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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To leave my husband due to Tourettes?

271 replies

NewYearNoFear · 01/01/2024 08:41

DH hasn't been diagnosed but he has verbal and physical tics, doesn't do them in public. But at home they've become quite extreme. Every 5 mins. He often says something quite dark about himself. He does it continuously in bed. My young DC now imitate him which is horrible

He isn't getting any help or advice. It's all down to anxiety and invasive thoughts and he seems quite depressed and tired. I want to support him but he is seeking no help and I find the tics v difficult. He isn't v supportive or interested in me but I think the anxiety and tics take up most of his head space

It's the kids (pre school) copying him that has really made me feel awful. Also he tics so much at night that sleeping or trying to sleep with a man shouting awful stuff is pretty upsetting. I know it's more upsetting for him but he just ignores it and gets v angry if I bring it up.

AIBU to just say I can't handle it?

OP posts:
CharlotteLightandDark · 30/01/2024 23:04

I’d be interested to know how bad he is where there’s no one around. Like if a tree falls in the woods and there’s no one there to hear it, does it make a sound? 🤔

seriously though, don’t let fear keep you paralysed. You’re clearly done with him and no one would blame you, he sounds horrible.

get a place for you and the kids and get the divorce process started, the rest can be worked out as you go.

CharlotteLightandDark · 30/01/2024 23:19

MaryHinges - sorry but you’re talking absolute shite. No one has to stay and be treated like crap, mental illness or not.

Mix56 · 31/01/2024 13:55

Tell him he either gets help or you are done. In the interim you will have a separation.
He can rant, blame, shout. You do not want to live this way

NewYearNoFear · 19/02/2024 21:43

God! Sorry to bring up thread again but feel so conflicted

H went out at the weekend and drank a lot. He had hangover anxiety all weekend. Today his tics were so bad I had to take over cooking dinner as he had a knife and he was literally throwing his body all over the place. Like head throwing, crouching randomly, shouting "oh god" "fuck off". It was v intense for about 10 mins, almost like a fit, and I told him to leave the room as kids started to watch. He was twitching at dinner and has gone to bed. I've been giving him cuddles and he seems a little calmer.

Half of me wants to leave him so much and half of me could never leave as he is so vulnerable. I've never seen someone with so little control of their body or voice. I just don't know what to do!!!

OP posts:
Makeitmakesensetoday · 19/02/2024 21:53

NewYearNoFear · 19/02/2024 21:43

God! Sorry to bring up thread again but feel so conflicted

H went out at the weekend and drank a lot. He had hangover anxiety all weekend. Today his tics were so bad I had to take over cooking dinner as he had a knife and he was literally throwing his body all over the place. Like head throwing, crouching randomly, shouting "oh god" "fuck off". It was v intense for about 10 mins, almost like a fit, and I told him to leave the room as kids started to watch. He was twitching at dinner and has gone to bed. I've been giving him cuddles and he seems a little calmer.

Half of me wants to leave him so much and half of me could never leave as he is so vulnerable. I've never seen someone with so little control of their body or voice. I just don't know what to do!!!

If he won't see the docs then leave him to it. Sounds like a living nightmare, I'd leave for the sake of the kids.

SusanKennedyshouldLTB · 19/02/2024 21:55

Makeitmakesensetoday · 19/02/2024 21:53

If he won't see the docs then leave him to it. Sounds like a living nightmare, I'd leave for the sake of the kids.

This. He wont do anything to help himself. You cannot do anything. Leave him to it.

NewYearNoFear · 19/02/2024 21:59

@Makeitmakesensetoday could you leave your kids alone for weekends with a man who was that unwell? I don't get this whole leave for the kids. Imagine that scene I just described without me there. That's all I can think about.

OP posts:
Makeitmakesensetoday · 19/02/2024 22:01

NewYearNoFear · 19/02/2024 21:59

@Makeitmakesensetoday could you leave your kids alone for weekends with a man who was that unwell? I don't get this whole leave for the kids. Imagine that scene I just described without me there. That's all I can think about.

But you wouldn't leave them with him? You'd refuse access til he gets his medical issues sorted. You'd go through court etc. Then before that you'd film him/record the incidents so they can see he's not safe. And ultimately You'd hope he wouldn't be a knob and demand his kids stay round his if he can't even control himself. He needs to seek medical help. Not sure what you're getting from this thread but this is no life for you or the kids.

NewYearNoFear · 19/02/2024 22:07

@Makeitmakesensetoday I'm trying my hardest to work out what to do and have no one in real life to talk to.

