to go home, is to buy in care home and other services as a kind of ‘halfway house’ until they’re more independent. The knock on effect, as in my area at the moment is that there is no respite and very little hospice availability - even for those very near the end. Berating the OP and suggesting non existent support services is rapidly turning into a sport here.

Nanny0gg · 24/01/2025 11:25

Dinoswearunderpants · 24/01/2025 09:48

Is this truly the full story here? Your husband, the person you chose to marry and stay with is dying and you can't wait for that to happen. Just wow!

Has he always been like this? If so, why did you marry him. Or do you think the fact he is dying might affect his mood and he's doing the wrong thing by taking it out on you.

As for your child, what mother wants to give them up because it's too hard. That's life! You clearly are suffering from mental health issues as no one in their right mind would say what you've said.

Is there any rest bite care you can call upon? You need to speak to social services as you're clearly at risk and a risk to two extremely venerable people.

This is a vile post.

Get back to your golden life and leave the OP alone.

BubblePerm · 24/01/2025 11:28

Big hugs from me. Refer the family to children's social services and tell them what has been going on and how you feel.
This will pass x

millymae · 24/01/2025 11:34

Every sympathy here for you OP - you sound worn out.
Some of the responses you’ve had haven’t been very helpful and are based on the fact that the services you require are readily and widely available which they’re not. It’s obvious that a lot of posters don’t live in the real world where social services are on their knees, hospitals and hospices are full to the brim, getting a GP appointment is luck of the draw and provision for children with special needs is not all it should be. That said if you haven’t already you need to try and get the ball rolling for some help for all 3 of you, and you definitely shouldn’t be bottom of the pile because like it or not you are the glue that is keeping the house running.
Depending on how ill he is ( and I know he’s obviously ill as he has stage 4 cancer, but some people are still able to function more or less normally) your husband needs to know how difficult you are finding things at the moment.
Has he been referred to the Palliative Care Team and is being seen at home by them, or is just under the care of the hospital and being left to his own devices between hospital appointments. If he’s under the care of the Palliative Care Team I’d be phoning them and at the same time booking the earliest appointment I could for myself with my GP to tell them both how you are fast reaching breaking point and to ask what support could be made available to you.
I do know that where I live the Palliative Care Team for Hospital and Community Services included a Social Worker who worked very closely with families and was able to access services and grants from various charities.
As to your little boy, difficult though it may be he needs every bit of your love and support. Living in a home with a very poorly parent and an understandably fraught mum would be difficult for any child, let alone one with special needs. Presumably he is attending school during the week - are school aware of his home situation and do you have any family or friends who would be willing to look after him for an hour or two.

Machya · 24/01/2025 11:34

If he has always been abusive, then leave.
Contact his GP and say you are done.

Contact Women's aid for advice.
As for your child, contact SS and ask for temporary fostering as you sound close to burn out.

Coloursofthewind2 · 24/01/2025 11:35

Respite care from a 5 year old with ADHD does not exist. Don't know what planet some posters are on. Stage 4 cancer also doesn't nessacarily mean that op's husband will be ready for a hospice or palliative care just yet.

Op you sound exhausted and I hope you have friends or family in real life that you can lean on. I would talk to the school senco about your son and push for your husband to have more care if you're having to do things that nurses could be doing at this point. There might be things both the school and medical staff can put in place for you.x

ComeHomeSoonPlease · 24/01/2025 11:35

OP how is your mental health? I work in this field, and when people say they want to ‘leave xxx behind’, it worries me a bit. Hope you are safe and can get some support x

Autumn1990 · 24/01/2025 11:36

It’s A really difficult situation and it will be affecting your son negatively. You may find a massive improvement after your husband dies and everything settles down.
In the short term is your son able to attend breakfast and/or after school club and holiday club during the school holiday? I have been in the cycle of child constantly lashing out at me, all interactions negative, trying positive not working and reducing the amount of time we spent together and therefore the negative behaviour really helped.
Locally there maybe services available to your husband and the CAB and library are good places to find out about them

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