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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

WIBU to give my estranged sister a kidney?

394 replies

Shutupaboutthesun · 25/06/2019 08:09

My older sister became chronically ill many years ago and needed a kidney transplant from our mother. That kidney is now failing and she will shortly return to dialysis.

I'm asking if it would be unreasonable to give her my kidney, not whether it would be unreasonable NOT to, because of our particular circumstances.

We are low contact and only see each other at big family events. We don't otherwise talk. Her husband recently wrote to me, asking if I would consider donating. Our younger sister got an identical letter - she has already said no.

We (me and younger sis) do not get along with our older sister because she bullied us terribly throughout childhood, physically and psychologically. Both of us have ongoing anxiety and self-esteem issues due to the bullying, which was never stopped or curtailed by our mother (our father left when we were young). DM is still in complete denial about what went on, and characterises the situation as 'you two have always ganged up on her'.

DSis (younger) is in therapy and it was her therapist who advised her to write back immediately saying no to the kidney donation. She then got a horrible letter from older DSis (even though the original letter was from her husband), calling her a selfish person and implying she was a coward and a liar. She said she never wanted to see younger DSis again and would avoid any family gatherings from now on at which she would be present.

After younger DSis showed me that letter, I felt the familiar feeling of panic and helplessness from my childhood, of being trapped with older DSis, unable to get away from her fists and her taunts. I decided that I would say no too as I'll be damned if I'm going to be bullied by her in adulthood as well as childhood.

However, there was also something in the letter that made me pause. DSis has an 8yo daughter and she wrote of how awful it is to have to look at her every day and know that she won't see her grow up. She wrote, 'It is the worst feeling in the world'. This resonated with me as I am sole parent to my 3yo DD. I realised DSis is in an unspeakably awful situation, and the right thing might be to put aside my childhood issues and help her if I can.

Having said that, the fact that my DD doesn't have another parent (father's name not on the birth certificate) makes me hyper-aware of my responsibilities to her. I know the risks from donating a kidney are low, but the risk is still there, and I go back and forth between believing that I owe it to my sister to try to help, and believing that I owe it to my daughter not to take this risk for someone with whom I have a very poor relationship.

I've talked to a number of people about what I should do and they all, except for DM, said I shouldn't offer to donate. DM thinks I should because DSis is very ill, will probably die in the next five years without a new kidney, and there is 'no risk to the donor'. She keeps reassuring me that she has no health issues from donating her own kidney 16 years ago. Friends have said I shouldn't do it because my priority should be DD. GP said the same.

Even so, I keep thinking about it, and last week I almost told DM to tell DSis that I would be willing to get tested to see if I was a match.

I keep swinging back and forth between opposite emotions. Some days I feel guilty about what is happening to DSis, knowing that I could possibly stop it. The brutal fact is, if I don't donate, it means I am willing to sit back and watch my sister slowly die. DM is already full of grief about what is happening and her emotional state will only get worse as DSis deteriorates on dialysis.

Some days I think offering to donate my kidney would be some kind of 'big gesture' I could make to heal our whole family, whereas holding on to it just represents holding on to the bitterness of the past. Then other days I get angry and think, 'fuck it, no, why should I give that bitch my kidney, when she's had more negative effect on my life than any other person?'

I feel very clouded by conflicting emotions and it is hard to see clearly what is the right thing to do.

OP posts:
AmIRightOrAMeringue · 25/06/2019 10:00

Some other questions to maybe consider

Which would the worse scenario for the children involved - their child having a dad only, or your child having a mum with significant long term health issues

Do you think she would do it for you if he situations were reversed?

In your situation I think most people would be tremendously torn. In balance though I'd say no. It doesnt sound like there would be any reciprocal support if things went wrong and you needed help

bluebluezoo · 25/06/2019 10:02

How urgent is the transplant?

Can it be shelved for a few years- don’t rule it out, but if she is managing on dialysis revisit the idea if she deteriorates or when your own child is older and more independent?

