YANBU and I hate to be the bitter disabled adult but... if you think its bad now, when they're kids, wait until they are no longer cute adorable children.
Because those non-existant accomodations, organisations, charities etc etc... that good will you're struggling to find..
That will all fuck off as soon as they are adults. Whether you actually had that or not.
As soon as you're a disabled adult, you are a burden, an expense on the nation, probably shirking, need to be 'encouraged' into work (good luck with that, employers do not want us beyond box ticking exercises, particularly if theres a hint of chronic illness)...
People think we're 'entitled' and when we kick off and try to defend our rights and the things previous generations of disabled people fought for, we're told to shut up, share nicely, stop being so sensitive.
If you're visibily disabled, you'll be discriminated against before people even speak to you - it will be assumed you're not capable, stupid, that you're going to demand too much, you're going to be 'a problem' or 'difficult', that you're feckless, lazy, have brought it on yourself.
If you're NOT visibly disabled then when you speak up you'll be told you're a liar, a cheat, it's all in your head, its the latest trend...
You may well find that accessing proper medical care is difficult (wheelchair users particularly find this, I can't speak for others but I bet they do too) - we tend to have reams of notes no one has read, with pertinent information not passed on (even obvious stuff like 'wheelchair user'... not even talking about the obscure stuff)...
Organisations and places you'd expect to be accessible are not (hospitals, dentists, physiotherapy clinics, opticians).
We have to fight the hardest and shout the loudest for what we need and we're the least capable of doing so.
Covid was a grim eye-opener - at a time when getting food was difficult, and we were asked to stay at home - did our government use the data they hold on us via GP's, social services, the benefits system - to identify who needed help?
No! They left it to supermarkets who used their commercial data to identify those 'in need' which were the wealthy elderly who shop mostly online.
Fuck the rest of us oh and we'll have your parking spots too, no thought of putting temporary ones elsewhere.
Lifts out of use, accessible toilets closed, the message was clear - stay home, shut up, and ideally die quietly without overburdening the NHS or making a fucking fuss.
And we did of course because we knew we were first against the wall if anyone needed switching off!