All I know is I've told teachers at school, I've told the GP twice, and nobody seems concerned by the kids living with it at all and everyone has told me I need to sit down with the kids to explain about what is happening to daddy, so if the GP and their teachers think it's up to me to be understanding and supportive and the kids are not being harmed...then why would a family court think he is a threat to them?

Sorry. I imagine it seems like I'm being combative and posting pointlessly. I know this is no life for us but I am genuinely trapped. Absolutely totally trapped. I don't trust the courts for one second and actually think me refusing access as you suggest could end up with me being accused of parental alienation and losing them even more than 50%. I am so so stuck. I can't bear it.

OP posts:
Makeitmakesensetoday · 19/02/2024 22:16

NewYearNoFear · 19/02/2024 22:07

@Makeitmakesensetoday I'm trying my hardest to work out what to do and have no one in real life to talk to.

All I know is I've told teachers at school, I've told the GP twice, and nobody seems concerned by the kids living with it at all and everyone has told me I need to sit down with the kids to explain about what is happening to daddy, so if the GP and their teachers think it's up to me to be understanding and supportive and the kids are not being harmed...then why would a family court think he is a threat to them?

Sorry. I imagine it seems like I'm being combative and posting pointlessly. I know this is no life for us but I am genuinely trapped. Absolutely totally trapped. I don't trust the courts for one second and actually think me refusing access as you suggest could end up with me being accused of parental alienation and losing them even more than 50%. I am so so stuck. I can't bear it.

I think you need to speak to a solicitor. You're not trapped. Next time he has one of these episodes - film it. Then write down in a log what happened. You're not being proactive enough. GP and teachers won't do much they're mostly talking shops.

Ecstaticmotion · 19/02/2024 22:29

Hey OP, I’m so sorry you’re going through all this. It sounds so hard. You’ve said you’re trying to decide whether to stay or go, but is there a middle option? If possible, can you leave with the kids, stay somewhere else, and leave him a letter saying that you don’t want the relationship to end, but he needs to take some action towards supporting himself (going to gp, finding private therapist/psychiatrist etc) so that the home can be safe and calm for the kids. If you’re really clear you want it to improve, then you’re not ending it with him, you’re giving him a very clear message about your boundaries and needs.

NewYearNoFear · 19/02/2024 22:29

OK @Makeitmakesensetoday that is fair enough. I will. I think the whole thing about more awareness about mental health in society is making me feel like a horrible person for being scared and uncomfortable with what is going on, but I get it - I've asked for advice on here and I've heard it and now I need to act on it. Thank you.

OP posts:
porridgeisbae · 19/02/2024 22:38

Half of me wants to leave him so much and half of me could never leave as he is so vulnerable. I've never seen someone with so little control of their body or voice.

It's fake OP. All of us could throw ourselves around and make weird noises if we wanted to fake something (though some are better actors than others.)

Or we could do it if we wanted others to feel sorry for us, I guess. It is effectively a variation on 'dressing gown of doom'- it's performative.

I think you could gradually inch out- yes, go somewhere, you could say you plan to come back if he improves, but not come back (unless he undergoes a transformation and improves for a substantial period of time.)

I don't think you and the DC have anything to lose.
God willing, he won't want to look after them much by himself.

Makeitmakesensetoday · 19/02/2024 22:51

NewYearNoFear · 19/02/2024 22:29

OK @Makeitmakesensetoday that is fair enough. I will. I think the whole thing about more awareness about mental health in society is making me feel like a horrible person for being scared and uncomfortable with what is going on, but I get it - I've asked for advice on here and I've heard it and now I need to act on it. Thank you.

He has no diagnosis, he hasn't seen a doctor, you're guessing what's wrong with him so you can't feel guilty. For all you know it's a massive gas light and he has nothing really wrong with him! You can do better, he needs to sort himself out. You can't force him and you can't continually pick up the pieces. Be strong.

paulMcCartney · 19/02/2024 22:52

Can you talk to someone in real life about it all? You might find it easier to see what to do. Problems can seem really insurmountable when your on your own.

For what it’s worth people leave difficult troubled dangerous men all the time. You can do it. You sound as if your so ground down you can’t see what’s in front of your face.

DisappearingGirl · 19/02/2024 23:11

All I know is I've told teachers at school, I've told the GP twice, and nobody seems concerned by the kids living with it at all

Out of interest I'm just wondering what you've told the teachers and GP? If you've told them "DP has Tourettes and sometimes tics and also gets depressed" then I wouldn't expect them to be overly concerned - also GPs are incredibly busy and if a patient will not attend for help then there's not much they can do.

