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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU because of DD's epilepsy, or is DH?

160 replies

rosesandflowers · 05/06/2018 19:02

My DD is 16 so writing exams.

The background to this is very long, so apologies. Essentially, last year she broke down the night before a holiday in France. She told us that she was extremely paranoid – (e.g. if I nipped out to the corner shop for something, she’d start imagining I was hit by a car) and that she had dreams where a new DD came, exactly like her so we didn’t know the difference, and just take her place in home and school, only she was still alive so nobody could see her, and then she went through life being unnoticed and having no human contact or conversations and watching the replica of herself be happy. She also said she was constantly obsessing over mildly embarrassing moments and if she had said something wrong or upset someone.
She told us that her hands were constantly shaking, sometimes she’d lose control over her legs and that she was completely blanking out of lessons and conversations.

DD is very secretive about her emotions and problems due to a complex episode of bullying from child (and child’s parent) in primary school. We’ve been trying to work on this and she was getting so much better but the fact that she hid this from us (successfully) was a clear reminder that she hadn’t completely gone from it. She was attributing knocking things over, spilling drinks, banging into things – all caused by the loss of control in her limbs – to clumsiness when seen and cleaning up messes, even replacing broken things with her own money, when they weren’t.
DH and I thought this was anxiety, booked an appointment with the GP and took her on the holiday. She was happy all the way through. Then on the second day before we were due home, she had a seizure. This had never happened before. She ended up diagnosed with epilepsy. I am still so guilty we didn’t think further about the symptoms.

The medication made her depressed and listless. She was completely unmotivated and devoid of energy. It lowered her Vitamin D levels so she was constantly ill and in pain. She was still having absences (when her brain shuts completely down to her surroundings) very frequently – what she called “blanking out” before. She was banned from cooking and so tired and depressed that she couldn’t really do any chores. She got better and did a bit the two weeks before school started, but school was so draining for her she usually would come home and sleep straight away. (Y11 – DD refused to miss more schooltime than “necessary.”)

Now she’s much better, energetic and like our old DD again. My DH told her yesterday she should cook for the family tomorrow and on Friday. She was flabbergasted, as she’s doing her GCSE’s right now and they’ll be over by the end of June, and thinks that chores should start up again then. DH thinks she should do as she’s told. He looked for me to back him up; I requested DD go and get started on revision, and told him I thought he was being unreasonable. He’s furious with me.

I think we should wait until after her GCSE’s, and that him wanting her to do chores – so desperately – is a way of him coping with all the sickness she’s been through; that he’s so overjoyed that she’s “back to normal” that he’s trying to make it so in every way possible.
He thinks I’m overanalysing his behaviour in order to excuse the fact that I’m pandering to her due to her having a difficult time of it recently.

AIBU, or is he?

OP posts:
FrancisCrawford · 05/06/2018 19:06

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Message withdrawn at poster's request.

FrancisCrawford · 05/06/2018 19:07

This reply has been deleted

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HopeClearwater · 05/06/2018 19:07

YANBU and I think your analysis of your DH’s attitude is spot on. You and your poor girl have been through a lot. Let her get her exams done and then chat to her about the future. My goodness Flowers

SilverHairedCat · 05/06/2018 19:08

Give the girl a break! HIBU.

rosesandflowers · 05/06/2018 19:09

Why is he so adamant that a few days are so important?

I don't know. I had plans to start cooking with her and everything (I never really got to teach her properly in summer). I was looking forward to lots of time with her in her long summer.

My DH is very stubborn so I think he's digging his heels in a little bit, which he hasn't done for years (was a bigger problem when I met him). I think that he's so relieved that she's seeming "normal" that he's going to pile everything that "normal" teenagers do on her to alleviate his own anxiety, which is why he's being so manic about it.

Which is obviously not healthy at all and I won't stand for it, but him saying it was me being over-emotional about it made me think I might have lost all objectivity!

OP posts:
KitKat1985 · 05/06/2018 19:10

I'm with you OP.

Leeds2 · 05/06/2018 19:13

I wouldn't ask any child to do chores during their GCSEs/A Levels. They have enough to cope with.
The only way I would support her cooking dinner would be if she enjoyed cooking, and it was her "escape" during the exam/revision period. That doesn't seem to be the case here though.

rosesandflowers · 05/06/2018 19:17

I wouldn't ask any child to do chores during their GCSEs/A Levels. They have enough to cope with.

That would be my stance as well! But as DD is the first child to go through GCSE's in our house, and she wasn't doing chores anyway really as we were waiting until summer, it was never really "established."

Now he's suddenly thrown this at her and she thinks he's insane (and has told him so). He's more angry at me than her, though - he says that she's just being "teenagery" and "evading chores like all children of this age will" but I'm encouraging her and undermining him.

I honestly don't know what to think. He's usually so well-reasoned and sensible and practical, and he's sounding quite unhinged!

OP posts:
Fanciedachange1 · 05/06/2018 19:20

Stick to your guns!

Stress can be a trigger with epilepsy, so you dont want your dd stressing over something like this.

