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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Adult ADHD - anyone else fed up of the constant battle.and of constantly losing it?

491 replies

WhoHasMovedMyBrain · 28/11/2022 14:26

EVery evening I think that the next day will.be different. That I'll do my work, work when I have to, that I won't stuff my face, that I won't be late, that I'll tick off at least one tiny little.thing on.my.to. do.list. and every day I fail. I'm winging life because I've got a very organised and hard working husband, a very supportive family who have always carried me and because I can sort of.work when I'm.in dire straits..just before a deadline comes crashing down. I'm.so.fed up of the constant stress,.the constant self loathing, constantly underperforming, constantly fighting a losing battle. I feel.as.if..im.wasting my life away.

My psychiatrist is happy to prescribe meds but before.that I need to.make an appointment with my gp to get some blood tests done and I just can't do it. I can't.make the appointment to.do.the blood tests. I mean how stupid can you get?

And now I'm so late to.pick up DC that I can't have a shower. Though I've been looking forward to.it all day.

I know.im.lucky and. I've got it better than most so.i hate complaining but I hate my brain..I don't care if it's ADHD or.if I'm.just lazy, crazy and stupid but i hate being this way.

Can anyone relate?

OP posts:
WhoHasMovedMyBrain · 07/01/2023 12:40

dolor · 07/01/2023 05:12

I know there are shortages of certain types of ADHD meds in the UK right now, people are struggling badly because of it.

Downsides of being given amber controlled drugs I s'pose. Why can't we have nice brains LOL

Yes, I'd love a nice brain. Mine's a tosser.

Has anyone else experienced problem sourcing Dex? Are other stimulants easily available?

OP posts:
Kennykenkencat · 07/01/2023 16:18

WhoHasMovedMyBrain · 07/01/2023 01:32

As far as I know it's categorised now as ADHD - h (predominantly hyperactive), ADHD - I (predominantly inattentive) and ADHD - c (combined). I think the inattentive category is slightly controversial and I'm also not sure if the NHS follows the same method.

I was diagnosed with the combined type and you'd never suspect that I'm hyperactive in any way at all. I'm very restless though and my psychiatrist said that is a fork of hyperactivity but I really am not sure.

The hyperactivity bit is about your brain. Mines on the go from the moment I wake up to the moment I knock myself out with 1000mg Ashwagandha or high strength fast acting melatonin.

Flora73 · 07/01/2023 16:26

@WhoHasMovedMyBrain Have you looked into online pharmacies? They may have stock? There are several that I know of

NotAnotherBathBomb · 07/01/2023 22:42

Flora73 · 07/01/2023 16:26

@WhoHasMovedMyBrain Have you looked into online pharmacies? They may have stock? There are several that I know of

Please can you share what online pharmacies you know of/have used? I use non-stimulants but my pharmacy has to order them in as well, I'd wanted to shop around and see if prices were different but couldn't find a reputable-looking place online

takemebacktothe1990s · 08/01/2023 00:51

I made a thread on the ND board but didn't get any replies, so I've copied and pasted below Smile

Hi all,

I was diagnosed with moderate combined ADHD in April 2021 and since then I've been prescribed Xenidate from 18mg up to 54mg, before being transferred over to Elvanse 30mg in November'22.

The Elvanse has done absolutely nothing for me at all at this dose. I understand I have to start at a low dose then increase but this has felt like I've taken 10 steps backwards I know there's scope for this to be increased though.

My next medication review is a week tomorrow, so I guess I'm wondering (and too impatient to wait until then to find out) has anyone ever been in a similar situation then been out back on the original meds? I can see now that the Xenidate was far better for me. It wasn't quite helping with everything but even at the lowest dose I found it more beneficial than the Elvanse (highest dose I think is 70mg...so I'm taking almost half the dose).

Example of how bad it is for me... The other day I decided to clear out a big built in cupboard in my bedroom. Got it all out and on my bed. Went downstairs for something, got distracted then lost all motivation. Ended up sleeping in my spare room for 2 nights because I just couldn't muster anything up to clear my bed this is just not normal

Flora73 · 08/01/2023 10:33

@NotAnotherBathBomb

I've used Pharmacy2U and Chemist4U. There is also one called Chemist Direct.

