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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To find it rude when people call me ND/autistic/ADHD?

199 replies

OneStop99 · 04/10/2024 13:10

I've created a throw away account because this is quite personal.

Throughout my life people have assumed that I'm neurodivergent. I often get called autistic/ADHD etc even though I have never been diagnosed and do not believe I am. Even my closest friends have used terms such as 'indigo child'. My best friend often calls me a xxxxxx (removed as causes offence) said lightheartedly and with no malice.

I really don't understand why people make that assumption about me. The only things that come to mind are:

  • I can't sit through a film (it's not my thing, I prefer watching series of I do watch TV which is rarely)
  • I am academic (straight A*s at GCSE & took A levels early) but I don't really see why that matters
  • I don't always get other people's jokes, I don't know why that is, I tend to be quite literal and people don't always understand my humour. I am quite ironic and funnily enough people take my jokes literally when they are in fact jokes 🤣
  • people have commented on sensory issues but I mean, no one likes the feel of wet sand, or certain fabrics etc. Everyone is going to be irritated by an high pitched noise, very bright white lights, and I think a lot of neurotypical people get overwhelmed in a hot and busy shopping centre. To me these seem normal aversions rather than sensory issues.
  • I am happy to eat the same meal over and over again until I get bored then will switch to something else. I go through phases. I find it takes the stress away, don't have to think about meal planning, I like to know what I'm having. I know it might seem strange to eat chicken broccoli and rice every night for 2 months but I do have a balanced diet even if it is a bit samey
  • I get very focused on a particular hobby, I really put everything into it, then will switch to something else for a while. If I focus on one thing at a time I make better progress and kind of rotate between different things.
  • make quite impulsive decisions. But hey, life is too short.
  • can be pretty full on (hyper)
  • I like repetitive tasks..I find it relaxing.
  • I guess I'm just a free spirit, I don't try to fit in.

Reasons why I don't think Im ND

  • I am able to empathise with others
  • I consider myself quite a sociable person
  • I don't have melt downs etc. I'm actually very tolerant/chilled outt And there are very few things that actually bother me

-able to live with others no problem
-dont feel like I struggle with anything such as time keeping (always on time), planning (Im good at planning if there is a reason to do so) or socially

  • was an early talker, no communication difficulties when I was younger

Sorry for the long post. I guess my question is am I completely delusional? Or do you think it's rude to call someone ND when they do not have a diagnosis/ are not self diagnosed?

***DISCLAIMER - I really do not want to cause offense by this. I don't think ND is a bad thing at all! In fact I think some of the best minds are neurodivergent. The thing that has rattled me is being labelled when I do not believe there is a basis for it. I also think it is unfair to people who are ND and genuinely struggle.

OP posts:
OneStop99 · 04/10/2024 18:26

@ScaryGrotbag I hope I answered your question above

OP posts:
OneStop99 · 04/10/2024 18:28

Dawevi · 04/10/2024 13:55

I agree. Sorry OP but I do think you're one of us ☺️

I wonder why you are so adamant you don't want to be?

I hope my above post answers your question 🙂

OP posts:
JanewaysBun · 04/10/2024 18:37

I think people are rude trying to diagnose you, it's not their place. Tbh i think you do sound somewhat ND but i wouldn't bring it up unless you did first. Unless it's negatively affecting you it's irrelevant really.

I would get some new friends...

OneStop99 · 04/10/2024 18:37

ChiffandBipper · 04/10/2024 14:06

I think it's rude to call someone ND in the context you are outlining. It seems like they are using it to label things they see as inadequacies.

It is lazy and offensive of your friends, like someone saying "you're so OCD" or "you're so 'special'". It isn't being said in a positive or helpful way, so yes, it is rude.

Whether you are or aren't ND is none of their business anyway. And it is very odd that a forum full of internet strangers who have never met you feel they are better qualified to tell you that you are ND than trust your judgement that you aren't!

Thank you for this. It is exactly the point I was trying to make. When people make comments it's usually to focus on perceived inadequacies based on stereotypes rather than a medical diagnosis which is why it hurts. It makes me feel bad about myself NOT because being ND is bad but because they are pointing out my flaws and saying that I don't fit in or am 'abnormal', usually in a jokey way. I know I have some quirks, but I find it rude to point them out, just like you wouldn't comment on someone's appearance.