Epilespy is a very hard thing to understand if you don’t suffer from it. Your dd may look and seem “back to normal” but all it can take is one seizure and you’re back at square one! Even without having seizures some days can be physically and mentally draining, and medication side effects don’t help.

Good luck to your dd and you all x

Whereismumhiding2 · 05/06/2018 19:21

DH is BVU. There's a time to push oneself and a time to pace and rest. She's in the midst of her GCSEs & cannot afford to take risks with her health - only a few more weeks to go FGS!

Epileptic seizures can be triggered by many things including overexertion, stress or fatigue, as well as other individual triggers. It takes ages to recover from a fit. She absolutely needs to be on top form to get through it - she's been working 2 years towards this!- and will already be under considerable pressure.

Well done for being so supportive & sticking up for your DD.
Maybe once he calms himself and thinks it through, he'll apologise.

BottleOfJameson · 05/06/2018 19:23

YANBU. Sounds like she's had a difficult time and is in the middle of exams too! Why not leave her be and she can get back to doing chores etc after her exams.

BottleOfJameson · 05/06/2018 19:24

And I agree with PP that I wouldn't expect any child to cook dinner in the middle of exams. (My DH recently had to take some professional qualifications as part of a new job. I took on all his household jobs until he was finished as he was stressed and busy with the exams. I would definitely do the same for a teenager).

rosesandflowers · 05/06/2018 19:29

Stress can be a trigger with epilepsy, so you dont want your dd stressing over something like this.

She pointed this out to him herself when they were arguing. He just stared at me as if expecting me to tell her off, which was when I had her leave.

Now I wish he had replied.

OP posts:
CloudCaptain · 05/06/2018 19:36

Why does she 'need' to cook? Hibu but how can you get him to back down on this one?

rosesandflowers · 05/06/2018 19:46

how can you get him to back down on this one?

I honestly don't know. We've been so practical on arguments in the past.

DH and I both hate arguments when emotions override. When we sense anger taking over, one of us will walk away immediately and we'll calm down so we can focus on the actual action that has caused the problem, rationally.

I think this is entirely borne out of emotion and utterly irrational behaviour, but telling him that obviously won't help.

I think I'll leave him to it, as long as I don't suddenly realize he's right and I'm being over-emotional. He is very shrewd and knows me extremely well so I can't help but be constantly thinking that he's right.

OP posts:
endofagain · 05/06/2018 19:59

He is being completely and irrationally unreasonable.
What else is going on with him?
Because this has to be about him, not her.

ScattyCharly · 05/06/2018 20:04

He is downright nasty.

rosesandflowers · 05/06/2018 20:16

What else is going on with him?
Because this has to be about him, not her.

Nothing. His job is going fantastically. Our relationship has been going great until now (joking; I'm not going to divorce him over this before anyone suggests it) and he's got a wide circle of friends.

I think the fact that this is something he can't control is hitting him hard, because he's used to being at the top of every game.

OP posts:
MyKingdomForBrie · 05/06/2018 20:27

I’m flabbergasted. In the middle of her GCSEs she needs to be supported to revise and rest, not bullied and guilt tripped about chores! He’s lost his mind.

endofagain · 05/06/2018 20:29

And there you have it. Control.

CourtneyLovely · 05/06/2018 20:36

Slightly off topic, but do most 16yos have "making dinner for the family" as one of their chores? When DD was 16 her chores would be tidy her room, empty the bins, clean the bathroom, put a wash on. Not cook for the entire family.

rosesandflowers · 05/06/2018 20:46

Slightly off topic, but do most 16yos have "making dinner for the family" as one of their chores?

No. I think it's all the talk of her learning to cook over the summer (I've wanted to teach her and so has DH, but was impossible while she was so ill) that made him propose this.

OP posts:
nooka · 05/06/2018 20:50

My children cooked at least once a week from 12/13. Plus they helped clean the house once a week and did their own washing. dh and I both worked full time and wanted them to grow up to be self sufficient. ds has finished first year university and dd is off in September, it should be a fairly easy transition.

I'm a bit on the fence with this scenario, dh shouldn't have sprung this on his daughter without prior discussion, but it sounds as if she was very rude to him so it may be difficult to work out a compromise that everyone is OK with.

rosesandflowers · 05/06/2018 20:56

she was very rude to him so it may be difficult to work out a compromise that everyone is OK with.

DD is opinionated, very intelligent and articulate - which means she can be very rude, often without you realising it at first Grin She's a master at backhanded insults!

In this occasion I think she was so shocked she was much more conventionally rude. Telling him he was insane was rude, but I think I failed to point it out because I was thinking along the same lines! (Another reason he was so angry).

OP posts:
PainSnail · 05/06/2018 21:01

I was your dd. Absences from 14 which no one noticed, diagnosed at 16 after the seizures got bigger. Trying to sit gcse's whilst exhausted from both the seizures and the meds. Oh and really unhappy, because this is a lot to deal with at 16.

So please, from me, give your daughter a big hug and tell her it does get easier. And tell your husband to go fuck himself. Everyone's focus should be keeping your dd trigger until her exams are finished, don't let him add extra roadblocks to her future