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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Trying so hard with my twitching

283 replies

Terrifiedshakes · 01/08/2024 00:46

See my other threads. I'm at a loss

I'm trying so hard to sort out why I'm twitching. I'm taking Kalm tablets now and I'm trying hard with breathing techniques

Yet I still continue to twitch all over my body. Every few mins there is a twitch and it can be anywhere.

I'm bow trying to fall asleep but I keep getting woken up by a massive twitch that feels like it's coming from my head. I'm terrified it's a seizure that I can't go back to sleep.

I am so very anxious though about these twitxhes. It's a vicious cycle. If they are anxiety related how do I break the cycle and why are they coming from my head and waking me up with such a jolt..

Please be gentle with me with your advice as I'm so scared I've got MS or a brain tumour or MND I'm sat here trembling with fear and the trembling is fear , the twitches are muscle.

OP posts:
Terrifiedshakes · 01/08/2024 00:47

I'm a ball of absolute nervous energy and I can't snap out of it

OP posts:
Terrifiedshakes · 01/08/2024 00:49

All my bloods came back normal. So it wasn't show deficient in anything.

I'm taking supplements anyhow just incase, magnesium etc.

OP posts:
Luc99 · 01/08/2024 00:50

Is it muscle twitches? I have had those for around 2/3 years. Had tests etc but nothing came up. Look up Benign fasciculation syndrome. Also, are you under any stress? do you drink a lot of caffeine? sometimes these can be triggers but if its new it won't be of any harm to get checked over

SwingTheMonkey · 01/08/2024 00:50

It’s almost certainly not the worst case scenario. But nobody here can give you medical advice I’m afraid. You need to go back to your gp and ask for further tests.

Terrifiedshakes · 01/08/2024 00:50

I've had it before where i feel like in my sleep I'm falling and I jump, but this is litterally coming from my head, a spasm and it's.making me jerk quick and wake up

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SwingTheMonkey · 01/08/2024 00:51

Terrifiedshakes · 01/08/2024 00:50

I've had it before where i feel like in my sleep I'm falling and I jump, but this is litterally coming from my head, a spasm and it's.making me jerk quick and wake up

Just when you’re falling asleep or all the time?

Terrifiedshakes · 01/08/2024 00:54

Muscle twitxhes all over my body, all the time when I'm awake.

Tonight as I'm trying to fall asleep, being woken up by a jerl coming from my head.

I'm.not denying though that it's enterly possible I'm holding shit loads of tension in my head, even as I'm alseep.

I'm.v anxious about this. I'm googling all day every day what these twitxhes are, what MS is, what MND is.

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FluentRubyDog · 01/08/2024 00:55

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Terrifiedshakes · 01/08/2024 00:55

I've not had one head jerk while I'm been awake this last 20 mins. Just a couple of twitches in my quad, arm and finger.

I know for a fact I like in a state of hyperventilating with my breathing.

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Terrifiedshakes · 01/08/2024 00:57

But what if this isn't health anxiety. What if I'm having a seizure in my sleep.

I can't go back to the drs again, this will be the third time in 4/5 weeks.

But they don't know I'm still twitching..

OP posts:
FluentRubyDog · 01/08/2024 00:59

OK, you're forcing me to do this...

Trying so hard with my twitching
Terrifiedshakes · 01/08/2024 01:00

I'm not attention seeking.. I'm very scared and concerned..

OP posts:
Terrifiedshakes · 01/08/2024 01:01

I'm sat here really scared. My children and husband are in bed. I really tired but I'm too scared to go back to sleep incase it happens again.

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SwingTheMonkey · 01/08/2024 01:04

I can only hope you listen this time and go and get help - whether that’s further tests or mental heath support.

Zusammen · 01/08/2024 01:04

I have the same problem. Been struggling with it for nearly a year. Doctors best guess at this point is a combo of anxiety and perimenopause. It’s very unlikely to be anything sinister.

I think I posted on your other thread and said if you don’t have weakness and the twitching is in several different spots, it’s obviously something systemic and not MS or MND. Doctors told me “the symptoms are not subtle, if you had it we would know”.

I can recommend mindfulness and meditation classes for learning to control the mind. I find my twitches are worse if I get more anxious, so I’m trying to keep it under control.

Zusammen · 01/08/2024 01:09

Tonight as I'm trying to fall asleep, being woken up by a jerl coming from my head
I know that symptom well and it definitely is anxiety, and will go away if you calm yourself.

Terrifiedshakes · 01/08/2024 01:09

MS and MND, does not being systematic mean that they can often focus on one place on the body?

So because my twitches are all over. Face, neck, arms, legs, fingers, feet, bum, lips etc. Luke a symphony, the likelihood is that its not MS or MND?

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Terrifiedshakes · 01/08/2024 01:11

Zuzamemen, I hope your right. I'm really frightened. I'm on holiday so can't get into the drs until next week. I'm sonscared if the tests and waiting for results. I'm thinking of paying to see private.

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FluentRubyDog · 01/08/2024 01:12

Zusammen · 01/08/2024 01:09

Tonight as I'm trying to fall asleep, being woken up by a jerl coming from my head
I know that symptom well and it definitely is anxiety, and will go away if you calm yourself.

Don't bother, she'll go on and on about anything but the real problem. Look her up, she has regular other threads as long as transsiberian rail line with exactly the same pattern.

Terrifiedshakes · 01/08/2024 01:13

I've tried so hard these last 2 days to control the anxiety. Taking Kalm tablets I hoped would help, I've been trying to breath more calmly. Eaten better. Taken supplements.

I went to see the GP on Monday to discuss blood results about my liver but I didn't mention this twitching so much. We mentioned I'm very anxious but he didn't want to put me on seetraline or anything again

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Terrifiedshakes · 01/08/2024 01:14

FluentRubyDog is correct.

I am struggling.

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Terrifiedshakes · 01/08/2024 01:17

The head jerking when I was falling asleep then felt like a head tick. Very forceful. Its hard to accept anxiety can do that when I'm alseep.

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Zusammen · 01/08/2024 01:19

MS is a lesion on the brain which affects whatever part of the body it’s related to. It doesn’t present all over at once. And it has very specific signs that a doctor would spot. I won’t tell you what because you’ll be convinced you have them, but the doctor would know.

MND is about failing not feeling. A muscle just painlessly fails to work. If you don’t have clinical weakness then you don’t have it. My doctor was very clear that sensory symptoms are not part of MND. It also has a tendency to start in one place not all over at once. Twitching is a very late stage symptom, weakness is first.

My doctor said she had seen hundreds of patients with twitching over three decades and none were MND. There are much more likely causes such as vitamins, anxiety or hormones.

I understand your worries. I have the same worries myself. But we have to be logical - our symptoms don’t match these diseases.

Airpowercper · 01/08/2024 01:21

Goodjob.