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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU because of DD's epilepsy, or is DH?

160 replies

rosesandflowers · 05/06/2018 19:02

My DD is 16 so writing exams.

The background to this is very long, so apologies. Essentially, last year she broke down the night before a holiday in France. She told us that she was extremely paranoid – (e.g. if I nipped out to the corner shop for something, she’d start imagining I was hit by a car) and that she had dreams where a new DD came, exactly like her so we didn’t know the difference, and just take her place in home and school, only she was still alive so nobody could see her, and then she went through life being unnoticed and having no human contact or conversations and watching the replica of herself be happy. She also said she was constantly obsessing over mildly embarrassing moments and if she had said something wrong or upset someone.
She told us that her hands were constantly shaking, sometimes she’d lose control over her legs and that she was completely blanking out of lessons and conversations.

DD is very secretive about her emotions and problems due to a complex episode of bullying from child (and child’s parent) in primary school. We’ve been trying to work on this and she was getting so much better but the fact that she hid this from us (successfully) was a clear reminder that she hadn’t completely gone from it. She was attributing knocking things over, spilling drinks, banging into things – all caused by the loss of control in her limbs – to clumsiness when seen and cleaning up messes, even replacing broken things with her own money, when they weren’t.
DH and I thought this was anxiety, booked an appointment with the GP and took her on the holiday. She was happy all the way through. Then on the second day before we were due home, she had a seizure. This had never happened before. She ended up diagnosed with epilepsy. I am still so guilty we didn’t think further about the symptoms.

The medication made her depressed and listless. She was completely unmotivated and devoid of energy. It lowered her Vitamin D levels so she was constantly ill and in pain. She was still having absences (when her brain shuts completely down to her surroundings) very frequently – what she called “blanking out” before. She was banned from cooking and so tired and depressed that she couldn’t really do any chores. She got better and did a bit the two weeks before school started, but school was so draining for her she usually would come home and sleep straight away. (Y11 – DD refused to miss more schooltime than “necessary.”)

Now she’s much better, energetic and like our old DD again. My DH told her yesterday she should cook for the family tomorrow and on Friday. She was flabbergasted, as she’s doing her GCSE’s right now and they’ll be over by the end of June, and thinks that chores should start up again then. DH thinks she should do as she’s told. He looked for me to back him up; I requested DD go and get started on revision, and told him I thought he was being unreasonable. He’s furious with me.

I think we should wait until after her GCSE’s, and that him wanting her to do chores – so desperately – is a way of him coping with all the sickness she’s been through; that he’s so overjoyed that she’s “back to normal” that he’s trying to make it so in every way possible.
He thinks I’m overanalysing his behaviour in order to excuse the fact that I’m pandering to her due to her having a difficult time of it recently.

AIBU, or is he?

OP posts:
IamtheDevilsAvocado · 06/06/2018 09:25

PS and Flowers to you by the way... And to all mums supporting kids especially recently ill kids through their exams (Thanks to my mum too... I was hellish @16...looong time ago now!)

Andro · 06/06/2018 09:36

And in breaking news: A teenager sitting GCSE's was less polite than usual!

I went to a super strict boarding school, even our teachers and House Mistress cut us some slack during major exams.

I really hope your DH re-acquires his sense of perspective, he's being very unfair to your DD (although given that I suspect that this is him coping with the stress of the last year or so, I do have a little empathy for him. He's not the first person to respond poorly to a change in pressure levels - even in a good way).

I'm glad your DD is so much better and you're standing up for her.

rosesandflowers · 06/06/2018 09:45

And in breaking news: A teenager sitting GCSE's was less polite than usual!

Yes - honestly I think he's not even mad at her. He's mad at me.

OP posts:
Lizzie48 · 06/06/2018 09:57

He's being very unreasonable about this. But I tend to agree with PPs that it's because he's desperate for her to be able to live a normal life. But what he's actually doing is expecting her to run before she can walk. And no way should she be put under pressure to do chores during her GCSEs.

I hope you're both able to move on with this. You sound like a fantastic mum. Thanks

rosesandflowers · 06/06/2018 09:59

Your OH is (inadvertently) dragging her away from those goals...

DD wants to do English Literature at a top university. DH values education hugely and his degree means a lot to him.

Maybe pointing this out will cool him off.

OP posts:
CarefullyDrawnMap · 06/06/2018 10:14

I think the fact that this is something he can't control is hitting him hard, because he's used to being at the top of every game.

Yuck. He sounds awful. I think he'd benefit from therapy, really. Long term, properly examining priorities/meaning of life type therapy.

Andro · 06/06/2018 10:17

He's mad at me.

Of course he is, you're raining on his parade! Had you backed him up he could have carried on locking the last year in a separate compartment labelled 'done', instead you're telling him that the 'difficult time' isn't over and 'normal' isn't here yet.

What he's failing to see is that this period was always going to be challenging, it's the nature of exam time. Teens are often given a bit more leeway by there parents during exam time; that's a consideration issue, not an epilepsy one!

Nikephorus · 06/06/2018 10:23

He's a parent, worried about his daughter and wanting everything to be okay for her. It will have been a shock for him too and sometimes people don't react as well as you'd hope or expect them to.

CarefullyDrawnMap · 06/06/2018 10:25

Needing to be in control and getting off on being at the top of every game are not healthy or benign traits, they're an accident waiting to happen.

rosesandflowers · 06/06/2018 10:25

Yuck. He sounds awful. I think he'd benefit from therapy, really. Long term, properly examining priorities/meaning of life type therapy.

Oh dear - my DH is coming out like a total bad guy.

