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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

WIBU to give my estranged sister a kidney?

394 replies

Shutupaboutthesun · 25/06/2019 08:09

My older sister became chronically ill many years ago and needed a kidney transplant from our mother. That kidney is now failing and she will shortly return to dialysis.

I'm asking if it would be unreasonable to give her my kidney, not whether it would be unreasonable NOT to, because of our particular circumstances.

We are low contact and only see each other at big family events. We don't otherwise talk. Her husband recently wrote to me, asking if I would consider donating. Our younger sister got an identical letter - she has already said no.

We (me and younger sis) do not get along with our older sister because she bullied us terribly throughout childhood, physically and psychologically. Both of us have ongoing anxiety and self-esteem issues due to the bullying, which was never stopped or curtailed by our mother (our father left when we were young). DM is still in complete denial about what went on, and characterises the situation as 'you two have always ganged up on her'.

DSis (younger) is in therapy and it was her therapist who advised her to write back immediately saying no to the kidney donation. She then got a horrible letter from older DSis (even though the original letter was from her husband), calling her a selfish person and implying she was a coward and a liar. She said she never wanted to see younger DSis again and would avoid any family gatherings from now on at which she would be present.

After younger DSis showed me that letter, I felt the familiar feeling of panic and helplessness from my childhood, of being trapped with older DSis, unable to get away from her fists and her taunts. I decided that I would say no too as I'll be damned if I'm going to be bullied by her in adulthood as well as childhood.

However, there was also something in the letter that made me pause. DSis has an 8yo daughter and she wrote of how awful it is to have to look at her every day and know that she won't see her grow up. She wrote, 'It is the worst feeling in the world'. This resonated with me as I am sole parent to my 3yo DD. I realised DSis is in an unspeakably awful situation, and the right thing might be to put aside my childhood issues and help her if I can.

Having said that, the fact that my DD doesn't have another parent (father's name not on the birth certificate) makes me hyper-aware of my responsibilities to her. I know the risks from donating a kidney are low, but the risk is still there, and I go back and forth between believing that I owe it to my sister to try to help, and believing that I owe it to my daughter not to take this risk for someone with whom I have a very poor relationship.

I've talked to a number of people about what I should do and they all, except for DM, said I shouldn't offer to donate. DM thinks I should because DSis is very ill, will probably die in the next five years without a new kidney, and there is 'no risk to the donor'. She keeps reassuring me that she has no health issues from donating her own kidney 16 years ago. Friends have said I shouldn't do it because my priority should be DD. GP said the same.

Even so, I keep thinking about it, and last week I almost told DM to tell DSis that I would be willing to get tested to see if I was a match.

I keep swinging back and forth between opposite emotions. Some days I feel guilty about what is happening to DSis, knowing that I could possibly stop it. The brutal fact is, if I don't donate, it means I am willing to sit back and watch my sister slowly die. DM is already full of grief about what is happening and her emotional state will only get worse as DSis deteriorates on dialysis.

Some days I think offering to donate my kidney would be some kind of 'big gesture' I could make to heal our whole family, whereas holding on to it just represents holding on to the bitterness of the past. Then other days I get angry and think, 'fuck it, no, why should I give that bitch my kidney, when she's had more negative effect on my life than any other person?'

I feel very clouded by conflicting emotions and it is hard to see clearly what is the right thing to do.

OP posts:
Jokie · 25/06/2019 08:26

I would get tested on the sly to see if I was even a match, just to put my mind at ease but I wouldn't donate in your situation. Your responsibility is to your DD and it doesn't seem like your DSis would even be contacting you unless she needed something.

Also, another thought; this kidney would last 20 years (maybe?), What then?

pikapikachu · 25/06/2019 08:26

There could only be family healing if everybody (including your mum and sister) were honest about the past and apologetic about their rile in the current situation. Definitely do not donate thinking that it could
heal things. You are more likely to feel used (there will be no gratitude, your mum will focus on your sister's recovery over you...) and end up worrying about your child needing your kidney in future if your sister's condition is genetic.