I understand dialysis is not ideal, but people can survive long term?

Shutupaboutthesun · 25/06/2019 10:02

Thanks Veternari for your response - it's useful to get the perspective of someone who's been a live donor.

My experience is that the donor team are 100% supportive of potential donors withdrawing at any point for any reason and they will ‘find’ a medical reason for your donation to be unsuitable

Even this makes me anxious as I'm sure that if I'm not compatible (or if I am and withdraw) DSis will know about this protocol and will not believe that I've been rejected for medical reasons.

In her letter saying no, younger DSis did not bring up the family stuff at all. She just said that she has a medical condition which means she'd be at increased risk for health problems down the track if she donated (which is true), so she'd have to refuse.

Older DSis wrote back saying that only the kidney transplant team could determine if she was really at increased risk, and also insinuating that younger DSis was lying about having a medical condition in the first place (she said it was 'convenient' for DSis that she 'suddenly developed this condition'). In any case, it wasn't younger DSis's only reason for saying no. She just thought it would be kinder to refer only to that than to talk about all the reasons she hates/resents older DSis.

To the posters who have said the problem is DM, you are probably right. I have contact with DM almost daily, whereas I don't talk to DSis.

It is very hard to say no to DM about this, and if I do it will probably damage our relationship permanently. DM helps out a lot with DD so I am quite dependent on her. I think maybe a big part of my impulse last week to offer to get tested was to make DM happy. It's not just direct pressure from her, but the constant guilt I feel about it whenever she is around, even if she doesn't bring up the subject.

OP posts:
sheshootssheimplores · 25/06/2019 10:02

Not a chance in hell under those circumstances

Swoopinggulls · 25/06/2019 10:03

If your sister does die then at least your niece will have one healthy parent left (with 2 kidneys) as does your daughter now.

If, however, you chose to donate then your daughter will only have one parent left that has one kidney. Your niece will then have 2 parents (providing the donation was a success).

Think of yourself and your daughter as it appears that no one else is thinking of you both

This, exactly.

needsahouseboy · 25/06/2019 10:04

You have a child, what if she needs your kidney in the future and you've given it away to someone who was bloody awful to you.

I work with a woman who gave her kidney away to a relative and she now has renal failure and it won't be long before she needs dialysis herself.

Starlight456 · 25/06/2019 10:06

I was thinking about this on school run .

It seems like your only reason for doing this is from some guilt . I don’t believe anyone should do it unless 100% sure.

In 10-15 years it would be back to your younger dsis again . She will have another reason why.

This is going to sound harsh but when they had their dc they did already know the expectations that Kidney would fail . Was there plan always it would be yours

BlueSkiesLies · 25/06/2019 10:06

No. You should stay healthy as possible for your own child. You owe your sister nothing. She’s don’t nothing but harm to you.

Ninkaninus · 25/06/2019 10:09

I think I would keep my kidney in case my child needed it someday, not gift it to a cruel, bullying, nasty sister.

It will not heal your family.

Flowers
HoppingPavlova · 25/06/2019 10:10

I’d hold off in case your own child needs it in the future. How would you feel if they needed one and you did not have a spare to offer?

oldstudentmum · 25/06/2019 10:10

No is a sentence. Donating a kidney is high risk to the donor. Your dr has said no. Your child is your only priority. Your sister is probably already on transplant list.

Ninkaninus · 25/06/2019 10:13

I think you also need to consider F O G in relation to your mum. She really doesn’t have a right to expect this of you.

Zilla1 · 25/06/2019 10:14

If you donate, it sounds like you may worry about ongoing health risks and the implications for your DD and impair your peace of mind.

As PPs have mentioned, the donation team or GP can confirm that 'you suffered some kidney impairment when you carried your DD and would be an unsuitable donor' if you don't want the emotional onslaught of saying no to DSis and DM.