I think he just felt very helpless when DD was diagnosed - and he was furious with himself for attributing it all to anxiety. And he couldn't do anything about it.

I was more focused on fixing the things we could so something about - getting her Vitamin D back up etc. But while he was helping with that, he was still upset that he can't engineer the original situation.

OP posts:
rosesandflowers · 06/06/2018 10:32

Teens are often given a bit more leeway by there parents during exam time; that's a consideration issue, not an epilepsy one!

I think chores can be discussed after the exam period. She hasn't got to do anything until September after these exams.

It will have been a shock for him too and sometimes people don't react as well as you'd hope or expect them to.

That's what I'm hoping it is - just a poor reaction. He should be home by 2. Hopefully work should sort him out a bit.

Needing to be in control and getting off on being at the top of every game are not healthy or benign traits, they're an accident waiting to happen.

I get that.
He just likes succeeding and being in charge. Which isn't a problem. But it is when it impacts the parenting of our children or his relationship with me.

OP posts:
Quartz2208 · 06/06/2018 10:34

I agree I think he needs ways of coping with a situation that is out of his control

Did you post at the time of diagnosis and were on holiday at the time I remember him being v against the idea

CarefullyDrawnMap · 06/06/2018 10:35

I hope you can find a way to get through to him.

Andro · 06/06/2018 10:39

Add message | Report | Message poster rosesandflowers

You're being sensible, reasonable and fair OP - good luck convincing your DH. You may need Gin

rosesandflowers · 06/06/2018 10:47

Did you post at the time of diagnosis and were on holiday at the time I remember him being v against the idea

I didn't; this is my first post. In those days u didn't use Mumsnet, which is sad because I could have done with some support.

I hope you can find a way to get through to him.
Generally he's very reasonable.
Hopefully after this weird tantrum wears off we'll be able to discuss this.

OP posts:
downthestrada · 06/06/2018 10:47

I think he just felt very helpless when DD was diagnosed - and he was furious with himself for attributing it all to anxiety. And he couldn't do anything about it.

Maybe you could suggest that he doesn't further attribute to her anxiety and struggles just now, by forcing her.

rosesandflowers · 06/06/2018 10:58

Oh FFS! He's sent me a text message.

Hello princess,
Sorry for getting angry last night. I know it's not your fault you get emotional over these things and that obviously are having a difficult time what with [DD's name]'s illness. I shouldn't have taken my frustration out on you.
If it would make you feel better we can wait until after her exams are done for the cooking. Sorry to have put pressure on you, sweetheart.
DH

Oh, I'm absolutely livid! Infantilising, patronising, manipulative... oh, I could strangle him. I don't know if this is a face-saving way of backing down or he's absolutely delusional.

I haven't replied. This is the sort of behaviour he exhibited when we met. I can't believe he's reverting back to this condescending manipulative kind of thing.

I'm tempted to just write "fuck off" but he'll turn that into "poor dear can't handle her emotions" too.

I'm going to wait until I've calmed down and talk to him in a no nonsense fashion.

OP posts:
TheNoodlesIncident · 06/06/2018 11:01

it's not your fault you get emotional over these things Shock If my Dh said that to me I would go POSTAL. Glad you're keeping your head and holding back.

The thing that would annoy me most about this is that he didn't talk to you about your DD resuming chores and making meals, just sprang it on you both. That isn't teamwork and would feel very disrespectful to me...

downthestrada · 06/06/2018 11:06

I know it's not your fault you get emotional over these things and Sorry to have put pressure on you, sweetheart.

He's a professional manipulator!! I couldn't help but explain to him in the calmest way possible that I knew exactly what he was at.

rosesandflowers · 06/06/2018 11:06

If my Dh said that to me I would go POSTAL. Glad you're keeping your head and holding back.

It's good he didn't say it in conversation because my initial reaction would probably be to scream at him. How dare he!

Does anybody have any good ideas for what to text back or have experience with this kind of behaviour?
He was like this before, but we weren't in a relationship then.

OP posts:
ArnoldBee · 06/06/2018 11:07

So i would leave chores for exam time however please don't ban people from activities like cooking. You put things into place to make it safer and adapt however I appreciate that this can take time to adjust. It's very disheartening and damn right depressing to be banned from things just because your body works differently from everyone else's but your family will learn over time what adjustments can be made to make activities less risky.

downthestrada · 06/06/2018 11:07

Yes he is trying to save face and make it appear that you are the cause of the problem. If it would make you feel better

campion · 06/06/2018 11:10

he could have carried on locking the last year in a separate compartment labelled 'done', instead you're telling him that the 'difficult time' isn't over and 'normal' isn't here yet

I think this is spot on.At best he has a simplistic take on the impact of your Dd's epilepsy on all of you,that it is in the past and needs no further consideration.

The good news is that she's much better, functioning well and moving on. The 'grown up' news is that she may face further problems, treatment and that it's ok for you to be anxious about this at the same time as life going on in its sometimes messy way.

He may well be still processing things or is in some sort of denial if he's used to being in control. Or he doesn't like you overruling him. You do need to discuss this without him storming off.

Quartz2208 · 06/06/2018 11:11

You are not the one who got emotional or who he put pressure on

I’m sorry but I think you do have to make that v v clear

rosesandflowers · 06/06/2018 11:14

please don't ban people from activities like cooking.
Ah - sorry if this was unclear, but this was the consultant and not us. DD was not allowed to cook, cross roads or take the bus alone, bath/go to the toilet with the door locked, take caffeine or be flexible with her sleep schedule. There were other conditions but as she's got better most of them have relaxed.

OP posts:
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