Thisisworsethananticpated · 08/01/2023 14:16

takemebacktothe1990s

one thing I’ve learnt is we all have to adapt our lives for how we are
i don’t know if I’m ND or not
have traits

but I have learnt a bit how to moderate life

maybe that task was a leap too far

maybe you have to start smaller

plastic bag
fill recycle

thats a simplistic example

for me travel makes me super enormously anxious

i used to not allow it
I felt guilty for cancelling an event the day before I flew

now I build in prep time before , rest time after

be kind to yourself and acknowledge what’s a challenge xx

Banjaxx · 08/01/2023 19:36

@crackofdoom sounds like you are basically living a parallel life to me. I’m exactly the same. When the kids were small and I was trying to get back to work (same kind of field as you) I lost count of the days I’d book the kids into the childminders and end up going to pick them up after having achieved the sum total of fuck all squared

Banjaxx · 08/01/2023 19:37

can anyone else relate to how expensive it is as well?

I’ve lost count of how much money I’ve wasted,
being fined for submitting tax returns late,
missing return deadlines for stuff I’ve bought as options and then ended up keeping but not being able to actually use,
car parking fines because I’ve forgotten to return to the car in time and then the fines doubling because I don’t pay them within the 14 day limit…
and I ended up paying an additional 500 on my car insurance this year because I got a brief gust of enthusiasm for ‘saving’ money and changed my car insurance provider to a cheaper quote but then ignored all the emails asking for proof of no claims so they whacked on an additional 500 quid.

It’s fucking expensive

crackofdoom · 08/01/2023 20:08

banjaxx it's so difficult as a creative professional- I think we rely on "flow" a lot- I've observed even NT artists taking aaaages to get into a project and gain momentum. Really, we need days and days to get fully immersed in it- a few hours bookended by urgent obligations we ABSOLUTELY MUST MEET (ie parenting) just aren't going to cut it. It's also a sore point that creatives who are fathers somehow, miraculously, seem to get this time to create 🙄. Before DC I could do my slow morning pottering, go down the studio at lunchtime and emerge at 8.00- 9.00 pm 😪.

Banjaxx · 08/01/2023 20:14

@crackofdoom oh 100%
im a night owl and so much more productive in the wee hours, before kids I would regularly do the lions share of my work post midnight, generally I’d go up to the studio around 10, potter for a couple of hours and hit Jew sweet spot about midnight and work till 2 ish in the morning. Can’t do that at all any more with the need to be up for school runs, life isn’t set up for that type of schedule.

NotAnotherBathBomb · 08/01/2023 23:40

Banjaxx · 08/01/2023 19:37

can anyone else relate to how expensive it is as well?

I’ve lost count of how much money I’ve wasted,
being fined for submitting tax returns late,
missing return deadlines for stuff I’ve bought as options and then ended up keeping but not being able to actually use,
car parking fines because I’ve forgotten to return to the car in time and then the fines doubling because I don’t pay them within the 14 day limit…
and I ended up paying an additional 500 on my car insurance this year because I got a brief gust of enthusiasm for ‘saving’ money and changed my car insurance provider to a cheaper quote but then ignored all the emails asking for proof of no claims so they whacked on an additional 500 quid.

It’s fucking expensive

Yes! It's the ADHD tax.

takemebacktothe1990s · 09/01/2023 06:27

Banjaax

Yes!! I'm so bad for returning online items! I forget that I already bought a spare shower gel so buy another one....and end up with 5 as it's on repeat. Same with deodorant, bleach, toothpaste etc etc.

I used to be really bad for wasting food. I'd have a burst of enthusiasm for cooking a particular meal but then lose motivation and end up having toast instead. Or forget to eat. I'd then keep forgetting to freeze the chicken I didn't use. (I live alone, so I'm not feeding everyone toast for dinner. Just me Grin)

I moved house over 2 years ago and I'm still paying for my post redirection. I think there's only 1 or 2 still to change but I continue to pay the redirection fee.

So many other examples I can't think of at the moment.

Sparklfairy · 09/01/2023 08:11

Banjaxx · 08/01/2023 19:37

can anyone else relate to how expensive it is as well?

