So glad she’s so much better, we’re in the same situation. How many times were you prescribed antibiotics and for how long? What was the underlying infection do you know? Was it strep?
@Whatsthepointhey twice, both for 2 weeks. The first time the GP was horrified when I sent an e-consult in, and said I had to take her to A&E immediately - she couldn't even cope with me being in the same corridor as her , but still the nurse wasn't interested in helping & was slating the GP for sending us there until I pretty much had a breakdown in front of her and then she prescribed a course to get rid of us, I think.
The second time, she was flaring badly again & the GP said she'd prescribe just this once, but she needed to see a neurologist for any more. We then got referred to a certain neurologist who the FB group said will write to the GP and tell them never to prescribe antibiotics again. Luckily we moved to a new area before we had to see her!
I firmly believe that if she'd got antibiotics sooner, she wouldn't have spent a year in crisis - it's crazy really, kids with recurrent UTIs can take preventative antibiotics, and most antibiotic resistance is because farmers give them to cows when they're not even needed. This is fine, but young kids with severe mental illness have to suffer.
I think it was strep originally, yeah - she had a cough & was sick a couple of times just before Xmas, and there was lots of strep going round the schools at that time, a kid nearby died from it. She wasn't very poorly at all though so I didn't take her to be checked, but it seems likely.
People are responding without knowing what you're all going through, so I hope the replies aren't getting you down. Normal parenting rules have to go out the window for a bit. You do whatever you need to, and remember things will get better, it won't be this hard forever 