In fact if you'd just said on this thread that your DP has Tourettes and sometimes tics, and that was it, I wouldn't be overly concerned either.

Whereas from what you describe on this thread, DP is making your family life a misery:

  • He's not diagnosed and won't seek any help
  • He shouts awful stuff at night
  • He isn't supportive or interested in you
  • He seems unconcerned you and the kids and the effects of him shouting etc
  • He never listens to you, and gets angry when you point this out
  • He kicks off about small things like which orange juice you buy, while you are doing everything to earn money and look after the kids
  • You're scared he is becoming angrier and more erratic
  • He plays video games while you do kids bedtime after working all day
  • He pretty much contributes nothing to yours and his kids' lives, but instead makes them worse
SwordToFlamethrower · 19/02/2024 23:15

Unacceptable that he wont get help.

LTB is reasonable, his selfishness is a deal breaker.

chrisfromcardiff · 20/02/2024 00:15

NewYearNoFear · 01/01/2024 20:19

Thank you for all your help. I definitely don't feel any clearer though!

Some people think I'm traumatising my kids but letting this continue. Other people describe tics as a neurological condition and i need to educate and support my kids to understand my husband's tics.

Do people with tourettes not necessarily have anxiety or bad thoughts then? I need to keep researching. I just wish we see a professional we knew what was actually going on!!

I don't know the cause of the tics but I do know the impact and that is me feeling quite distressed at home, my kids saying they hate themselves and my husband looking v sad a lot of the time. I know he's struggling the most @Doggonames and I want to support him but i do think as a dad and husband he has some responsibility to at least discuss it with me . At the moment he talks about it for 30 secs before shutting down.

Reread what you just said here. It is time for you and the children to leave. He is not doing anything to improve the situation. Your children are starting to mimic his dark thoughts. Really, OP. Save yourself and your children.

chrisfromcardiff · 20/02/2024 00:17

NewYearNoFear · 13/01/2024 20:09

I didn't mean to come to the thread but no where else to turn. He said he will go to GP but hasn't called yet and I don't think he intends to.

He has since caught my cold and has been lying in bed shouting things." I hate myself. Ouch. Pain. Why. Go away. Utgggggggghhh" . Some of it sounds like tics but some of it just very loud groans. All the whole I'm trying to look after our v young kids. I know I sound like a cow but I had some serious infection and pelvic injuries from childbirth and I didn't make half the noise he's making right now when I was up with a tiny baby hobbling around. Also as I go up the stairs I swear the groans are louder. He's really shouting. I'm not doubting the tics but I do think there is also a psychological element to it sometimes. I'm naturally a bit stoic. He would say a bit of martry but I find the level of noise coming from his room totally OTT.

Do I sound unfair? I find it so hard to love with. I still am veering from feeling like a total cow to thinking I have to leave.

What would happen if you yelled at him to shut up - that he is scaring the kids? What would happen if you stopped pampering his needs? I'm not being glib here. I really wonder what would happen if you stop walking on egg shells around him to knock it the hell off.

chrisfromcardiff · 20/02/2024 00:19

NewYearNoFear · 13/01/2024 21:19

Thank you for saying that. I'm late 30s but feel and look after 65 these days. The strain of stressful job, preschool kids and an unwell and at times nasty husband has worn me down. Find the thought of leaving heart breaking for him, for the kids but also struggle to find the energy or clear head space to think what I'd need to do. So I trundle along. But I've got to do something.

If you get so worn down and defeated yourself, who will look after your kids? Certainly not him. You need to take action to save yourself and the kids.

chrisfromcardiff · 20/02/2024 00:19

NewYearNoFear · 13/01/2024 20:31

The kids are in bed and he has left his door wide open as he shouts stuff in some sort of fever or frenzy. The kids trying to sleep in rooms opposite. I've gone and shut the door and told them daddy is having a funny dream. They're OK. They're v young and just keep saying dads being noisy. Im sat here thinking imagine if we split and I wasn't here and this was the situation - would they be scared? He seems so so unconcerned about any of us. I worry what will happen when he has the kids alone. When I'm unwell or feeling anxious I'm able to manage it or I try to do something to alleviate it or I don't know - show some effort or awareness that I have young children who depend on me. Im sure if I spoke to a mental health charity they'd say I'm being awful.

No, they wouldn't

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