Trying so hard with my twitching

[Terrifiedshakes]

See my other threads. I'm at a loss

I'm trying so hard to sort out why I'm twitching. I'm taking Kalm tablets now and I'm trying hard with breathing techniques

Yet I still continue to twitch all over my body. Every few mins there is a twitch and it can be anywhere.

I'm bow trying to fall asleep but I keep getting woken up by a massive twitch that feels like it's coming from my head. I'm terrified it's a seizure that I can't go back to sleep.

I am so very anxious though about these twitxhes. It's a vicious cycle. If they are anxiety related how do I break the cycle and why are they coming from my head and waking me up with such a jolt..

Please be gentle with me with your advice as I'm so scared I've got MS or a brain tumour or MND I'm sat here trembling with fear and the trembling is fear , the twitches are muscle.

Stop self medicating and go to the gp again. You don’t have something awful wrong with you, you have anxiety and it’s out of control. I’m not a dr but your posts are reeking of it. Speak to dh and get him to support you seeing the gp next week as a matter of urgency.

Yes I'm going to go back

Problem with meds and I've tried a few, is that I feel like I've got awful flu for about a week. Horrific side effects. Like what I imagine withdrawal would feel like, but I'm not withdrawing, I'm getting used to them.

I'm talking hallucinations, panic attacks, flu symptoms. Sickness (bad). All for around 5 to 7 days.

I feel like I need something like weed to calm.me down. But I've never taken a drug in my life. Not one. I couldn't smoke cigarettes when I was younger as apparently i didnt nreath it in and I don't like alcohol. I'm hopeless really.

I've got a price for 3 accupuncture sessions but that could be a waste of money.

I keep making sure my eyesight is good incase I've got ALS,.or is the eyesight MS. I dunno anymore. I've probably got both knowing me. I've just had enough.

Back to the gp on Monday but I'm.writing it all.down in a.note.

OP have you ever tried a weighted blanket to sleep with? They're very good for anxiety symptoms especially while trying to fall asleep. I also have a trick to fall asleep which is to pick a very soothing song and play it on repeat until you drop off. It breaks the anxious thought loop but because its the same song over and over, doesn't engage your brain enough to keep you awake listening for it. I have a few I use. Mostly I have I can't make you love me by George Michael but if that's not working Little wonders by Rob Thomas works too.

Massage also helps a great deal.

You HAVE to get help for your anxiety though. There is nothing else wrong with you. You're seeking diagnosis for every health issue going EXCEPT the one you actually have. This is why people are losing patience with you. As gently as possible: get a fucking grip!

A weighted blanket sounds lovely. I'll have a look.

I know I've got anxiety, it's blatantly obvious. But you can have anxiety and a neurological disease at the same time. I've got to come to terms with it so I'm prepared for the diagnosis nd it's not such a shock

I like listening to people sweeping up on you tube as I'm falling asleep but it's just getting on my tits atm tbh.

You don’t have either of these things. When you’re slightly calmer, write down everything you’re feeling at the moment- physically and mentally. That way, when you go to the gp, you won’t leave and realise you’ve forgotten to tell them things.

You also need to address the part of your brain that’s telling you you’ve got a serious illness as soon as it starts making noise. In your head say ‘I haven’t got MS, thank you’. Cut your brain off as soon as it starts with the disordered thinking, pick up your book and calm down.

Sorry to be grumpy. You would all really like me in RL. I'm an excellent friend and I like to make people laugh and I listen well. I never ever talk about my feelings to others apart from my DH as its boring AF. Nearly as boring as other peoples dreams.

With all due respect, you won't come to terms with any future diagnosis by googling and worrying about it. This is how cycles of anxiety are maintained. Google your local NHS talking therapies service and self refer for some therapy for health anxiety, and try the Sertraline whilst you wait (waiting lists are likely to be very long unfortunately :( )

SwingtheMonkey thats good advice to address it as soon as it starts making noise.

See, I just need that odd phrase that can stick with me to get me.out if this mess until I can get help in RL..

I’m sure you are lovely. You don’t need to live like this though and we can’t help you, you need to see the dr. You don’t have a serious disease, you need help with your mental health. Life could be so much better for you if you addressed it.

SwingtheMonkey, is it you who is twitching also?

But you don't HAVE a neurological disorder. There is nothing to suggest that. All your symptoms are easily explainable as rampant anxiety which you do have and are refusing to treat. This is like someone beating their head against a wall for an hour then insisting they must have a brain tumour and demanding a scan because their head aches.

Treat the disorder you know you have and then you will know if any symptoms remain that you need to look into more closely.

It’s not me you’re thinking of but I have twitched in the past when my anxiety was bad. The worse my anxiety, the more I fixated on the twitching (and yes, my mind went to neurological diseases because I’ve got health anxiety) but when I sought help for the anxiety, the twitching disappeared too.

I had an ear scan 5 years ago as my ear started to twitch deep inside. I'm wondering if it was just an ear MRI or a full brain scan.

NHS app doesnt go that gar back unfortunately. If it was a brain scan then that would have been handy.

They said my ear twitch is tanitus (sp, too anxious to think) but I think it's anxiety and I pulled a muscle in my ear as I am tense when I walk into a new room incase I walk into my son having a seizure.

What help did you have for your anxiety?

Meds and talking therapy?

They would have had to scan your whole head, not just your ear.

Yes, meds and cbt. A lifesaver. And I truly believed nothing could ever stop me worrying about my own personal health trigger. I do sometimes slip into bad habits but I know how to deal with them now so they don’t get out of control.

That's hopeful that I had a scan only 5 years ago. I'd have been 29.

I've had to come to bed now as I'm unbelievably woo and I've see something in the corner of my eye in the dark so I'm not sitting downstairs shitting myself over health and ghosts at the same time.

Thanks for sharing that SwingtheMonkey

Turn your phone off and read until you’re super tired.

My only rule for ghosts is if they move shit, it better be the vacuum cleaner and they better empty it afterwards.

They would have seen anything concerning on your scan.

Sorry only had a quick squizz at your comments but have you been to see someone about Tourette's? Me DD had TS and the meds clonidine, work pretty well

OP I also suffered from constant twitching. I completely identify with the anxiety you are feeling. My tongue, legs, arms, almost everywhere. I would sit and watch my twitches, counting how many I had in a minute. I would also wake myself up with a horrible twitch. I was 100% convinced I had MND (ALS) without a doubt. The mental agony I went through was indescribable.

I eventually had an EMG (electromyography) which came back normal. Bloodwork normal. Oddly enough (not really) after my EMG my twitching eventually went away. The weakness I thought I had, gone.

I never really thought about MND before the twitching and other symptoms started, I can’t explain why they did. But it has been about six years since all this happened and I am still healthy!

I hope this brings you some comfort. (I wanted to add you do seem incredibly anxious, I am the same way. This will perpetuate your symptoms, as they did with me.)

I also had/have hyperreflexia, I jump out of my skin over any little sound or dog bark. I still have that to some extent, but I no longer worry about it. It’s just anxious ‘ol me.

Are you not able to get an EMG? That would put so many of your fears to rest. I can’t tell you the incredible relief I felt when mine came back normal.