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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To feel constantly gaslighted by local GP doctors. Is it the norm or should I change my practice ?

300 replies

Springtimesadness · 21/10/2024 09:25

I have recently moved to a new area with my family. Unfortunately , myself and the kids been sick a lot in the past 2 autumn/winter seasons. Some just normal colds others more serious viruses like flu, rsv that needed medical help. Also had a bad case of Strep A for which my child and I were in a hospital.

One of my children and myself are both quite vulnerable to secondary bacterial infections and tend to develop them after a serious virus (not every time). As a responsible parent I take them to GP practice especially if they are not getting better after 6 days or getting worser. However, I have seriously struggled with the level of gaslighting that made me question my child and myself and often even made me delay taking them to the hospital as a result if being convinced 'its just a virus'. To sum up over the course of 2 years GP's have missed my sons chest infection, perforated ear drums, tried to convince me that I cannot have a bacterial sinusitis because it followed a flu (which is a virus) when i have got a chronic sinusitis and struggled with it all my life and know the difference. Its this constant 'antibiotics dont help with viruses' when I am on day 13 of a virus and getting worser so clearly something else is going on.

On all of these occassion often after 14 days of suffering I ended up crying at A&E that nobody wa staking me seriously. Normally x rays were done / check ups and infections quickly identified and antibiotics were quickly given. When it was my child I was always told that my child was very sick indeed and needed antibiotics and I was right to seek medical help.

I have raised this issue up with one of the GPs after another hospital visit and she just laughed over the phone saying that antibiotics in that sense were prescribed out of precaution and both my child and I would have gotten better by ourselves eventually. I just felt again like I am constantly being laughed at by these health professionals and my health concerns are being brushed off until they reach the point of 40 degree fever and I have to look for help elsewhere. I have now got a Ptsd even calling this practice and was wondering if that is a normal way GP doctors now speak to people?

I have just called them to get my other childs ears checked as hes been crying for the 2nd nights from ear ache and i want to make sure its viral and got told ' we dont treat ear ache anymore in this country since 90s so not much we can do that you cannot do yourself at home'.

To add we usually are sick during autumn months and then hardly ever call them so I am not an over anxious person who calls about every single ache. I call when I or my kids really need it. I also dont eat antibiotics like candies but a few times they have saved us.

Am I being completely unreasonable to think that this is not an cceptable level of medical help?

OP posts:
Createausername1970 · 21/10/2024 12:01

Springtimesadness · 21/10/2024 11:30

Flu can indeed lead to very serious complications in some people its not just a regular cold. For me and my son it oftne leads to bacterial sinus infections. Thousands of people die from flu every single year it is not 'just a flu' for some people.

Influenza and flu aren't necessarily the same thing. Influenza can be serious. Flu is a common term that is often used to describe a heavy cold accompanied by aches and pains and a bit of a temperature that can be dealt with by a bit of bed rest and over the counter remedies.

Very few people who say they have flu actually have influenza.

librathroughandthrough · 21/10/2024 12:02

what are the your children’s classmates doing? Getting antibiotics every time as well? Presumably your children catch it from their peers? They can’t all be at A and E?

CarrotsAndCheese · 21/10/2024 12:03

Createausername1970 · 21/10/2024 12:01

Influenza and flu aren't necessarily the same thing. Influenza can be serious. Flu is a common term that is often used to describe a heavy cold accompanied by aches and pains and a bit of a temperature that can be dealt with by a bit of bed rest and over the counter remedies.

Very few people who say they have flu actually have influenza.

Lol. Flu is the abbreviation for influenza! They are exactly the same thing. Yes, some melodramatic idiots call a heavy cold 'flu' but they are just plain wrong.

librathroughandthrough · 21/10/2024 12:05

CarrotsAndCheese · 21/10/2024 12:03

Lol. Flu is the abbreviation for influenza! They are exactly the same thing. Yes, some melodramatic idiots call a heavy cold 'flu' but they are just plain wrong.

You would have thought they would have realised that when typing them out. It’s ‘flu, the apostrophe is for the dropped start of word

Springtimesadness · 21/10/2024 12:05

I had conversations with pediatric doctors and they said that at this vulnerable stage when children are only developing their immune systems and especially since Covid many viruses have changed and are more aggressive. So yes kids can catch one thing after another and if its one virus after another there is not enough time to recover fully and sometimes bacterial infection can attach itself to a weak spot. I was told considering all that 1 use of antobiotics per year is not a lot. Thank you for everyone who apparently has never been sick in their life and their children are marvel superheros. That is very helpful indeed.