I suspect the letter your DSis received from older DSis shows your older DSis has not changed.

I'm not minimising this but our older DSis won't be 'consigned to death'. I suspect there would be dialysis (I'm not minimising the health and lifestyle implications) and she will presumably go on the list for a donor. If she is keen on, in effect, queue-jumping through a living donor, her DP, his family and her friends can volunteer and if not a match, a ring of sequential donors could enable a living donor transplant through a non-family living donor.

Sorry to hear and good luck.

Ninkaninus · 25/06/2019 10:15

Ugh what a horrible person your sister is. You owe her absolutely nothing! You have a responsibility to your daughter, no one else.

BarryBarryTaylor · 25/06/2019 10:15

I wouldn’t, I would keep it in case your Dd needs it.
Your sister sounds horrid, and actually there is no guarantee you are a match, even if you wanted to.
There is also the consideration that it’s not an easy procedure for you to go through. It will involve hospital stays and it really isn’t pleasant.

AndSheWas85 · 25/06/2019 10:16

God, that's a tough one OP, I can't say I'm in the position to give you expert advice on that issue.
However as someone with one kidney(due to a car accident when I was a kid) the life expectancy is normal and long term complications are extremely rare, this is according to my specialist team.
Just wanted to put that out there for anyone else that might be thinking of donating.

OP, best of luck with whatever decision you make, it's a really tough one

justilou1 · 25/06/2019 10:16

And what if you donate your kidney and it is also rejected? Will she then start pressuring you to have your child tested as well? The buck has to stop somewhere. I have been tested and am considered to be a suitable candidate should my daughter need a kidney. (She only has one, and for a while it wasn’t looking good. She has been okay for years though.) I can’t be a spare for someone else and I maintain a healthy lifestyle in case she gets sick and needs it one day. It’s something I think about, also. What if one of my friends or their kids needed one? I’d have to say no to being tested.

SavageBeauty73 · 25/06/2019 10:18

I would only donate to my children and I am incredibly close to my siblings.

recrudescence · 25/06/2019 10:21

If you turn her down you’ll likely get a letter along the lines of the one your other sister received - could ultimately leave you quite content with your decision.

Billben · 25/06/2019 10:21

Even this makes me anxious as I'm sure that if I'm not compatible (or if I am and withdraw) DSis will know about this protocol and will not believe that I've been rejected for medical reasons.

Your Dsis is an entitled bully. She is still doing now what she was doing to you through childhood. And your mother is an enabler.

nonetcurtains · 25/06/2019 10:21

I'd say no too.

If you went ahead and sometime in the future you passed away for whatever reason, who would bring up your daughter? Your DM? your older 'D'Sis? Could you live with that thought?
Your sis showed her true colours again with her letter to your younger sister - no remorse, no apology, no ownership, nothing. Not changed much has she? And your mum - has she seen that letter? What was her reaction?

ILoveEurovision · 25/06/2019 10:21

I think it's very hard to say what we'd do in that situation without actually being in it, but I guess I lean towards getting tested but being very frank with the donation team about the issues in the hopes they will rule you out on psychological grounds as a po suggested. You have already had advice from your GP saying no. I don't know if your sister would doubt what the donation team say but if she does then so be it 🤷‍♀️

I have had issues with my brother over the years and he can still be an arse at times, and I guess I would probably donate to him but he doesn't sound as bad I'm not a single parent.

googlegoals · 25/06/2019 10:21

Don't do it. It won't heal your family rift. In fact, if you donated you would probably regret it as I doubt she would be grateful.

No one should be guilt tripped into donating an organ. Your responsibility is to yourself and your child.

AmIRightOrAMeringue · 25/06/2019 10:22

It sounds like she is continuing to try and bully your sister into it. You know that she thinks she is entitled to your help and there would be no thanks

HollowTalk · 25/06/2019 10:25

I wouldn't dream of it. I'd sooner donate to a stranger.