OP posts:
OneStop99 · 04/10/2024 18:40

Viviennemary · 04/10/2024 14:36

I did not see the offensive word. I don't know if you are neurodiverse, but try and move on from this self obsession that you are different. Because you like x y z and dont like abc,

That's a bit unfair. Its other people pointing out that I'm different. I think I am pretty 'normal' or at least nothing special!

OP posts:
OneStop99 · 04/10/2024 18:45

PocketSand · 04/10/2024 16:19

Autism is a social communication disorder that essentially means that the unwritten rules of communication are never learnt without concrete teaching. DS2 had social skills teaching. Didn't really help. He still doesn't get social interaction but I guess he muddles through without overwhelming anxiety so that is a plus.

The NT child absorbs these and adheres to them but feels uncomfortable when someone else does not. So simple things like physical space, eye contact, turn taking, interrupting etc make them recognise something is wrong in the interaction. NT kids hone in on difference. .

In some ways assuming that someone who regularly breaks social 'rules' is ND is positive. Better than the alternatives.

I suspect that your friends are less concerned about empathy. It's red herring. Diagnosis is a red herring.

Your daughter is key. Unfortunately there is a strong genetic component. If you are autistic it's likely your DC will be too. Works both ways - if your DC is autistic it's likely that you were too but undiagnosed. It's just reality. It's not learnt traits. Don't let your fears about yourself stop you getting support for her if she needs it.

Interesting. Thank you. I understand why I might present as socially awkward, especially with people I don't know. I'm wary of physical contact, don't make eye contact. That tends to go away when I'm with my close friends - it's probably more of a nervous thing. This is something that started in my teens late 20s as a result of trauma rather than something I was born with.

OP posts:
BalmyLemons · 04/10/2024 18:50

First: Autistic people more often have hyper-empathy then low empathy.

Second: You REALLY sound ND. You should research autism, I think it would be of interest to you.

Third: If you think being ND is ok, why do you consider all your ND traits to be your flaws and pointing them out to be rude?

Arran2024 · 04/10/2024 18:56

Trauma can cause asd type behaviours to be fair - see Romanian orphans for the most extreme example of that.

I too had a pretty difficult upbringing. I read voracious as a coping strategy to not have to deal with situations I didn't like.

But what happened here is that my coping strategies were asd like. I didn't do things like try to hang out with other kids, make friends with their mothers, getting into sports, joining clubs. I liked being in my bedroom doing homework and reading. And that is because I don't much enjoy being with other people!

So, it may look like it all started later on but you still might like to wonder why you chose asd type coping strategies and not eg hanging around bus shelters with other kids.

OneStop99 · 04/10/2024 19:02

@Arran2024 thank you. That is a fair comment. I would put it down to a cross between personality and life experiences. Only a professional could confirm that, however, in my heart of hearts I am pretty confident I'm not on the spectrum. (Again, nothing wrong with ND at all,I just don't feel that I am).

OP posts:
Fantapops · 04/10/2024 19:03

I'm autistic, diagnosed as a teenager. I'm also able to empathise with others (it's literally my job), don't have meltdowns (anymore) and I'm a very good planner and timekeeper (actually quite an autistic trait!). I was also a very early talker and reader, but a late walker.

Otherwise I sound like you, sensory issues, ahead in school, don't get humour etc. I can relate to most of your list.

Not to offend or upset - but I can see where your friends are coming from tbh.

SquirrelMadness · 04/10/2024 19:42

I haven't read the full thread, just your posts OP.

ADHD and ASD are both disorders. I'm not an expert (but I do have a diagnosis myself). But to be diagnosed with either you have to struggle with several aspects of every day activities. That's where the "disorder" comes in, it's affecting performance in multiple areas of life. You said in your OP that you don't struggle with planning, socialising - I can't remember what the other things were now but your post suggested you haven't struggled consistently with every day activities throughout your life.

I do think it's rude or pretty ignorant to suggest to someone they might be neuro divergent, unless you're genuinely trying to help them access support. Because it's suggesting that there are aspects of life that they appear to be struggling with. Which is a pretty rude thing to casually suggest to someone.

Unfortunately there seems to be a trend of armchair diagnosing people who just seem unique or a little different. Nobody here can diagnose you or say whether you're neuro typical, but that's true of your friends too.

WiseBlankie · 04/10/2024 20:05

H0TBUZZIN · 04/10/2024 17:56

A diagnosis is given if someone's life is impacted hugely. Not because they forget their keys and are good at maths ffs

Yes! Come on, people.