OP posts:
ButterCrackers · 21/10/2024 12:06

I understand you OP. Your GP needs to treat you respectfully and to also identify the bacteria to give you the right antibiotics. Some people get sicker than others and take longer to clear viruses. This is when bacterial infections take the opportunity to infect. Viruses can also have serious consequences in some people compared to others who don’t even feel ill. Change your doctor if you can. Use hand gel after common surfaces, wash your kids hands as soon as they get back from school etc. Wear a face mask in crowds if you feel ok about a mask. So many people cough and sneeze out with no thought for others. Adding in get the flu and Covid vaccination for your family.

Larrythebloodycat · 21/10/2024 12:07

Springtimesadness · 21/10/2024 11:58

A&E didnt give me antibiotics as a treatment I was admitted with a Strep A which is a bacterial infection and that was a treatment for it. My child had developed a bacterial infection after a virus. Antibiotics are a bacterial treatment for a bacterial infection why should a very sickly child be denied them when they are clearly needed in the moment and play lets wait and see game after 2 weeks of being very ill?

I am responsible for my childs health and i dont want these experiments on my child. GP doctors are more than welcome to do that on their own children for the sake of protecting the world from global antibiotic resistance.

I don't think you have a clue what 'very ill' actually means.

User75235 · 21/10/2024 12:11

It is ok to laugh at a sick patient after their hospitalisation? I take antibiotics at most twice a year when I am very sick indeed this is not relying on them thats what antibiotics are for no?

Taking ABs twice a year is extremely frequent and possibly the reason you feel "fobbed off" by doctors who are trying to do their job which is to prevent unnecessary AB use and superbugs. Fixing common cold or flu symptoms is not what antibiotics are for and any patient requesting it would raise red flags.

As you mentioned yourself, all your ailments are "regular bugs going around" and common respiratory illnesses are very low risk for complications even if the patient feels like shite. Antibiotics are for open wound surgery or situations with extremely high chance of bacterial contamination. They are not "add-ons" to cold and flu treatments unless the patient has a seriously compromised immune system.

DH is a doctor and we have both taken antibiotics twice in the past 10 years (UTI, c-section, dental surgery and only once for a flu-like illness). The human immune system is designed to fight off the vast majority of bacterial or viral infections. If someone doesn't have any underlying health issues then it's vanishingly unlikely for them to die because they did not take antibiotics, even if they genuinely had a bacterial infection or severe diagnosis like flu. Same applies to children. You may be in slightly more discomfort and pain for a few days but with pain relief and rest, everything eventually passes.

Dotto · 21/10/2024 12:12

Springtimesadness · 21/10/2024 11:53

Again how is you, a stranger from mumsnet, telling me that it was a cold not a gaslighting of my experience and my health history? But GPs havent got labs either and yet they claim everything is just a prolonged virus on what basis ? Yes flu was confirmed with a swab at A&E same as a strep A and RSV ( all caught in different years which is normal so not 1 bad month) because they have to do those things for statistics as that also helps to monitor active infections in the community.

Most of the time it is a cold. It's possible for people to really suffer with colds and also not really suffer with influenza, too. It's really not as simple as you somehow believe. You had a lab diagnosis of flu, fine - it's a virus though, you can't take antibiotics for it.

Strep A is the only time in my 50 year life I've needed antibiotics, because it is bacterial and my body wasn't clearing it well on its own, on that occasion. My husband hasn't taken antibiotics for 30 years. Both of my children (teenagers), have never needed or taken antibiotics. As the other replies on this thread attest, this is far more usual than your experience.

Firestace · 21/10/2024 12:13

Flu can indeed lead to very serious complications in some people its not just a regular cold. For me and my son it oftne leads to bacterial sinus infections.

Indeed it can, if you and your DS have had actual flu enough time for it to 'often' lead to something else then you need investigations into why this is, that's not usual at all to have flu regularly.

From your follow up posts it sounds like there's more going on here, it's not unreasonable to be cautious about illness when you've lost family members and you've had hospital admissions; it doesn't mean GPs are always wrong, but of course request to see a different one if you don't trust your current ones.

Springtimesadness · 21/10/2024 12:13

Demererera · 21/10/2024 11:43

Hard to tell about your individual scenario, but everyone scoffing that they’ve only needed ABs once in a decade is being unfair. Some people are more prone to bacterial infections and having one can make further infections likely. This is especially true for some young children and ear or sinus infections due to the fact the size and shape of the tubes can make it easier for them to get blocked. And the pain can be agony, I remember childhood bacterial ear infections that were worse than any pain I’ve had as an adult, including a tooth abcess and broken bones. Some adults also have bad luck in either their general immunity, undiagnosed health issues or easily blocked sinuses. I haven’t had antibiotics for the best part of a decade, and I hate taking them, but in the five years prior to that I probably averaged 4-5 rounds a year because of unending UTIs and bacterial sinusitis that recurred with every cold.