NailsNeedDoing · 25/06/2019 08:26

When my friend was tested to see if she'd be a match for a sibling, the hospital said that even if she was a match, they would support her in telling her family that she wasn't if she didn't feel like she really wanted to go through with it. No one else except her and her own doctor would have known. I thought that was good, they wouldn't take your kidney unless you were 100% sure you wanted to do this anyway.

You definitely don't owe this to your sister, but as you are so worried about all of this and the fallout, it might be worth investigating the process so you know you tried. For your own peace of mind I mean, not for anyone else's benefit.

frazzledasarock · 25/06/2019 08:27

What would happen to your daughter if the worse case scenario happened and you became ill from donating the kidney to your sister?

Your sister sounds horrible even now. She won’t be grateful to you and your family dynamics will not change if you donate a kidney to her.

I would not do it. It would be a massive ask coming from someone you loved and were close to. I certainly wouldn’t do it for someone who was and continued to be nasty to me. And I most certainly would not do it if it meant my children would be left all alone if something happened to me.

Veterinari · 25/06/2019 08:27

If you can ‘show willing’ obvs!

theWarOnPeace · 25/06/2019 08:28

Aside from the massive dilemma itself, one of your issues is your mum. You’re listening to the enabler here. I am NC with my sister, my mum is the enabler too. I have to be very careful with my mum in order not to get suckered into her warped and misguided ways of thinking. The subject of my sister is an absolute no-no, because she can’t admit there’s anything wrong with the way my sis treats me and everyone else.

I wouldn’t do it, but I think for you your problem is that you’re getting sucked in by your mum, and it’s clouding your thoughts about the whole thing.

Quartz2208 · 25/06/2019 08:28

Your GP (a neutral knowledgeable party) is right - there are some large long term risks involved and it is very hard going. Your daughter only has you and she needs you to be fully functioning.

Your DSIS has had one kidney and it hasnt lasted that long - the likelihood (if you are a match) is that this one wont either

The emotional decision is impossible to make.
The logical one is actually very clear cut and it is a no

Ghostontoast · 25/06/2019 08:29

No because:

  • her bullying has led to significant emotional issues for you in your adult life
  • she’s already had one kidney donation 16 years ago and her daughter was born after that.
  • you need to put your daughter first
  • (due to recent medical advances that have reduced rejection rates so you don’t always need a familial match) why doesn’t her husband consider donating himself?
Birdie6 · 25/06/2019 08:29

Is your sister's kidney condition genetic ? I'd be very concerned about giving a kidney under those circumstances - you have only got two, if you give one away to her and then you get kidney disease , what then ? You've got your daughter's future to consider.

Family donation isn't the only option for your sister - she can still be on the list for a donor kidney .

I'd say no and leave it at that. Don't let her blackmail you with the "poor me and my daughter" story . Your sister had her child after having a kidney transplant - she knew that the day would come when the donated kidney would fail, they all do. She can't expect her family to keep donating to her when she has alienated you with her horrible behaviours , then to play the pity card when it suits her.

RagingWhoreBag · 25/06/2019 08:30

I think you should forget about the childhood trauma (just disregard it to make this decision - I know you can't forget it!) and bass your decision on whether you would do the same for your younger sister. Then ask whether you would do it for a stranger
Then decide where your estranged sister sits between the two

This is how I’d look at it. Your sister is essentially a stranger in this scenario (except a stranger would probably be eternally grateful, whereas her reaction to your other sister sounds like she thinks she has an entitlement to your body parts!)

This won’t heal the rift in your family, it will just make you bitter when you realise that you did this and she’s still a bitch!! If she really wanted to heal things she would have spoken to you both herself and been understanding if either of you didn’t feel you could do it, not declared that she’ll never see you again if you don’t.

I think your primary duty is (actually to yourself, but then) to your DD. Having a general anaesthetic and potential complications of an op that is unnecessary for you is a big deal and not something you should feel bullied into.

Someone upthread suggested getting tested and if you’re not a match saying yes, so the gesture is there without the risk. That’s unspeakably cruel and I can’t believe anyone would think that’s ok, as much as she’s a bitch, getting her hopes up that you might save her life is awful. However, do get tested and then at least you know if this is a real world dilemma or a hypothetical one. The test might make your choice for you. Flowers for you and for your sisters. Whatever she was like, it can’t be easy for any of you (including her) dealing with this and knowing the impact it might have on her DD.