OP does not feel like they struggle with anything. That is literally what they wrote. There is nothing to diagnose.

The outcome of this poll is insane.

Pieandchips999 · 04/10/2024 20:11

OneStop99 · 04/10/2024 18:17

Wow. I wasn't expecting so many responses. Thank you everyone.

I do want to answer a couple of questions that keep cropping up.
Why are you reluctant to get tested?

Why are you so adamant you are not ND?

Most of my 'quirks' or behaviours that are typically associated with spectrum disorders appeared as a teenager/adult. Autism is something you are born with, not something you acquire. For example, hyper focusing for me was a coping mechanism as I had a dysfunctional family life - it was a way to block everything out. I had no stability in childhood, so eating the same meals etc. gives the that comfort/reassurance. I can understand why outwardly it may present as ND, but in my heart I know that these are most likely learned behaviours to cope with trauma. The reason I get annoyed, even when well meaning people say "have you considered testing for ADHD/Autism" is because it is a constant reminder for me that I am a product of my past. It makes me wonder would I have been more popular or successful or likeable or 'normal' had I not had to live through many years of traumatic experiences. I think it is unfair to people with ASD to armchair diagnose people who may show similar behaviours.

Also, to address the 'empathy' comment I made. I accept that that was unfair and perhaps distasteful. I'm not an expert in ASD, I haven't researched it fully. I'm not entirely ignorant but do not know the full range of ASD symptoms. I sincerely apologise if that offended anyone. It wasn't my intention.

The strange things is that everyone I meet seems to make these assumptions about me,for the last 10 years. This makes me self conscious (and probably a little awkward) around new people because I am worried now about seeming different (probably helping to confirm their suspicions!)

@BrotherViolence @SmileyHappyPeopleInTheSun

Ah this does add to the picture. Basically trauma can present very similarly to neurodiversty. There is something called the Coventry Grid which is aimed at professionals but shows the difference between trauma and attachment and neurodiversty. Of course it's possible for both to be the case. Maybe be interesting for you to read to see why people may be interpreting.

Begsthequestion · 04/10/2024 20:20

IhateSPSS · 04/10/2024 13:22

I don't think anyone, friends, family, acquaintances, colleagues should be diagnosing/suggesting that anyone has got particular conditions. The only people who should be diagnosing are people who are trained to do so. It's a terrible condition of the modern age to pathologise everything and everyone if you aren't trained to do so. No idea if you are ND, we don't have the full picture. But I wish people would just quit with the 'Have you considered that you might be ND?' it is very rude and inappropriate YANBU there OP.

Edited

Why is it rude though? Do you think it's an insult? Your reaction suggest you might.

I mean, what if you told a friend you had back pain, or they noticed you wince (a symptom) and they said it might be your kidneys (a possible source) - would you also find that 'very rude and inappropriate'?

Ime suggestions like this about ND come from a caring place, usually because the suggester can empathise with the observed symptoms, being ND themselves, or they have personal experience of the struggles many undiagnosed ND people face and knowing that, would prefer their friend didn't have to go through the same.

OneStop99 · 04/10/2024 20:31

Pieandchips999 · 04/10/2024 20:11

Ah this does add to the picture. Basically trauma can present very similarly to neurodiversty. There is something called the Coventry Grid which is aimed at professionals but shows the difference between trauma and attachment and neurodiversty. Of course it's possible for both to be the case. Maybe be interesting for you to read to see why people may be interpreting.

I've just looked at the Coventry Grid. Its very interesting. There are so many subtle differences it's easy to see why 'symptoms' are confused! Thank you for sharing. Looking at it, I can relate to things in both categories which wasn't what I was expecting.

OP posts:
Wantitalltogoaway · 04/10/2024 20:35

I mean, what if you told a friend you had back pain, or they noticed you wince (a symptom) and they said it might be your kidneys (a possible source) - would you also find that 'very rude and inappropriate'?

Like it or not, there is still a stigma attached to having autism. People make judgements about you. There are preconceptions.

It’s not like back pain.