Since the OP said she is looking for signs such as a fever two weeks in, that does sound as if repeated bacterial infections are a possibility for one of her children and for her. And doctors are overworked, but can also be dismissive, especially of women and mothers. So we don’t have enough information for all the hectoring about the state of the NHS and the oh you poor dear you must have health anxiety-ing.

OP, if I were you I’d move doctors if possible and either way would work out a strategy of when you will use self-care, pharmacist, GP and then follow up options if needed (GP, 111 or last resort A&E). And be really clear at each stage why you’re escalating but without making it emotional - With sinuses I have usually had other signs it’s bacterial, like fairly neon coloured mucus. If you have a male partner maybe get him to ring both to avoid getting more annoyed yourself and as he is more likely to get a respectful response.

You do want to minimise use of ABs as much as possible for your own family’s health, and bear in mind that antibiotic resistance isn’t just a global/population issue, but an individual one - the more your children are exposed now, the fewer effective options they might have later in life. But sometimes they are necessary, and you shouldn’t be laughed at without a child even being examined when you have concerns.

Hope you have a healthier autumn this year and can sort out the GP issue one way or another.

Thank you so much for this. You are spot on about some of the things regarding ENT issue in both myself and my child. And I never even call the doctors for anything else its when I know something is not shifting and similar pattern to previous bacterial infections happens so I just want to get checked out instead of hearing 'well its mostly viruses and there is no treatment so pain releif' . I know this ! But I also know my body and when something is not quite right after a pro longed period of time. I always try all the other methods for myself before it gets properly bad but I cant risk self caring with an unwell child nor should I be expected to when there is a healthcare system and I am in a developed country .

OP posts:
margegunderson · 21/10/2024 12:13

A flu? A PTSD? Both of those are very specific conditions. Sounds like a significant degree of health anxiety.

Createausername1970 · 21/10/2024 12:15

CarrotsAndCheese · 21/10/2024 12:03

Lol. Flu is the abbreviation for influenza! They are exactly the same thing. Yes, some melodramatic idiots call a heavy cold 'flu' but they are just plain wrong.

Sorry, meant to say it's almost become a different thing. I didn't explain it well.

So many people say they have flu when they definitely do not have influenza. "Flu" has almost become a thing in its own right. It's a misused term.

Springtimesadness · 21/10/2024 12:15

Firestace · 21/10/2024 12:13

Flu can indeed lead to very serious complications in some people its not just a regular cold. For me and my son it oftne leads to bacterial sinus infections.

Indeed it can, if you and your DS have had actual flu enough time for it to 'often' lead to something else then you need investigations into why this is, that's not usual at all to have flu regularly.

From your follow up posts it sounds like there's more going on here, it's not unreasonable to be cautious about illness when you've lost family members and you've had hospital admissions; it doesn't mean GPs are always wrong, but of course request to see a different one if you don't trust your current ones.

Edited

You can catch a flu easily once a year if you are constantly in groups with other people. That is its normal pattern . Its not regular. Regular is something once a month I am sorry you are making strange assumptions.

OP posts:
ButterCrackers · 21/10/2024 12:15

User75235 · 21/10/2024 12:11

It is ok to laugh at a sick patient after their hospitalisation? I take antibiotics at most twice a year when I am very sick indeed this is not relying on them thats what antibiotics are for no?

Taking ABs twice a year is extremely frequent and possibly the reason you feel "fobbed off" by doctors who are trying to do their job which is to prevent unnecessary AB use and superbugs. Fixing common cold or flu symptoms is not what antibiotics are for and any patient requesting it would raise red flags.

As you mentioned yourself, all your ailments are "regular bugs going around" and common respiratory illnesses are very low risk for complications even if the patient feels like shite. Antibiotics are for open wound surgery or situations with extremely high chance of bacterial contamination. They are not "add-ons" to cold and flu treatments unless the patient has a seriously compromised immune system.

DH is a doctor and we have both taken antibiotics twice in the past 10 years (UTI, c-section, dental surgery and only once for a flu-like illness). The human immune system is designed to fight off the vast majority of bacterial or viral infections. If someone doesn't have any underlying health issues then it's vanishingly unlikely for them to die because they did not take antibiotics, even if they genuinely had a bacterial infection or severe diagnosis like flu. Same applies to children. You may be in slightly more discomfort and pain for a few days but with pain relief and rest, everything eventually passes.

I assume you are in good health. The word of the healthy that tells those who suffer ill health to shut up and move along. Some people need more medical care than others hence there are doctors and a medical infrastructure.