SoupDragon · 25/06/2019 08:31

I wouldn't do it in your situation.

Your sister has shown her true colours in her response to your other sister.

MysweetAudrina · 25/06/2019 08:32

If this was my sister I don't think I would even think twice about it I would offer straight away to get tested but that is because I really like my sister and have a good relationship with her and would do whatever I could to make sure her life was good. I think the fact that you don't feel this way towards your sister is your answer. If it was your younger sister would you feel differently? It sounds like she expects it and would not be grateful for it. You risk falling out with your mother and sister if you don't offer to get tested are you ok with that?

honeygirlz · 25/06/2019 08:33

Some days I think offering to donate my kidney would be some kind of 'big gesture' I could make to heal our whole family

It won’t heal your family though. That toxic dynamic was set in childhood and it will never change. Yes if you do it your sister will be nice to you for a while, but there will be another argument or disagreement (real or engineered by her) which she will use to turn against you again.

As others have said

  • you may not be a match anyway
  • her current donated kidney didn’t last long
  • she made your sister feel like shit for making a reasonable decision not to donate
  • your dd only has 1 parent, her DD has two
Horsemenoftheaclopalypse · 25/06/2019 08:33

Some days I think offering to donate my kidney would be some kind of 'big gesture' I could make to heal our whole family,

Gently, you need to be t this idea out of your head pronto. It’s delusional and a pure fantasy.

Personally i think YABU
in your circumstances I would not be donating a kidney - you need to think of your child

Ghostontoast · 25/06/2019 08:33

Also if you did donate a kidney how would that make your other sister feel - she is being ostracised from “family gatherings” isn’t her mental health just as important as your other sisters renal health.

Veterinari · 25/06/2019 08:33

@Stressedout10 There's a lot of risk to you and it will shorten your life.

Do you have any evidence for your scaremongering inaccurate info?

www.kidney.org/transplantation/livingdonors/what-expect-after-donation

IsabellaLinton · 25/06/2019 08:34

I wouldn’t do it if I were you, no. Your priority is your child, not a sister trying to manipulate and guilt you into it.

Disfordarkchocolate · 25/06/2019 08:36

It's an awful decision but as a single parent, your focus needs to be your child. You are not your sisters only option, she will be on the same waiting list as people with no family matches. For your own peace of mind, it sounds like you would benefit from speaking to a counsellor about this.

qazxc · 25/06/2019 08:40

If your GP has recommended you not to do it, there's your answer really.
Even if you have the kidney, it would not heal your family.
You have to look at this as if your sister was a stranger. Yes, it's a horrible situation but you have been advised against it by your doctor and can't because of your DD and the risks.

jacketpotatobeansandcheese · 25/06/2019 08:40

In your situation, I don't think I'd even get tested. If you already feel like you don't want to do this, how much harder will it be to say no if you know you're a match?
Good luck, whatever you decide

LittlefairyMum · 25/06/2019 08:41

Get tested and take it from there.

You're in a horrible situation.At least if you're not a match you can rid yourself of feeling any guilt later on if the worst should happen.

As someone else said, she'll probably get a kidney just by being on the list.

thethoughtfox · 25/06/2019 08:42

I wouldn't give part of my body to someone who has caused me lifelong suffering.

Meercat2 · 25/06/2019 08:42

I work in this area.
There are several tests involved. Firstly to see if you a 're a match and then secondly, there are thorough psychological tests. All along this procedure you will have a chance to pull out.
If you decide not to go through with it at some point your sister will not need to know the real reason. She could be told that you are not a match if you prefer this.

DateBanana · 25/06/2019 08:43

No I wouldn't.

Your first responsibility is to your daughter.

Birdie6 · 25/06/2019 08:43

Keep in mind that it isn't necessary for family donation to occur - advances in anti-rejection mean that people can receive a kidney from someone who isn't a match. Her husband might like to put his hand up. www.kidney.org/transplantation/livingdonors/general-information-living-donation