Dithercats · 04/10/2024 20:38

OP a diagnosis of CPTSD can make a person appear to have ASD..
The Coventry grid mentioned above is really very useful in picking things apart.
I would guess with the trauma history you are affected in some way.
Of course you can have both.....but it's nobody elses business but yours x

WiseBlankie · 04/10/2024 20:39

Also, it's a false equivalency. OP doesn't have symptoms. They don't struggle with anything. I'd consider you a bit of a nutter if you told me I might have a kidney problem while I was feeling perfectly fine.

Gobacktotheworld · 04/10/2024 20:41

This reply has been withdrawn

This has been withdrawn by MNHQ.

Pieandchips999 · 04/10/2024 20:43

@OneStop99 I've spent a long time trying to work it out myself. I'm pretty happy and sorted now and have done lots of therapeutic work and also work in the helping professions. Despite this I still score about 95% on an ADHD screening. I might seek a diagnosis in a couple of years to help with work organisation and parenting when we get there. My conclusion is it's probably both for me. My wife is autistic and has pointed out a good chunk of my family members probably are too. Although they also all have trauma. I think the lack of understanding of children's emotional needs and protection for my mum was due to both. My wife is one of the most empathetic people I know unless the other person is not obvious in how they are showing difficulties then if they are an adult she might not notice. She can always tell in children and works very successfully with them. People are complicated and are usually a combination of their genetics and experiences. I know the period when the penny started dropping for my wife she kept getting crosser and crosser about the suggestion which ironically meant her near perfect masking slid a lot and she was acting more obviously autistic. Then more people commented. Her mood massively effects how well she can mask. Leading up to diagnosis nearly every single person she worked with kept telling her she wasn't autistic and they didn't know why she'd been referred. I laughed and said yeah they don't live with you 🤣 a year later now she knows them all well and is too busy and knackered to mask it's kind of a running joke that noone believed her. When you talk about meltdowns thats basically a neurodiverse person not coping. If an autistic person is happy and not under high stress there really isnt anything to meltdown about

Thepossibility · 04/10/2024 20:45

My DD has autism and she doesn't have meltdowns. She was the easiest child ever. Rarely cried, incredibly laid back. She also has empathy.

IhateSPSS · 04/10/2024 20:47

Nope, don't think it's an insult at all. I just know people's medical diagnosis are private and not up for public consumption, diagnosis or discussion and people doing it don't have the full picture.

'Helpful' suggestions that come from a caring place can cause anxiety and worry, especially if you are suggesting things about someone's child. And when the person suggesting it only has anecdotal experience I think it's odd to offer an opinion unless explicitly asked. Not everyone has to have an opinion or offer advice all the time - it's okay to think 'I don't know enough to be able to put this to this person' - you don't know if your suggestion is going to land how you want it to.

I'm always curious about the people armchair diagnosing me (I have cPTSD and have been told I have all sorts of mental health issues and neurodivergence, I don't I just had a horrific event x2 happen to me and it fucked my developing brain). Often it is serving the advice givers need to give advice/show concern/be helpful/give their experience. It doesn't often serve me at all to hear their theories if I'm honest. They know less about me than I know about myself but still see fit to 'offer advice' as though they know me better. It's shit.

Sweetandsaltycaroline · 04/10/2024 21:45

I've suspected my DH is ND for probably 10-15 years. About 3 years ago I heard a radio report about adult ADHD and it was like light bulb moment - they were literally describing DH. It helped me make sense of behaviours I had previously found difficult or upsetting.

Dawevi · 05/10/2024 07:44

OneStop99 · 04/10/2024 18:28

I hope my above post answers your question 🙂

Not really, no. It explains why you don't think you are ND but but why you are so opposed to the idea that you might be. It's not a bad thing, you know. I'm interested in why you would rather consider yourself a traumatised NT rather than a typical ND person?

AutisticHouseMove · 05/10/2024 07:51

OneStop99 · 04/10/2024 18:37

Thank you for this. It is exactly the point I was trying to make. When people make comments it's usually to focus on perceived inadequacies based on stereotypes rather than a medical diagnosis which is why it hurts. It makes me feel bad about myself NOT because being ND is bad but because they are pointing out my flaws and saying that I don't fit in or am 'abnormal', usually in a jokey way. I know I have some quirks, but I find it rude to point them out, just like you wouldn't comment on someone's appearance.

I get it, OP. And, tbh, I would.describe myself very much as you have in your op.

I also used to have people asking or 'accusing' me of being autistic. Sometimes by arseholes who were being dicks. Some times by ND people who 'recognised' me.

And then I was diagnosed.