Itsmahoneybaloney · 21/10/2024 12:15

Springtimesadness · 21/10/2024 12:13

Thank you so much for this. You are spot on about some of the things regarding ENT issue in both myself and my child. And I never even call the doctors for anything else its when I know something is not shifting and similar pattern to previous bacterial infections happens so I just want to get checked out instead of hearing 'well its mostly viruses and there is no treatment so pain releif' . I know this ! But I also know my body and when something is not quite right after a pro longed period of time. I always try all the other methods for myself before it gets properly bad but I cant risk self caring with an unwell child nor should I be expected to when there is a healthcare system and I am in a developed country .

Get probiotics ASAP.

Dotto · 21/10/2024 12:17

Springtimesadness · 21/10/2024 12:15

You can catch a flu easily once a year if you are constantly in groups with other people. That is its normal pattern . Its not regular. Regular is something once a month I am sorry you are making strange assumptions.

Why are you being horrible to Firestace who is actually being supportive of you?

TinkerTiger · 21/10/2024 12:18

@Springtimesadness as someone not originally from the UK, I find attitudes towards illness shocking, there is a culture of suffering among many that does not match my experience growing up elsewhere.

And it is your GP, I was prescribed AB as a precaution when I developed flu, after simply calling and expressing concern that the cough was getting worse and more chesty.

Errors · 21/10/2024 12:18

Comingupriver · 21/10/2024 09:29

This is not gas lighting.

Yes and the OP does not have PTSD from calling a doctors surgery.

Createausername1970 · 21/10/2024 12:18

Yes, that was my bad, I meant to edit what I had said as I had phrased it all wrong.

buffyfaithspike · 21/10/2024 12:20

Disturbia81 · 21/10/2024 11:46

I haven't taken antibiotics in years as everything I've had I prefer to let my body fight it, but to the posters saying twice a year is a lot, is it really? My dad takes them at least every month as he has recurring infections

I would say that's unusual
I'm neutropenic and probably need antibiotics 4-6 times a year
When I last looked on the app I think I've had 78 courses in my lifetime

PhilosophicalCheeseSandwich · 21/10/2024 12:21

Springtimesadness · 21/10/2024 12:15

You can catch a flu easily once a year if you are constantly in groups with other people. That is its normal pattern . Its not regular. Regular is something once a month I am sorry you are making strange assumptions.

It's very unusual for someone to get flu annually, that's not in question. I mix with the great unwashed as much as anyone does and I've had it once in my lifetime. My young adult children have never had it, and I don't think my husband has.

Ask your GP for a flu vaccine for your child, explaining they missed the clinic at school. They should be able to arrange that. Then go to a pharmacist and get one for yourself.

Have either of you ever had any investigations into your sinus issues? That seems the obvious thing to do if every respiratory virus you pick up turns into a serious infection.

Mickey79 · 21/10/2024 12:24

It’s really difficult to say without hearing both sides.
How many appts at the gp practice have you had for you and your family since changing to the new one and how many A and E visits.

Springtimesadness · 21/10/2024 12:25

Dotto · 21/10/2024 12:12

Most of the time it is a cold. It's possible for people to really suffer with colds and also not really suffer with influenza, too. It's really not as simple as you somehow believe. You had a lab diagnosis of flu, fine - it's a virus though, you can't take antibiotics for it.

Strep A is the only time in my 50 year life I've needed antibiotics, because it is bacterial and my body wasn't clearing it well on its own, on that occasion. My husband hasn't taken antibiotics for 30 years. Both of my children (teenagers), have never needed or taken antibiotics. As the other replies on this thread attest, this is far more usual than your experience.

But the point if antibiotics that they are needed for some people in some situations right ? The pediatric doctors and the doctor who admitted me said they were very much needed in those cases and should have been given sooner by GP. We cannot judge everyone based on our own experience of what is normal, can we? My children or family might not have any other illnesses or general concerns that your family is struggling with at the moment for example but I would never shout about that trying to say that my experience is the norm and someone elses is therefore not ?

OP posts:
LettuceSpray · 21/10/2024 12:26

@TinkerTiger I totally agree that we have developed a weird culture around illness in the UK in the last 30 years or so. If you are under 60 and have only lived in the UK it might seem normal to you, but it’s really not. We have been gradually encouraged to believe that we are bothering doctors for almost anything which isn’t an A and E type emergency. It really is not like this in other European countries.

Whilst of course it is true that we need to massively reduce our use of antibiotics what I find sad and strange is people’s manner towards the OP. There is a brisk lack of empathy. It reminds me of my mother in law who grew up in Germany in the 1920s and 30s where illness was seen as weakness. If you think this is an extreme comparison just try visiting a doctor in any other country nowadays. You will get actual attention rather than being dismissed.

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