Here's something that may be useful for the 'haha sistine chapel' lot. This is specifically about children but the same goes for adults with TS of course.
And may I add, my child's school has just sent this letter out as there is a severe lack of tolerance and understanding towards the kids in their school who struggle with this. How depressing that many adults are no better.
Tourette Syndrome is a very complex neurological condition that affects 1:100 children and adults. It is characterized by involuntary movements and vocalisations called tics. These tics can cause significant fatigue, pain, discomfort, and embarrassment. Alongside the motor and vocal tics are internal psychological tics, these are pervasive and consuming thoughts that significantly affect attention and concentration.
Tics are unpredictable, involuntary and can be contextual e.g., ticcing “no” when asked to do something or “fatty” when seeing an overweight person. They are not a reflection of the child’s inner world or of their thoughts and feelings. Some days tics are manageable yet other days they can interfere with daily life e.g., being unable to eat or swallow due to motor tics, unable to walk to the bus stop, or being unable to engage in conversations due to vocal tics.
People with Tourette Syndrome also often have co-existing conditions such as obsessive-compulsive disorder (OCD), attention deficit hyperactivity disorder (ADHD), autism (ASD), depression and anxiety issues, dyslexia, and sensory processing difficulties to name a few. So, you can imagine how difficult life can be for our children with Tourette’s.
It’s important to understand that children with Tourette’s will struggle to control their tics and we would discourage any child to suppress (hold them in). The tics need to come out at some point and if they have been suppressed, they will come out louder and harder than they would have originally. Therefore, although the child does not wish to be disruptive within the session, it may happen from time to time.