I’ve lost count of how much money I’ve wasted,
being fined for submitting tax returns late,
missing return deadlines for stuff I’ve bought as options and then ended up keeping but not being able to actually use,
car parking fines because I’ve forgotten to return to the car in time and then the fines doubling because I don’t pay them within the 14 day limit…
and I ended up paying an additional 500 on my car insurance this year because I got a brief gust of enthusiasm for ‘saving’ money and changed my car insurance provider to a cheaper quote but then ignored all the emails asking for proof of no claims so they whacked on an additional 500 quid.

It’s fucking expensive

Things like tax return I procrastinate on, but also can't do ANYTHING else until it's done. It's like my brain is fighting itself. 'You need to do this, it's urgent' 'Yeah but ugh.' 'You also have xyz to get done, you could do that and do the tax return once you've got some momentum going ticking things off' 'HAHAHA no. Grow the fuck up and get the bitch job done first!'

There's a productivity tip called 'Eat That Frog'. The idea is you take your biggest, nastiest job on your todo list and get it out of the way first thing, and it sets you up for the day without it hanging over your head.

Knowledge of this 'tip' is counterproductive for someone like me. Simply knowing I should 'eat the frog' i naturally procrastinate on, makes me avoid doing that or anything else either, making me even less productive Confused

SquirrelSoShiny · 09/01/2023 10:25

crackofdoom · 08/01/2023 20:08

banjaxx it's so difficult as a creative professional- I think we rely on "flow" a lot- I've observed even NT artists taking aaaages to get into a project and gain momentum. Really, we need days and days to get fully immersed in it- a few hours bookended by urgent obligations we ABSOLUTELY MUST MEET (ie parenting) just aren't going to cut it. It's also a sore point that creatives who are fathers somehow, miraculously, seem to get this time to create 🙄. Before DC I could do my slow morning pottering, go down the studio at lunchtime and emerge at 8.00- 9.00 pm 😪.

God I hear every word of this.

onyttig · 09/01/2023 10:32

Eating the frog won’t help me either. Because I manage to procrastinate on eating the bloody chocolate too.

Adhdsucks · 09/01/2023 11:22

Anyone solves Revenge Bedtime Procrastination yet?

I will sit there at night in my bed scrolling through MN knowing that I need to go to sleep because I already struggle enough to get up in the morning but I just can’t make myself stop. I think my whole life would be 10 times easier if I could get up 2 hours earlier (so 6 instead of 8 on WFH days) but I just can’t do it.

Banjaxx · 09/01/2023 15:19

@Adhdsucks story of my fucking life 😭 I just can’t do it either, I have to be up at 5.30 tomorrow… I KNOW already that if I went to bed 2 hours earlier a. It wouldn’t matter, it’s still be impossible to get up without wading through treacle and feeling like shit and leaving it to the last fucking second… b. I’ll probably end up doing exact polar opposite and go to bed 2 hours LATER than normal because I’ll be stressing about having to get up so early so will have to engage in even more distraction to get away from the stressing, same result, I’ll be stressed and late, won’t have time for a shower and look like shit all day. Winner winner chicken dinner

allfurcoatnoknickers · 09/01/2023 16:22

@Adhdsucks I "solved" it by revenge procrastinating by reading instead of doom scrolling. So I haven't solved it at all, but at least I feel better about it?

takemebacktothe1990s · 09/01/2023 16:27

I don't do much have an issue with getting up in the morning, but I do kind of sabotage my sleep by staying up later than I should!!

Either, as PP said "doom scrolling" or reading. I only skim read the thread (because...adhd Grin) so not sure if it's been mentioned, but is it because of all the procrastination throughout the day that we end up fearing FOMO if we go to sleep at a reasonable time? Even though we're not exactly doing much during the "wee small hours"!!

I feel constantly sleep deprived!

takemebacktothe1990s · 09/01/2023 16:35

I was actually going to ask this but forgot!!

Is there such a thing as fluctuating symptoms? Like, sometimes perhaps not many symptoms so it can seem as though you're NT?

I ask because I was diagnosed about 9 months ago and although I can pinpoint times throughout my life where it can be associated with adhd, there's other times when I wonder "HOW did i do that?". I started a full time Uni course after I had DD and also worked part time, all the while being in an awful relationship (which I've since left). On the surface I guess it seemed I was coping....great grades in exams (but crammed beforehand), DD very well cared for, managing my part time nightshift job, running the house and a social life. Not long afterwards I was diagnosed with anxiety and depression as my relationship broke down. But sometimes it makes me wonder if I even have adhd. HOW could I have managed back then but struggle so much now? I've asked my nurse several times now if I definitely washed and she assures me I have.

I can't remember much before age 10 but I had a lot of struggles as a teenager, seemed to manage ok in my 20s (albeit with in law support with childcare and financially), but then crumbled late 20s onwards over the last 15 years.

Also to the PP that gave advice upthread regarding doing smaller tasks....thank you!

emptythelitterbox · 09/01/2023 16:35

Burgoo · 30/12/2022 13:49

I've got ADHD and it has been both a blessing and a terrible curse at times! My problem tends to be attentional though I do have some hyperactivity traits especially when stressed.

The good points were that when I worked in a fast paced, high energy environment I thrived. I had to make snap decisions quickly without waiting around and mulling things over endlessly. The problem is that I hadn't really got a slower gear until the past few years.

The difficulties I find are:

Procrastination about work related boring tasks - I am not interested in a lot of the administrative stuff and I can put things off for years! It piles up and then I end up overwhelmed. It is worse when its stuff around the house like bills, repairs etc.

Losing keys, wallets, ipods, phones, cards every day. I have had to invest in key finders for everyday items as I spend so much time trying to locate things I put somewhere and forgot. I can walk into a room, forget what I was going in for and walk out with one less thing!

I seem rude and inattentive at times; I have to consciously focus on what a person is saying and resist the urge to turn away and do something else. I didn't notice it til my colleague said I was rude and dismissive. In context, she was crying about her son's potential prison term and I walked off mid-conversation without saying goodbye.

My memory is shocking. I can have a conversation and ten minutes later I can't recall any of it.

I had a somewhat fiery temper in my younger years though as I have aged I have been able to manage a little more.

Anxiety, anxiety and more anxiety.

What I have found that helps:

Mindfulness - it is SO hard when you start and demoralising. Though apparently evidence suggests it can be very good for ADHD and impulse control and I've really found it helpful. Notice when you are drifting onto another topic/activity etc and bring yourself back.

Lists. List after list after list. I love a list. Colour code it. Make it interesting. Plan things to a high degree of specificity. Even at your most picky and anal you will still seem a bit more chaotic than people who don't plan like it.

Post-its and other notes - I have to stick them everywhere. My memory is shocking - my job relies on detail so I have to note everything. Normally in short/bullet points so I can recall what was said.

Tell people what you need! - all of my colleagues know that if they want me to read an email they need to stick "URGENT" in the title and it needs to be a line or less. If it has to go on and on then bold/red the bit you want me to action/see. I won't ever read more than a line or two, it is all boring so get to the point (ironically given the length of my posts!) Also get them to cut all the "hope you are well" nonsense (at least for me) I don't care if you hope I'm well, what do you want me to do!?

Remind people to give you a gentle nudge - if you seem rude, ask people to gently let you know. I've found relationships are much better this way.

Set expectations - I tell people that I can come off as a bit abrupt, short and inattentive and the reason (I don't bang on about it, jus so people who need to know are aware. For example boss, close colleagues, people who rely on you). I will often send the following response to a 2 page email:

"Yes"

And people get uppity about it if they don't know what you are like. I don't ask for concessions, just know that if you ask me a question I will likely answer with a word. No point dragging it out (irony noted!)

Be a bit kind to yourself - I used to kick myself constantly. My partner is very understanding which helps!

Could relate to every bit of this.

Those strategies have made a lot of difference with acceptance and feeling better about myself.

Adhdsucks · 09/01/2023 17:51

@Banjaxx that’s me too. I’ll tell myself another hour up isn’t going to make any difference to how I feel in the morning.

I think I’m going to try and implement a strict 10pm bedtime just to see how I get on.

SleekMamma · 09/01/2023 17:57

Oh god horrendous day at work.
No focus at all.
But come 5pm suddenly I can think.
WHY?????

This is why I never get anything done in the evenings.
I'm catching up

BigMadAdrian · 09/01/2023 18:44

I've name changed recently, but have posted on here under a previous username (tea towel on kitchen floor - if anyone remembers 😁).

Has anyone been through the assessment process without input from a parent? My mum is the only one who could do it and is incredibly unsupportive (thinks ASD and ADHD are made up). I am waiting to be assessed for both and the thought of having to involve my mum is filling me with dread.